2024-09-30T14:45:26-05:00 2023-12-31 471863710 DONOVAN ROSEMAN & RENFRO LLC 12412 POWERSCOURT DRIVE STE 35 ST LOUIS MO 63131 990 2023-01-01 455308117 THE SNOW FOUNDATION SNOW 6364484134 PO BOX 50224 CLAYTON MO 63105 STEPHANIE GEBEL PRESIDENT 4026941354 2024-09-25 1 1 KIM R RENFRO P00281600 3143942104 2024-09-25 2023 2024-10-15 13:58:12Z STEPHANIE GEBEL PO BOX 50224 CLAYTON MO 63105 501988 0 X WWW.THESNOWFOUNDATION.ORG X 2012 MO PROVIDE FINANCIAL SUPPORT FOR WOLFRAM SYDROME RESEARCH. 6 4 0 8 0 0 313382 489988 0 0 -1065 0 -14801 -12553 297516 477435 167942 38764 0 0 30000 38000 0 0 7163 84732 148109 282674 224873 14842 252562 351722 603694 894 304 350828 603390 X THE SNOW FOUNDATION IS A COLLECTIVE VOICE FOR WOLFRAM SYNDROME PATIENTS, WORKING TOWARDS A CURE FOR WOLFRAM SYNDROME AND DEVELOPING NOVEL THERAPIES FOR DIABETES, VISION LOSS, HEARING LOSS AND NEURODEGENERATION.WOLFRAM SYNDROME SUPPORTS AND COORDINATES INTERNATIONAL COLLABORATIVE RESEARCH EFFORTS. THE FOUNDATION ALSO PROVIDES VALUABLE INSIGHT, RESOURCES, AND SUPPORT TO THE PATIENTS AND THEIRFAMILIES. THIS EMPOWERS THEM WITH THE KNOWLEDGE NECESSARY TO PARTICIPATE IN THEIR CARE AND POSITIVELY IMPACT THEIR FUTURE. 0 0 177963 38764 THE FOUNDATION SUPPORTS AND COORDINATES INTERNATIONAL COLLABORATIVE RESEARCH EFFORTS. THE FOUNDATION IS FOCUSED ON FUELING KNOWLEDGE, SPEEDING BETTER TREATMENTS AND SYMPTOM MANAGEMENT THERAPIES, AND DRIVING ENHANCEMENTS IN THE HEALTH CARE DELIVERY FOR WOLFRAM SYNDROME PATIENTS.THE FOUNDATION ALSO ENCOURAGES THE ENTIRE WOLFRAM SYNDROME COMMUNITY TO COME TOGETHER AND SHARE COMMON LIFE EXPERIENCES, EDUCATION AND MUTUAL AID. BY PROVIDING THESE CRITICAL RESOURCES AND SUPPORT SERVICES, THE FOUNDATION ENABLES WOLFRAM SYNDROME PATIENTS, THEIR FAMILIES AND CAREGIVERS TO POWERFULLY ADVOCATE FOR WHAT THEY NEED, WHEN AND HOW THEY NEED IT. 177963 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 1 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 6 0 1 0 0 0 0 0 0 1 1 0 0 0 0 X 6 4 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 1 1 0 X THE SNOW FOUNDATION 6364484134 PO BOX 50224 CLAYTON MO 63105 STEPHANIE S GEBEL PRESIDENT 40.00 X X 20000 0 0 TOD STEPHENS SECRETARY 1.00 X X 0 0 0 ROBERT HAGGERTY TREASURER 2.00 X X 0 0 0 SAAD NASEER DIRECTOR MEDICAL ADVISOR 8.00 X X 0 0 0 JACK THOMAS SNOW DIRECTOR COMMUNICATIONS 2.00 X 0 0 0 PATRICIA M GIBILISCO DIRECTOR PATIENT ADVOCACY 5.00 X 18000 0 0 38000 0 0 0 0 0 0 0 118767 371221 489988 12000 118767 24553 -12553 -12553 477435 0 0 -12553 X 16500 16500 22264 22264 38000 32000 3000 3000 6251 6251 62746 53000 8847 899 5238 5238 5668 5461 207 3605 3605 25680 23606 2074 25248 25248 1824 1824 1740 1740 PATIENT ADVOCACY 5345 5345 WEBSITE MAINTENANCE 3249 3249 BANK FEES 1515 532 983 224873 177963 39747 7163 347775 600219 12372 8897 3947 3475 351722 603694 894 304 894 304 X 350828 603390 350828 603390 351722 603694 252562 0 X 0 0 0 X 295308 171082 285057 313382 501988 1566817 295308 171082 