2024-10-23T09:18:29-04:00 2023-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990PF 2023-01-01 842291780 The Stiff Person Syndrome Research STIF 8621 Burdette Rd Bethesda MD 20817 Tara Zier President 7032182178 2024-10-23 true true John Mullins P01429307 2027706371 2024-10-23 2023 2024-10-15 13:58:12Z X X 1000989 X 827713 2974 830687 0 14534 3599 187359 1520 4736 15755 227503 0 0 0 0 227503 0 0 603184 0 0 425447 978469 978469 21813 5378 21813 21813 500 500 207 207 430825 1000989 1000989 10350 22686 64192 74542 22686 X 89460 714536 266823 263767 356283 978303 430825 1000989 356283 603184 18836 978303 978303 0 0 0 0 false false false false false false false false true MD true false true false false true httpsstiffperson.org The Foundation 7032182178 8621 Burdette Rd Bethesda MD 20817 false false false false false false false false false false false false false false false false false false false false false Tara Zier 8621 Burdette Rd Bethesda MD 20817 President 40.00 0 0 0 Dan Robson 8621 Burdette Rd Bethesda MD 20817 Treasurer until 1223 2.00 0 0 0 Carla Robson 8621 Burdette Rd Bethesda MD 20817 Secretary until 1223 1.00 0 0 0 Jim Weiss 8621 Burdette Rd Bethesda MD 20817 Director 24.00 0 0 0 Lara Vujovic 8621 Burdette Rd Bethesda MD 20817 Secretary as of 1223 1.00 0 0 0 Helena Zec 8621 Burdette Rd Bethesda MD 20817 Director 1.00 0 0 0 Vidyashankar Krishnan 8621 Burdette Rd Bethesda MD 20817 Treasurer as of 1223 1.00 0 0 0 Elaine Webster 8621 Burdette Rd Bethesda MD 20817 Director 20.00 0 0 0 NONE 0 NONE Registry The SPS International Patient Registry & Natural History Study provides researchers with uniform and updated data from SPS patients 52568 Awareness In 2023 we raised awareness through our communication channels including email social media and website and co-hosting an SPS Symposium 44474 0 504550 0 504550 0 504550 7568 496982 24849 24849 24849 24849 24849 0 24849 49064 39310 88374 24849 24849 63525 0 63525 45904 39310 Tara Zier None X 0 0 14 2974 2974 2974 false false false false false false false false false false X X 1 Amy Schiller 270 N Addison Ave Elmhurst IL 60126 5000 X 2 Brendan Harrison Cooney 315 S Kenmore Ave Elmhurst IL 60126 5000 X 3 Elaine Webster 3419 Saint Louis Ave Minneapolis MN 55416 6792 X 4 Jim Weiss 405 Jamesborough Dr Pittsburgh PA 15238 10560 X 5 Jorge Rios 44340 Premier Plz Ste 200 Ashburn VA 20147 8109 X 6 Larry Lowe 4256 Raleigh Rd Chesapeake VA 23321 13953 X 7 Mollie Baumer 1015 1st St Manhattan Beach CA 90266 249827 X 8 Piper Sandler 800 Nicollet Mall Suite 900 Minneapolis MN 55402 5000 X 9 Richard Clapp 295 Grande Way Apt 903 Naples FL 34110 5413 X 10 Steve and Margie Hull 303 N Spring Ave La Grange Park IL 60526 5000 X 11 Tara Zier 8621 Burdette Rd Bethesda MD 20817 122578 X 12 Zimbrick of Madison 1601 West Bellaire Highway Madison WI 53713 5000 X 13 American Online Giving Foundation 40 East Maine Street Suite 887 Newark DE 19711 6104 X 14 Arjun Kashmag Foundation 406 Jamesborough Dr Pittsburgh PA 15238 5000 X 15 Cooperative Impact Lab 315 Flatbush Avenue 304 Brooklyn NY 11217 6000 X 16 Fidelity Charitable PO Box 770001 Cincinnati OH 45277 25000 X 17 Silicone Valley Community Fdn 444 Castro Street Suite 140 Mountain View CA 94041 200000 X Accounting Fees 3599 0 0 0 Legal Fees 14534 0 0 0 Other Assets 0 207 207 Advertising & Marketing 265 0 0 0 Insurance 570 0 0 0 Information Technology 14920 0 0 0 Adjustment to tie to PY 990 18836 Other Prof Fees 187359 0 0 0 Silicon Valley Community Foundation 801 Jefferson Avenue Redwood City CA 94063