2024-04-04T08:00:48-00:00 2023-12-31 822851604 SECHLER MORGAN CPAS PLLC 2418 W BARROW DRIVE CHANDLER AZ 85224 990 2023-01-01 811809941 CRUSH RETT SYNDROME CRUS 6024211453 602 E RAWHIDE AVE GILBERT AZ 85296 PATRICIA GRAY SECRETARY 6024211453 2024-04-03 true PATRICIA GRAY 999009999 KRISTINA MORGAN CPA P01370742 6022302700 2024-03-20 AAL1 IAL1 2023 2023-04-26 12:10:37Z PATRICIA GRAY 602 E RAWHIDE AVE GILBERT AZ 85296 217991 false X CRUSHRETT.ORG X 2016 AZ THE CRUSH RETT SYNDROME MISSION IS TO RAISE AWARENESS AND FUNDING TO ULTIMATELY FIND A CURE FOR RETT SYNDROME. 2 2 0 4 0 77279 217991 0 0 0 77279 217991 100000 200000 0 0 0 0 1720 1454 101720 201454 -24441 16537 5574 22111 0 5574 22111 THE CRUSH RETT SYNDROME MISSION IS TO RAISE AWARENESS AND FUNDING TO ULTIMATELY FIND A CURE FOR RETT SYNDROME. false false 200000 200000 IN 2023, WE SUCCESSFULLY RAISED FUNDS THROUGH OUR FUNDRAISING EVENTS AND OUR SOCIAL MEDIA AWARENESS EFFORTS. WE CONTINUED TO KEEP CONTROL OF OUR OPERATING EXPENSES BY HAVING EFFECTIVE FUNDRAISERS THAT REQUIRE MINIMAL UPFRONT COSTS AND RISKS. AS A RESULT, WE WERE ABLE TO USE MORE FUNDS TO SUPPORT EXCITING RESEARCH ON WAYS TO CURE RETT SYNDROME. WE PROVIDED 200,000 TO SUPPORT GENE THERAPY AND RNA EDITING RESEARCH AGAIN THIS YEAR. WE ARE EXCITED AT THE NEWS THAT THE FIRST TWO HUMAN CLINICAL TRIALS FOR A POTENTIAL GENE THERAPY CURE HAVE BEEN APPROVED WITH SEVERAL FEMALE ADULTS AND ADOLESCENTS DOSED. THE PRELIMINARY RESULTS SHOW VERY GOOD TOLERANCE WITH NO REPORTED INDICATIONS OF SAFETY CONCERNS. ONE OF THE TRIALS HAS REPORTED SOME SIGNIFICANT IMPROVEMENTS IN FINE AND GROSS MOTOR FUNCTION IN THEIR ADULT TRIAL PARTICIPANTS. 200000 true true false false false false false false false false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 0 0 0 false false false false false false false false false false false false X 2 2 true false false false false false false true true false false true true true true true true true true false X PATRICIA GRAY 6024211453 602 E RAWHIDE AVE GILBERT AZ 85296 X ALLISON GRAY PRESIDENT 001.00 X X 0 0 0 KATHERINE THOMPSON DIRECTOR 001.00 X 0 0 0 ABBIE MOSELEY DIRECTOR THRU 12/2023 001.00 X 0 0 0 PATRICIA GRAY SECRETARY 001.00 X 0 0 0 false false false 217991 217991 217991 200000 200000 0 0 0 0 0 0 0 0 0 0 0 875 875 0 0 0 0 50 50 0 0 0 0 0 0 0 0 0 529 529 0 201454 200000 1454 0 5574 22111 5574 22111 0 0 X 5574 22111 5574 22111 5574 22111 16537 X false false false X 100678 153246 130823 77279 217991 680017 100678 153246 130823 77279 217991 680017 111200 568817 680017 0.83650 0.94830 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Rett Syndrome Research Tr 67 Under Cliff Rd Turnbull CT 06611 260687439 501c3 200000 Rett Syndrome research for a cure 1 Part I Line 2 CRUSH RETT SYNDROME MEETS AT LEAST QUARTERLY TO REVIEW THE PROGRESS OF RESEARCH EFFORTS TO CURE RETT SYNDROME. WE REGULARLY RECEIVE PROGRAM UPDATES FROM THE ORGANIZATIONS WE HAVE PROVIDED FUNDING TO. ANNUALLY THE BOARD REVIEWS RESEARCH EFFORTS SELECTS ONE OR MORE RESEARCHERS TO FUND. Form 990, Part VI, Section A, Line 2 PATRICIA GRAY AND ALLISON GRAY HAVE A FAMILIAL RELATIONSHIP. Form 990, Part VI, Section B, Line 11b THE PRESIDENT OF THE ORGANIZATION DISTRIBUTES A PDF COPY OF THE 990 TO ALL BOARD MEMBERS FOR REVIEW AND COMMENT PRIOR TO THE RETURN BEING FILED. Form 990, Part VI, Section B, Line 12c AT EACH BOARD AND COMMITTEE MEETING, IF THERE IS A DISCUSSION OF SELECTING OR ENGAGING A VENDOR OR SERVICE PROVIDER, ALL IN ATTENDANCE ARE ASKED TO RECUSE THEMSELVES FROM THIS DISCUSSION IF THERE COULD BE A PERCEIVED CONFLICT. ANNUALLY, THE ORGANIZATION REVIEWS AND DISCUSSES THE CONFLICT OF INTEREST POLICY AND REQUESTS THAT EACH BOARD MEMBER LIST AND ACKNOWLEDGE ANY KNOWN CONFLICTS. Form 990, Part VI, Section B, Line 15 THE BOARD MAY HIRE AND COMPENSATE INDIVIDUALS FOR NECESSARY SERVICES RENDERED TO THE ORGANIZATION SO LONG AS SUCH COMPENSATION IS REASONABLE. THE BOARD SHALL DETERMINE REASONABLE COMPENSATION AMOUNTS BASED UPON COMPENSATION PAID BY SIMILARLY SITUATED NONPROFITS FOR LIKE SERVICES. CURRENTLY, ALL DIRECTORS ARE VOLUNTEERS. Form 990, Part VI, Section C, Line 19 THE ORGANIZATION WILL PROVIDE, IN A TIMELY MANNER, FINANCIAL STATEMENTS AND GOVERNING DOCUMENTS, INCLUDING ITS CONFLICT OF INTEREST POLICY, WHEN REQUESTED IN WRITING OR IN PERSON.