2024-01-14T22:16:34-06:00 2022-06-30 390859910 BAKER TILLY US LLP 1000 COMMERCE PARK DR WILLIAMSPORT PA 17701 990 2021-07-01 463616405 COALITION AGAINST CHILDHOOD CANCER COAL 2158886524 PO BOX 41913 PHILADELPHIA PA 19101 STEVEN L PESSAGNO TREASURER 2158886524 2023-12-12 1 STEVEN PESSAGNO 999009999 JAIME L KUNTZ CPA P01272711 5703236023 2023-11-04 3 AAL1 IAL1 2021 2023-04-26 12:10:37Z X VICTORIA BUENGER PHD PO BOX 41913 PHILADELPHIA PA 19101 154363 0 X WWW.CAC2.ORG X 2013 PA COLLABORATIVE NETWORK TO SUPPORT & SERVE THE CHILDHOOD CANCER COMMUNITY. 13 13 1 200 0 0 228031 154296 0 0 122 67 0 0 228153 154363 0 0 0 0 13736 71495 0 0 15762 124357 118615 138093 190110 90060 -35747 266645 230898 0 0 266645 230898 X COALITION AGAINST CANCER (CAC2) IS A COLLABORATIVE NETWORK OF ORGANIZATIONS AND INDIVIDUALS WHO SUPPORT AND SERVE THE CHILDHOOD CANCER COMMUNITY. CONTINUED ON SCHEDULE O.THE MISSION OF CAC2 IS TO FOSTER AND SUSTAIN GREATER LEVELS OF COORDINATED ACTION, INFORMATION EXCHANGE, LEARNING, AND BROAD-BASED COLLABORATION THROUGH AGREED-UPON INITIATIVES IN FOUR AREAS: RESEARCH AND TREATMENT, FAMILY SUPPORT AND SURVIVORSHIP, AWARENESS BUILDING, AND ADVOCACY. CAC2 WORKS TO BENEFIT THE CHILDHOOD CANCER COMMUNITY - INCLUDING BOTH ITS MEMBERSHIP AND CHILDHOOD CANCER PATIENTS, SURVIVORS, AND THEIR FAMILIES - THROUGH GREATER LEVELS OF COORDINATED ACTION THAT LEVERAGE THE UNIQUE STRENGTHS AND EXPERTISE OF ITS MEMBERS, MINIMIZING WASTE OF PRECIOUS RESOURCES IN ORDER TO DRIVE BETTER OUTCOMES FOR CHILDHOOD CANCER PATIENTS AND THEIR FAMILIES. 0 0 106972 0 0 CAC2 CONTINUED TO UPDATE, EXPAND, AND PROVIDE SEVERAL KEY INFORMATIONAL RESOURCES FOR THE CHILDHOOD CANCER COMMUNITY. THESE INCLUDE HOPE PORTAL (HOPE-PORTAL.ORG) IN PARTNERSHIP WITH THE ASSOCIATION OF PEDIATRIC ONCOLOGY SOCIAL WORKERS (APOSW) AND THE ASSOCIATION OF PEDIATRIC HEMATOLOGY/ONCOLOGY NURSES (APHON) AND CHILDHOOD CANCER FACT LIBRARY, WHICH IS A WIDELY CITED AND TRUSTED SOURCE OF FACTS AND DATA ON PEDIATRIC CANCERS AND THEIR IMPACT ON PATIENTS, SURVIVORS, AND THEIR FAMILIES. IN ADDITION, CAC2 CONTINUES TO PARTICIPATE IN THE INTERNATIONAL CANCER RESEARCH PARTNERSHIP, COLLABORATING TO PROVIDE FUNDING DATA IN A CENTRAL REPOSITORY OF PEDIATRIC CANCER RESEARCH STUDIES AS AN EFFECTIVE MEANS TO ASSESS FUNDING PRIORITIES AND GAPS. CONTINUED ON SCHEDULE O.THIS VALUABLE TOOL ALSO HELPS TO RAISE AWARENESS FOR CHILDHOOD CANCER RESEARCH PROJECTS, INCLUDING THE POTENTIAL FOR CO-FUNDING PARTNERSHIPS.THE CAC2 WEBINAR SERIES FEATURED 6 OFFERINGS TO ITS MEMBERSHIP AND INVITED GUESTS; TOPICS INCLUDED: BEST PRACTICES IN SERVING FAMILIES IMPACTED BY PEDIATRIC CANCERS; TRAINING IN HOW TO EVALUATE PROGRAMS; CO-MORBIDITIES OF SURVIVING CHILDHOOD CANCER; VENTURE PHILANTHROPY FOR CHILDHOOD CANCER