2024-05-13T11:10:27-05:00 2023-12-31 833620856 Murray Group CPA PLLC PO Box 77288 Charlotte NC 28271 990 2023-01-01 824368871 Cure VCP Disease Inc CURE 2294109573 209 Avondale Cir Warner Robins GA 31088 Nathan Peck CEO 2294109573 2024-05-09 1 Nathan Peck 999009999 1 Dana F Murray P01368695 7045753816 2024-05-09 2 AAL1 IAL1 2023 2023-04-26 12:10:37Z Nathan Peck 209 Avondale Cir Warner Robins GA 31088 430087 0 X www.curevcp.org X 2018 GA Patient support and research for VCP Disease 9 9 1 0 0 0 307225 380719 1692 4181 0 0 17110 36171 326027 421071 52593 62123 0 0 48935 108429 26250 13750 53387 132823 165828 260601 350130 65426 70941 406811 488967 0 11215 406811 477752 X Patient support and research for VCP Disease 0 0 86938 Creation of Scientific and Clinical Trial Tools: Cure VCP Disease used contract researchers to create video measures and two cell models, derived from patient's blood, that will be used in the discovery of treatments for VCP disease. To date, these tools have been used to launch three projects aimed at accelerating treatment development. 53268 53268 Sponsorship of Research: Cure VCP Disease is collaborating to investigate the use of gene editing to correct pathogenic variants of the VCP gene. This approach could bring a treatment to 70% of known patients with VCP disease. 29870 4181 Connections Conference: A VCP Family Gathering - Cure VCP Disease held an educational conference with the topics of understanding the disease, mental health, assistive devices, financial planning, and community building. There were 70+ people in attendance. 106688 8855 Grants $8,855Advertising & marketing $499Information Technology $1,650Office Expenses $377Educational resources $261Program Equip. & Mater. $3,093Benefits $424Payroll Taxes $5,486Wages $65,126Workers Comp. Insurance $190Travel $20,726 106688 8855 276764 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 1 0 1 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 6 0 1 1 0 0 0 0 1 1 0 0 0 0 0 0 0 X 9 9 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 CA CO CT FL GA IL MI MN MO NJ NC OH OR PA TN TX WA DC X Allison Peck 2293101298 209 Avondale Cir Warner Robins GA 31088 X NATHAN PECK CEO 15.00 X X 0 0 0 ALLISON PECK CFO 15.00 X X 0 0 0 AMY CASEY SECRETARY 10.00 X X 0 0 0 KELLY GOLD BOARD MEMBER 1.00 X 0 0 0 BRANDON FELDT BOARD MEMBER 10.00 X 0 0 0 SARA BUHR BOARD MEMBER 1.00 X 0 0 0 MAUREEN MCARTHUR HART BOARD MEMBER 1.00 X 0 0 0 DAVID KAMINSKY BOARD MEMBER 1.00 X 0 0 0 ALEXIS ELDER BOARD MEMBER 1.00 X 0 0 0 0 0 0 0 0 0 0 0 82537 298182 380719 PATIENT CONFERENCE 541900 4181 4181 4181 45187 82537 9016 36171 36171 421071 4181 0 36171 X 18855 18855 43268 43268 99937 65126 1062 33749 424 424 8068 5486 2582 4494 3494 1000 2600 2600 13750 13750 86939 86939 3499 499 3000 3137 377 2760 4745 1650 2066 1029 21950 20726 1224 30020 29870 150 3098 190 2908 RESEARCH EQUIPMENT 3093 3093 BANK SERVICE CHARGE 1492 1439 53 MEMBERSHIPS 500 500 EDUCATION RESOURCES 261 261 350130 276764 19979 53387 402586 475504 4225 9463 4000 406811 488967 799 10416 0 11215 X 188193 265648 218618 212104 406811 477752 406811 488967 70941 0 X 0 1 X 1 0 X 79507 103735 82330 107225 180718 553515 2327 3102 1349 1691 4181 12650 81834 106837 83679 108916 184899 566165 30500 36000 11900 16930 31914 127244 0 30500 36000 11900 16930 31914 127244 438921 81834 106837 83679 108916 184899 566165 0.77530 0.74560 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X Part X, Line 2: THE FINANCIAL STATEMENT EFFECTS OF A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN ARE RECOGNIZED IN THE FINANCIAL STATEMENT WHEN IT IS MORE LIKELY THAN NOT, BASED ON THE TECHNICAL MERITS, THAT THE POSITION WILL BE SUSTAINED UPON EXAMINATION. INTEREST AND PENALITIES, IF ANY, ARE INCLUDED IN EXPENSES IN THE STATEMENTS OF ACTIVITES. AS OF DECEMBER 31, 2023 AND 2022, THE ORGANIZATION HAD NO UNCERTAINTY TAX POSITIONS THAT QUALIFY FOR RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. 0 0 0 0 0 0 0 0 0 0 Europe (Including Iceland & Greenland) Cure VCP Disease is collaborating with Genethon to investigate the use of gene editing to correct pathogenic variants of the VCP gene. This approach could bring a treatment to 70% of known patients with VCP disease. 43268 ACH 0 1 0 0 0 0 0 0 X X X 1 MILES TWO GO LLC 233 W RICH AVE DELAND FL 32720 DEVELOPMENT CONSULTING 0 0 3750 -3750 PALMETTO PHILANTHROPY 10 W TALLULAH DR GREENVILLE SC 29605 DEVELOPMENT CONSULTING 0 0 10000 -10000 13750 -13750 CA CO CT FL GA IL MI MN MO NJ NC OH OR PA TN TX WA DC ATLANTA CELEBRATION EVENT 82165 45268 36897 7567 I CAN EVENT 37269 37269 584 4 8290 8290 865 127724 82537 45187 9016 9016 36171 0 NATIONWIDE CHILDREN'S HOSPITAL PO BOX 781653 DETROIT MI 482781653 316056230 8855 0 THE PURPOSE OF THE STUDY IS TO LEARN ABOUT HOW VCP DISEASE CHANGES PEOPLE'S STRENGTH AND MOVEMENTS AND AFFECTS THEIR DAILY LIFE. THIS INFORMATION WILL HELP IMPROVE CARE. IT WILL ALSO HELP RESEARCHERS PLAN AND DESIGN FUTURE RESEARCH STUDIES TO HELP THOSE WITH VCP DISEASE. Uplifting Athletes 8 ATKINSON DRIVE DOVLESTOWN PA 18901 341986485 10000 0 A 50-50 MATCHING GRANT TO A YOUNG INVESTIGATOR PURSING GENE EDITING Form 990, Part VI, Section A, line 2 Allison Peck and Nathan Peck are married. Form 990, Part VI, Section B, line 11b THE ORGANIZATION'S FINANCE COMMITTEE WILL PROVIDE FINANCIAL OVERSIGHT AND REVIEW THE 990 PRIOR TO FILING. ALL OTHER BOARD MEMBERS WILL BE SENT A COPY OF THE 990 FOR THEIR REFERENCE AND RECORDS. Form 990, Part VI, Section B, line 12c THE GOVERNANCE COMMITTEE REGULARLY MONITORS COMPLIANCE WITH CONFLICT OF INTEREST POLICY AND ENFORCES SIGNING COI POLICY STATEMENTS ANNUALLY Form 990, Part VI, Section C, line 19 UPON REQUEST Form 990, Part IX, line 11g RESEARCH SERVICES: Program service expenses 86,939. Management and general expenses 0. Fundraising expenses 0. Total expenses 86,939.