2024-11-14T15:00:48-05:00 2023-12-31 383270278 O'BRIEN RIVAMONTE SLATE & SCHULTE PC 25800 NORTHWESTERN HWY STE 1100 SOUTHFIELD MI 48075 990 2023-01-01 550899427 MITOACTION INC MITO 8886486228 PO BOX 310 NOVI MI 48376 KIRA MANN CEO 8886486228 2024-11-13 true false MICHAEL J SCHULTE P00965338 2483532800 2024-11-13 2023 2024-10-15 13:58:12Z KIRA MANN PO BOX 310 NOVI MI 48376 894538 false X WWW.MITOACTION.ORG X 2005 TO IMPROVE THE QUALITY OF LIFE TODAY FOR PEOPLE AFFECTED BY MITOCHONDRIAL DISEASE THROUGH SUPPORT, EDUCATION, EMPOWERMENT, AND ADVOCACY INITIATIVES AND TO ENGAGE THE COMMUNITY FOR BETTER CARE AND AWARENESS ABOUT THE DISEASE. 9 8 4 0 284894 566950 0 21616 40340 108490 146789 415000 754079 42000 0 0 165020 184934 0 49154 271809 335953 478829 520887 -63829 233192 804636 1077866 20981 22788 783655 1055078 X TO IMPROVE THE QUALITY OF LIFE TODAY FOR PEOPLE AFFECTED BY MITOCHONDRIAL DISEASE THROUGH SUPPORT, EDUCATION, EMPOWERMENT, AND ADVOCACY INITIATIVES AND TO ENGAGE THE COMMUNITY FOR BETTER CARE AND AWARENESS ABOUT THE DISEASE. false false 313847 OUTREACH AND EDUCATION PROGRAMS WHICH IMPROVE THE PATIENT OR FAMILY'S UNDERSTANDING OF MITOCHONDRIAL DISEASE AND WHCIH EDUCATE BOTH THE GENERAL AND THE MEDICAL COMMUNITY, IMPROVE THE PATIENT'S QUALITY OF LIFE AND EMPOWER THE PATIENT / PARENT TO BE AN ADVOCATE IN THEIR CASE. MITOACTION'S INITIATIVES IN THIS AREA INCLUDE AN AWARENESS WALK, FREE EDUCATIONAL DVD'S AND SCHOOL ADVOCACY RESOURCES, WEEKLY SUPPORT GROUPS, MONTHLY EDUCATIONAL LECTURE SERIES. 39234 PATIENT & FAMILY SUPPPORT - MITOACTION STRIVES TO OFFER SUPPORT & PRACTICAL RESOURCES AT NO COST TO EVERY INDIVIDUAL OR CAREGIVER AFFECTED BY MITOCHONDRIAL DISEASE. THESE INITIATIVES HELP PATIENTS AND FAMILIES DEAL WITH DIAGNOSIS OF MITOCHONDRIAL DISEASE TODAY AND OFFER ASSISTANCE IN NAVIGATING THE MEDICAL SYSTEM, SCHOOL, COMMUNITY OR WORKPLACE. MITOACTION'S RESOURCES INCLUDE "MITO 411" A TOLL-FREE PEER SUPPORT HOTLINE; MONTHLY INTERNATIONAL TELECONFERENCES, FAMILY SOCIALS AND SUPPORT GROUPS; ACCESS TO EXPERT INFORMATION VIA WEB AND TELECONFERENCING, PODCASTS AND VIDEOS, DEDICATED ONLINE SUPPORT TOOLS AND FORUMS FOR PARENTS, TEENS AND ADULTS IN ORDER TO REDUCE ISOLATION AND FEAR OF LIVING WITH THE DISEASE. 39234 MITOACTION HAS CREATED SPECIAL PARTNERSHIPS WITH THREE US CAMPS AS PART OF OUR MISSION TO MAKE SUMMER CAMP A POSSIBILITY FOR EVERY CHILD WHO SUFFERS FROM MITOCHONDRIAL DISEASE. EACH OF THESE CAMPS IS PART OF THE NATIONALLY ACCREDITED SERIOUSFUN CAMP NETWORK, AND OFFERS A SAFE, MEDICALLY SUPERVISED PROGRAM THAT ALLOWS MITO KIDS TO BE FREE AND SAFE, MEET NEW FRIEDNS, HAVE FUN, FORGET ABOUT THEIR TUBES AND MEDS, AND "JUST BE KIDS". THROUGH OUR PARTNERSHIPS, THESE CAMPS ARE WELL-EQUIPPED TO SHAPE A PROGRAM FOR OUR MITO KIDS BY UNDERSTANDING THE UNIQUE CHALLENGES OF MITOCHONRIAL DISEASE. THE MATTHEW HARTY CAMP FUND HELPS ENSURE THESE KIDS AND FAMILIES CAN HAVE THIS INCREDIBLE CAMP EXPERIENCE COMPLETELY FREE OF CHARGE. 