FOUNDATIONS.THE CAC2 ANNUAL SUMMIT RETURNED TO AN IN-PERSON CONFERENCE IN 2022, HOSTED AT CHILDREN'S HOSPITAL OF PHILADELPHIA AND BRINGING TOGETHER APPROXIMATELY 150 CAC2 MEMBERS AND GUESTS TO SET PRIORITIES FOR COLLABORATIVE PROJECTS IN THE NEAR TERM.CAC2 DEVELOPED A PLATFORM AND TOOLKIT THAT ORGANIZES ADVOCATES, DATA, AND RESOURCES TO FACILITATE STAKEHOLDER COLLABORATION FOR STATE-LEVEL CANCER ACTION PLANS, ANALYZING CANCER PLANS FOR ALL 50 STATES AND IDENTIFYING OPPORTUNITIES FOR BETTER CHILDHOOD CANCER REPRESENTATION IN THE STATE PLANS.COLLABORATING WITH A LEADING BIOETHICIST, CAC2 PRESENTED FINDINGS AT SIOP FROM A WHITE PAPER ON CULTIVATING ETHICALLY SUSTAINABLE RELATIONSHIPS WHEN NONPROFITS FUND PEDIATRIC CANCER CLINICAL TRIALS. THE RESEARCH SUBSEQUENTLY WAS PUBLISHED IN THE HIGHLY RESPECTED JOURNAL PEDIATRIC BLOOD & CANCER.CAC2 LAUNCHED THREE NEW COLLABORATIVE PROJECTS IN 2022: FOUNDATION MATCH (SEARCHABLE WEB-BASED PLATFORM TO ENABLE CAC2 CHILDHOOD CANCER ORGANIZATION MEMBERS EXPLORE CO-FUNDING OPPORTUNITIES TO FUND RESEARCH WHILE AVOIDING DUPLICATION OF EFFORT AND SPEND); BETTER TOGETHER: SURVIVORSHIP CONNECTION (SEARCHABLE DATABASE TO PROVIDE CHILDHOOD CANCER SURVIVORS AND RELEVANT STAKEHOLDERS WITH PROGRAMS AND RESOURCES TO ADDRESS THE VARIOUS CHALLENGES FACED BY CHILDHOOD CANCER SURVIVORS AND THEIR FAMILIES; AND THE SURVIVORSHIP TOOLKIT (COMPREHENSIVE RESOURCES FOR CHILDHOOD CANCER SURVIVORS, THEIR FAMILIES, AND THEIR HEALTHCARE PROFESSIONALS IN THE AREAS OF EDUCATION PLANNING, INSURANCE AND FINANCES, PHYSICAL HEALTH MANAGEMENT, PSYCHOSOCIAL WELL-BEING, TRANSITIONING TO ADULTHOOD, AND WELLNESS BEHAVIORS). 106972 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 10 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 X 13 13 0 0 0 0 1 1 1 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CO CT FL GA HI IL KS KY LA ME MD MA MI MN MS MO NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI DC X X STEVEN L PESSAGNO TREASURER 2158886524 700 S CLIFTON STREET PHILADELPHIA PA 191471978 X AMY WEINSTEIN BOARD CHAIR 15.00 X X 0 0 0 AMY GODKIN BOARD VICE CHAIR 12.00 X X 0 0 0 MARIAH FORSTER OLSON SECRETARY 12.00 X X 0 0 0 CAITLIN BARRETT DIRECTOR 5.00 X 0 0 0 SARAH BARTOSZ DIRECTOR 5.00 X 0 0 0 JEREMY BLILER DIRECTOR 8.00 X 0 0 0 GINGER DIAMOND DIRECTOR 5.00 X 0 0 0 JESS KEAN DIRECTOR 5.00 X 0 0 0 ANGELA LEE DIRECTOR 5.00 X 0 0 0 KIM MACNEILL DIRECTOR 5.00 X 0 0 0 GINNY MCCLEAN DIRECTOR 8.00 X 0 0 0 ANN RAMER DIRECTOR 5.00 X 0 0 0 ROBIN FRENCH DIRECTOR 5.00 X 0 0 0 VICTORIA BUENGER PHD PRESIDENT EMERITUS, EX-OFFICIO 35.00 X 63000 0 0 STEVEN L PESSAGNO TREASURER, EX-OFFICIO 12.00 X 0 0 0 MANDY SPIELVOGLE POWELL MANAGING DIRECTOR (BEG. 04/2021) 40.00 X 47068 0 0 110068 0 0 0 0 0 0 0 90802 63494 154296 67 67 154363 0 