2024-08-20T13:49:00-05:00 2023-12-31 464364096 BA HARRIS LLP 1290 W MYRTLE 310 BOISE ID 83702 990 2023-01-01 330969026 ORAL CANCER FOUNDATION HILL ORAL 9492784372 3419 VIA LIDO 205 NEWPORT BEACH CA 92663 BRIAN HILL PRESIDENT 9492784372 2024-08-13 1 1 AARON LAVARIAS P02231509 2084245177 2024-08-13 2023 2024-08-08 14:25:15Z ORAL CANCER FOUNDATION BRIAN HILL 3419 VIA LIDO 205 NEWPORT BEACH CA 92663 297013 0 X WWW.ORALCANCER.ORG X 2001 CA THE ORAL CANCER FOUNDATION IS A NATIONAL PUBLIC SERVICE, NON-PROFIT ENTITY DESIGNED TO REDUCE SUFFERING AND SAVE LIVES THROUGH PREVENTION, EDUCATION, RESEARCH, ADVOCACY, AND SUPPORT ACTIVITIES. 3 2 2 100 0 0 202028 288482 0 0 3003 225 0 0 205031 288707 0 0 0 0 145931 140161 0 0 20472 150881 236069 296812 376230 -91781 -87523 341716 254193 0 0 341716 254193 X THE ORAL CANCER FOUNDATION IS A NATIONAL PUBLIC SERVICE, NON-PROFIT ENTITY DESIGNED TO REDUCE SUFFERING AND SAVE LIVES THROUGH PREVENTION, EDUCATION, RESEARCH, ADVOCACY, AND SUPPORT ACTIVITIES. 0 0 296016 2023 CONTINUED MANY OF THE RECOVERY FROM THE FINANCIAL IMPACT OF THE PANDEMIC ISSUES, AND FOR AT LEAST HALF THE YEAR WAS A REPEAT FOR MANY SMALL NONPROFIT ENTITIES INCLUDING OCF. NATIONAL FOCUS FOR CHARITABLE GIVING DECREASED ACROSS THE BOARD, MANY QUALITY SMALL NONPROFITS, AND SMALL BUSINESSES CLOSED THEIR DOORS FOR GOOD ACCORDING TO THE JOURNAL OF PHILANTHROPY, AND OCF'S BASE OF DONORS DRAWN LARGELY FROM THE MIDDLE CLASS HAD LESS FREE INCOME FOR THINGS LIKE DONATIONS TO CHARITIES AND WERE ALSO FIGHTING THE INFLATION THAT IMPACTED THEIR PERSONAL ECONOMIC STATUS. ALL THIS IMPACTED US IN SIGNIFICANT WAYS. WHILE WE HAD SOME CASH RESERVES, WE HAD TO DIAL BACK MANY PROGRAMS, AND REDUCE STAFF. AS STATED IN 2020, A YEAR BEFORE THE PANDEMIC, OCF HAD ALREADY ADOPTED A WORK FROM HOME MODEL, AND HAD REDUCED OVERHEAD COSTS BY ELIMINATING OFFICE SPACES. AGAIN IN 2022, ALL OF OUR FUNDRAISING AND AWARENESS EVENTS WHERE PEOPLE GATHERED IN PERSON HAD TO BE CANCELLED IN ACCORDANCE WITH CDC GUIDELINES, UP UNTIL THE LAST THREE MONTHS OF THE YEAR. THOSE HISTORICALLY BRING IN 65% OF OUR OPERATING BUDGET. WRITING THIS IN 2023, WE SAW THINGS ABOUT THE SAME WITH LIMITED EVENTS, BUT WITH A VACCINE AND A MORE VACCINATED POPULATION, WE ARE OPTIMISTIC ABOUT THE FUTURE, AND OUR ABILITY TO GET BACK TO AWARENESS EVENTS THAT HELP GENERATE VISIBILITY AND DONATIONS TO THE FOUNDATION IS AS THIS IS BEING WRITTEN, TURNING AROUND THE FINANCIAL SITUATION FOR 2023. CANCER HAS NOT GONE AWAY DURING THE COVID CRISIS. 