2024-06-10T11:45:29-05:00 2023-12-31 521022232 SNYDER COHN PC 11200 ROCKVILLE PIKE SUITE 415 NORTH BETHESDA MD 20852 990 2023-01-01 542134884 PERSONALIZED MEDICINE COALITION PERS 2025891770 1710 RHODE ISLAND AVE NW SUITE 70 WASHINGTON DC 200363125 EDWARD ABRAHAMS PHD PRESIDENT 2025891770 2024-05-31 1 EDWARD ABRAHAMS PHD 999009999 0 KEITH JENNINGS P01319883 3016526700 2024-05-31 0 AAL1 IAL1 2023 2023-04-26 12:10:37Z EDWARD ABRAHAMS PHD 1710 RHODE ISLAND AVE NW SUITE 700 WASHINGTON DC 200363125 2924778 0 X PERSONALIZEDMEDICINECOALITION.ORG X 2003 DC THE PERSONALIZED MEDICINE COALITION (PMC), REPRESENTING INNOVATORS, SCIENTISTS, PATIENTS, PROVIDERS AND PAYERS, PROMOTES THE UNDERSTANDING AND ADOPTION OF PERSONALIZED MEDICINE CONCEPTS, SERVICES AND PRODUCTS TO BENEFIT PATIENTS AND THE HEALTH SYSTEM. 32 32 8 26 0 0 1595030 931359 1920961 1926842 48376 62905 50470 3672 3614837 2924778 0 0 0 0 1919095 2033663 0 0 208264 1844800 1321354 3763895 3355017 -149058 -430239 2207870 2844075 550004 1582270 1657866 1261805 THE PERSONALIZED MEDICINE COALITION (PMC), REPRESENTING INNOVATORS, SCIENTISTS, PATIENTS, PROVIDERS AND PAYERS, PROMOTES THE UNDERSTANDING AND ADOPTION OF PERSONALIZED MEDICINE CONCEPTS, SERVICES AND PRODUCTS TO BENEFIT PATIENTS AND THE HEALTH SYSTEM. 0 0 857518 582288 PUBLIC AND SCIENCE POLICY (ADVOCACY): TO HELP FACILITATE THE DEVELOPMENT OF PERSONALIZED MEDICINE TESTS AND THERAPIES, PMC ENGAGES REGULATORS AND OTHER POLICYMAKERS TO ADVOCATE FOR CONTINUED INVESTMENTS IN BIOMEDICAL RESEARCH AS WELL AS MODERNIZED REGULATORY, COVERAGE AND PAYMENT POLICIES THAT SUPPORT ACCESS TO PERSONALIZED MEDICINE. 862438 582288 EVIDENCE DEVELOPMENT: TO ENCOURAGE THE SWIFTER ADOPTION OF PERSONALIZED MEDICINE BY HEALTH CARE PROVIDERS, PMC HELPS BUILD THE EVIDENCE BASE NECESSARY TO DEMONSTRATE THE CLINICAL AND ECONOMIC VALUE OF PERSONALIZED MEDICINE. 951449 765938 EDUCATION: TO RAISE THE PROFILE AND SCOPE OF PERSONALIZED MEDICINE, PMC PROACTIVELY EDUCATES DECISION-MAKERS ABOUT HOW THE FIELD CAN MAKE THE HEALTH SYSTEM MORE EFFECTIVE AND EFFICIENT BY TARGETING TREATMENTS TO ONLY THOSE PATIENTS WHO WILL BENEFIT. 2671405 1 1 0 1 0 0 0 0 0 0 1 0 0 1 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 5 0 1 8 1 0 0 0 0 0 0 0 0 0 0 0 0 X 32 32 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 1 0 X THE COALITION 2025891770 1710 RHODE ISLAND AVE NW SUITE 700 WASHINGTON DC 200363125 EDWARD ABRAHAMS PRESIDENT 40.00 X X 452940 0 15282 CYNTHIA BENS SVP, PUBLIC POLICY 40.00 X 249483 0 23576 DARYL PRITCHARD SVP, SCIENCE POLICY 40.00 X 254823 0 11962 FASWILLA SAMPSON CHIEF OPERATING OFFICER 40.00 X 216209 0 27617 CHRISTOPHER WELLS SVP, PUBLIC AFFAIRS 40.00 X 195874 0 29421 KAYLA S BROWN VP, MEMBERSHIP & DEVELOPMENT 40.00 X 148170 0 19009 LINCOLN NADAULD MD PHD BOARD CHAIR 1.00 X X 0 0 0 LAUREN SILVIS JD BOARD VICE CHAIR 1.00 X X 0 0 0 MARK P STEVENSON MBA TREASURER 1.00 X 0 0 0 MICHAEL SHERMAN MD MBA MS BOARD SECRETARY 1.00 X X 0 0 0 JAY G WOHLGEMUTH MD PAST CHAIR 1.00 X 0 0 0 GABRIELLE ALLEGRI DIRECTOR 1.00 X 0 0 0 ANTONIO L ANDREU MD PHD DIRECTOR 1.00 X 0 0 0 RANDY BURKHOLDER DIRECTOR 1.00 X 0 0 0 DAWN CARDEIRO