2024-11-18T16:02:14-06:00 2023-12-31 831513565 JOSEPH GIANNASCO CPALLC 420 JERICHO TPKE JERICHO NY 117531344 990 2023-01-01 261915425 NEW YORK CITY HEMOPHILIA CHAPTER INC NEWY 9177223887 500 7TH AVENUE MAILROOM 8A NEW YORK NY 10018 DR REGINA LEGERE-BUCCELLATO PRESIDENT 9177223887 2024-11-18 1 0 P00444582 5169338300 2024-11-15 X 2023 2024-10-15 13:58:12Z DR REGINA LEGERE-BUCCELL 556960 0 X NYHEMOPHILIA.ORG X 2008 NY THE NEW YORK CITY HEMOPHILIA CHAPTER (NYCHC) IS A NOT FOR PROFIT 501(C)(3) ORGANIZATION INCORPORATED IN 2009 TO ADDRESS THE NEEDS OF THE BLEEDING DISORDER COMMUNITY IN THE GREATER NEW YORK CITY AREA. NYCHC'S MISSION IS TO FOSTER A SENSE OF COMMUNITY AMONGST PEOPLE AFFECTED BY BLEEDING DISORDERS, AND TO ASSIST THEM AND THEIR FAMILIES THROUGH INFORMATION, EDUCATION, ADVOCACY, SHARED EXPERIENCES AND COMMUNITY SUPPORT. 9 9 0 0 0 0 0 0 308832 556945 396 15 252716 0 561944 556960 0 0 0 0 279602 293596 0 0 26513 409290 365003 688892 658599 -126948 -101639 374289 250873 43213 21436 331076 229437 SEE SCHEDULE O 0 0 443927 556960 SEE SCHEDULE O N/A N/A 443927 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 NY X JEREMY GRIFFIN 2123822974 315 WEST 36TH STREET NEW YORK NY 10018 DR REGINA LEGERE-BUCCELLATO BOARD MEMBER 1.00 X 0 0 0 MIKE GULBIN BOARD MEMBER 1.00 X 0 0 0 JULIA GOLIER BOARD MEMBER 1.00 X 0 0 0 JEFF LOUISOT BOARD MEMBER 1.00 X 0 0 0 KURT WIESENMAIER BOARD MEMBER 1.00 X 0 0 0 ERIN CIRELLI PRESIDENT 1.00 X 0 0 0 BRIAN DIXON VICE PRESIDENT 1.00 X 0 0 0 ALICE ARAPSHIAN SECRETARY 1.00 X 0 0 0 DANIELLA MARCELLI TREASURER 1.00 X 0 0 0 JEREMY GRIFFIN EXECUTIVE DIRECTOR 40.00 X 155000 0 0 155000 0 0 1 0 1 0 0 OTHER PROGRAM SERVICE 516645 516645 NEWSLETTER ADVERTISING 541800 29800 29800 ADVOCACY 10500 10500 556945 15 15 556960 556960 0 0 255455 207633 24753 23069 38141 31001 3696 3444 18581 18581 5433 5433 17832 17832 23346 23346 4871 4871 OTHER PROGRAMS EXPENSES 138529 138529 OUTSIDE SERVICES 73600 73600 FOOD AND ENTERTAINMENT 28504 28504 RENT 12518 12518 41789 38547 3242 658599 443927 188159 26513 283358 151174 86505 97505 3706 1474 720 720 374289 250873 20554 9373 1800 1800 20859 10263 43213 21436 X 331076 229437 331076 229437 374289 250873 -101639 0 X 0 0 0 X 0 0 0.00000 0.00000 X 0 OTHER LIABILITIES 10263 10263 0 0 0 0 0 0 0 0 0 JEREMY GRIFFIN EXECUTIVE DIRECTOR 155000 0 0 0 0 0 0 0 0 0 155000 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B ORGANIZATION'S PROCESS TO REVIEW FORM 990 FINANCIAL STATEMENT AND TAX RETURN DRAFT FORWARDED TO EXECUTIVE DIRECTOR WHO CONDUCTS A COMPLETE AND THOROUGH REVIEW AND SENDS BACK CORRECTIONS (IF APPLICABLE) TO THE CPA. UPON RECEIVING THESE CORRECTIONS BACK, THE FINANCIAL AND TAX RETURN IS FORWARDED TO THE BOARD OF DIRECTORS TO CONDUCT THEIR OWN REVIEW AND ANY COMMENTS ARE ADDRESSED BY THE CPA AND RETURNED TO THE BOARD FOR FINAL APPROVAL. FORM 990, PART VI, SECTION B, LINE 12C THE ANNUAL NEW YORK CITY HEMOPHILIA WALK RAISES AWARENESS OF BLEEDING DISORDERS WITHIN AND OUSTIDE OF THE COMMUNITY. THE ANNUAL NEW YORK CITY HEMOPHILIA WALK RAISES AWARENESS OF BLEEDING DISORDERS WITHIN AND OUTSIDE OF THE COMMUNITY. IT ATTRACTS THOUSANDS OF PARTICIPANTS, GARNERS MEDIA ATTENTION, AND RAISES CRITICAL FUNDS FOR PROGRAMS AND SERVICES. NYCHC EDUCATION DAY BRINGS PEOPLE AFFECTED BY BLEEDING DISORDERS TOGETHER FOR CRITICAL LEARNING, SHARING, AND SUPPORT. THE DAY ATTRACTS MORE THAN 300 AFFECTED INDIVIDUALS. SESSION TOPICS INCLUDE MEDICATION ADHERENCE, DEALING WITH INHIBITORS (IMMUNE RESPONSE TO MEDICATION), ISSUES FACING WOMEN WITH BLEEDING DISORDERS, ACCESS TO CARE INCLUDING INSURANCE, LIFE TRANSITION ISSUES FOR AFFECTED INDIVIDUALS AND CARETAKERS, AND MANY MORE. THIS EDUCATION LEADS TO BETTER ACCESS TO CARE, BETTER SELF-CARE, AND IMPROVED OUTCOMES. NYCHC ALSO PROVIDES PROGRAMS AND SERVICES DESIGNED TO PROVIDE SUPPORT TO SPECIFIC POPULATIONS WITH THE COMMUNITY. FOR EXAMPLE, DAD IN ACTION IS GEARED TOWARDS DADS IN THE COMMUNITY WHO EITHER HAVE A BLEEDING DISORDER OR HAVE CHILDREN WITH A BLEEDING DISORDER; CONNECTIONS IS GEARED TOWARDS FAMILIES WHO ARE EITHER NEW TO HEMOPHILIA, NEW TO BLEEDING DISORDERS, OR BOTH FORM 990, PART VI, SECTION C, LINE 19 NO DOCUMENTS AVAILABLE TO THE PUBLIC.