2 MILLION AMERICANS STILL WERE DIAGNOSED WITH IT IN 2023 AND ABOUT 660,000 DIED FROM IT. THAT PART OF THE WORLD DID NOT CHANGE. THE DEMANDS FOR OUR SERVICES STAYED THE SAME AS IN THE PREVIOUS YEARS, BUT WE CONTINUED TO WORK LONGER HOURS WITH FEWER STAFF TO ADDRESS THE VOLUME OF PATIENT CENTRIC HELP REQUESTS THAT CAME IN. IN ESSENCE WE ARE STILL STANDING AND DOING GOOD IN THE WORLD EVEN WITH THE MANY FINANCIAL NEGATIVES THAT 2020-2022 PLACED ON US. THE FOUNDATIONS' PUBLIC OUTREACH AND DISSEMINATING ACTIONABLE INFORMATION MISSIONS STAYED STRONG. THIS WAS FACILITATED BY INCREASED VISIBILITY OF THE FOUNDATION THROUGH AN ORGANIC SPREAD OF OUR LARGE INTERNET PRESENCE. A MAJOR REBUILD OF OUR INTERNET PRESENCE WAS BEGUN IN THE LAST QUARTER OF 2014, BUT ANNUALLY WE HAVE ADDED TO OUR SATELLITE WEB SITES ON ORAL CANCER THAT ACCESS CURRENT AND ARCHIVED NEWS STORIES ABOUT OUR DISEASE, AND A SEPARATE EDUCATIONAL SITE FOR THE PUBLIC ON SELF-SCREENING TECHNIQUES FOR EARLY DISCOVERY AND SELF-REFERRAL OF SUSPECT TISSUES IN THEIR ORAL ENVIRONMENT TO NAME A COUPLE. THIS MOBILE FRIENDLY MOVE ACCELERATED PUBLIC ENGAGEMENT WITH THE DISEASE AND THE FOUNDATION. OCF CONTINUES TO HAVE FEW CORPORATE PHARMA SPONSORS, AND WE DID NOT HAVE THAT RESOURCE TO FALL BACK ON LIKE SOME OTHER NONPROFITS THAT SURVIVE ON PHARMA AND MEDICAL SOCIETY GRANTS. IT SHOULD BE STATED THAT UNLIKE OTHER NONPROFITS IN OUR SPACE WE DO NOT TAKE MUCH PHARMA MONEY NOR APPLY FOR IT. WE CHOOSE TO KEEP OUR DEPENDENCE ON THAT INDUSTRY TO A MINIMUM AND THERE IS A PERCEPTION OF THE INFLUENCES THEY CAN HAVE ON NONPROFITS THAT IS NOT ALWAYS POSITIVE. THE FOUNDATION'S PUBLIC OUTREACH EFFORTS CONTINUED TO FOCUS HEAVILY ON THE ROLE OF THE HPV VIRUS AS AN ORAL CANCER CAUSE, AND HOW COMMON INFECTION WITH IT IS IN THE US. WE CONTINUED TO ADVOCATE FOR THE HPV VACCINE, AND OFFER VACCINATION CLINICS AT OUR OWN EVENTS. OCF STAFF MEMBERS AND KEY OPINION/SCIENCE LEADERS ALLIED WITH OCF SPOKE VIRTUALLY AT NUMEROUS EVENTS ON HPV AND VACCINATION. WE HAVE CONTINUED LAST YEAR'S EFFORT TO INCREASE SPEAKING ENGAGEMENTS IN THE DENTAL COMMUNITY, AS THEY ARE BECOMING AN IMPORTANT PART OF THE EARLY DISCOVERY PARADIGM AND EDUCATION OF THE PUBLIC ON HPV, EVEN IF THE PLATFORM TO DO SO HAS CHANGED. IN 2023 THESE IDEAS BEGAN TO MOVE TO IN PERSON VERSUS VIRTUAL LECTURES AND MEETINGS. OUR VOLUNTEER RDH ADVISORY BOARD CONTINUES TO BE AN IMPORTANT PART OF ACCOMPLISHING THIS OUTREACH WITH MANY OF THEM PRESENTERS AT PROFESSIONAL MEETINGS ON THE IMPORTANCE OF PROPER SCREENING FOR THESE CANCERS. THERE IS A GREAT DEAL OF MISINFORMATION ABOUT THE HPV VIRUS AND THE RELATIVE RISK THIS POSES TO AMERICANS. WE HAVE FOUND THAT OUR ALLIANCE WITH THE RDH COMMUNITY IS RICH IN OPPORTUNITIES TO COMMUNICATE DIRECTLY WITH AMERICANS ABOUT THESE ISSUES. OCF HAS BEEN PARTNERED TO THE CDC AND THE 65 TOP CANCER TREATMENT CENTERS IN AMERICA TO PUT OUT A UNIFIED MESSAGE ABOUT HPV VACCINATION, AND WE HAVE DONE NUMEROUS WEB BLASTS RELATED TO CORRECT INFORMATION REGARDING MEANS OF TRANSMISSION OF THE VIRUS, AND THE VERY LOW CONVERSION RATE (1%) OF ORAL HPV INFECTIONS TO ACTUAL CANCERS LATER IN LIFE AND VACCINATION. METRICS OUTSIDE