392315 true true false false false false false false false false true false false false false false true false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 6 0 true 4 true false false false false false false false false X 9 8 false false false false false false false true true false false true true true true true true true true false MA X X KIRA MANN 8886486228 PO BOX 310 NOVI MI 48376 KIRA MANN CEO 40.00 X 112856 0 0 PHILIP BORDEN FORMER PRESI 2.00 X 0 0 0 NATASHIA CHEATHAM MEMBER 2.00 X 0 0 0 SAAD DINNO MEMBER 2.00 X 0 0 0 JESSIE FEIN MEMBER 2.00 X 0 0 0 PAUL HARTY PRESIDENT 10.00 X 0 0 0 JOHN KELLY MEMBER 2.00 X 0 0 0 GORDON RUSSELL VICE PRESIDE 5.00 X 0 0 0 ALLEN WILLIAMS MEMBER 2.00 X 0 0 0 112856 1 false false false 566950 566950 40340 40340 287248 140459 146789 754079 40340 X 140007 96605 21001 22401 44927 31000 6739 7188 135131 92639 24471 18021 10098 9961 137 54477 52335 2142 3184 3184 MEMBERSHIP COMMUNICATION 51305 51305 PROGRAM COSTS 38015 38015 OFFICE SUPPLIES 16120 1157 14963 MERCHANT / BANK FEES 10397 10387 10 17226 8911 6771 1544 520887 392315 79418 49154 203740 392900 148018 212719 1923 63004 63004 452878 465497 4827 804636 1077866 20981 22788 20981 22788 X 230086 422951 553569 632127 783655 1055078 804636 1077866 233192 38231 X false true true false X 301198 755712 178970 284894 566950 2087724 301198 755712 178970 284894 566950 2087724 2087724 40 277 247 21616 40340 62520 2150244 1180454 0.97090 0.98830 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 63004 63004 754079 754079 754079 520887 520887 520887 EVENTS 287248 287248 140459 287248 287248 140459 140459 146789 FORM 990 - ORGANIZATION'S MISSION TO IMPROVE THE QUALITY OF LIFE TODAY FOR PEOPLE AFFECTED BY MITOCHONDRIAL DISEASE THROUGH SUPPORT, EDUCATION, EMPOWERMENT, AND ADVOCACY INITIATIVES AND TO ENGAGE THE COMMUNITY FOR BETTER CARE AND AWARENESS ABOUT THE DISEASE. FORM 990, PAGE 6, PART VI, LINE 11B THE EXECUTIVE DIRECTOR REVIEWS AND SIGNS THE FORM 990 BEFORE IT IS FILED. ADDITIONALLY, THE EXECUTIVE DIRECTOR FORWARDS A PDF VERSION OF THE FORM 990 TO THE GOVERNING BOARD PRIOR TO FILING AND THE FORM 990 IS DISCUSSED BY THE GOVERNING BOARD AT THE NEXT MOST OPPORTUNE BOARD MEETING. FORM 990, PAGE 6, PART VI, LINE 12C THE BOARD IS REQUIRED TO ANNUALLY REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY. FORM 990, PAGE 6, PART VI, LINE 15A THE PRESIDENT OF MITOACTION PERFORMED THE REVIEW AND SALARY ANALYSIS OF THE EXECUTIVE DIRECTOR BASED ON EDUCATION, EXPERIENCE, AND COMPARABILITY DATA. COMPENSATION FOR THE EXECUTIVE DIRECTOR WAS DETERMINED BY THE INDEPENDENT BOARD OF DIRECTORS BASED ON THIS COMPARABILITY INFORMATION TO DETERMINE FAIR COMPENSATION FOR THIS POSITION. THE EXECUTIVE DIRECTOR'S PERFORMANCE AND SALARY WAS DISCUSSED AND APPROVED AT ONE OF THE BOARD OF DIRECTOR MEETINGS IN WHICH THE EXECUTIVE DIRECTOR WAS NOT IN ATTENDANCE AND IS DOCUMENTED IN THE MINUTES OF THAT MEETING. FORM 990, PAGE 6, PART VI, LINE 15B SAME AS 15A. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION PROVIDES ACCCESS TO THE FORM 990 ON ITS WEBSITE. FINANCIAL STATEMENTS, FORM 990 AND MASSACHUSETTS FORM PC ARE AVAILABLE ON THE MASSACHUSETTS ATTORNEY GENERAL'S WEBSITE. ALL OTHER INFORMATION IS AVAILABLE UPON WRITTEN REQUEST. FORM 990, PART IX, LINE 11G PROFESSIONAL FEES 11,940 7,575 0 PROFESSIONAL FEES 1,492 0 0 PROFESSIONAL FEES 1,492 0 0 CONTRACTORS 61,283 16,654 17,763 CONTRACTORS 7,661 0 0 CONTRACTORS 7,661 0 0 PAYROLL SERVICE FEES 888 242 258 PAYROLL SERVICE FEES 111 0 0 PAYROLL SERVICE FEES 111 0 0 TOTAL 92,639 24,471 18,021