2024-09-04T10:03:29-05:00 2022-12-31 812950760 SAX LLP 1040 AVENUE OF THE AMERICAS 16TH FL NEW YORK NY 10018 990 2022-01-01 204904437 ENDOMETRIOSIS FOUNDATION OF AMERICA INC ENDO 2129881644 872 FIFTH AVENUE NEW YORK NY 10065 ELIF SECKIN TREASURER 2129881644 2024-09-04 1 0 MIKE SCHALL P02024184 2122682804 2024-09-03 2022 2024-08-08 14:25:15Z X TAMER SECKIN MD 872 FIFTH AVENUE NEW YORK NY 10065 1302317 0 X WWW.ENDOFOUND.ORG X 2006 NY THE ENDOMETRIOSIS FOUNDATION OF AMERICA (ENDOFOUND) STRIVES TO INCREASE DISEASE RECOGNITION, PROVIDE ADVOCACY, FACILITATE EXPERT SURGICAL TRAINING, AND FUND LANDMARK ENDOMETRIOSIS RESEARCH. 12 12 4 12 0 0 1882511 1292962 0 0 1479 2015 9564 7340 1893554 1302317 25000 0 0 0 437371 378585 0 0 128120 680208 741687 1142579 1120272 750975 182045 2157273 2270980 173677 146710 1983596 2124270 X THE ENDOMETRIOSIS FOUNDATION OF AMERICA (ENDOFOUND) STRIVES TO INCREASE DISEASE RECOGNITION, PROVIDE ADVOCACY, FACILITATE EXPERT SURGICAL TRAINING, AND FUND LANDMARK ENDOMETRIOSIS RESEARCH. ENGAGED IN A ROBUST CAMPAIGN TO INFORM BOTH THE MEDICAL COMMUNITY AND THE PUBLIC, ENDOFOUND PLACES PARTICULAR EMPHASIS ON THE CRITICAL IMPORTANCE OF EARLY DIAGNOSIS AND EFFECTIVE INTERVENTION WHILE SIMULTANEOUSLY PROVIDING EDUCATION TO THE NEXT GENERATION OF MEDICAL PROFESSIONALS AND THEIR PATIENTS. 0 0 27365 THE ENDOFOUND EDUCATION PROGRAM IS A SCHOOL AND COMMUNITY-BASED EDUCATION PROGRAM DESIGNED TO EDUCATE HIGH SCHOOL STUDENTS AND RAISE AWARENESS ABOUT ENDOMETRIOSIS THROUGH AN INTERACTIVE PROGRAM WHICH INCLUDES BOTH EDUCATION OF THE DISEASE AND TO TEACH STUDENTS HOW TO ADVOCATE FOR THEMSELVES. TO DATE, THE PROGRAM HAS EDUCATED 40,000 STUDENTS IN THE US AND ABROAD. 11500 CONFERENCES AND WEBINARS: HISTORICALLY ENDOFOUND RUNS TWO LARGE ANNUAL CONFERENCES. THE FIRST IS A MEDICAL CONFERENCE WHICH GATHERS PHYSICIANS, SURGEONS, RESEARCHERS, NURSES, FROM ALL OVER THE WORLD TO LEARN ABOUT CURRENT TRENDS AND BEST PRACTICES FOR THE TREATMENT OF ENDOMETRIOSIS. THE SECOND IS A PATIENT CONFERENCE BRINGING PATIENTS AND PHYSICIANS TOGETHER TO LEARN IN DEPTH ABOUT ENDOMETRIOSIS, MANAGEMENT OF THE DISEASE, SUPPORT AVAILABLE AND WELLNESS TRAINING. BOTH CONFERENCES ARE HELD IN MARCH DURING ENDOMETRIOSIS AWARENESS MONTH. DUE TO COVID-19 RESTRICTIONS WHICH BEGAN DAYS BEFORE THE SCHEDULED CONFERENCES, ENDOFOUND SUCCESSFULLY PIVOTED TO ON-LINE WEBINARS AND CONFERENCES THROUGH THE END OF 2021 SO THAT IT COULD CONTINUE TO BRING BOTH PATIENTS AND MEDICAL PROFESSIONALS TOGETHER, AND DELIVER QUALITY INFORMATION THAT THE GROUPS HAVE COME TO RELY ON. 849900 RESEARCH AND GRANTS - ENDOFOUND FUNDS CUTTING-EDGE MEDICAL RESEARCH AT MEDICAL INSTITUTIONS AND HOSPITALS IN THE US PREDOMINANTLY, AND IN OTHER COUNTRIES. RESEARCH IS CONDUCTED ON THE ETIOLOGY OF THE DISEASE, GENETIC IMPLICATIONS, AND ORGANS AFFECTED BY THE DISEASE, AMONG OTHERS, ALL WITH THE GOAL OF DEVELOPING BETTER DIAGNOSTICS AND BETTER TREATMENTS. 