2024-07-01T14:23:54-04:00 2023-12-31 411681939 OLSON CLOUGH & LEBLANC LTD 10580 WAYZATA BLVD STE 200 MINNETONKA MN 553051525 990 2023-01-01 200543474 PCD KS FOUNDATION PCDK 6123861261 10023 MORRIS ROAD BLOOMINGTON MN 55437 MICHELE MANION EXEC DIR, PRESIDENT 6123861261 2024-06-26 MICHELE MANION 999009999 true MICHAEL P AMBERSON P01015531 9525449600 2024-06-26 2023 2023-04-26 12:10:37Z PCD FOUNDATION MICHELE MANION 10023 MORRIS RD BLOOMINGTON MN 55437 916416 false X WWW.PCDFOUNDATION.ORG X 2004 MN TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD). 7 6 4 20 0 1094275 867426 10012 0 4976 27862 0 1109263 895288 97732 218412 0 351685 463089 0 48983 377879 373100 827296 1054601 281967 -159313 3346050 3268548 316853 398664 3029197 2869884 X TO PROVIDE THE LEADERSHIP AND RESOURCES NEEDED TO SUPPORT INCREASED RESEARCH, ACCELERATED DIAGNOSIS, IMPROVED HEALTH, AND ULTIMATELY A CURE FOR PRIMARY CILIARY DYSKINESIA (PCD). false false 180339 70962 DEVELOPMENT OF CLINICAL CENTERS AT MAJOR HOSPITALS THROUGHOUT THE UNITED STATES. THESE CLINICAL CENTERS WILL MAKE INFORMATION AVAILABLE TO THE MEDICAL COMMUNITY ABOUT THE NATURE OF PCD AND PROVIDE UPDATED RESEARCH INFORMATION. 366784 72242 PATIENT REGISTRY AND OTHER DEVELOPMENT COSTS TO DOCUMENT PCD AFFLICTED INDIVIDUALS. THE REGISTRY CAN ONLY BE UPDATED BY QUALIFIED MEDICAL PERSONNEL. 333625 75208 OUR CAPACITY-BUILDING ACTIVITIES INCLUDE EXPANDING, DEVELOPING AND STRENGTHENING THE SKILLS, ABILITIES, PROCESSES, OPERATIONS, TECHNOLOGIES, AND RESOURCES THAT ALLOW US TO COMPLETE OUR MISSION AND MANAGE OUR MISSION-CRITICAL PROGRAMS. THIS INCLUDES ADDING CRITICAL STAFF WITH SKILLS IN BUSINESS DEVELOPMENT (WE HIRED 1 FTE IN THIS CAPACITY), CONTRACTING WITH CONSULTANTS WHO HAVE EXPERTISE IN AREAS OUR INTERNAL EXPERTISE WAS LACKING (THREAD STRATEGIES, CRM AND OTHER DEVELOPMENT GUIDANCE), AND UPGRADING OUR TECHNOLOGY TO BE ABLE TO HANDLE OUR EXPANDING NEEDS. ADDITIONALLY, WE WERE ABLE TO SEND STAFF TO MEETINGS AND CONVENINGS RELATED TO CAPACITY BUILDING. OUR CAPACITY-BUILDING ACTIVITIES INCLUDE EXPANDING, DEVELOPING AND STRENGTHENING THE SKILLS, ABILITIES, PROCESSES, OPERATIONS, TECHNOLOGIES, AND RESOURCES THAT ALLOW US TO COMPLETE OUR MISSION AND MANAGE OUR MISSION-CRITICAL PROGRAMS. THIS INCLUDES ADDING CRITICAL STAFF WITH SKILLS IN BUSINESS DEVELOPMENT (WE HIRED 1 FTE IN THIS CAPACITY), CONTRACTING WITH CONSULTANTS WHO HAVE EXPERTISE IN AREAS OUR INTERNAL EXPERTISE WAS LACKING (WOLF ASSOCIATES FOR PAYROLL, 401K AND OTHER HR GUIDANCE), AND UPGRADING OUR TECHNOLOGY TO BE ABLE TO HANDLE OUR EXPANDING NEEDS. ADDITIONALLY, WE WERE ABLE TO SEND STAFF TO MEETINGS AND CONVENINGS RELATED TO CAPACITY BUILDING. 880748 true true false false false false false false false false false false false false true false true false false false false false false false false false false true false true false false false false false false false false false false false false false false false false false false 1 0 true 4 true false false false false false false false false X 7 6 false false false false false false false true true true false true true true true true true false false false X X LYNN EHRNE 5856218915 61 LAKE MEADOW DR ROCHESTER NY 14612 MICHELE MANION EXEC DIR, PR 40.00 X X 