2024-09-12T09:19:23-05:00 2023-12-31 561131459 Stancil PC 4909 Windy Hill Drive Raleigh NC 27609 990 2023-01-01 920598936 Hidradenitis Suppurativa Foundation Inc HIDR 9193780707 964 High House Road 3064 Cary NC 27513 BRENT HAZELETT CHIEF EXECUTIVE OFFICER 9193780707 2024-09-12 1 0 David Piscorik P01440747 9198721260 2024-09-10 2023 2024-08-08 14:25:15Z BRENT HAZELETT 964 High House Road 3064 Cary NC 27513 1078743 0 X www.hs-foundation.org X 2022 NC THE HIDRADENITIS SUPPURATIVA FOUNDATION (HSF) IS A NONPROFIT PUBLIC BENEFIT CORPORATION DEDICATED TO IMPROVING THE QUALITY OF LIFE AND QUALITY OF CARE FOR INDIVIDUALS AND FAMILIES AFFECTED BY HIDRADENITIS SUPPURATIVA (HS). THE HSF FOSTERS AND ENCOURAGES WORLDWIDE RESEARCH BY DEVELOPING AND SUPPORTING AN INTERDISCIPLINARY FAMILY OF SCIENTISTS AND PHYSICIANS DEVOTED TO STUDYING THE MOLECULAR AND CELLULAR BASIS OF HS, IN ORDER TO DEVELOP AND DELIVER MORE EFFECTIVE FORMS OF TREATMENT AND PREVENTATIVE MEASURES FOR THOSE WITH THIS DEBILITATING AND EMINENTLY CHRONIC DISEASE. 16 16 1 40 0 0 574862 637160 598777 414320 5546 27263 0 0 1179185 1078743 109000 300501 0 0 225000 267602 0 0 23010 805182 676973 1139182 1245076 40003 -166333 1229178 1268561 81962 270751 1147216 997810 THE MISSION OF THE HS FOUNDATION IS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY HS THROUGH ADVOCACY, EDUCATION AND RESEARCH. 0 0 251948 290000 The Eighth Annual Symposium on Hidradenitis Suppurativa Advances (SHSA) was held October 13-15, 2023, in Phoenix, Arizona. Co-organized with the Canadian HS Foundation (CHSF), over 270 attendees from ten countries participated in the event, including 36 patients and over 40 medical students. The latest advancements in HS treatment and research were presented, including the submission of over 100 abstracts. 300501 300501 Over $280,000 in grant funding was provided through three HSF programs. The Danby Grant provided five grants totaling over $100,000, while the Translational Grant Program provided two grants totaling $150,000. Finally, the HSF funded its first ever HS fellowship through a partnership with the Dermatology Foundation for $30,000. The grants all fund research and researchers focused on the field of HS. 215182 50750 The HS Foundation held its third annual educational event for dermatology residents, called HS Academy. The purpose of the event is to educate the next generation of practicing dermatologists about the latest advancements in diagnosis, pathogenesis, epidemiology, and comorbidities, as well as medical and procedure-based treatments for Hidradenitis Suppurativa through lecture, break-out sessions, and case-based studies with renowned experts and patient faculty. The event takes place over the course of three days and all expenses for attendees, including travel, is completely covered by the Foundation. 187163 73570 187163 73570 954794 1 1 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 4 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 1 0 0 0 NC X Brent Hazelett 9193780707 964 High House Road 3064 Cary NC 27513 ILTEFAT HAMZAVI MD IMMEDIATE PAST PRESIDENT 1.00 X 0 0 0 JOSLYN R SCIACCA KIRBY MD PRESIDENT 3.00 X X 0 0 0 HADAR LEV-TOV MD VICE PRESIDENT 1.00 X X 0 0 0 MARTIN OKUN MD SECRETARY 1.00 X X 0 0 0 ATHENA GIERBOLINI DIRECTOR 1.00 X 0 0 0 JENNIFER HSIAO MD DIRECTOR 1.00 X 0 0 0 CHRISTOPHER SAYED MD DIRECTOR 1.00 X 0 0 0 HALEY NAIK MD DIRECTOR 1.00 X 0 0 0 MICHELLE LOWES MBBS PHD DIRECTOR 1.00 X 0 0 0 AMIT GARG MD DIRECTOR 1.00 X 0 0 0 BARRY RESNIK MD DIRECTOR 1.00 X 0 0 0 STEPHANIE GOLDBERG MD DIRECTOR 1.00 X 0 0 0 VIVIAN SHI MD TREASURER 1.00 X X 0 0 0 STEVEN DAVELUY MD DIRECTOR 1.00 X 0 0 0 AFSANEH ALAVI MD DIRECTOR 1.00 X 0 0 0 DONNA ATHERTON DIRECTOR 1.00 X 0 0 0 GINETTE OKOYE MD DIRECTOR 1.00 X 0 0 0 BRENT HAZELETT CHEIF EXECTIVE OFFICER 45.00 X 211000 0 6770 211000 0 6770 1 0 1 0 0 637160 637160 CONFERENCE FEES 900099 