0 67 66150 33737 32413 5345 5345 10265 10265 1646 1646 7650 7650 10057 10057 1769 1769 COLLABORATION INITIATIV 60574 60574 GRANT DEVELOPMENT 15762 15762 WEBSITE / MEMBER HUB 10892 10892 190110 106972 67376 15762 9824 5582 256821 224707 609 266645 230898 0 0 X 213038 159608 53607 71290 266645 230898 266645 230898 -35747 0 X 1 X 0 1 0 X 102972 102897 120118 228031 154296 708314 102972 102897 120118 228031 154296 708314 87442 620872 190 283 312 122 67 974 709288 0.87530 0.86490 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X X X 0 0 0 0 0 0 0 0 0 FORM 990, PAGE 1, PART B: THIS FORM 990 IS AMENDED TO REPORT COMPENSATION PAID TO THE PRESIDENT EMERITUS ON PART VII SECTION A FOR THE CALENDAR YEAR 2021. FORM 990, PART VI, SECTION A, LINE 1A THE EXECUTIVE COMMITTEE SHALL BE COMPOSED OF THE OFFICERS OF THE CORPORATION. THE EXECUTIVE COMMITTEE SHALL BE AUTHORIZED TO ACT FOR THE BOARD BETWEEN ITS REGULAR MEETINGS. EXCEPT AS OTHERWISE PROVIDED BY THESE BYLAWS OR BY RESOLUTION OF THE BOARD, THE EXECUTIVE COMMITTEE SHALL HAVE AND MAY EXERCISE ALL OF THE POWERS AND AUTHORITY OF THE BOARD IN THE MANAGEMENT OF THE CORPORATION. FORM 990, PART VI, SECTION A, LINE 6 THE CORPORATION SHALL HAVE TWO CLASSES OF VOTING MEMBERS (THE "VOTING MEMBERS"), DENOTED AS ORGANIZATION MEMBERS AND INDIVIDUAL MEMBERS. THE CORPORATION SHALL ALSO HAVE THREE CLASSES OF NON-VOTING MEMBERS (THE "NON-VOTING MEMBERS"), DENOTED AS ASSOCIATE MEMBERS, STUDENT MEMBERS, AND SUPPORTING MEMBERS. TO BE ELIGIBLE FOR MEMBERSHIP AS AN ORGANIZATION MEMBER, AN ENTITY MUST BE (A) A CHILDHOOD CANCER ORGANIZATION OR COALITION, OR (B) A NONPROFIT, TAX-EXEMPT ORGANIZATION WITH A PRIMARY INTEREST IN CHILDHOOD CANCER ISSUES. ORGANIZATION MEMBERS SHALL APPOINT A REPRESENTATIVE TO ATTEND MEETINGS OF THE MEMBERS AND VOTE THEREIN (THE ORGANIZATION REPRESENTATIVE") BY PROVIDING WRITTEN NOTICE OF THE APPOINTMENT TO THE CORPORATION. EACH INDIVIDUAL MEMBER SHALL BE A NATURAL PERSON AT LEAST 18 YEARS OF AGE WHO NEED NOT BE A RESIDENT OF PENNSYLVANIA. TO BE ELIGIBLE FOR MEMBERSHIP AS AN INDIVIDUAL MEMBER, AN INDIVIDUAL MUST NOT BE SERVING CURRENTLY ON THE BOARD OF DIRECTORS OR ON THE PAID STAFF OF ANY ORGANIZATION MEMBER. INDIVIDUALS WHO ARE INELIGIBLE TO BE INDIVIDUAL MEMBERS BECAUSE THEY ARE EITHER CURRENTLY ON THE BOARD OF DIRECTORS OR ON THE PAID STAFF OF AN ORGANIZATION MEMBER ARE ELIGIBLE FOR MEMBERSHIP AS AN ASSOCIATE MEMBER. EACH ASSOCIATE MEMBER SHALL BE A NATURAL PERSON AT LEAST 18 YEARS OF AGE WHO NEED NOT BE A RESIDENT OF PENNSYLVANIA. TO BE ELIGIBLE FOR MEMBERSHIP AS A STUDENT MEMBER, AN INDIVIDUAL MUST BE A STUDENT WITH CURRENT AND VALID STUDENT IDENTIFICATION CREDENTIALS. EACH STUDENT MEMBER SHALL BE A NATURAL PERSON WHO NEED NOT BE A RESIDENT OF PENNSYLVANIA. NONPROFIT AND