2024-08-08T12:13:09-05:00 2024-01-31 721396621 CARR RIGGS & INGRAM LLC 4004 SUMMIT BLVD NE SUITE 800 ATLANTA GA 30319 990 2023-02-01 581943490 ALS UNITED OF GEORGIA INC ALSU 4046369909 227 SANDY SPRINGS PLACE SUITE D 3 SANDY SPRINGS GA 30328 SARAH EMBRO EXECUTIVE DIRECTOR 4046369909 2024-08-05 1 0 TIFFANY T ORR CPA P01559485 7703948000 2024-08-05 2023 2024-08-08 14:25:15Z X X SARAH EMBRO 227 SANDY SPRINGS PLACE SUITE D 304 SANDY SPRINGS GA 30328 1460168 0 X WWW.ALSGEORGIA.ORG X 1988 GA THE MISSION OF THE ORGANIZATION IS TO ENHANCE THE LIVES OF GEORGIANS LIVING WITH ALS AND THEIR FAMILIES BY PROVIDING PERSONALIZED CARE SERVICES, FOSTERING A SUPPORTIVE COMMUNITY, AND ADVANCING RESEARCH FOCUSED ON TREATMENTS AND A CURE. THE ORGANIZATION IS DEDICATED TO SERVING THOSE LIVING WITH ALS IN GEORGIA, ALONG WITH THEIR FAMILIES, BY PROVIDING DIRECT EDUCATION, LOANING MEDICAL EQUIPMENT, HOSTING SUPPORT GROUPS, PROVIDING FINANCIAL ASSISTANCE THROUGH A CARE GRANT REIMBURSEMENT PROGRAM, THE SALLY PANFEL IN-HOME CARE & RESPITE PROGRAM, AND THE PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM. 12 12 12 85 0 0 1487276 1149278 0 0 8688 44714 0 208250 1495964 1402242 406150 596225 0 0 667225 741257 0 0 213593 580895 439794 1654270 1777276 -158306 -375034 1659434 1144730 224893 85098 1434541 1059632 X THE MISSION OF THE ORGANIZATION IS TO ENHANCE THE LIVES OF GEORGIANS LIVING WITH ALS AND THEIR FAMILIES BY PROVIDING PERSONALIZED CARE SERVICES, FOSTERING A SUPPORTIVE COMMUNITY, AND ADVANCING RESEARCH FOCUSED ON TREATMENTS AND A CURE. 0 0 1288912 596225 CARE SERVICES -THE RELATIONSHIP BETWEEN THE CARE SERVICES TEAM AND THE PERSONS DIAGNOSED WITH ALS (PALS) AND THEIR FAMILY MEMBERS COMMENCE UPON DIAGNOSIS. THE GOAL OF THE PROGRAM IS TO ENSURE THAT INDIVIDUALS AND THEIR FAMILIES EXPERIENCE OPTIMAL EMOTIONAL FUNCTIONING GIVEN THE DEVASTATION OF THE DISEASE. OUR ATTEMPT TO SUCCESSFULLY IMPACT FAMILIES CAN BE OUTLINED WITHIN OUR EXISTING PROGRAMS: EDUCATION, KOSTIUK CARE GRANT, SUPPORT GROUPS, RICKY P. SWEAT EQUIPMENT LOANER & ASSISTIVE TECHNOLOGY PROGRAM, SALLY PANFEL IN-HOME CARE AND RESPITE PROGRAM, PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM, AND PATIENT CONSULTATIONS. INDIVIDUALS WHO ARE NEWLY DIAGNOSED OFTEN NEED TIME TO ABSORB THE IMPACT OF THEIR DIAGNOSIS, THEREFORE BASIC INFORMATION AND EDUCATION IS PROVIDED IMMEDIATELY BY ALS UNITED OF GEORGIA. THIS INFORMATION INCLUDES BUT IS NOT LIMITED TO THE DIAGNOSIS ITSELF, DISEASE TRAJECTORY, SUPPORT AND ONGOING RESEARCH. DURING FYE2024, ALS UNITED OF GEORGIA SAW 169 INDIVIDUALS & THEIR FAMILIES DIAGNOSED WITH ALS REGISTER WITH THE ORGANIZATION. ANNUALLY THE ORGANIZATION PROVIDES AN EDUCATIONAL SYMPOSIUM WHICH HIGHLIGHTS RESEARCH, SUPPORT AND EDUCATIONAL