2024-02-26T13:30:35-07:00 2023-12-31 990 2023-01-01 461900752 SOFIA'S HOPE INC SOFI 3057986725 10106 SW 126 Street Miami FL 331764874 Linda Villena Treasurer 3052153800 2024-02-26 Linda Villena 999009999 1 1 11 1 AAL2 2023 2023-04-26 12:10:37Z Linda Villena 9081 SW 124 Street Miami FL 331764874 389336 0 X www.sofiashope.org X 2013 FL Sofia's Hope was inspired by the life and death of Sofia Blanco at the age of thirteen. And it is because of her and the over 17,000 children in the U.S. diagnosed every year with cancer that we will fight cancer by: increasing awareness of childhood cancer, and specifically that while more children are surviving their diagnosis, 95% of them are facing a significant side effect by the time they are 45 years old; providing programs for patients and families currently in the journey; and funding research in the area of pediatric cardio-oncology which studies the effects of treatments on these children's hearts. 9 9 0 40 0 0 153937 193107 0 0 5234 15532 158832 145333 318003 353972 42880 55000 0 0 3600 300 0 0 0 187620 270751 234100 326051 83903 27921 509354 605658 19450 64115 489904 541543 Sofia's Hope was inspired by the life and death of Sofia Blanco at the age of thirteen. And it is because of her and the over 17,000 children in the U.S. diagnosed every year with cancer that we will fight cancer by: increasing awareness of childhood cancer, and specifically that while more children are surviving their diagnosis, 95% of them are facing a significant side effect by the time they are 45 years old; providing programs for patients and families currently in the journey; and funding research in the area of pediatric cardio-oncology which studies the effects of treatments on these children's hearts. 0 0 100191 0 0 Treasured Moments: This program is made up of the simple things which may be overlooked by many, but which mean so much to those on the receiving end. It is providing clinics with lollipops, tissue boxes and fun band-aids. Small things that help patients and their parents deal with the anxiety and fear of getting pricked once more, wondering whether their child's counts are good enough for treatment, etc. It's the toys for the Treasure Chest where patients can choose a toy of their liking after having their port accessed or any other in-office procedure. It is End of Treatment and birthday celebrations, hotel stays and mini wishes like family trips to sports games, dance classes for teen patient who loves ballet, etc. Program also includes annual Holiday distribution of Target gift cards as well as the provision of grocery, gas, transportation, Amazon, etc. gift cards for families facing financial hardship as well as the distribution of bald American Girl dolls and Build-A-Bear emotional support teddy bears. 55000 55000 0 Research Grant: Fund pediatric cancer research and advances in treatment, especially as it relates to their long-term effects (including prevention, detection, and treatment). $55,000 in Grants given to University of New York, to help fund research in pediatric cardio-oncology. 38973 0 0 Art Program: The focus of our art programs is to provide distraction therapy so that time moves a little faster for these amazing warriors. As such, we provide project kits which patients can do wherever they are as all materials and instructions are included. We have partnered with Nailed It DIY who provides these kits on a monthly basis so we can distribute to Child Life Specialists at Nicklaus, Holtz, Joe DiMaggio, Palm Beach, The Salah Foundation Children's Hospitals as well as to the Miami Cancer Institute (MCI) at Baptist Health and UM/alex's place. Program also includes in-person visits by our partners ClayWorld Studio and Nailed It DIY on a monthly or bi-monthly basis. We also provide virtual and in-person art therapy sessions by a Licensed Creative Arts Therapist and Certified Child Life Specialist. We believe the time these children spend with each artist and/or project eases their suffering if even for a little while. For one to two hours, they can almost forget where they are and why they are there. 17261 0 0 Healing Arts Program: A licensed Art Therapist conducts group and individual sessions at Baptist/MCI, UM/alex's place, Holtz and Nicklaus Children's Hospitals. Art therapy helps patients of all ages, their parents and siblings explore and express their feelings of sadness, isolation, loneliness, frustration, and anger. All normal sentiments, considering they are now living in the world of childhood cancer. However, when these are not expressed it can lead to further depression and negative outcomes. Through what are considered non-threatening activities like drawing, painting, pastels, print making, collage, sculpture and art journals that include writing, patients can share their state of mind in a relaxed setting and gain support and insight from the art therapist. Sofia's Hope has teamed up with Eliane Cristian, a Licensed Creative Arts Therapist and Certified Child Life Specialist with twenty-three years of experience at the Cohen Children's Medical Center in NYC to offer this program. 