2024-11-15T06:45:59-05:00 2023-12-31 900883238 The Daimler Waterford Group LLC PO Box 7100 Capitol Heights MD 20791 990 2023-01-01 956155962 Sickle Cell Disease Foundation SICK 3602 Inland Empire Blvd STE C315 Ontario CA 91764 Mary Brown President 9097435226 2024-11-15 true true Gregory Cheseman P01629340 2407067652 2024-11-15 2023 2024-10-15 13:58:12Z 1090039 false X https://www.scdfc.org/ X 1957 CA To build a world where individuals with Sickle Cell Disease get the care and compassion they deserve. 12 0 25 0 0 782956 1088275 2017417 0 1764 48174 0 2848547 1090039 0 0 1771362 1974040 0 0 2283670 2121029 4055032 4095069 -1206485 -3005030 4364809 2657838 1528117 622374 2836692 2035464 To build a world where individuals with Sickle Cell Disease get the care and compassion they deserve. false false 1949660 563592 Other programs and services revenue & exenses include: Family Programs, Special Projects, Pacific Sickle Cell Regional Collaborative, Health Resources Services Administration Newborn Screening. 973977 Networking California for Sickle Cell Care (NCSCC) aims to facilitate a collaborative, integrative approach among healthcare providers, agencies, and the broader community to execute a unified, systematically developed care plan. This plan outlines precise objectives to guarantee that individuals with sickle cell disease (SCD) across California have access to comprehensive, patient-centered, well-coordinated, accessible, safe, and high-quality healthcare services, regardless of their location. The primary partnering organizations in NCSCC include the Sickle Cell Disease Foundation and the Center for Inherited Blood Disorders (CIBD), a specialized non-profit hematology center. CIBD is dedicated to providing education, support, and multidisciplinary, family-centered care for adults and children with various inherited blood disorders. 369926 392144 Project A: Sickle Cell Trait Follow-up Program (SCTFP)in compliance with Health and Safety Code, Section 125001, and as an operational element of the California Department of Public Health (CDPH) Newborn Screening Program (NBS), the SCDFC is mandated to deliver specialized counseling services for heritable or congenital hemoglobinopathies. These services encompass, but are not restricted to, Sickle Cell Trait (SCT) and Sickle Cell Disease (SCD) for individuals within the state of California. SDCFC shall provide bilingual (Spanish and English) counseling, both telephonically and in-person, to convey hemoglobin trait carrier information to families of neonates identified by the NBS with specific hemoglobin patterns (e.g., FAS, FAC, FAD), in alignment with state-defined guidelines and protocols. Additional hemoglobin patterns may be incorporated into this program as determined necessary by state authorities. Furthermore, SDCFC will establish referral pathways for families requiring supplementary support services.Project B: Sickle Cell Counselor Training and Certification Program (SCCTCP)The SCCTCP is a critical segment of the California Genetic Disease Screening Programs strategic activities, focusing on the dissemination of information and follow-up procedures for hemoglobinopathies. Utilizing SCCTCP curriculum materials and assessments, each pre-approved by CDPH prior to administration, the Contractor shall allocate designated staff to optimize participant enrollment, execute SCCTCP Modules I, IIA, IIB, and III as outlined, biannually, within each contractual period, and perform outcome evaluations. 81193 195539 California Newborn Screening Program: Since 1978, the Sickle Cell Disease Foundation (SCDF) has delivered comprehensive counseling, education, and training services statewide. SCDF offers no-cost follow-up counseling and testing for parents of newborns identified with hemoglobin traits. Additionally, SCDF provides a certification program in single-gene counseling and conducts educational courses focused on sickle cell disease, including in-depth instruction on its underlying scientific principles. 81193 195539 3374756 true false false false false false false false false false true false false false true false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false true 0 0 25 true false false false false false false false false X 12 0 false false false false false false false true true false false true true true true true true true true false CA X Mary Brown 9097435226 3602 Inland Empire Blvd Ontario CA 91764 Mary Brown President 40.00 0.00 X X 205085 0 0 Gerald Miller CFO 40.00 0.00 X 125000 0 0 Deborah Green Director Health Education 40.00 0.00 X 104610 0 0 Diane Batham Board Member 0.00 0.00 X 0 0 0 David Wash Board Member 0.00 0.00 X 0 0 0 Marilyn Batchelor Board Member 0.00 0.00 X 0 0 0 Tony Gonzalez Board Member 0.00 0.00 X 0 0 0 Shondrella Avery Board Member 0.00 0.00 X 0 0 0 Charlotte Dixon-Burke Board Member 0.00 0.00 X 0 0 0 Damon Oliver Board Member 0.00 0.00 X 0 0 0 Diane Nugent Board Member 0.00 0.00 X 0 0 0 Jamal Munnerlyn Board Member 0.00 0.00 X 0 0 0 Michael Rogers Treasurer 0.00 0.00 X X 0 0 0 Rahman Cooper Chairman 0.00 0.00 X X 0 0 0 Lawnet Bates Secretary 0.00 0.00 X 0 0 0 Erin Jordan 1st Vice Chair 0.00 0.00 X 0 0 0 Leslie Conliffe 2nd Vice Chair 0.00 0.00 X 0 0 0 Charles Young Emeritus 0.00 0.00 X 0 0 0 Yolanda Gorman Emeritus 0.00 0.00 X 0 0 0 434695 0 0 3 true true false 587683 500592 1088275 1764 1764 1090039 1764 0 0 205084 184576 20508 1372319 1234944 137375 10604 9543 1061 257663 231873 25790 128370 115521 12849 27040 27040 8654 8654 41745 41745 31604 25719 5885 36477 36477 184990 184990 14193 14193 Subcontractors 1059500 1059500 Other Program Services 476136 476136 Other Program Costs 36012 36012 Donation Processing Fees 932 932 203746 203746 4095069 3374756 720313 0 4053309 1866663 163801 122602 23798 178569 85574 123901 92995 575578 4364809 2657838 56706 23763 1471411 598611 1528117 622374 X 162453 1945464 2674239 90000 2836692 2035464 4364809 2657838 -3005030 2203802 0 X false false false X 768249 3978721 4817712 2687611 1088275 13340568 768249 3978721 4817712 2687611 1088275 13340568 13340568 203 368 455 1764 2790 18020 47478 65498 13408856 0.99490 X 178569 85574 92995 92995 Lease Liabilities 598611 598611 false false false false false false false false false Mary Brown President 205085 205085 Gerald Miller CFO 125000 125000 Yolanda Gorman Dr Emeritus Charles Young Emeritus Form 990 governing body review Part VI line 11 The Board of Directors review Form 990 prior to submission to taxing authorities. Conflict of interest policy compliance Part VI line 12c SCDFC Board members are required to sign a Conflict of Interest policy CEO executive director top management comp Part VI line 15a Compensation of top management is determined by the Board of Directors. Other officer or key employee compensation Part VI line 15b Compensation of officers and key employees is determiined by the Board of Directors. Governing documents etc available to public Part VI line 19 Upon written request, SCDFC makes available to the public its governing documents, conflict of interest policy, financial statements, and other concomitant documents.