2024-07-10T13:03:51-05:00 2023-08-31 872525370 CITRIN COOPERMAN ADVISORS LLC 11400 WEST OLYMPIC BLVD 350 LOS ANGELES CA 90064 990 2022-09-01 943130081 EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION EPID 3109949237 2757 ANCHOR AVENUE LOS ANGELES CA 90064 PAUL JOSEPH CFO 3109949237 2024-07-09 1 PAUL JOSEPH 999009999 0 SHEILA MOGHIMI-KAMRAN P00170368 3104778355 2024-07-09 0 AAL1 IAL1 2022 2023-04-26 12:10:37Z PAUL JOSEPH 2757 ANCHOR AVENUE LOS ANGELES CA 90064 1468956 0 X WWW.EBMRF.ORG X 1990 CA SEE SCHEDULE O 5 5 0 0 0 0 294279 1369917 0 0 49206 99039 46435 -114836 389920 1354120 209006 300893 0 0 0 0 0 0 4541 16485 44914 225491 345807 164429 1008313 3800076 3859639 0 0 3800076 3859639 THE PRIMARY PURPOSE OF THE ORGANIZATION IS TO FUND MEDICAL RESEARCH TO FIND A CURE FOR EPIDERMOLYSIS BULLOSA. EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION FUNDS VARIOUS RESEARCH ORGANIZATIONS ACROSS THE UNITED STATES FOR CHILDREN'S HEALTH. 0 0 300893 300893 THE EBMRF IS DEDICATED TO FINDING A CURE FOR EPIDERMOLYSIS BULLOSA BY FUNDING THE BEST CUTTING EDGE AND INNOVATIVE RESEARCH AND SEEKING OUT NEW RESEARCHERS AND SCIENTISTS AT AMERICA'S TOP INSTITUTIONS. THROUGH OUR ONGOING JOINT FUNDING WITH EB RESEARCH PARTNERSHIP OF INDIVIDUAL RESEARCH STUDIES AND CLINICAL TRIALS AT ACCLAIMED UNIVERSITIES, 21 EB CLINICAL RESEARCH CONSORTIUM (EBCRC) SITES AND THROUGH OUR ANNUAL FUNDRAISERS, WE ARE COMMITTED TO FUNDING A CURE AND SUCCESSFUL TREATMENTS FOR EB. GRANTS ARE EVALUATED AND ONCE APPROVED, ARE FUNDED ON A 1 YEAR BASIS, AND ARE SUBJECT TO PROJECT MILESTONES. MULTI-YEAR GRANTS ARE REVIEWED ANNUALLY AND EVALUATED ON THEIR PROGRESS AND OUR AVAILABLE FUNDING. ALL GRANTS INCLUDE A 5% LIMIT ON INDIRECT COSTS. 300893 1 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 5 5 1 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 CA X PAUL JOSEPH 3109949237 2757 ANCHOR AVENUE LOS ANGELES CA 90064 X ANDREA PETT-JOSEPH PRESIDENT/EXECUTIVE DIRECTOR 5.00 X X 0 0 0 PAUL JOSEPH CHIEF FINANCIAL OFFICER 4.00 X X 0 0 0 MARC GURVITZ DIRECTOR 3.00 X 0 0 0 PERSIA FARDAD-FINN DIRECTOR 4.00 X 0 0 0 LYNN ANDERSON FOUNDER, PRESIDENT EMERITUS 1.00 X 0 0 0 0 0 0 0 0 0 0 0 1152423 217494 1369917 99039 99039 0 1152423 114836 -114836 -114836 1354120 0 0 -15797 296743 296743 4150 4150 13326 13326 12553 12553 496 496 751 751 1523 1523 TAXES & LICENSES 11724 11724 4541 4541 345807 300893 40373 4541 15918 85844 2203853 2729263 136555 549532 1443750 495000 3800076 3859639 0 0 X 3800076 3859639 3800076 3859639 3800076 3859639 1008313 -948750 0 X 0 0 0 X 1341538 535564 571133 294279 1369917 4112431 1341538 535564 571133 294279 1369917 4112431 318473 3793958 39032 37588 13406 21458 90039 201523 4313954 0.87950 X 0.77170 0.03350 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 PRIVATE CORPORATIONS 495000 F 495000 CONCERT 1152423 1152423 52341 62495 1152423 1152423 52341 62495 114836 -114836 1 COLUMBIA UNIVERSITY 116TH AND BROADWAY NEW YORK NY 10027 135598093 501(C)(3) 9589 0 RESEARCH PHOENIX CHILDRENS HOSPITAL 1919 EAST THOMAS ROAD MAIN BUILDING CLINIC F PHOENIX AZ 85016 860422559 501(C)(3) 116758 0 EB CLINICAL RESEARCH CONSORTIUM STANFORD UNIVERSITY 450 JANE STANFORD WAY STANFORD CA 94305 941156365 501(C)(3) 164627 0 RESEARCH 3 0 PART I, LINE 2: GRANTS ARE VIGOROUSLY EVALUATED PRE & POST DONATION VIA OUR MEDICAL ADVISORY BOARD IN CONJUNCTION WITH EACH INVESTIGATOR WITHIN OUR EBCRC CONSORTIUM PARTICIPATING IN A MONTHLY CONFERENCE CALL AND AN ANNUAL PUBLISHED REPORT (COVERING MILESTONES AND FULL ACCOUNTING OF GRANT EXPENDITURES). FORM 990, PART I, LINE 1, DESCRIPTION OF ORGANIZATION'S MISSION: TO FUND MEDICAL RESEARCH TO FIND A CURE FOR EPIDERMOLYSIS BULLOSA. EBMRF FUNDS VARIOUS RESEARCH ORGANIZATIONS ACROSS THE UNITED STATES FOR CHILDREN'S HEALTH. FORM 990, PART VI, SECTION A, LINE 2 PAUL JOSEPH AND ANDREA PETT-JOSEPH HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION DOES NOT HAVE A COMMITTEE WITH AUTHORITY TO ACT ON BEHALF OF THE BOARD. FORM 990, PART VI, SECTION B, LINE 11B ALL BOARD MEMBERS ARE PROVIDED WITH A COPY OF FORM 990 FOR REVIEW PRIOR TO FILING. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES THIS INFORMATION AVAILABLE TO THE PUBLIC UPON REQUEST.