888765 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 11 0 1 4 1 0 0 0 0 0 1 1 0 0 0 0 X 12 12 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 0 1 0 0 NY X X ELIF SECKIN 2129881644 872 FIFTH AVENUE NEW YORK NY 10065 TAMER SECKIN MD PRESIDENT 5.00 X X 0 0 0 PIRAYE YURTTAS BEIM PHD DIRECTOR 2.00 X X 0 0 0 MICHAEL S BRODHERSON MD DIRECTOR 2.00 X 0 0 0 KRISTY CURRY DIRECTOR 2.00 X 0 0 0 KARLI GOLDSTEIN DO DIRECTOR 2.00 X 0 0 0 TRACEY HAAS DO MPH DIRECTOR 2.00 X X 25000 0 0 JODY GROBMAN DIRECTOR 2.00 X 0 0 0 DONNA KESSELMAN MD DIRECTOR 2.00 X 0 0 0 LAWRENCE LIVORNESE DIRECTOR 2.00 X 0 0 0 HARRY REICH MD DIRECTOR 2.00 X 0 0 0 MADELEINE K RUDIN DIRECTOR 2.00 X 0 0 0 ELIF SECKIN TREASURER 2.00 X 0 0 0 CARLIN JAKE PROGRAMS AND DEVELOPMENT MANAGER 40.00 X X 126667 0 23667 151667 0 23667 1 0 1 0 0 162500 82060 1048402 1292962 2015 2015 0 162500 0 0 OTHER INCOME 900099 7340 7340 7340 1302317 0 0 9355 X 151667 120000 31667 163732 155276 8456 255 223 32 37487 32718 4769 25444 22207 3237 20091 20091 33982 14691 17150 2141 323288 219210 84310 19768 35091 28073 7018 27245 23779 3466 75436 67384 8052 1013 884 129 96353 96353 1927 1927 7607 6639 968 SPECIAL EVENT EXPENSE 98421 81237 17184 OTHER EXPENSE 21233 21233 1120272 888765 103387 128120 1192413 1484874 682286 542701 125302 125928 8465 5351 2063 3114 155209 114363 2157273 2270980 91617 146710 82060 173677 146710 X 1233596 1299270 750000 825000 1983596 2124270 2157273 2270980 182045 -41371 0 X X 0 1 X 1 0 X 1208959 553342 1076764 1882511 1292962 6014538 139050 31988 171038 1348009 585330 1076764 1882511 1292962 6185576 625000 175000 160201 950938 633683 2544822 0 625000 175000 160201 950938 633683 2544822 3640754 2224 1899 1706 1479 2015 9323 2224 1899 1706 1479 2015 9323 9564 7340 16904 1350233 587229 1078470 1893554 1302317 6211803 0.58610 0.58860 0.00150 0.01600 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 8465 5351 3114 3114 X 1260946 -41371 -41371 1302317 0 1302317 1120272 0 1120272 0 1120272 PART X, LINE 2: THE ORGANIZATION DOES NOT BELIEVE ITS FINANCIAL STATEMENTS INCLUDE ANY MATERIAL, UNCERTAIN TAX POSITIONS. TAX FILINGS FOR PERIODS ENDING DECEMBER 31, 2019 AND LATER ARE SUBJECT TO EXAMINATION BY APPLICABLE TAXING AUTHORITIES. PROG EVENTS 162500 162500 162500 162500 X 0 0 0 0 0 0 0 0 0 CARLIN JAKE PROGRAMS AND DEVELOPMENT MANAGER 126667 0 0 0 0 0 23667 0 0 0 150334 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 LINE 2 EXPLANATION - THERE IS A FAMILY RELATIONSHIP AMONG SEVERAL BOARD MEMBERS. FORM 990, PART VI, SECTION B, LINE 11B MANAGEMENT REVIEWED A DRAFT OF THE FORM 990 AND PROVIDED EDITS TO THE TAX PREPARER. AFTER THIS PROCESS WAS PERFORMED, THE FORM 990 WAS SENT TO THE FULL BOARD OF DIRECTORS PRIOR TO BEING FILED WITH THE IRS. EMAIL SENT TO BOARD MEMBERS WITH PLACE TO SIGN OFF FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION HAS A BOARD APPROVED CONFLICTS OF INTEREST POLICY. EACH BOARD MEMBER MUST FILL OUT AN ANNUAL DECLARATION STATING THEY HAD NO CONFLICTS OR IDENTIFYING THE NATURE OF THEIR INTERESTED PARTY TRANSACTIONS. FORM 990, PART VI, SECTION B, LINE 15A EXECUTIVE COMPENSATION IS APPROVED BY THE EXECUTIVE COMMITTEE. FORM 990, PART VI, SECTION C, LINE 19 DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G SPECIAL PROJECT: PROGRAM SERVICE EXPENSES 103,528. