2024-05-15T16:19:58-04:00 2023-12-31 450527545 GBB & CO LLP 1150 GLENLIVET DR STE C-36 ALLENTOWN PA 181063122 990EZ 2023-01-01 462061070 PHACE SYNDROME COMMUNITY INC PHAC 6787443971 4514 CHAMBLEE DUNWOODY RD 450 ATLANTA GA 30339 PAUL BUTERA PRESIDENT 6787443971 2024-05-08 PAUL BUTERA 999009999 true TODD C NEWCOMER CPA CFE P01649806 4842230096 2024-05-08 2023 2023-04-26 12:10:37Z X X PHACESYNDROMECOMMUNITY.ORG X X 56069 X 53519 2550 56069 49143 308 50182 99633 -43564 175222 131658 175222 131658 175222 131658 175222 131658 X RESEARCH AND AWARENESS FOR PHACE SYNDROME. THE PHACE SYNDROME COMMUNITY HOSTED A TWO-DAY HYBRID MEETING FOR INDIVIDUALS AND FAMILIES AFFECTED BY PHACE SYNDROME. THE MEETING CONSISTED OF IN-PERSON MEDICAL TALKS BY CLINICIANS AND OTHER PROFESSIONALS, ON TOPICS MOST RELATED TO THE CONCERNS AND CHALLENGES THOSE WITH PHACE SYNDROME ENCOUNTER. THE MEETING WAS OFFERED IN-PERSON AND THROUGH ZOOM, WITH OPPORTUNITIES FOR ATTENDEES TO INTERACT WITH THE MEDICAL PROFESSIONALS AND OTHER MEETING ATTENDEES TO DISCUSS TREATMENT, DIAGNOSIS, AND OTHER CONCERNS THEY HAVE LIVING WITH PHACE SYNDROME. 54924 THE PHACE SYNDROME COMMUNITY HAS AN EMPHASIS ON RESEARCH, AND FINDING THE CAUSE OF PHACE SYNDROME. THROUGH SUPPORT OF THE PHACE SYNDROME REGISTRY AT STANFORD, BOTH FISCALLY AND THROUGH PROMOTION OF THE REGISTRY ON VARIOUS COMMUNICATION PLATFORMS, THE PHACE SYNDROME COMMUNITY CONTINUES TO BE IN THE FOREFRONT OF RESEARCH. THE PHACE SYNDROME REGISTRY SERVES TO PROVIDE INVESTIGATORS WITH INVALUABLE DATA, AS WELL AS RESEARCH OPPORTUNITIES AND TRAINING OF THE NEXT GENERATION OF PHYSICIAN SCIENTISTS. 6892 THE PHACE SYNDROME COMMUNITY HOSTS MONTHLY ZOOM MEETINGS FOR THOSE AFFECTED WITH PHACE SYNDROME, FAMILIES AND CAREGIVERS, IN ADDITION TO SUPPORTING FAMILIES THROUGH ONLINE SOCIAL MEDIA GROUPS. THE ACTIVE SOCIAL MEDIA PRESENCE PROVIDES AFFECTED INDIVIDUALS, FAMILIES AND CAREGIVERS, WITH UNBIASED INFORMATION ON THE CURRENT RESEARCH, DIAGNOSIS CRITERIA, AND TREATMENT OF PHACE SYNDROME. 18842 80658 PAUL BUTERA PRESIDENT 3.00 0 ANN BUNEO BOARD MEMBER 1.00 0 JEANNIE FUGLESTEN BINIEK BOARD MEMBER 1.00 0 JILL SALAS TREASURER 1.50 0 DAWN SIEGEL BOARD MEMBER 1.00 0 WHITNEY PACHECO BOARD MEMBER 1.00 0 ANNA KERR SECRETARY 1.50 0 BRITTA SCHEFFER BOARD MEMBER 1.00 0 DAWN DAVIS-STELLWAG BOARD MEMBER 1.00 0 false false false false false false false false false JILL SALAS 4514 CHAMBLEE DUNWOODY RD 450 ATLANTA GA 30339 6787443971 false false false false false false false false false false false NONE NONE true X 36804 37737 40724 46704 53519 215488 36804 37737 40724 46704 53519 215488 215488 1267 95 223 709 2550 4844 1267 95 223 709 2550 4844 38071 37832 40947 47413 56069 220332 0.97800 0.98890 0.02000 0.01000 X FORM 990-EZ, PART I, LINE 16 EXPENSES ADVERTISING AND PROMOTION 593 TECHNOLOGY AND WEBSITE COSTS 2,050 TRAVEL AND MEETINGS 1,292 CONFERENCE COSTS 44,022 INSURANCE 702 BANK & CREDIT CARD FEES 909 BUSINESS EXPENSES 614 TOTAL 50,182 FORM 990-EZ, PART III, LINE 28 THE PHACE SYNDROME COMMUNITY HOSTED A TWO-DAY HYBRID MEETING FOR INDIVIDUALS AND FAMILIES AFFECTED BY PHACE SYNDROME. THE MEETING CONSISTED OF IN-PERSON MEDICAL TALKS BY CLINICIANS AND OTHER PROFESSIONALS, ON TOPICS MOST RELATED TO THE CONCERNS AND CHALLENGES THOSE WITH PHACE SYNDROME ENCOUNTER. THE MEETING WAS OFFERED IN-PERSON AND THROUGH ZOOM, WITH OPPORTUNITIES FOR ATTENDEES TO INTERACT WITH THE MEDICAL PROFESSIONALS AND OTHER MEETING ATTENDEES TO DISCUSS TREATMENT, DIAGNOSIS, AND OTHER CONCERNS THEY HAVE LIVING WITH PHACE SYNDROME. FORM 990-EZ, PART III, LINE 29 THE PHACE SYNDROME COMMUNITY HAS AN EMPHASIS ON RESEARCH, AND FINDING THE CAUSE OF PHACE SYNDROME. THROUGH SUPPORT OF THE PHACE SYNDROME REGISTRY AT STANFORD, BOTH FISCALLY AND THROUGH PROMOTION OF THE REGISTRY ON VARIOUS COMMUNICATION PLATFORMS, THE PHACE SYNDROME COMMUNITY CONTINUES TO BE IN THE FOREFRONT OF RESEARCH. THE PHACE SYNDROME REGISTRY SERVES TO PROVIDE INVESTIGATORS WITH INVALUABLE DATA, AS WELL AS RESEARCH OPPORTUNITIES AND TRAINING OF THE NEXT GENERATION OF PHYSICIAN SCIENTISTS. FORM 990-EZ, PART III, LINE 30 THE PHACE SYNDROME COMMUNITY HOSTS MONTHLY ZOOM MEETINGS FOR THOSE AFFECTED WITH PHACE SYNDROME, FAMILIES AND CAREGIVERS, IN ADDITION TO SUPPORTING FAMILIES THROUGH ONLINE SOCIAL MEDIA GROUPS. THE ACTIVE SOCIAL MEDIA PRESENCE PROVIDES AFFECTED INDIVIDUALS, FAMILIES AND CAREGIVERS, WITH UNBIASED INFORMATION ON THE CURRENT RESEARCH, DIAGNOSIS CRITERIA, AND TREATMENT OF PHACE SYNDROME.