MS DIRECTOR 1.00 X 0 0 0 BRIAN CAVENEY MD DIRECTOR 1.00 X 0 0 0 KEVIN CONROY DIRECTOR 1.00 X 0 0 0 WILLIAM S DALTON PHD MD DIRECTOR 1.00 X 0 0 0 STEPHEN L ECK MD PHD DIRECTOR 1.00 X 0 0 0 HELMY ELTOUKHY PHD DIRECTOR 1.00 X 0 0 0 LORI FRANK PHD DIRECTOR 1.00 X 0 0 0 SARAH HERSEY DIRECTOR 1.00 X 0 0 0 STEFFAN HO MD PHD DIRECTOR 1.00 X 0 0 0 KRIS JOSHI PHD DIRECTOR 1.00 X 0 0 0 RICHARD KNIGHT DIRECTOR 1.00 X 0 0 0 MIA LEVY DIRECTOR 1.00 X 0 0 0 JAMES W LILLARD PHD DIRECTOR 1.00 X 0 0 0 PETER MAAG PHD DIRECTOR 1.00 X X 0 0 0 ANNE-MARIE MARTIN PHD DIRECTOR 1.00 X 0 0 0 HOWARD MCCLEOD PHARMD DIRECTOR 1.00 X 0 0 0 J BRIAN MUNROE DIRECTOR 1.00 X 0 0 0 ELIZABETH O'DAY PHD DIRECTOR 1.00 X 0 0 0 JOSH OFMAN MD DIRECTOR 1.00 X 0 0 0 MICHAEL J PELLINI MD MBA DIRECTOR 1.00 X 0 0 0 KIMBERLY POPOVITA DIRECTOR 1.00 X 0 0 0 PRASANTH REDDY MD DIRECTOR 1.00 X 0 0 0 APOSTOLIA M TSIMBERIDOU MD PHD DIRECTOR 1.00 X 0 0 0 MICHAEL J VASCONCELLES MD DIRECTOR 1.00 X 0 0 0 1517499 0 126867 7 0 1 0 FOLEY & LARDNER LLP 3000 K STREET NW SUITE 600 WASHINGTON DC 200075109 CONSULTING 110000 1 931359 931359 MEMBERSHIP DUES 541900 1746863 1746863 ADMISSION FEES - NON-M 541900 179979 179979 1926842 62905 62905 MISCELLANEOUS REVENUE 900099 3672 3672 3672 2924778 1930514 0 62905 669150 379869 221340 67941 1082772 945110 63347 74315 83263 62972 13530 6761 97268 73564 15806 7898 101210 76545 16447 8218 5130 5130 114481 114481 307826 306326 1500 43809 33134 7118 3557 101382 76675 16475 8232 114697 86746 18638 9313 56447 36299 5971 14177 568258 568258 12343 9405 1846 1092 8117 8117 BANK AND CREDIT CARD FE 19601 19601 PRINTING AND PUBLICATIO 14202 14202 DUES AND SUBSCRIPTIONS 2300 2300 MISCELLANEOUS EXPENSES 1961 1831 130 -49200 -49200 3355017 2671405 475348 208264 402344 235603 172500 45000 43115 162335 52951 53293 113174 107807 17710 5367 1428375 1325690 90875 1016787 2207870 2844075 63232 93754 385129 410251 101643 1078265 550004 1582270 X 1063828 804998 594038 456807 1657866 1261805 2207870 2844075 -430239 34178 0 X 0 1 X 1 0 X 1279790 627767 750001 1595030 931359 5183947 1279790 627767 750001 1595030 931359 5183947 1048272 4135675 43682 36435 36725 48376 62905 228123 17917 60300 1211 50470 3672 133570 5545640 1930514 0.74580 0.66120 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS REVENUE - 2019 AMOUNT: $ 17,917. 2020 AMOUNT: $ 60,300. 2021 AMOUNT: $ 1,211. 2022 AMOUNT: $ 50,470. 2023 AMOUNT: $ 3,672. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 167000 167000 2979753 3146753 307338 76835 0 0 268204 267244 327952 307338 1170738 1756107 135799 139413 167000 167000 609212 67051 66811 81988 76835 292685 439028 44726 44726 0 17165 11798 5367 51283 51283 0 5367 SECURITY DEPOSIT 9230 RIGHT OF USE ASSET-LEASE 1007557 1016787 LEASE LIABILITY-OPERATING LEASE 1078265 1078265 X 2958956 34178 34178 2924778 0 2924778 3355017 0 3355017 0 3355017 PART X, LINE 2: THE COALITION ACCOUNTS FOR THE EFFECT OF ANY UNCERTAIN TAX POSITIONS BASED ON A 'MORE LIKELY THAN NOT' THRESHOLD TO THE RECOGNITION OF THE TAX POSITIONS BEING SUSTAINED BASED ON THE TECHNICAL MERITS OF THE POSITION UNDER SCRUTINY BY THE APPLICABLE TAXING AUTHORITY. IF A