FOR-PROFIT ORGANIZATIONS THAT DO NOT QUALIFY AS ORGANIZATION MEMBERS SHALL BE ELIGIBLE FOR MEMBERSHIP AS SUPPORTING MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A THE BOARD SHALL CONSIST OF NO FEWER THAN SEVEN (7) AND NO MORE THAN TWENTY-ONE (21) PERSONS, DIVIDED INTO THREE EQUAL CLASSES. THE TERM OF OFFICE OF ONE CLASS SHALL EXPIRE ON THE 30TH DAY OF JUNE IN EACH YEAR. EACH CLASS SHALL BE ELECTED BY THE VOTING MEMBERS ENTITLED TO ELECT DIRECTORS FOR TERMS OF THREE (3) YEARS, EXCEPT IN CASE OF A VACANCY IN ANY CLASS, IN WHICH CASE THE VACANCY SHALL BE FILLED FOR THE BALANCE OF THE TERM OF SUCH CLASS. FORM 990, PART VI, SECTION A, LINE 7B MEMBERS VOTE ON AND EITHER APPROVE OR REJECT COLLABORATIVE PROJECT APPROVALS. FORM 990, PART VI, SECTION B, LINE 11B THE BOARD MEMBERS RECEIVE A COPY OF THE DRAFT AND ARE GIVEN TIME TO REVIEW AND ASK QUESTIONS BEFORE THE RETURN IS FINALIZED. FORM 990, PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST POLICY IS HANDED OUT AND SIGNED BY EVERY BOARD MEMBER ANNUALLY AT THE JUNE BOARD MEETING. THE SECRETARY WILL COLLECT ALL SIGNED STATEMENTS FOR FILE. FORM 990, PART VI, SECTION B, LINE 15A CAC2 ESTABLISHED A LEADERSHIP TRANSITION PLANNING TEAM THAT LED THE IMPLEMENTATION FOR CHANGES TO THE ORGANIZATIONAL STRUCTURE OF CAC2, INCLUDING THE SEARCH, RECRUITMENT, AND HIRING OF THE MANAGING DIRECTOR. THE TEAM WAS CO-LED BY TWO BOARD MEMBERS, INCLUDED THREE ADDITIONAL BOARD MEMBERS, AND WAS ADVISED BY THE THEN-PRESIDENT OF CAC2. THE TEAM ESTABLISHED A SEARCH COMMITTEE SPECIFICALLY FOCUSED ON THE MANAGING DIRECTOR ROLE; THAT COMMITTEE UTILIZED BENCHMARKS FOR NON-PROFIT ORGANIZATIONS BOTH WITHIN AND EXTERNAL TO THE CHILDHOOD CANCER COMMUNITY TO SET THE SALARY RANGE FOR THE POSITION. THE COMMITTEE LOOKED AT SALARIES FOR ROLES SUCH AS EXECUTIVE DIRECTOR, OPERATIONS DIRECTORS, AND PROJECT DIRECTORS, AS THE RESPONSIBILITIES FOR THE CAC2 MANAGING DIRECTOR ROLE CONSTITUTED A HYBRID OF SUCH ROLES. FINALLY, THE COMMITTEE LOOKED AT GEOGRAPHIC DIFFERENCES IN SALARY RANGES. THE SEARCH COMMITTEE MADE RECOMMENDATIONS ON THE SALARY RANGE AND THE SALARY FOR THE SELECTED CANDIDATE TO THE LEADERSHIP TRANSITION PLANNING TEAM, WHICH, IN TURN, CONFIRMED THE RECOMMENDATIONS FOR REFERRAL TO THE BOARD OF DIRECTORS FOR FINAL DECISION-MAKING. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PAGE 7, PART VII: THE AMOUNTS BELOW SUMMARIZE THE CHANGES MADE TO PART VII, COLUMN D FOR OFFICER COMPENSATION. ORIGINAL RETURN AMENDED RETURN LINE 1, COLUMN D $47,068 $63,000 LINE 2, COLUMN D $0 $47,068 FORM 990, PAGE 8, PART VII THE AMOUNTS BELOW SUMMARIZE THE CHANGES MADE TO PART VII, COLUMN D FOR OFFICER COMPENSATION. ORIGINAL RETURN AMENDED RETURN LINE 1B, COLUMN D $47,068 $110,068 LINE 1D, COLUMN D $47,068 $110,068