OPPORTUNITIES FOR PEOPLE LIVING WITH ALS, COMMUNITY PROVIDERS, AND SUPPORTERS. ALTHOUGH TO DATE THERE IS NO CURE FOR THIS DISEASE, ALS UNITED OF GEORGIA IS PASSIONATE ABOUT THE MISSION OF ONE DAY FINDING A TREATMENT AND ULTIMATELY A CURE.THE FINANCIAL HARDSHIP THAT FAMILIES INCUR AS THE RESULT OF AN ALS DIAGNOSIS CAN IMPACT THEIR QUALITY OF LIFE TREMENDOUSLY. FOR THOSE THAT MAY NEED ADDITIONAL HELP, THE KOSTIUK CARE GRANT PROGRAM STRIVES TO PROVIDE SOME RELIEF. THIS PROGRAM IS A REIMBURSEMENT PROGRAM THAT ASSISTS FAMILIES WITH EXPENSES THAT ARE NOT TRADITIONALLY COVERED BY PRIVATE INSURANCES, MEDICAID OR MEDICARE. IT WILL COVER EXPENSES RELATED TO HOME CARE ASSISTANCE (RESPITE), TRAVEL COSTS FOR ATTENDANCE TO AND FROM THE ALS CLINICS, HOME MODIFICATIONS, AUTO MODIFICATIONS AND COMMUNICATION DEVICES. RECIPIENTS MAY APPLY FOR AND RECEIVE UP TWO GRANTS PER YEAR IN THE AMOUNT OF $1,000 PER GRANT REQUEST. GRANTS ARE AWARDED TWICE A YEAR ON A FIRST COME FIRST SERVE BASIS AND WILL BE BASED ON AVAILABILITY OF FUNDS. DURING FYE 2024, $217,000 WAS AWARDED IN KOSTIUK CARE GRANT FUNDS, SERVING 150 INDIVIDUALS. THE SUPPORT GROUP PROGRAM PROVIDES PERSONS WITH ALS AND THEIR FAMILIES THE OPPORTUNITY TO CONNECT WITH OTHERS IN THE COMMUNITY WHO SHARE SIMILAR CHALLENGES AND NEEDS. THE GROUPS ARE DESIGNED TO PROVIDE EMOTIONAL AND PSYCHOSOCIAL SUPPORT AS WELL AS RESOURCES AND EDUCATION. KNOWING WHAT QUESTIONS TO ASK AND WHERE TO LOOK FOR RESOURCES IS VITAL. THE ORGANIZATION CURRENTLY CONDUCTS MONTHLY SUPPORT GROUPS THAT MEET THE NEEDS OF 159 COUNTIES IN THE STATE OF GEORGIA. THESE GROUPS ARE FACILITATED BY PROFESSIONALS AND COMMUNITY PARTNERS TO ENSURE MAXIMUM RESULTS. BECAUSE THE NEEDS OF CAREGIVERS AND CHILDREN CAN BE VERY SENSITIVE, THE ORGANIZATIONHAS DEVELOPED SPECIFIC GROUPS TO ADDRESS THOSE NEEDS. DURING FYE2024, 74 SUPPORT GROUPS WERE HELD OVER 9 LOCATIONS THROUGHOUT THE STATE, IMPACTING 858 INDIVIDUALS WHO PARTICIPATED & ATTENDED.AS THE DISEASE PROGRESSES, INDIVIDUALS WILL EXPERIENCE A DECLINE IN FUNCTIONING AS IT RELATES TO MOBILITY AND SPEECH. THESE CHALLENGES CAN IMPACT INDEPENDENCE AND QUALITY OF LIFE. IN SOME SITUATIONS, SPECIFIC MEDICAL AND COMMUNICATION DEVICES ARE REQUIRED BUT NOT COVERED BY PRIVATE INSURANCE, MEDICAID OR MEDICARE. THE EQUIPMENT LOANER PROGRAM PROVIDES SUCH EQUIPMENT TO PEOPLE WITH ALS AT NO COST. THIS PROGRAM WORKS DILIGENTLY TO OBTAIN, THROUGH GRANT FUNDING OR PRIVATE DONATIONS, SUCH ITEMS THAT CAN ENSURE INCREASED INDEPENDENCE. ALS UNITED OF GEORGIA, IN PARTNERSHIP WITH COMMUNITY PROVIDERS, COLLABORATE ON THE MAINTENANCE AND STORAGE OF ALL EQUIPMENT.90% OF THE CURRENT ALS COMMUNITY IN GEORGIA CONTINUES TO REMAIN IN THEIR HOME THROUGHOUT THE DISEASE PROCESS. THIS BECOMES INCREASINGLY