2024-11-13T10:09:05-05:00 2023-12-31 341873333 MCMANAMON & CO LLC 1651 CROSSINGS PKWY D WESTLAKE OH 441451959 990 2023-01-01 341018501 THE NORTHERN OHIO HEMOPHILIA FOUNDATION INC NORT 2168340051 17407 LORAIN AVENUE SUITE 206 CLEVELAND OH 44111 TANYA RICCHI EXECUTIVE DIRECTOR 2168340051 2024-11-12 false ELIJAH SMITH CPA P01821552 4408928900 2024-11-12 2023 2024-10-15 13:58:12Z TANYA RICCHI 17407 LORAIN AVENUE CLEVELAND OH 441114022 942174 false X WWW.NOHF.ORG X 1954 OH THE NORTHERN OHIO HEMOPHILIA FOUNDATION, INC. (NOHF) IS DEDICATED TO ENHANCING THE QUALITY OF LIFE FOR PEOPLE WITH GENETIC BLEEDING DISORDERS AND THEIR FAMILIES, THROUGH ADVOCACY, EDUCATION, RESEARCH AND OTHER CONSTITUENCY SERVICES. 8 8 5 83 0 777468 35845 39898 50937 904148 0 0 267257 0 61603 349723 616980 287168 1196744 1522557 73180 111825 1123564 1410732 X THE NORTHERN OHIO HEMOPHILIA FOUNDATION, INC. IS DEDICATED TO ENHANCING THE QUALITY OF LIFE FOR PEOPLE WITH GENETIC BLEEDING DISORDERS AND THEIR FAMILIES, THROUGH ADVOCACY, EDUCATION, RESEARCH AND OTHER CONSTITUENCY SERVICES. false false 507194 THE PROGRAMS AND SERVICES OFFERED BY THE ORGANIZATION INCLUDE: -DADS IN ACTION: A PROGRAM DESIGNED BY HFA FOR MALE CAREGIVERS OF CHILDREN WITH BLEEDING DISORDERS. THE PROGRAM ENCOURAGES FATHERS TO TAKE AN ACTIVE ROLE IN THEIR CHILD'S LIFE AND PROVIDES INFORMATION, SUPPORT AND MENTORING FOR THEM. -BLOOD BROTHERHOOD: BLOOD BROTHERHOOD IS A NATIONAL PROGRAM DESIGNED BY HFA FOR ADULT MEN, DIAGNOSED AND LIVING WITH BLEEDING DISORDERS. IT IS DESIGNED TO BE A MULTI-AVENUE OUTREACH, TO PROVIDE EDUCATION AND SUPPORT, PROMOTE GOOD HEALTH, AND ESTABLISH A SENSE OF COMMUNITY FOR ADULT MEN. -WOMAN'S TASK FORCE: THIS PROJECT PROVIDES INFORMATION AND PROGRAMING FOR WOMEN WITH BLEEDING DISORDERS. THE PRIMARY FOCUS IS TO PROVIDE OUTREACH TO AID IN EARLIER DIAGNOSIS. WE PRIMARILY SERVE THE BLEEDING IS ORDERS COMMUNITY IN THE 24 COUNTIES IN NORTHEAST OHIO, ALTHOUGH OUR DENTAL PROGRAM AND ADVOCACY PROGRAM SERVES THE ENTIRE STATE. WE HAVE MANY STRONG RELATIONSHIPS IN THE BLEEDING DISORDER COMMUNITY. WE ARE A CHARTER MEMBER OF THE NATIONAL HEMOPHILIA FOUNDATION (NHF) AND A MEMBER ORGANIZATION OF THE HEMOPHILIA FOUNDATION OF AMERICA (HFA). STAFF ATTENDS CONFERENCES THROUGH BOTH ORGANIZATIONS TO KEEP UPDATED ON NEW TREATMENTS, MEDICATION, AND EDUCATIONAL ADVANCEMENTS. WE ARE ALSO A MEMBER OF THE OHIO BLEEDING DISORDER COUNCIL (OBDC). THIS STATEWIDE GROUP PROVIDES INFORMATION ABOUT ADVOCACY WITHIN THE STATE AND NATIONALLY. NOHF PARTICIPATES IN WASHINGTON DAYS AND STATEHOUSE DAYS TO GIVE OUR MEMBERS THE CHANCE TO MEET WITH STATE AND NATIONAL OFFICIALS. -YOUTH GOLF PROGRAM: THIS PROGRAM IS AVAILABLE TO CHILDREN AGE 10 TO 18 TO LEARN THE GAME OF GOLF. THE PROGRAM RUNS WEEKLY FOR 8 WEEKS, AT A CENTRALLY LOCATED COURSE, DURING