346489 346489 PROJECTS 900099 67831 67831 414320 27263 27263 1078743 414320 0 27263 294384 294384 6117 6117 217770 76531 118229 23010 49832 49832 1225 1225 14385 14385 1430 1430 65300 65300 2972 2972 6022 6022 36906 29525 7381 537910 537910 1527 1527 Dues and Subscriptions 6130 5641 489 Taxes and Licenses 1714 1714 Miscellaneous 1452 1452 1245076 954794 267272 23010 346320 691865 27954 4661 489321 128400 13439 40946 352144 402689 1229178 1268561 81962 270751 81962 270751 X 1147216 997810 1147216 997810 1229178 1268561 -166333 16927 0 X X 1 X 0 0 0 X 337800 422453 526644 574862 637160 2498919 122269 17906 144983 598777 414320 1298255 460069 440359 671627 1173639 1051480 3797174 0 0 0 3797174 717 4447 2362 5546 27263 40335 717 4447 2362 5546 27263 40335 5055 5055 460786 444806 679044 1179185 1078743 3842564 0.98820 0.99390 0.01050 0.00440 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 Charles Schwab - Long Term Investments 402689 F 402689 X Part X, Line 2: The Foundation is a not-for-profit organization and is exempt from income taxes under Section 501(c)(3) of the Internal Revenue Code. Accordingly, no provision for income taxes has been made in the accompanying financial statements. The Foundation has evaluated their income tax positions and has determined that they have no uncertain tax positions. The Foundation is not currently under examination by the Internal Revenue Service or the State of North Carolina. 1 Emory University 201 Dowman Dr Atlanta GA 30322 580566256 501(c)(3) 95000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. Regents of the University of Minnesota 200 SE Oak St Minneapolis MN 55455 416007513 501(c)(3) 75000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. Brigham & Womens Hospital 75 Francis St Boston MA 02115 042312909 501(c)(3) 20000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. Yale University Yale University New Haven CT 06520 060646973 501(c)(3) 20000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. Mary Hitchcock Memorial Hospital 1 Medical Center Dr Lebanon NH 03766 020222140 501(c)(3) 20000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. UMass Chan Medical School 55 N Lake Ave Worcester MA 01655 043167352 501(c)(3) 9384 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. University of Miami 1320 S Dixie HWY STE 100 Coral Gables FL 33146 590624458 501(c)(3) 20000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. Dermatology Foundation 1560 Sherman AVE STE 500 Evanston IL 60201 046115524 501(c)(3) 30000 0 GRANT FUNDING PROVIDED TO RESEARCHERS AND INSTITUTIONS TO SUPPORT THEIR RESEARCH ADVANCES IN HS. Mentorship Program 3 6117 The scholarships were provided as part of the mentor program. Part I, Line 2: THE GRANT APPLICATIONS GO TO THE GRANT REVIEW COMMITTEE, WHICH RATES THE APPLICANTS BASED ON THEIR POTENTIAL IMPORTANCE TO HS RESEARCH. THE HSF BOARD THEN APPROVES THE FINAL RECOMMENDATIONS AND DETERMINES FUNDING LEVELS. GRANTEES ARE ALSO REQUIRED TO SUBMIT REPORTS TO THE HSF AFTER THE PROJECT IS COMPLETED, AND MUST ALSO AGREE TO PUBLISH THEIR FINDINGS. X 0 0 0 0 0 0 0 0 0 BRENT HAZELETT CHEIF EXECTIVE OFFICER 211000 0 0 0 0 0 6770 0 0 0 217770 0 0 0 Form 990, Part VI, Section B, line 11b A copy of the Form 990 is reviewed by the Executive Director and Board of Directors before it is filed. Form 990, Part VI, Section B, line 12c THE HS FOUNDATION REQUIRES LEADERS TO COMPLETE A CONFLICT OF INTEREST FORM ANNUALLY AND REQUIRES MEMBERS TO ROUTINELY CITE IF THEY HAVE A WORKING RELATIONSHIP WITH A COMPANY THAT IS BEING DISCUSSED. Form 990, Part VI, Section C, line 18 INFORMATION WILL BE MADE AVAILABLE UPON REQUEST. Form 990, Part VI, Section C, line 19 The Organization makes information available through the Organization's website. Form 990, Part XII, Line 2c: The Executive Committee oversees the review process. The process has not changed since last year.