285057 313382 501988 1566817 1566817 1566817 1566817 1.00000 0.88520 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 12372 8897 3475 3475 1 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 GRANTS TO RECIPIENTS LOCATED IN THE REGION RESEARCH GRANTS 16264 0 0 0 0 0 0 16264 0 16264 EUROPE (INCLUDING ICELAND & GREENLAND) MEDICAL RESEARCH 16264 WIRE 0 CASH EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM MEDICAL RESEARCH 6000 WIRE 0 CASH 0 0 0 0 0 0 PART I, LINE 2: AS A SCIENTIFIC RESEARCH FOUNDATION, THE SNOW FOUNDATION IS COMMITTED TO SUPPORTING RESEARCH AND WORKING TOWARDS A CURE FOR WOLFRAM SYNDROME. MANAGEMENT AND THE GOVERNING BOARD OF DIRECTORS CONSIDER POTENTIAL RESEARCH PROGRAMS AND SELECT WHICH PROGRAMS TO FUND AS GRANT MONIES ARE AVAILABLE. GRANT FUNDS ARE DISBURSED DIRECTLY TO THE ORGANIZATIONS WITH DEMOSTRATED PROGRAMS IN PLACE TO FURTHER MISSION RELATED RESEARCH. GOLF SHOOTOUT 130767 118767 12000 4631 8330 8593 2999 130767 118767 12000 4631 8330 8593 2999 24553 -12553 1 WASHINGTON UNIVERSITY SCHOOL OF MEDICINE CAMPUS BOX 1157 ONE BROOKINGS DR ST LOUIS MO 63130 431519670 501 C 3 0 16500 CASH PRILENIA RESEARCH PART I, LINE 2: MANAGEMENT AND THE GOVERNING BOARD OF DIRECTORS CONSIDER POTENTIAL RESEARCH PROGRAMS AND SELECT WHICH PROGRAMS TO FUND AS GRANT MONIES ARE AVAILABLE. GRANT FUNDS ARE DISBURSED DIRECTLY TO THE ORGANIZATIONS WITH DEMOSTRATED PROGRAMS IN PLACE TO FURTHER MISSION RELATED RESEARCH. STEPHANIE GEBEL FAMILY MEMBER OF JACK THOMAS SNOW 20000 CONTRACTOR 0 NCG SAAD NASEER IS PARTNER IN THIS PARTNERSHIP 53000 CONTRACTOR 0 SCHEDULE L, PART IV, BUSINESS TRANSACTIONS INVOLVING INTEREST PARTIES STEPHANIE GEBEL IS A FAMILY MEMBER OF JACK THOMAS SNOW, DIRECTOR OF COMMUNICATIONS. FORM 990, PART VI, SECTION A, LINE 2 STEPHANIE S GEBEL, PRESIDENT AND JACK THOMAS SNOW, DIRECTOR OF COMMUNICATIONS ARE SIBLINGS. FORM 990, PART VI, SECTION B, LINE 11B PRESIDENT REVIEWS FORM 990. COPIES ARE AVAILABLE FOR BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 12C MANAGEMENT, THE GOVERNING BOARD OF DIRECTORS, AND VOLUNTEERS ARE REQUIRED TO SIGN A CONFLICT OF INTEREST ACKNOWLEDGEMENT AND DISCLOSURE STATEMENT ANNUALLY. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR MANAGEMENT WAS DETERMINED BY THE GOVERNING BOARD AND SET A REASONABLE MARKET RATE AFTER THOROUGH MARKET RESEARCH. THE FOUNDATION DOES NOT PRESENTLY COMPENSATE OTHER KEY EMPLOYEES. IF SUCH PERSONS ARE COMPENSATED IN THE FUTURE, A SIMILAR POLICY WILL BE IMPLEMENTED TO APPROVE COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G BUSINESS REGISTRATION FEES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 10. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 10. DIRECT EXPENSE FOR GRANTS: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 899. TOTAL EXPENSES 899. RESEARCH FUNDING: PROGRAM SERVICE EXPENSES 53,000. MANAGEMENT AND GENERAL EXPENSES 8,837. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 61,837.