OF HITS ON THE WEB INFORMATION ARE HARD TO QUANTIFY, BUT WE BELIEVE THAT AN EFFORT MUST BE MADE TO COUNTER THE ANTI-VACCINE MOVEMENT AND TO BELAY THE UNNECESSARY FEAR THAT EXISTS IN PEOPLE WHO ARE GETTING INCORRECT INFORMATION, AND IS THE PRIMARY CAUSE OF VACCINE HESITANCY. WE ARE AWARE THAT THIS MUST CONTINUE TO BE A MULTI-YEAR ONGOING DIRECT EXPENSE EFFORT. WE HAVE HAD ONE SMALL FINANCIAL PARTNER IN PROMOTING HPV VACCINATION, SO THE COSTS TO OUR BOTTOM LINE HAVE BECOME LESS OF AN ISSUE. SEARCH FOR ADDITIONAL PARTNERS CONTINUES. IN 2014 WE BEGAN SPONSORSHIP OF TWO RODEO COMPETITORS WHO RIDE AND COMPETE IN CLOTHING BEARING OCF'S ANTI-TOBACCO MESSAGING/BRAND, WHICH ACCELERATED TO MORE RODEOS IN 2019. WHILE THEY ARE NOT TASKED WITH CHANGING ADULT BEHAVIOR, THEIR ANTI-TOBACCO MESSAGE IS GEARED TOWARD YOUNG KIDS AT RODEOS WITH A MESSAGE OF "BE SMART. DON'T START." THEIR CONVERSATIONS WITH YOUNG PEOPLE AT THE RODEOS THEY ATTEND AFTER THEIR COMPETITIVE TIME IN THE ARENA, HAVE BEEN WELL RECEIVED AND THEY CONTINUE TO GET ATTENTION FOR THEIR EFFORTS IN LOCAL AREA MEDIA. BUT IN 2021 MOST RODEO EVENTS REMAINED CANCELLED ACROSS THE BOARD NATIONALLY BY THE CDC, AND THIS PROGRAM WAS PUT ON PAUSE, AND OUR COMPETITORS ON FURLOUGH UNTIL SUCH TIME AS WE CAN AGAIN CONGREGATE IN PERSON. IN 2023 WE STARTED THE PROGRAM BACK UP HTTP://WWW.ORALCANCERFOUNDATION.ORG/SUPPORT-OCF/RODEO-TOBACCO-OUTREACH.PHP THE STORY OF A SMALL NON-PROFIT LIKE OCF BEING THE FIRST CHARITY TO EVER SPONSOR A RODEO COMPETITOR, AND THE MESSAGING FROM THESE TWO OCF ANTI-TOBACCO SPOKESPEOPLE CONTINUES TO BE PICKED UP BY MEDIA OUTLETS ACROSS THE US, BUT WITH 2 YEARS OUT OF VISIBILITY THAT EXPOSURE HAS WANED. BOTH SPOKESPEOPLE HAVE GIVEN NUMEROUS INTERVIEWS BOTH TO NEWSPAPERS AND ON PUBLIC TV SHOWS, SUCH AS GOOD MORNING UTAH, AND GOOD MORNING RENO OVER THE YEARS. IN 2015 OCF STARTED PARTNERING OUR SUPPORTERS IN THE RDH COMMUNITY WITH OUR RODEO EFFORTS TO ENGAGE IN FREE PUBLIC SCREENINGS OF ATTENDEES AT RODEOS WHERE OUR RIDERS ARE APPEARING FOR EARLY SIGNS OF ORAL CANCERS. RECEPTION BY RODEO PROMOTERS, AND THE PROFESSIONAL RODEO COWBOYS ASSOCIATION THAT RUNS MOST EVENTS AROUND THE COUNTRY HAS BEEN VERY POSITIVE. WE ARE NOW ON PAUSE WITH THIS RODEO EFFORT AFTER SUCH A STELLAR RESPONSE TO IT, AND WE RETURNED TO ALL THE ASPECTS OF THIS PROGRAM IN 2023. RURAL AMERICA AND THE RODEO CROWD, WHICH IS NOW VERY MUCH A FAMILY SPORT, IS ONE OF THE LAST STRONGHOLDS OF TOBACCO. WE ARE THE ONLY NON-PROFIT WE HAVE SEEN AT THESE EVENTS ENGAGED IN THAT COMMUNITY TO BRING DOWN THE IMPACT OF TOBACCO USE. IN 2016 AT THE HEIGHT OF ITS USE, THE FOUNDATION CONDUCTED A TOTAL OF 53 AWARENESS EVENTS IN MAJOR CITIES MANY OF WHICH OUR COORDINATORS LARGELY CAME FROM THE RANKS OF THE RDH COMMUNITY AND FAMILIES IMPACTED BY THIS CANCER. TO HAVE THAT GO TO ZERO IN 