168000 0 0 CARRIE WILLIS DIRECTOR, VI 4.00 X X 0 0 0 AMY KOVLER DIRECTOR, TR 0.75 X 0 0 0 LYNN EHRNE DIRECTOR, SE 40.00 X X 58341 0 0 BILL ANTON CHAIR 5.00 X 0 0 0 GARY JOYNER VICE CHAIR 5.00 X 0 0 0 TORI EASTVOLD DIRECTOR 1.00 X 0 0 0 DR MARGARET LEIGH DIRECTOR 1.00 X 0 0 0 226341 1 false true false 867426 21128 867426 27745 27745 21245 21128 117 117 117 895288 117 27745 213712 213712 4700 4700 226341 169756 56585 203667 203667 33081 28706 4375 13528 10306 3222 28416 28416 4256 3192 1064 18380 14680 894 2806 42060 12670 9 29381 163061 163061 4428 4428 9761 7321 2440 BAD DEBTS 45000 45000 DUES AND SUBSCRIPTIONS 21384 16038 5346 CHARTIABLE REGISTRATIONS 10759 10759 BANK SERVICE CHARGES 6037 6037 6030 4523 1507 1054601 880748 124870 48983 3097790 1938624 241337 5078 6923 56700 1268146 3346050 3268548 76908 132213 30000 50000 150000 150000 9945 116451 316853 398664 X 2620466 2794780 408731 75104 3029197 2869884 3346050 3268548 -159313 X false true X true X 616785 716187 2000374 1094275 867426 5295047 51950 10057 10012 72019 668735 716187 2010431 1104287 867426 5367066 5367066 104 105 117 5860 27745 33931 104 105 117 5860 27745 33931 668839 716292 2010548 1110147 895171 5400997 0.99370 0.99880 0.01000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED PREPAID CONTRIBUTIONS 109770 ACCRUED INTEREST 6681 116451 895288 895288 895288 1054601 1054601 1054601 true VANDERBILT UNIVERSITY MEDICAL CENTE PO BOX 121236 DALLAS TX 753121236 140000 REGISTRY SUPPORT SEATTLE CHILDREN HOSPITAL 4800 SAND POINT WAY NE SEATTLE WA 98105 60000 false false false false false false false false false MICHELE MANION EXEC DIR, PRESIDENT 120000 48000 168000 FORM 990, PAGE 2, PART III, LINE 4D OUR CAPACITY-BUILDING ACTIVITIES INCLUDE EXPANDING, DEVELOPING AND STRENGTHENING THE SKILLS, ABILITIES, PROCESSES, OPERATIONS, TECHNOLOGIES, AND RESOURCES THAT ALLOW US TO COMPLETE OUR MISSION AND MANAGE OUR MISSION-CRITICAL PROGRAMS. THIS INCLUDES ADDING CRITICAL STAFF WITH SKILLS IN BUSINESS DEVELOPMENT (WE HIRED 1 FTE IN THIS CAPACITY), CONTRACTING WITH CONSULTANTS WHO HAVE EXPERTISE IN AREAS OUR INTERNAL EXPERTISE WAS LACKING (WOLF ASSOCIATES FOR PAYROLL, 401K AND OTHER HR GUIDANCE), AND UPGRADING OUR TECHNOLOGY TO BE ABLE TO HANDLE OUR EXPANDING NEEDS. ADDITIONALLY, WE WERE ABLE TO SEND STAFF TO MEETINGS AND CONVENINGS RELATED TO CAPACITY BUILDING. FORM 990, PAGE 6, PART VI, LINE 9 CARRIE WILLIS 387 KAMNIC STREET PIERZ, MN 56364 AMY KOVLER 540 W STRATFORD CHICAGO, IL 60657 LYNN EHRNE 61 LAKE MEADOW DRIVE ROCHESTER, NY 14612 BILL ANTON 1907 N MILWAUKEE AVE CHICAGO, IL 60647 GARY JOYNER 64 LAWTON ROAD HILTON HEAD, SC 29928 TORI EASTVOLD 123 WOODLAND DR FOREST CITY, IA 50436 DR. MARGARET LEIGH 904 MONTEREY VALLEY DRIVE CHAPEL HILL, NC 27516-9132 FORM 990, PAGE 6, PART VI, LINE 11B FORM 990 IS PREPARED BY AN INDEPENDENT CPA FIRM. THE 990 IS DISTRIBUTED TO ALL BOARD MEMBERS FOR COMMENT AND A VOTE TO APPROVE BEFORE FILING. FORM 990, PAGE 6, PART VI, LINE 12C POTENTIAL CONFLICTS ARE SUBMITTED IN WRITING AND REVIEWED ON AN AS NEEDED BASIS BY THE EXECUTIVE COMMITTEE AND AGAIN ANNUALLY BY THE ENTIRE BOARD WHEN ALL BOARD MEMBERS ARE REQUIRED TO RE-SIGN THE COI POLICY. FORM 990, PAGE 6, PART VI, LINE 19 NO DOCUMENTS AVAILABLE TO THE PUBLIC