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 103,528. PUBLIC RELATIONSHIP: PROGRAM SERVICE EXPENSES 56,000. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 56,000. DONOR DATABASE: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 16,754. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 16,754. ENDOTV: PROGRAM SERVICE EXPENSES 29,753. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 29,753. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 29,929. MANAGEMENT AND GENERAL EXPENSES 59,556. FUNDRAISING EXPENSES 19,768. TOTAL EXPENSES 109,253. RECRUITMENT: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 8,000. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 8,000. REASON FOR AMENDED FORM 990 THE FORM 990 FOR THE TAX YEAR ENDED DECEMBER 31, 2022 HAS BEEN AMENDED DUE TO THE FACT THE ORIGINAL RETURN WAS FILED PRIOR TO THE COMPLETION OF THE FINANCIAL STATEMENT AUDIT. UPON COMPLETION OF THE AUDIT, IT WAS DETERMINED THAT THERE WERE ITEMS THAT WERE RECLASSIFIED BY THE AUDITORS. THE AMENDED RETURN REFLECTS THESE CHANGES. THE FOLLOWING ITEMS WERE CHANGED: 1. PAGE 9: PART VIII A. LINE 1C WAS INCREASED FROM $0 TO $162,500 B. LINE 1F WAS INCREASED FROM $973,402 TO $1,048,402 C. LINE 2A WAS DECREASED FROM $462,500 TO $0 D. LINE 11A WAS DECREASED FROM $7,362 TO $7,340 2. PAGE 10: PART IX A. LINE 11B WAS INCREASED FROM $4,965 TO $20,091. THIS AMOUNT WAS ALSO MOVED TO PROGRAM SERVICE EXPENSE FROM MANAGEMENT AND GENERAL B. LINE 11C WAS INCREASED FROM $16,832 TO $33,982. THE EXPENSE WAS ALSO ALLOCATED $14,491 TO PROGRAM SERVICES, $17,150 TO MANAGEMENT AND GENERAL AND $2,141 TO FUNDRAISING. PREVIOUSLY, IT WAS ALLOCATED AS $14,691 TO PROGRAM SERVICES AND $2,141 TO FUNDRAISING. C. LINE 11G WAS DECREASED FROM $421,001 TO $323,288. THE EXPENSE WAS ALSO ALLOCATED $219,210 TO PROGRAM SERVICES, $84,310 TO MANAGEMENT AND GENERAL AND $19,768 TO FUNDRAISING. PREVIOUSLY, IT WAS ALLOCATED AS $296,686 TO PROGRAM SERVICES, $96,495 TO MANAGEMENT AND GENERAL AND $27,820 TO FUNDRAISING. D. LINE 14 WAS INCREASED FROM $0 TO $75,436. THE EXPENSE WAS ALSO ALLOCATED $67,384 TO PROGRAM SERVICES, AND $8,052 TO FUNDRAISING. E. LINE 24A SPECIAL EVENTS WAS INCREASED FROM $85,922 TO $98,421. THE EXPENSE WAS ALSO ALLOCATED $81,237 TO PROGRAM SERVICES, AND $17,184 TO FUNDRAISING. PREVIOUSLY, IT WAS ALLOCATED AS $68,738 TO PROGRAM SERVICES, AND $17,184 TO FUNDRAISING. 3. PAGE 11: PART X A. LINE 17, CURRENT YEAR WAS INCREASED FROM $124,210 TO $146,710 B. LINE 27, CURRENT YEAR WAS DECREASED FROM $1,396,770 TO $1,299,270 C. LINE 28, CURRENT YEAR WAS INCREASED FROM $750,000 TO $825,000. 4. PAGE 12: PART XI, LINE 9 WAS CHANGED FROM $(225,000) TO $0 5. SCHEDULE A, PAGE 3, PART III, LINE 1, COLUMN (E) WAS INCREASED FROM $1,055,462 TO $1,292,962. LINE 2 OF THE SAME COLUMN WAS REDUCED FROM $462,500 TO $0. THIS RESULTED IN A CHANGE IN THE PUBLIC SUPPORT PERCENTAGE FROM 60.06% TO 58.61%. 6. SCHEDULE D, PAGE 4, PARTS XI AND XII BECAUSE AN AUDIT WAS COMPLETED, THE ORGANIZATION WAS REQUIRED TO COMPLETE PARTS XI AND XII. THIS WAS NOT PREVIOUSLY COMPLETED AS THERE WERE NO AUDITED FINANCIAL STATEMENTS.