2024-05-13T13:57:09-05:00 2023-12-31 562034483 NORTON COLLAR LUND LILLEY PLLC 7701 SIX FORKS ROAD SUITE 100 RALEIGH NC 27615 990 2023-01-01 264826165 NORTH CAROLINA CENTER FOR THE CARE OF HUNTINGTON'S DISEASE INC NORT 9198591209 2054 KILDAIRE FARM ROAD 427 CARY NC 27518 CHRIS MICHALAK TREASURER 9198591209 2024-05-08 1 CHRIS MICHALAK 999009999 0 ROBERT M LANNING P01893629 9198411000 2024-05-08 3 AAL1 IAL1 2023 2023-04-26 12:10:37Z DBA HD REACH CHAD MERRELL 2054 KILDAIRE FARM RD 427 CARY NC 27518 490860 0 X WWW.HDREACH.ORG X 2009 NC PROVIDING ACCESS TO HEALTHCARE, EDUCATION, AND SOCIAL ASSISTANCE TO PATIENTS AND FAMILIES AFFECTED BY HUNTINGTON'S DISEASE IN NORTH CAROLINA. 8 8 5 40 0 0 393515 462830 11832 6848 3396 3896 7591 5793 416334 479367 0 0 0 0 244548 304510 0 0 57286 55540 103988 300088 408498 116246 70869 309953 381512 836 1526 309117 379986 X PROVIDING ACCESS TO HEALTHCARE, EDUCATION, AND SOCIAL ASSISTANCE TO PATIENTS AND FAMILIES AFFECTED BY HUNTINGTON'S DISEASE IN NORTH CAROLINA. 0 0 47212 ACCESS TO CARE PROGRAM - TO FACILITATE ENTRY TO MEDICAL CARE BY PERFORMING NEEDS ASSESSMENT, REFERRAL TO APPROPRIATE SOURCE OF HELP, FOLLOW UP ON TREATMENT PLAN DEVELOPED DURING HD CLINICS, AND OFFER SUPPORT TO HOME-BOUND FAMILIES. SERVED 301 PERSONS IN 2023. INCLUDED CRISIS INTERVENTION, REFERRAL TO APPROPRIATE SOURCE OF MEDICAL CARE OR RESOURCES AND TELEPHONE SUPPORT. 132469 OUTREACH PROGRAM - TO INCREASE AWARENESS IN NC HD PATIENTS AND FAMILIES OF HELP AND MEDICAL CARE AVAILABLE TO THEM. TO INCREASE AWARENESS OF HD IN THE GENERAL COMMUNITY, WITH HEALTH CARE PROVIDERS AND HEALTH CARE FACILITIES,THE GOVERNMENT AND OTHER CHARITABLE ORGANIZATIONS. CREATING PARTNERSHIPS WITH EXISTING PROGRAMS THAT PROVIDE SERVICES NEEDED BY HD FAMILIES. SERVED 49,819 PERSONS IN 2023. 87579 EDUCATION - PROGRAMS- FAMILIES TO EDUCATE FAMILIES ABOUT THE NEW INITIATIVES IN HD RESEARCH, TO EDUCATE ABOUT NC-CCHD PROGRAMS, TO DETAIL RESOURCES AVAILABLE TO PATIENTS AND FAMILIES, AND TO CREATE OPPORTUNITIES FOR HD FAMILIES TO MEET AND LEARN FROM EACH OTHER. SERVED 320 PERSONS IN 2023 AND HELD 7 SUPPORT GROUP MEETINGS. ACTIVITIES INCLUDE WEBSITE DEVELOPMENT, SUPPORT GROUP PARTICIPATION AND AN ANNUAL FAMILY EDUCATION DAY. 41098 EDUCATION PROGRAM - HEALTH CARE PROFESSIONALS - TO IMPROVE KNOWLEDGE AND MEDICAL CARE OF HUNTINGTON'S DISEASE: ITS DIAGNOSIS, TREATMENT, AND ON- GOING AND FUTURE RESEARCH FINDINGS, AND CREATE A MEETING FORUM FOR KNOWLEDGE EXCHANGE. 41098 308358 1 1 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 5 1 0 0 0 0 0 0 0 0 0 0 X 8 8 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 1 0 0 X BARBARA TRAPNELL 9198591209 2054 KILDAIRE FARM ROAD 427 CARY NC 27518 X TERRY BUEHNER DIRECTOR 1.00 X 0 0 0 CHAD MERRELL GOVERNANCE CHAIR 2.00 X X 0 0 0 CHRIS MICHALAK TREASURER 2.00 X X 0 0 0 CRAIG CHEPKE DIRECTOR 1.00 X 0 0 0 SHANE HERRING DIRECTOR 1.00 X 0 0 0 BURTON SCOTT SECRETARY 1.00 X X 0 0 0 ANTHONY MARTINEZ CHAIR 2.00 X X 0 0 0 ALEASE DANIEL DIRECTOR 1.00 X 0 0 0 0 0 0 0 0 0 0 0 34824 428006 3684 462830 VARIOUS 6848 6848 6848 3896 3896 17286 34824 11493 5793 5793 479367 10744 0 5793 283404 209098 37153 37153 21106 15408 2849 2849 203 203 2950 250 2700 14674 14370 152 152 4365 4299 66 11040 7362 3678 2943 2943 9913 8994 919 2450 2450 963 963 6065 6065 PROFESSIONAL DEVELOPMEN 17568 17568 PROGRAMS 14062 14062 FUNDRAISING EXPENSES 11493 11493 RECRUITMENT EXPENSES 2817 2817 2482 1709 773 408498 308358 42854 57286 261252 94283 135000 595 500 0 95 47929 91825 772 309 0 60000 309953 381512 836 1526 836 1526 X 249761 204365 59356 175621 309117 379986 309953 381512 70869 0 X 0 0 0 X 251368 267613 229539 393515 451336 1593371 251368 267613 229539 393515 451336 1593371 672894 920477 1083 710 1712 628 3896 8029 1601400 48597 0.57480 0.55850 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 60000 60000 1.00000 0 0 595 500 95 95 ENDOWMENT 60000 60000 GOLF OUTING RALEIGH 52080 34824 17256 11493 52080 34824 17256 11493 11493 5763 FORM 990, PART VI, SECTION B, LINE 11B NO REVIEW WAS OR WILL BE CONDUCTED. FORM 990, PART VI, SECTION B, LINE 12C ANNUAL REVIEW FORM 990, PART VI, SECTION B, LINE 15A BOARD APPROVAL BASED ON THE RECOMMENDATION OF A COMPENSATION COMMITTEE FORM 990, PART VI, SECTION C, LINE 19 NO DOCUMENTS AVAILABLE TO THE PUBLIC.