2024-07-02T07:54:01-05:00 2023-12-31 061156122 ROLLERI & SHEPPARD CPAS LLP 2150 POST ROAD 5TH FL FAIRFIELD CT 06824 990 2023-01-01 260687439 RETT SYNDROME RESEARCH TRUST INC RETT 2034450041 67 UNDER CLIFF ROAD TRUMBULL CT 06611 MONICA COENRAADS CHIEF EXECUTIVE OFFICER 2034450041 2024-06-25 1 MONICA COENRAADS 999009999 0 JOHN M ROLLERI CPA P00182555 2032592727 X 2 AAL1 IAL1 2023 2023-04-26 12:10:37Z MONICA COENRAADS 67 UNDERCLIFF ROAD TRUMBULL CT 06611 8872437 0 X WWW.RSRT.ORG X 2007 CT THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS. 14 14 8 0 0 0 7028813 8080684 39122 106950 30058 336181 0 0 7097993 8523815 2073337 9938988 0 0 1237769 1287803 0 0 749615 731059 1111513 4042165 12338304 3055828 -3814489 14883080 18457084 3932779 11321272 10950301 7135812 X THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS. 0 0 11144171 9938988 106950 THE ORGANIZATION PROVIDES FUNDING TO LEADING RESEARCH INSTITUTIONS AND COMPANIES WORKING ON RETT SYNDROME AND RELATED MECP2 DISORDERS. 252369 THE ORGANIZATION SPONSORS SCIENTIFIC WORKSHOPS THAT BRING THE LEADING RETT RESEARCHERS TOGETHER WITH ELITE SCIENTISTS IN SYNERGISTIC FIELDS TO EXCHANGE DATA AND SET RESEARCH DIRECTION. THE ORGANIZATION PROVIDES FUNDING TO LEADING RESEARCH INSTITUTIONS WORKING ON RETT SYNDROME AND RELATED MECP2 DISORDERS. RESEARCH IS AIMED AT 1) RESTORING LEVELS OF MECP2 PROTEIN, 2) IDENTIFYING OBJECTIVE TOOLS TO MEASURE RETT SYMPTOMS 3) ESTABLISH A CLINICAL TRIAL NETWORK 4) IDENTIFY FUNCTION OF MECP2 PROTEIN. THE ORGANIZATION SPONSORS SCIENTIFIC WORKSHOPS THAT BRING THE LEADING RETT RESEARCHERS TOGETHER WITH ELITE SCIENTISTS IN SYNERGISTIC FIELDS TO EXCHANGE DATA AND SET RESEARCH DIRECTION. 11396540 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 1 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 16 0 8 0 0 0 0 0 0 1 1 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA CT IL MA MD NJ NY PA X MONICA COENRAADS 2034450041 67 UNDER CLIFF ROAD TRUMBULL CT 06611 ADRIAN BIRD TRUSTEE 2.00 X 0 0 0 ALBA TULL TRUSTEE 2.00 X 0 0 0 BRAD ZELINGER TRUSTEE 2.00 X 0 0 0 BRIAN WHITMER TRUSTEE 2.00 X 0 0 0 HEIDI EPSTEIN VICE CHAIRMAN 2.00 X X 0 0 0 INGRID HARDING CO-FOUNDER AND TRUSTEE 2.00 X 0 0 0 LAWRENCE MATTIS SECRETARY 2.00 X X 0 0 0 MARC TESLER TRUSTEE 2.00 X 0 0 0 MARCI VALNER TREASURER 2.00 X X 0 0 0 MONICA COENRAADS CHIEF EXECUTIVE OFFICER 50.00 X X 220000 0 0 RACHAEL STEVENSON TRUSTEE 2.00 X 0 0 0 RACHEL ROTHSCHILD TRUSTEE 2.00 X 0 0 0 STEPHANIE BOHN TRUSTEE 2.00 X 0 0 0 ANTHONY SCHOENER CHAIRMAN 2.00 X 0 0 0 RANDALL CARPENTER CHIEF MEDICAL OFFICER 25.00 X X 165000 0 0 TIMOTHY FREEMAN CHIEF DEVELOPMENT OFFICER 50.00 X X 220000 0 0 JANA VON HEHN CHIEF SCIENTIFIC OFFICER 50.00 X X 203333 0 0 808333 0 0 4 0 1 0 0 178021 7902663 8080684 LICENSING 900099 84450 84450 BIOREPOSITORY 900099 22500 22500 106950 333088 333088 351715 348622 3093 3093 3093 8523815 443131 0 0 9938988 9938988 1147836 806159 135466 206211 59126 41526 6978 10622 80841 56777 9541 14523 174064 142727 21780 9557 7449 845 6388 216 6804 2268 2268 2268 FUNDRAISING 491819 491819 SCIENTIFIC MEETINGS, TR 252369 252369 RESEARCH COSTS 80625 80625 MISCELLANEOUS 68439 51633 6623 10183 29944 22623 3105 4216 12338304 11396540 192149 749615 13831961 3121261 14145135 1046131 1189610 4988 1078 14883080 18457084 13000 35125 3919779 11286147 3932779 11321272 X 10950301 7135812 10950301 7135812 14883080 18457084 -3814489 0 X 0 1 X 0 0 X 8340103 7664611 7837691 6657601 7603093 38103099 8340103 7664611 7837691 6657601 7603093 38103099 38103099 36443 62327 29868 30209 333088 491935 38595034 0.98730 0.99550 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 8531815 8000 8000 8523815 0 8523815 12346304 8000 8000 12338304 0 12338304 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM GRANTS TO RECIPIENTS LOCATED IN THE REGION 403502 NORTH AMERICA GRANTS TO RECIPIENTS LOCATED IN THE REGION 47500 0 0 0 0 0 0 451002 0 451002 UNITED KINGDOM 403502 WIRE TRANSFER 0 CANADA 47500 0 0 0 0 0 0 0 PART I, LINE 2: RSRT WORKS CLOSELY WITH THE UNIVERSITY OF EDINBURGH AND MONITORS FUNDING AND PROGRESS OF THE RESEARCH IT PERFORMS. 1 CHILDREN'S HOSPITAL OF MONTEFIORE 3415 BAINBRIDGE AVE BRONX NY 10467 50000 0 RETT RESEARCH UNIVERSITY OF CALIFORNIA DAVIS 1 SHIELDS AVENUE DAVIS CA 95616 956006144 390506 0 RNA EDITING MASSACHUSETTS INSTITUTE OF TECHNOLOGY 77 MASSACHUSETTS AVE CAMBRIDGE MA 02139 042103594 501(C)(3) 3734738 0 RNA EDITING BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVENUE BOSTON MA 02115 69088 0 RETT RESEARCH EMORY UNIVERSITY 201 DOWMAN DRIVE ATLANTA GA 30322 1254085 0 RNA EDITING RETT SYNDROME GLOBAL REGISTRY CO RSRT 67 UNDER CLIFF ROAD TRUMBULL CT 06611 100000 0 RETT RESEARCH HARVARD STEM CELL INSTITUTE 7 DIVINITY AVE CAMBRIDGE MA 02138 101887 0 RETT RESEARCH EMERALD 1 - VIVOSENSE C/O RETT SYNDROME TRUMBULL CT 06611 20075 0 RETT RESEARCH CORIELL INSTITUTE FOR MEDICAL RESEARCH 403 HADDON AVENUE CAMDEN NJ 08103 105826 0 RETT RESEARCH VIVALINK C/O RETT SYNDROME TRUMBULL CT 06611 7446 0 RETT RESEARCH CALIFORNIA INSTITUTE OF TECHNOLOGIES 1200 E CALIFORNIA BLVD PASADENA CA 91125 500000 0 RETT RESEARCH PROQR C/O RETT SYNDROME TRUMBULL CT 06611 1120000 0 RETT RESEARCH UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 N LAKE AVE WORCESTER MA 01655 542084125 2343091 0 RETT RESEARCH NEW YORK UNIVERSITY C/O RETT SYNDROME TRUMBULL CT 06611 50000 0 RETT RESEARCH SAMPLED C/O RETT SYNDROME TRUMBULL CT 06611 24100 0 RETT RESEARCH GENETIC ALLIANCE C/O RETT SYNDROME TRUMBULL CT 06611 750 0 RETT RESEARCH X X 0 0 0 0 0 0 0 0 0 MONICA COENRAADS CHIEF EXECUTIVE OFFICER 220000 0 0 0 0 0 0 0 0 0 220000 0 0 0 TIMOTHY FREEMAN CHIEF DEVELOPMENT OFFICER 220000 0 0 0 0 0 0 0 0 0 220000 0 0 0 JANA VON HEHN CHIEF SCIENTIFIC OFFICER 203333 0 0 0 0 0 0 0 0 0 203333 0 0 0 RANDALL CARPENTER CHIEF MEDICAL OFFICER 165000 0 0 0 0 0 0 0 0 0 165000 0 0 0 X AUCTION AND RAFFLE ITEMS 0 299570 X IN-KIND SERVICES 2 8000 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B LINE 11A EXPLANATION - A COPY OF FORM 990 IS GIVEN TO THE BOARD OF DIRECTORS FOR REVIEW PRIOR TO ITS FILING. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION MAINTAINS A CONFLICT OF INTEREST POLICY THAT MUST BE SIGNED BY THE TRUSTEES ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION B, LINE 15 THE COMPENSATION OF THE CHIEF EXECUTIVE OFFICER AND CHIEF DEVELOPMENT OFFICE IS REVIEWED BY THE BOARD AND COMPARED TO THE COMPENSATION OF EXECUTIVE DIRECTORS/PRESIDENTS OF ORGANIZATIONS OF SIMILAR SIZE. FORM 990, PART VI, SECTION C, LINE 18 THE ORGANIZATION'S GOVERNING DOCUMENTS, POLICIES AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST AND VIA THEIR WEBSITE FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, POLICIES AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST AND VIA THEIR WEBSITE