2020 WAS UNEXPECTED AND FINANCIALLY DIFFICULT FOR THE FOUNDATION. WE ANTICIPATED THE CONTINUED IMPACT OF THIS IN 2021, BUT OPEN-AIR EVENTS LIKE OURS WERE NOT ABLE TO START UP AGAIN UNTIL 2022 HAD PASSED. WE HAD TWO DONATION GENERATING EVENTS AT THE END OF THE YEAR PUT ON BY SURVIVOR FAMILIES IN THEIR COMMUNITY, AND ONE VIRTUAL WALK EVENT, WHICH WAS NOT REVENUE GENERATING, BUT THE MISSION TO RAISE AWARENESS NEEDS CONSTANT ATTENTION. IN 2023 OUR CONTRIBUTIONS TO HPV/ORAL-OROPHARYNGEAL CANCER RESEARCH WAS PAUSED, BUT WE REAFFIRMED OUR COMMITMENTS TO LONG-TERM OCF AFFILIATED RESEARCHERS TO SUPPORT THEM AGAIN IN 2024. WE ALSO SAW PUBLISHED THE OUTCOMES FROM PREVIOUS YEARS' RESEARCH FUNDING, IN PRESTIGIOUS PEER REVIEWED JOURNALS SUCH AS THE JOURNAL CELL, AND THE JOURNAL OF THE NATIONAL CANCER INSTITUTE. AT THE TIME OF THIS WRITING IN Q1 2024, WE HAVE SEEN PUBLISHED AN IMPORTANT TRANSLATIONAL RESEARCH PAPER ELUCIDATING A NEVER BEFORE DESCRIBED CELLULAR FUNCTION, THAT DETERMINES WHO WILL HAVE RECURRENCES OF THEIR HPV+ OROPHARYNGEAL CANCER THAT OCF WAS A CO FINANCIAL SPONSOR OF. OCF SPONSORED RESEARCHERS ALSO SPOKE VIRTUALLY AT SEVERAL LARGE HEAD AND NECK CANCER CONFERENCES TO THEIR PEERS AND MEMBERS OF THE TREATMENT COMMUNITY, AND OCF CONTINUED TO WORK BEHIND THE SCENES TO SEE THEM GET THESE SPEAKING OPPORTUNITIES. 2023 ALSO SAW A LONG-TERM COMMITMENT WE HAVE HAD TO DR. MAURA GILLISON'S AT MDACC WORK IN THE IMMUNE CHECK POINT INHIBITOR RESEARCH EFFORT RESULT IN NEW PUBLICATIONS. 296016 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 2 1 0 0 0 0 0 0 0 0 0 0 X 3 2 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 1 1 1 0 0 CA X X BRIAN HILL 9492784372 3419 VIA LADO 205 NEWPORT BEACH CA 92663 BRIAN HILL PRESIDENT 80.00 X X 62500 0 0 MAURA GILLISON MD BOARD MEMBER 0.50 X 0 0 0 BLYTHE DANNER BOARD MEMBER 0.50 X 0 0 0 MARK DELACURE MD BOARD MEMBER 0.50 X 0 0 0 62500 0 0 0 0 0 0 0 288482 288482 8531 8306 225 225 225 288707 225 0 0 X 62500 59375 3125 65000 53300 6500 5200 2908 2908 9753 7998 975 780 4450 4450 47200 45660 500 1040 25201 24002 1167 32 37554 36978 576 20252 20252 8758 7116 1642 10095 9853 242 13320 1035 12171 114 EVENTS 41201 27321 1275 12605 TAXES, LICENSES AND EVE 7634 6803 130 701 PROFESSIONAL RELATIONSH 7350 7350 COLLECTION FEES 4750 4750 8304 4475 3829 376230 296016 59742 20472 109625 34554 232090 146393 6477 6476 1 1 73245 341716 254193 0 0 X 341716 254193 341716 254193 341716 254193 -87523 0 X 0 0 0 X 385455 358905 340561 202028 288482 1575431 385455 358905 340561 202028 288482 1575431 0 0 0 1575431 1473 3185 2420 6206 225 13509 1473 3185 2420 6206 225 13509 386928 362090 342981 208234 288707 1588940 0.99150 0.99190 0.00850 0.00810 X 6477 6476 1 1 FORM 990 PART III LINE 4A PDL-1 DRUGS LOOKED AT IN THIS WORK ARE PROVING TO BE THE MOST IMPORTANT ADVANCEMENT IN CANCER