2024-05-16T08:07:22-04:00 2023-12-31 990EZ 2023-01-01 871365230 THRIVE WITH PYRUVATE KINASE DEFICIENCY ORGANIZATION % Tamera Schryver THRI 6124017436 7801 95th St W Bloomington MN 55438 Conor Stoebner Treasurer 2024-05-16 2023 2023-04-26 12:10:37Z X https: thrivewithpkd.org X X 55029 X 54729 300 0 0 0 55029 1486 105 111 15038 16740 38289 -920 37369 X 5080 34702 0 0 4000 2667 9080 37369 10000 0 -920 37369 The organization's mission is to advocate educate and connect those with Pyruvate Kinase Deficiency a disorder that affects the red blood cells. This disease is very rare our organization provides resources to those affected by it by connecting patients with doctors who understand how to treat this rare disease. Thrive with PKD hosted a conference in Orlando Florida in 2022 with the intent of bringing together patients doctors and caregivers. Thrive with PKD is planning another conference for the summer of 2024 so all related conference expense relate to lagging expenses from 2022 or planning of the conference in 2024. 0 2312 Thrive with PKD has been attending several medical conferences as well as sponsoring certain representatives of various communities to attend said conferences. 0 5051 7363 Tamara Schryver President 10 0 0 0 Carl Lander International Collaboration Coordinator 2 0 0 0 Jason Blackman Record Keeper 2 0 0 0 Becky Herzog Patient Caregiver Outreach Director 7 0 0 0 Tara Paluilis Social Media Director 7 0 0 0 Conor Stoebner Treasurer 0.5 0 0 0 Jessica Keller Vice President 2 0 0 0 false false false false false 0 false false false false MN Conor Stoebner 4006 Grand Chevalle Pkwy Chaska MN 55318 6124017436 false false false false false false false false false false false NONE NONE true X 0 0 18225 144794 55029 218048 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 18225 144794 55029 218048 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 218048 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 18225 144794 55029 218048 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Part I, line 10 | Grants And Similar Amounts Paid:, Amount:| Lodging grant for representative from the Amish community to attend NORD Conference., $995| Travel grant for emergency travel due to hurricane after Thrive with PKD conference in Orlando., $491| Part I, line 16 | Other Expenses:, Amount:| Purchase of the scientific paper "Updates and advances in pyruvate kinase deficiency" by Rachel Grace Hanny Al-Samkari et al., $36| Speaker honorarium for Thrive with PKD conference in Orlando., $2000| Event for people with PKD in the MN WI and Iowa area held at Ferguson's Apple Orchard., $118| Registration for conferences related to PKD, $325| Bank and service charges., $25| Computer purchase for board member for related work., $1398| Fees related to hosting thrivewithpkd.org, $777| Membership dues paid in order to gain access to relevant and necessary medical data surrounding PKD., $826| Airfare for Thrive with PKD to attend various medical conferences related to PKD., $2182| Lodging for Thrive with PKD to attend various medical conferences related to PKD., $1625| Miscellaneous travel expenses such as meals and ride sharing., $71| Amortization of website., $1333| Various online software subscriptions related to bookkeeping video conferencing email distribution content creation and more., $4322| Part II, line 24 | Explanation:, BOYAmount:, EOYAmount:| We capitalized some costs of building a website which was designed by a board member in 2021. The board member did not bill the org - in kind contribution. Show net of accumulated amortization., $4000, $2667| Part II, line 26 | Explanation:, BOYAmount:, EOYAmount:| Our president gave the org a 10,000 dollar loan to cover conference costs at 0%. Was paid in full in early 2023., $10000, $0|