16971 0 0 Scholarship Program: In recognition of Sofia and her sister, Gabriela's love of learning as well as their achievements in academic excellence in school, Sofia's Hope is proud to offer annual scholarship opportunities for both childhood cancer survivors and their siblings. Sofia did not have the chance to graduate high school or attend college so through these scholarships Sofia's Hope aspires to help make that dream a reality for other childhood cancer survivors and their siblings. 14414 0 0 Family Kits: The organization provides newly diagnosed kits to patients. The kits includes items that will aid the patient and their family as they proceed on the journey of hospital visits and treatments. Items such as pill cutter, blankets and wipes are a great help to the patients and their families. The kits are distributed to all 3 hospitals the foundation works with. 9442 0 0 Adopt a Zoo Animal: The patients are given a family zoo pass for the year along with a plush animal toy. The patients and their families can enjoy the zoo together all year. 7491 0 0 Awareness Campaign: In support of Childhood Cancer Awareness month (September) Sofia's Hope created an awareness program directed at the young people of our community. We believe it important for them to know the facts about childhood cancer and why increased funding for research is so important. As part of the program, a board-certified pediatric oncologist from Nicklaus Children's Hospital, a teen cancer survivor and a Sofia's Hope representative present to high school and middle school students in Miami. Presentations also include question and answer sessions. Our hope is that by providing the youth of our community with the right information in an age appropriate manner, it will inspire them to use their talents and power to support this cause and make a difference. 3867 0 0 Horse Camp: Kids attended a horse camp and got to ride horses, brush them, make art work and have lunch. The families of the kids were also invited so the everyone could have a stress free fun day. 69446 0 0 263610 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 10 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 0 0 0 0 0 0 X Linda Villena 3052153800 9081 SW 124 Street Miami FL 33176 Marta Blanco President 40 0 X X 300 0 0 Linda Villena Treasurer 2 0 X X 0 0 0 Silvia Stazio Secretary 2 0 X X 0 0 0 Jamie Doherty Vice President 2 0 X X 0 0 0 Sandra Bruno Officer 2 0 X X 0 0 0 Sandra Berenguer Officer 2 0 X X 0 0 0 Linda Martinez Officer 2 0 X X 0 0 0 Andres Hidalgo Officer 2 0 X X 0 0 0 Mariana De Michelle Officer 2 0 X X 0 0 0 300 0 0 0 0 0 0 0 0 0 46515 0 0 146592 4677 193107 0 15532 15532 0 0 0 0 0 0 0 0 0 0 0 0 0 0 180697 46515 35364 145333 0 145333 0 353972 15532 0 145333 X 55000 55000 300 300 3334 3334 60178 29938 30240 3764 3764 2090 1489 601 9968 9968 140 140 2162 2162 2799 2799 Bank Charges/Credit Card Fees/Licenses 4241 0 4241 0 Dues and Subscriptions 4228 0 4228 0 Program Expenses 176883 176883 0 0 Telephone 964 0 964 0 326051 263610 62441 0 11325 9153 367438 293777 130591 302728 509354 605658 188 5841 42000 19262 16274 19450 64115 X 0 0 0 0 489904 541543 489904 541543 509354 605658 27921 23718 0 0 0 0 X 0 0 0 X 72668 124741 139278 153937 193107 683731 178374 72290 129362 180587 180697 741310 251042 197031 268640 334524 373804 1425041 1425041 680 1002 709 5234 15532 23157 680 1002 709 5234 15532 23157 251722 198033 269349 339758 389336 1448198 0.98401 0.99318 0.01599 0.00682 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED R2UT D&D Event 69485 0 69485 0 0 0 0 0 4000 R2R 5K 66434 0 66434 0 0 0 0 0 13094 2 44778 0 44778 0 0 0 0 0 18270 180697 0 180697 0 0 0 0 0 35364 35364 145333 1 The Research Foundation for The State of New York PO Box 9 Albany NY 12201 141368361 501(c)3 55000 The purpose of this grant is to help fund research in pediatric cardio-oncology, specifically to provide funding support for a clinical research coordinator position and a medical editor who will assist with manuscript editing and development as well as formatting for the specific target journals and to help fund the Annual International Pediatric Cardio-Oncology Conference and the quarterly webinars leading up to it. 1 0 Schedule I, Part I, Line 2 The President and Board of Directors of the organization are in constant contact with the recipient of funds and receive a description of the use of the funds and related documents that illustrate how the funds are used. Form 990, Part VI, Section B, Line 11b The Directors reviewed and approved the Form 990 before it was filed. Form 990, Part VI, Section C, Line 19 Upon request, the organization made it's governing documents, conflict of interest policy and financial statements available to the public during the year. Form 990, Part IX, Line 11g Line 11g consists of Outside Contract Services.