TREATMENT ACROSS A WIDE VARIETY OF TUMOR TYPES IN MORE THAN 50 YEARS, AS THEY INVOLVE REMOVING CHECKPOINTS FROM THE PATIENT'S OWN IMMUNE SYSTEM ALLOWING IT TO BECOME MORE ENGAGED IN THE DESTRUCTION OF THE CANCER. WE HAVE ALSO SEEN PEER REVIEWED AND PUBLISHED A SECOND IMPORTANT ARTICLE WE CO-FINANCIALLY SPONSORED RELATED TO MOLECULAR AND GENOMIC MARKERS THAT NOW GIVES US IMPORTANT TARGETS FOR THERAPY DEVELOPMENT AND EARLY DISCOVERY OPPORTUNITIES. THIS PAPER IN PARTICULAR, WAS NECESSARY TO HELP FUND, AS ARTIFICIAL INTELLIGENCE (AI) BECOMES MORE OF A PLAYER IN CRUNCHING DATA TO IDENTIFY THE BEST TARGETS FOR CLINICAL EXPLORATION. OCF WOULD NOT NORMALLY IN PAST YEARS HAVE CONSIDERED FUNDING TRANSLATIONAL RESEARCH AS THE CLINICAL APPLICATIONS OF IT CAN BE MANY YEARS IN THE FUTURE. NOW WITH AI MORE INVOLVED IN DETERMINING WHAT TREATMENT PATHS WILL BE PURSUED, WE WISHED TO ENSURE THAT HEAD AND NECK CANCERS AND SPECIFICALLY ORAL CANCERS WERE NOT LEFT OUT OF THE MIX OF LOOKED AT OPPORTUNITIES. SO, WHILE DIALED BACK SOME, PROGRESS STILL EXISTS. IN THE ANNUAL APRIL, ORAL CANCER AWARENESS MONTH NATIONAL ACTIVITIES, OCF WAS ALIVE WITH BOTH VIRTUAL AND IN PERSON EVENTS, WITH OVER 2,500 SCREENING EVENTS NATIONALLY IN APRIL 2019, THE FOUNDATION'S PRIVATE PRACTICE DENTAL AND OTOLARYNGOLOGY PARTNERS CONDUCTED OVER 70,000 FREE ORAL CANCER SCREENINGS IN COMMUNITIES ACROSS THE COUNTRY. WE HAD STRONG STRATEGIC PARTNERS FOR THESE EVENTS, INCLUDING MERCK, HENRY SCHEIN DENTAL, GENENTECH, AND LED DIAGNOSTICS. WE ALSO WERE PARTNERED WITH PROFESSIONAL SOCIETIES INCLUDING; THE ACADEMY OF GENERAL DENTISTRY, THE AMERICAN ACADEMY OF ORAL AND MAXILLOFACIAL SURGERY, THE ACADEMY OF ORAL MEDICINE, THE ACADEMY OF PERIODONTOLOGY, THE AMERICAN DENTAL HYGIENE ASSOCIATION, THE ACADEMY OF ORAL PATHOLOGY, AND NUMEROUS STATE DENTAL HYGIENE ASSOCIATIONS. ALL THAT INERTIA DID NOT CEASE, BUT WITHOUT AS MANY DIRECT SCREENING EVENTS, THE METRICS IN NUMBER OF SCREENINGS WAS GREATLY DIMINISHED. THIS WAS THE 24TH YEAR THAT OCF CONDUCTED THESE FREE SCREENING EVENTS, AFTER PIONEERING THE IDEA IN 1999. WE ARE HOPEFUL THAT APRIL 2024 WILL RETURN THIS PROGRAM TO ITS PREVIOUS NORMS. OCF'S ONLINE SUPPORT GROUP, NOW IN ITS 23ND YEAR OF EXISTENCE, CONTINUES TO GROW AND DESPITE CONSTANT ATTRITION THROUGH BOTH SURVIVORS MOVING ON AND PATIENT DEATHS, STILL MAINTAINS OVER 13,000 MEMBERS. PARTNERSHIPS WITH MAJOR TREATMENT FACILITIES AROUND THE COUNTRY CONTINUE TO FILL THE RANKS OF PATIENTS AND FAMILY MEMBERS WHO COME THERE FOR SCIENCE-BASED ANSWERS TO THEIR QUESTIONS, AND EMOTIONAL SUPPORT. WHILE OTHER ORGANIZATIONS HAVE FOLLOWED OUR MODEL NOW, INCLUDING UNCONTROLLED DISCUSSION GROUPS ON FACEBOOK, NO OTHERS HOST IT WITHIN THEIR OWN DEDICATED SERVERS WHERE POSTINGS AND CONTENT CAN BE CONTROLLED TO ASSURE APPROPRIATE INFORMATION IS DISSEMINATED, AND