TAX POSITION OR POSITIONS ARE DEEMED TO RESULT IN UNCERTAINTIES OF THOSE POSITIONS, THE UNRECOGNIZED TAX EFFECT IS ESTIMATED BASED ON A 'CUMULATIVE PROBABILITY ASSESSMENT' THAT AGGREGATES THE ESTIMATED TAX LIABILITY FOR UNCERTAIN TAX POSITIONS. INTEREST AND PENALTIES, IF ANY, ARE ACCRUED AS A COMPONENT OF GENERAL AND ADMINISTRATIVE EXPENSES WHEN ASSESSED. THE COALITION IS A NOT-FOR-PROFIT ORGANIZATION THAT IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND CLASSIFIED BY THE INTERNAL REVENUE SERVICE AS OTHER THAN A PRIVATE FOUNDATION. SIMILAR TO OTHER TAX-EXEMPT ORGANIZATIONS, THE COALITION IS SUBJECT TO TAX ON UNRELATED BUSINESS INCOME. TAX YEARS PRIOR TO 2020 ARE NO LONGER SUBJECT TO EXAMINATION BY AUTHORITIES. X X X 0 0 0 0 0 0 0 0 0 EDWARD ABRAHAMS PRESIDENT 379883 0 73057 0 0 0 15040 0 242 0 468222 0 0 0 CYNTHIA BENS SVP, PUBLIC POLICY 208711 0 40772 0 0 0 12741 0 10835 0 273059 0 0 0 DARYL PRITCHARD SVP, SCIENCE POLICY 214051 0 40772 0 0 0 11962 0 0 0 266785 0 0 0 FASWILLA SAMPSON CHIEF OPERATING OFFICER 180326 0 35883 0 0 0 9288 0 18329 0 243826 0 0 0 CHRISTOPHER WELLS SVP, PUBLIC AFFAIRS 164794 0 31080 0 0 0 10101 0 19320 0 225295 0 0 0 KAYLA S BROWN VP, MEMBERSHIP & DEVELOPMENT 125120 0 23050 0 0 0 6622 0 12387 0 167179 0 0 0 FORM 990, PART VI, SECTION A, LINE 1A PMC HAS AN EXECUTIVE COMMITTEE CONSISTING OF 5 BOARD MEMBERS. THE COMMITTEE IS TASKED WITH HELPING PMC'S MANAGEMENT TO ADMINISTER AND LEAD THE ORGANIZATION IN ACCOMPLISHING ITS STATED GOALS AND OBJECTIVES. THE EXECUTIVE COMMITTEE FUNCTIONS AS THE FINANCE AND AUDIT COMMITTEES AND MAKES RECOMMENDATIONS TO THE FULL BOARD OF DIRECTORS FOR APPROVAL ON VARIOUS MATTERS IN ACCORDANCE WITH PMC'S BY-LAWS. FORM 990, PART VI, SECTION A, LINE 8B THE ORGANIZATION LACKS DISTINCT COMMITTEES VESTED WITH THE POWER TO REPRESENT THE BOARD. CONSEQUENTLY, THERE EXISTS NO OBLIGATION FOR THE ORGANIZATION TO PROMPTLY DOCUMENT THESE MEETINGS. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS PREPARED BY THE ORGANIZATION'S CPA FIRM AND THEN REVIEWED AND APPROVED BY THE PRESIDENT, CHAIRMAN OF THE BOARD, TREASURER AND SECRETARY OF THE COALITION. THE FULL BOARD OF DIRECTORS RECEIVES A COPY PRIOR TO FILING THE RETURN. FORM 990, PART VI, SECTION B, LINE 12C DIRECTORS, OFFICERS, AND CERTAIN KEY EMPLOYEES IDENTIFIED BY THE CHAIR IN HIS OR HER SOLE DISCRETION, SHALL DISCLOSE TO THE BOARD ANY CONFLICTING INTEREST TRANSACTIONS OR DIVIDED LOYALTIES WHICH ARISE, AND NO DIRECTOR OR OFFICER SHALL VOTE ON ANY MATTER THAT WOULD INVOLVE SUCH CONFLICTING INTERESTS OR LOYALTIES WITHOUT THE APPROVAL OF THE BOARD. IN THE EVENT THAT A DIRECTOR QUESTIONS WHETHER A CONFLICTING INTEREST OF LOYALTY EXISTS, THE ISSUE SHALL BE DECIDED BY A MAJORITY VOTE OF THE DIRECTORS PRESENT AND VOTING, PROVIDED THAT THE DIRECTOR IN QUESTION SHALL NOT VOTE. FORM 990, PART VI, SECTION B, LINE 15 PMC'S BOARD OF DIRECTORS PREPARES A SURVEY OF EXECUTIVE COMPENSATION FOR SIMILAR ASSOCIATIONS IN THE WASHINGTON, D.C. AREA TO DETERMINE REASONABLE COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 PMC'S FORM 990 IS READILY AVAILABLE ONLINE AT GUIDESTAR AND TO THE PUBLIC UPON REQUEST.