DIFFICULT BECAUSE THEY WILL REQUIRE TOTAL ADL CARE FROM ADDITIONAL PROVIDERS. THIS SERVICE IS NOT COVERED BY MEDICARE OR PRIVATE INSURANCE COMPANIES. THE SALLY PANFEL IN-HOME CARE AND RESPITE PROGRAM PROVIDES PALS WITH UP TO 18 HOURS OF IN-HOME CARE PER WEEK. THE CARE IS PROVIDED BY LICENSED COMMUNITY PARTNERS OF THE ALS UNITED OF GEORGIA AND ELIGIBILITY IS BASED ON A NEEDS ASSESSMENT. DURING FYE 2024, 12,777 IN-HOME CARE HOURS WERE PROVIDED THROUGH THIS PROGRAM.ACCESS TO QUALITY CARE AND RESEARCH CAN BE CHALLENGING FOR THOSE IMPACTED BY ALS. AS MOBILITY DECLINES AND THE NEED FOR ASSISTIVE TECHNOLOGY INCREASES, PEOPLE WITH ALS FIND IT DIFFICULT TO ATTEND NEEDED APPOINTMENTS VIA TRADITIONAL MODES OF TRANSPORTATION. MEDICARE AND MEDICAID ARE VERY LIMITED REGARDING THE COVERAGE OF NON-EMERGENCY TRANSPORTATION. THE PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM IS FOCUSED ON ADDRESSING TRANSPORTATION NEEDS VIA: NON-EMERGENCY TRANSPORTATION, VAN RENTALS, VEHICLE MODIFICATION AND VOUCHERS. DURING FYE 2024, 126 TRANSPORTATION TRIPS WERE PROVIDED AND 37 VAN RENTALS WERE PROVIDED TO FAMILIES THROUGH THIS PROGRAM.INFORMATION IS VITAL TO PEOPLE WITH ALS. AS THE BODY DECLINES IT IS VERY IMPORTANT TO BE PRESENTED WITH REALISTIC EXPECTATIONS REGARDING THE DISEASE TRAJECTORY. SKILLED CARE SERVICE COORDINATORS ARE AVAILABLE TO PROVIDE ONGOING CONSULTATIONS THROUGH OUR CARE SERVICES CONSULTATION PROGRAM. THE ONGOING CONSULTATIONS PROVIDE THE OPPORTUNITY TO ASSESS, EDUCATE AND EMPOWER INDIVIDUALS AND THEIR FAMILIES TO MAKE INFORMED DECISIONS. THE COORDINATORS ARE ALSO VERY INSTRUMENTAL IN IDENTIFYING AND MAKING COMMUNITY REFERRALS. ALS UNITED OF GEORGIA IS THE CONNECTION BETWEEN WHAT IS NEEDED AND WHAT IS AVAILABLE FOR PEOPLE WITH ALS, THEIR FAMILIES, AND CAREGIVERS. IN FYE2024, THE CARE SERVICES COORDINATOR TEAM SERVED 592 INDIVIDUALS LIVING WITH ALS AND THEIR FAMILIES. 1288912 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 2 0 12 1 0 0 0 0 0 1 1 0 0 0 0 X 12 12 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 GA X X SARAH EMBRO 4046369909 227 SANDY SPRINGS PLACE SUITE D 304 SANDY SPRINGS GA 30328 PETER GLEICHMAN CHAIR 2.50 X X 0 0 0 JORDAN MYERS VICE CHAIR 1.00 X X 0 0 0 PATRICK WILLIS TREASURER 2.00 X X 0 0 0 MITZI HILL SECRETARY 0.50 X X 0 0 0 JOSHUA I BOSIN DIRECTOR 0.50 X 0 0 0 NED DOUTHAT DIRECTOR 0.50 X 0 0 0 HILLARY GARDNER DIRECTOR 0.50 X 0 0 0 HEATHER LARSON DIRECTOR 0.50 X 0 0 0 CHRISTINE MCKENZIE DIRECTOR 0.50 X 0 0 0 BILL NORDMARK DIRECTOR 1.00 X 0 0 0 MARK PANFEL DIRECTOR 1.00 X 0 0 0 KISHA MORRIS WESLEY DIRECTOR 0.50 X 0 0 0 SARAH EMBRO EXECUTIVE DIRECTOR 40.00 X 114103 0 14432 114103 0 14432 1 0 0 0 0 432233 717045 6195 1149278 42984 42984 1743 13 1730 1730 1730 57913 432233 57913 0 