INACCURATE OR COMMERCIAL INFORMATION DESIGNED TO SELL SOMETHING TO PATIENTS IS CULLED DAILY. WE HAVE DOCUMENTED THE HUGE AMOUNT OF MISINFORMATION, SOME OF IT DANGEROUS TO CANCER PATIENTS, THAT IS DISSEMINATED, PARTICULARLY IN THE FACEBOOK ENVIRONMENT. LETTERS TO FB HAVE GONE UNANSWERED, AND IT REMAINS AN UNREGULATED FLOW OF A HIGH DEGREE OF MISINFORMATION TO PATIENTS WHO NEED SCIENCE-BASED ANSWERS TO THEIR QUESTIONS. THERE ARE ALSO OTHER COMPETING PLATFORMS ONLINE FOR PATIENT SUPPORT SUCH AS INSPIRE.ORG. THESE PLATFORMS ARE USED BY INDIVIDUALS, AND EVEN NONPROFIT ENTITIES WHO CAN ELIMINATE THE COST OF OPERATING A WEB PLATFORM LIKE OURS, TO PROVIDE THE CANNED SOFTWARE THAT FACILITATES CHAT ROOMS. IT IS FREE TO THE ORGANIZATIONS (ANOTHER HEAD AND NECK ORGANIZATION USES IT) AND INDIVIDUALS THAT USE IT. THAT IS TELLING, AS HAS BEEN SAID ABOUT FACEBOOK, IF YOU ARE NOT PAYING FOR SOMETHING ON THE WEB, YOU AND YOUR INFORMATION ARE THE COMMODITY THAT IS BEING SOLD. PATIENT INFORMATION PRIVACY AND PROTECTION FROM BOTH POOR INFORMATION AND THE SELLING OF BOGUS ALTERNATIVE THERAPIES IN THESE FORUMS IS UNREGULATED, AND THE BUYERS OF THIS DATA ARE HEAVILY INSURANCE COMPANIES, WHICH CAN ONLY BE ASSUMED TO MEAN THAT THEY USE THIS DATA FOR ELIMINATING HIGH COST PEOPLE FROM THEIR CUSTOMER BASE. INSPIRE ACTIVELY SOLICITS COMPANIES OF ALL TYPES TO PURCHASE THEIR PATIENT DATA GLEANED FROM THESE SUPPORT GROUPS TO COUPLE IT WITH INSURANCE PROGRAMS AND OTHER "OPPORTUNITIES". THE PARTICIPANTS IN THESE SUPPORT GROUPS SEEM TO HAVE NO KNOWLEDGE THAT THEIR DATA INCLUDING REAL NAMES ARE BEING SOLD. OCF ENGAGES IN THE VERY EXPENSIVE PROCESS OF HAVING OUR OWN SOFTWARE, ON OUR OWN ENCRYPTED SERVERS, A STRICT PRIVACY CODE AND REGULAR MONITORING FOR PARTICIPANTS THAT ARE IN THE BUSINESS OF SELLING ANYTHING TO OUR PATIENTS AND CAREGIVERS, AND THEIR RAPID REMOVAL FROM OUR SYSTEM. THE EFFORT TO CONTROL AN ANONYMOUS AND FREE TO END USERS, OPEN ACCESS WEB-BASED ENVIRONMENT, TAKES SIGNIFICANT EFFORT DAILY AND IS ACCOMPLISHED PRIMARILY BY BOTH OCF STAFF AND TRAINED VOLUNTEERS; FROM DOCTORS AND NURSING PROFESSIONALS TO LONG-TERM SURVIVORS SPEAKING FROM PERSONAL EXPERIENCES. THIS IS A SIGNIFICANT COST ITEM TO THE FOUNDATION AND GENERATES ZERO RETURN INCOME; BUT IT IS THE ONLY MEANS WE BELIEVE POSSIBLE TO PROTECT PEOPLE'S IDENTITIES AND INFORMATION. THE SUPPORT GROUP CONTINUES TO BE THE WORLD'S LARGEST AND RECEIVES ACCOLADES FROM NUMEROUS PATIENT ADVOCACY GROUPS FOR ITS EFFECTIVENESS. WHILE OCF'S SELF-FUNDED MECHANISM IS EXPENSIVE, WE DO NOT BELIEVE IN USING THIS POPULATION OF INDIVIDUALS AS A REVENUE GENERATOR VIA ADVERTISING TO THEM, NOR BY SELLING LISTS OF PARTICIPANTS TO OTHERS. WE ARE UNIQUE IN MAINTAINING THESE PRINCIPLES. OCF CONTINUES TO ENGAGE INDIVIDUALS OF HIGH VISIBILITY, PARTICULARLY FROM HOLLYWOOD WHO HAVE BEEN IMPACTED PERSONALLY BY OUR CANCER TO DELIVER ITS PUBLIC SERVICE MESSAGES ON TV AND OTHER MEDIA. NOW IN ITS 15TH YEAR, OUR RELATIONSHIP WITH THE PALTROW FAMILY, (BLYTHE DANNER PALTROW, GWYNETH PALTROW, AND JAKE PALTROW) HAS BEEN OUR MOST PRODUCTIVE. THE FAMILY HAS BEEN RESPONSIBLE FOR OUR LARGEST DONATIONS, AND OUR MOST VIEWED TELEVISION PSA'S TO THE PUBLIC ON AWARENESS AND EARLY RECOGNITION OF SYMPTOMS. THE STRENGTH OF THESE RELATIONSHIPS IN GETTING THE CORRECT INFORMATION OUT TO THE AMERICAN PUBLIC, IN A VERY COST-EFFECTIVE MANNER, CANNOT BE OVERSTATED. WE HAVE HAD PRODUCTIVE RELATIONSHIPS WITH OROPHARYNGEAL CANCER SURVIVOR, ACTOR MICHAEL DOUGLAS WHO HAS DONE TV PSA'S FOR US, AND THE MEGA BAND COLDPLAY, AND ITS LEAD MUSICIAN CHRIS MARTIN WHICH HAS RAISED AWARENESS AND SOME FUNDING FOR OCF. AT THE END OF 2021, AWARD WINNING ACTOR STANLY TUCCI JOINED OCF'S ADVISORY BOARD, AND WE WILL BE WORKING WITH HIM IN 2023 IN A PUBLIC AWARENESS INITIATIVE INVOLVING TV PSA PRODUCTION AND TV TALK SHOW APPEARANCES DELIVERING THE ORAL CANCER MESSAGE. INFORMATION REPORTED IN OUR PREVIOUS YEAR'S 990 FORMS CONTINUES TO BE BUILT ON AS IT RELATES TO OUR WEB PRESENCE AND EXPANSION OF INTERNET BASED EFFORTS. WE MAINTAIN AN INFORMATION WEB PRESENCE AVAILABLE TO EVERYONE FROM THE PUBLIC TO STUDENTS AND DOCTORS ON THE DISEASE, WHICH IS WITHOUT EQUAL. ( HTTP://ORALCANCERFOUNDATION.ORG/ <HTTP://ORALCANCERFOUNDATION.ORG/> ) BESIDES THE FOUNDATION'S CORE WEBSITE WE NOW OPERATE THE LARGEST ORAL CANCER NEWS SITE WHICH HAS A FREE RSS SUBSCRIPTION CAPABILITY WITH OVER 34K SUBSCRIBERS, AND WHICH IS UPDATED SEVERAL TIMES PER WEEK, (HTTP://ORALCANCERFOUNDATION.ORG/NEWS/INDEX.ASP <HTTP://ORALCANCERFOUNDATION.ORG/NEWS/INDEX.ASP> ), AN ORAL CANCER EVENTS SITE WHICH IS OPEN TO ANY RELATED ORGANIZATIONS OR INDIVIDUALS TO POST RELEVANT INFORMATION ABOUT UPCOMING EVENTS, EDUCATIONAL COURSES, AND SCREENING EVENTS, ( HTTP://ORALCANCERFOUNDATION.ORG/EVENTS/INDEX.HTM <HTTP://ORALCANCERFOUNDATION.ORG/EVENTS/INDEX.HTM> ), AND THE PATIENT / SURVIVOR SUPPORT SITE ( HTTP://ORALCANCERFOUNDATION.ORG/FORUM/INDEX.HTM <HTTP://ORALCANCERFOUNDATION.ORG/FORUM/INDEX.HTM> ). BEGINNING IN Q3 2014 WE BEGAN MAKING A SIGNIFICANT INVESTMENT IN NEW SERVERS AND IT ARCHITECTURE TO ENSURE THAT THE FAST-GROWING TRAFFIC OUR SITES ENJOY (OVER 28 MILLION HITS PER MONTH, AND SOME OF THE INDIVIDUAL PAGES SUCH AS THE ONE ON HPV RECEIVING 14,000 VISITS PER HOUR DAILY), CONTINUE TO PROVIDE VISITORS WITH RAPID PAGE LOADING AND AN OPTIMUM EXPERIENCE ACCESSING THE DATA WE PROVIDE. THAT EFFORT AND EXPENSE IS BEARING TANGIBLE RESULTS. STAYING AHEAD OF THE ENTIRE INTERNET OPPORTUNITY WITH FRESH AND VETTED CONTENT, RUN ON UPDATED ANNUALLY SOFTWARE AND SERVERS IS AN ESSENTIAL EXPENSE TO STAY IN FRONT OUT THE AMERICAN PUBLIC, WHEN YOU CONSIDER OUR COMPETITION IN CANCER