SETTLEMENT PROCEEDS 900099 208250 208250 208250 1402242 0 0 252964 30746 30746 565479 565479 128534 86278 17192 25064 482709 324017 64563 94129 13209 8867 1767 2575 70951 47626 9490 13835 45854 30779 6133 8942 115772 11577 92618 11577 17200 1720 13760 1720 41601 4160 33281 4160 23320 18194 1166 3960 96606 67624 4830 24152 72315 46331 10410 15574 20604 19574 1030 952 667 95 190 4175 2634 612 929 NATIONAL ALS ASSOCIATIO 30377 21607 3016 5754 OTHER EXPENSE 14808 0 14808 0 MERCHANT AND BANK FEE 2064 1032 0 1032 1777276 1288912 274771 213593 463652 293683 1115131 839845 10000 1750 413 8608 83766 83766 0 0 70238 844 1659434 1144730 153030 84254 71863 844 224893 85098 X 581321 307746 853220 751886 1434541 1059632 1659434 1144730 -375034 125 0 X X 0 1 X 1 0 X 1870915 1282768 1651746 1487276 1149278 7441983 1870915 1282768 1651746 1487276 1149278 7441983 1149811 6292172 10830 6090 1033 7461 42984 68398 76 3729 208250 212055 7722436 0.81480 0.86930 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 0 0 0 0 PART II-B, LINE 1: IN FISCAL YEAR 2024, THE ORGANIZATION'S PUBLIC POLICY INITIATIVES FOCUSED TO RAISE AWARENESS, ADVOCATE FOR ISSUES, AND SEEK FUNDING FOR ALS PATIENTS AND THEIR FAMILIES AT THE STATE AND FEDERAL LEVEL. IN WORKING TO ACHIEVE THESE GOALS, THE ORGANIZATION INCURRED $0 EXPENSES. GEORGIA ALS PATIENTS, VOLUNTEERS, STAFF AND BOARD MEMBERS MET WITH GEORGIA CONGRESSMEN & WOMEN VIRTUALLY THROUGH WEBINARS AND TELEPHONE CONFERENCE CALLS. 83766 83766 0 0 OPERATING LEASE LIABILITY 844 844 X 1486340 125 26060 26185 1460155 -57913 -57913 1402242 1861249 26060 57913 83973 1777276 0 1777276 PART X, LINE 2: UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE, THE ORGANIZATION IS EXEMPT FROM TAXES ON INCOME OTHER THAN UNRELATED BUSINESS INCOME. THE ORGANIZATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME. THE ORGANIZATION UTILIZES THE ACCOUNTING REQUIREMENTS ASSOCIATED WITH UNCERTAINTY IN INCOME TAXES USING THE PROVISIONS OF FASB ASC 740, INCOME TAXES. USING THAT GUIDANCE, TAX POSITIONS INITIALLY NEED TO BE RECOGNIZED IN THE FINANCIAL STATEMENTS WHEN IT IS MORE-LIKELY-THAN-NOT THE POSITIONS WILL BE SUSTAINED UPON EXAMINATION BY THE TAX AUTHORITIES. IT ALSO PROVIDES GUIDANCE FOR DERECOGNITION, CLASSIFICATION, INTEREST AND PENALTIES, ACCOUNTING IN INTERIM PERIODS, DISCLOSURE AND TRANSITION. AS OF JANUARY 31, 2024 AND 2023, THE ORGANIZATION HAS NO UNCERTAIN TAX POSITIONS THAT QUALIFY FOR RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. PART XI, LINE 4B - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE -57,913. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE 57,913. ALS WALK 490146 432233 57913 8983 38819 757 3903 5451 490146 432233 57913 8983 38819 757 3903 5451 57913 0 1 AUGUSTA ALS CLINIC - AUGUSTA UNIVERSITY HOSPITAL 1120 15TH STREET BP 4390 AUGUSTA GA 30912 581418202 501(C)(3) 12500 0 CASH CLINIC FINANCIAL SUPPORT EMORY ALS CENTER - EMORY UNIVERSITY HOSPITAL 1762 CLIFTON ROAD SUITE 1400 ATLANTA GA 30322 580566256 501(C)(3) 12500 0 CASH CLINIC FINANCIAL SUPPORT THE KOSTIUK ALS CARE GRANT PROGRAM - A FINANCIAL REIMBURSEMENT TO GEORGIA PATIENTS DIAGNOSED WITH ALS AND PLS TO ADDRESS NEEDS NOT COVERED BY TRADITIONAL INSURANCE, MEDICAID AND MEDICARE. 178 171623 THE PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM - TO ADDRESS THE TRANSPORTATION NEEDS OF INDIVIDUALS WHO HAVE BEEN DIAGNOSED WITH ALS. BECAUSE OF THE DEBILITATING NATURE OF THIS DISEASE, PALS ARE OFTENTIMES UNABLE TO UTILIZE BASIC FORMS OF TRANSPORTATION TO MEET THEIR DAILY NEEDS. 115 46331 THE SALLY PANFEL ALS IN-HOME CARE & RESPITE PROGRAM - TO PROVIDE PERSONS WITH ALS AND THEIR FAMILIES THE OPPORTUNITY TO RECEIVE IN HOME CARE AND RESPITE WHO CURRENTLY DO NOT HAVE THE FINANCIAL RESOURCES TO SECURE ASSISTANCE INDEPENDENT OF COMMUNITY SUPPORT. 50 332033 OTHER ASSISTANCE - EQUIPMENT LOAN PROGRAM, SUPPORT GROUPS AND OUTREACH EFFORTS 894 15492 PART I, LINE 2: THE ASSOCIATION MONITORS GRANTS THROUGH REVIEW OF INVOICES AND CONTINUED FOLLOW-UP WITH GRANT RECIPIENTS. ELIZABETH NORDMARK FAMILY MEMBER OF DIRECTOR BILL NORDMARK 91594 ELIZABETH NORDMARK WAS EMPLOYED BY THE ORGANIZATION. 0 FORM 990, PART VI, SECTION A, LINE 4 AS THE ORGANIZATION CHANGED ITS NAME & SEPARATED FROM THE NATIONAL ALS ASSOCIATION, IT FILED NEW ARTICLES OF INCORPORATION AND BYLAWS WHEN DOING SO. FORM 990, PART VI, SECTION B, LINE 11B A DRAFT OF FORM 990, WITH ALL APPLICABLE SCHEDULES, IS REVIEWED BY THE FINANCE COMMITTEE. AFTER ALL QUESTIONS AND COMMENTS HAVE BEEN ADDRESSED TO THE SATISFACTION OF THE COMMITTEE, THE FULL RETURN IS PRESENTED TO THE ENTIRE BOARD OF DIRECTORS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C EMPLOYEES AND DIRECTORS ARE REQUIRED TO ANNUALLY DISCLOSE ANY RELATED PARTY RELATIONSHIPS AND/OR CONFLICTS OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15 THE FINANCE AND EXECUTIVE COMMITTEE OF THE BOARD UTILIZES SALARY COMPARISON DATA PROVIDED BY THE NON PROFIT RESOURCE CENTER TO EVALUATE THE REASONABLENESS OF THE EXECUTIVE DIRECTOR'S COMPENSATION AND TO MAKE ANY RECOMMENDATIONS TO THE BOARD FOR POSSIBLE MODIFICATIONS IN PAY. FORM 990, PART VI, SECTION C, LINE 18 THESE DOCUMENTS ARE KEPT ON-HAND IN THE CORPORATE OFFICE AND ARE AVAILABLE UPON REQUEST. FORM 990, PART VI, SECTION C, LINE 19 AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE POSTED ON ORGANIZATION'S WEBSITE. HTTPS://ALSGEORGIA.ORG/WHO-WE-ARE/FINANCIAL-INFORMATION/ FORM 990, PART XII, LINE 2C: THERE ARE NO CHANGES IN PROCESS FROM THE PRIOR YEAR.