INFORMATION IS THE AMERICAN CANCER SOCIETY AND ITS HUNDREDS OF MILLIONS OF DOLLARS A YEAR BUDGET. OUR WEB PRESENCE IN ORAL AND OROPHARYNGEAL CANCERS STILL DOMINATES THE TOP ORGANIC (NOT PAID FOR) FINDS IN THE WORLD'S LARGEST SEARCH ENGINE GOOGLE; POSITIONS WHICH CANNOT BE BOUGHT, AND ARE BASED ON MERIT AND CURRENCY OF THE INFORMATION CONTAINED. FORM 990 PART III LINE 4A IN 2023 WE AGAIN RECEIVED A MERIT AWARD FROM THE WEB HEALTH AWARDS ORGANIZATION FOR THE QUALITY OF OUR SITES, THE INFORMATION THEY CONTAIN, AND THE MAINTENANCE OF THE ACCURACY AND CURRENCY OF THAT INFORMATION. THE THREE LARGE NON-PROFIT OVERSIGHT ORGANIZATIONS; GUIDESTAR.ORG (GOLD RATING), CHARITYNAVIGATOR.ORG (100 OUT OF 100-POINT RATING, 4-STAR) AND GREATNONPROFITS.ORG, (5 STAR RATING) CONTINUE TO RATE OCF HIGHLY IN PATIENT SUPPORT FUNCTIONS, QUALITY OF INFORMATION DELIVERED, AND IN FISCAL RESPONSIBILITY. AT GREAT NON-PROFITS WE WERE AGAIN RATED IN THEIR TOP 10% OF ALL US NON-PROFITS REGARDLESS OF SIZE OR CAUSE. AS OUR CURRENT TAX RETURN REVEALS, WHILE ON A FINANCIALLY SMALLER SCALE AND FOOTPRINT, OCF CONTINUES TO BE ONE OF THE BEST 501C3 ORGANIZATIONS REGARDING THE RATIO OF MISSION RELATED EXPENSES VS. OPERATION AND FUNDRAISING EXPENSES. OUR EXECUTIVE DIRECTOR CONTINUES TO BE PAID (AFTER WORKING FOR 15 YEARS FOR NO SALARY) AT A RATE THAT IS HALF THAT OF THE 6 FIGURE SALARIES OF THE COMPARABLE STAFF IN THE TWO CHARITIES THAT SHARE OUR CAUSE SPACE. WE ARE ABLE TO ACCOMPLISH THIS PRIMARILY BECAUSE OF OUR EARLY ADOPTION OF INTERNET BASED EFFORTS, HIGH NUMBER OF VOLUNTEERS VS. SALARIED EMPLOYEES, AND CREATIVE COST-EFFECTIVE MECHANISMS FOR ACCOMPLISHING OUR MANY GOALS, ELIMINATION OF BRICK-AND-MORTAR OFFICE SPACES AND ASSOCIATED OVERHEAD COSTS, AND BY PARTNERING WITH FOR PROFIT COMPANIES WHO SHARE OUR MISSION VALUES TO BEAR THE LOAD OF COSTS IN PUBLIC OUTREACH. WE CONTINUE TO BE MENTIONED BY GREAT NON-PROFITS AS A MODEL FOR OTHER NON-PROFIT ORGANIZATIONS TO EMULATE. WE ARE VERY PROUD TO RECEIVE SUCH PRAISE. FORM 990, PART VI, SECTION B, LINE 11B NO REVIEW WAS OR WILL BE CONDUCTED. FORM 990, PART VI, SECTION B, LINE 15A COMPENSATION OF CEO IS SUBECT TO THE APPROVAL OF INDEPENDENT BOARD MEMBERS. FORM 990, PART VI, SECTION C, LINE 19 GOVERNMENT DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990 PART VI LINE 11B A COMPLETED COPY OF THIS FORM 990 WAS REVIEWED BY PRESIDENT BRIAN HILL, AND MADE AVAILABLE TO ANY/ALL MEMBERS OF THE GOVERNING BODY PRIOR TO FILING FOR THEIR REVIEW, BUT IS NOT REQUIRED FORM 990 PART VI LINE 19 GOVERNING DOCUMENTS ARE AVILABLE UPON REQUEST FORM 990, PART IX, LINE 11G CONSULTING: PROGRAM SERVICE EXPENSES 45,660. MANAGEMENT AND GENERAL EXPENSES 500. FUNDRAISING EXPENSES 1,040. TOTAL EXPENSES 47,200. FORM 990 PART VI LINE 15A COMPENSATION OF CEO IS SUBJECT TO THE APPROVAL OF INDEPENDENT BOARD MEMBERS