THE SUMMER TO TEACH NEW SKILLS AND ALSO PROVIDE WEEKLY EDUCATIONAL PROGRAMS RELATING TO THEIR BLEEDING DISORDERS. SIBLINGS ARE ALSO WELCOME TO ATTEND THIS PROGRAM. -SWIM PROGRAM: THIS PROGRAM PROVIDES 8 WEEKS OF SWIM CLASSES AT THREE INDOOR POOLS, INCLUDING YMCA AND COMMUNITY POOLS, IN NORTHEAST OHIO. THE PROGRAM IS OPEN TO ALL AGES TO LEARN HOW TO SWIM OR TO INCREASE THEIR SWIMMING SKILLS. THE PROGRAM RUNS FROM JANUARY THROUGH MARCH. -VARIOUS WELLNESS INITIATIVES: WE OFFER VARIOUS WELLNESS INITIATIVES THROUGHOUT THE YEAR INCLUDING YOGA, RUN TRAINING PROGRAMS AND GUIDED IMAGERY. -STEPS FOR LIVING: A PROGRAM FOR NEWLY DIAGNOSED FAMILIES BASED ON THE MODEL PROVIDED BY NHF. IT PROVIDES EDUCATIONAL QUARTERLY MEETINGS AND SUPPORT FOR PARENTS AND OTHER FAMILY MEMBERS DURING THE EARLY COPING YEARS THROUGH FAMILY-TO-FAMILY SUPPORT AND MENTORING. -COUNSELING: UP TO 500 PER FAMILY PER YEAR FOR INDIVIDUAL OR FAMILY COUNSELING. -CAMP SCHOLARSHIPS: WE SEND CHILDREN TO HEMOPHILIA-GEARED CAMPS AND PROVIDE EITHER TRANSPORTATION OR MILEAGE REIMBURSEMENT. -EDUCATIONAL SCHOLARSHIPS: WE PROVIDE UP TO 500 EACH YEAR FOR PEOPLE WITH BLEEDING DISORDERS AND THEIR CAREGIVERS FOR TUITION, TUTORING OR EDUCATIONAL SUPPLIES, SUCH AS BOOKS. -MEDICALERT: WE PROVIDE EMBLEMS AND YEARLY MEMBERSHIP TO CHILDREN AND ADULTS WITH BLEEDING DISORDERS. -EMERGENCY FINANCIAL ASSISTANCE: ELIGIBLE FAMILIES MAY REQUEST 500 PER YEAR FOR ASSISTANCE IF THEIR FINANCIAL DURESS IS DIRECTLY RELATED TO THEIR BLEEDING DISORDER 507194 true true false false false false false false false true true false false false false true false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 0 0 true 5 true false false false false false true true false false false false false false false false X 8 8 false false false false false false false true true false false true true true true true false true false false X TANYA RICCHI 2168340051 17407 LORAIN AVENUE CLEVELAND OH 441114022 TANYA RICCHI EXECUTIVE DI 40.00 X 78690 0 0 KENDRA ADAMS BOARD MEMBER 2.00 X X 0 0 0 IRENE BOEHLEFELD NON VOTING 1.00 X 0 0 0 MARRA CERCONE TREASURER 2.00 X X 0 0 0 SUSAN HUNTER NON VOTING 1.00 X 0 0 0 DAN LAZUTA DIRECTOR 1.00 X 0 0 0 DAVID RIEGER DIRECTOR 1.00 X 0 0 0 BOB SCACCIA DIRECTOR 1.00 X 0 0 0 DANIELLE SCHWAGER VICE PRESIDE 2.00 X X 0 0 0 78690 false false false 51250 726218 777468 PROGRAM AND OTHER REVENUE 812900 35845 35845 35845 39898 39898 88963 51250 38026 50937 904148 35845 39898 78690 55083 7869 15738 153476 107433 15348 30695 4813 3369 481 963 8006 5604 801 1601 22272 15591 2227 4454 3000 3000 14384 14384 23990 18489 1833 3668 6474 4532 647 1295 8369 5859 836 1674 13751 13751 7572 5300 757 1515 EDUCATIONAL PROGRAMMING 205940 205940 IND. FINANCIAL ASSISTANCE 53490 53490 MISCELLANEOUS 5810 5810 WELLNESS PROGRAM 5102 5102 1841 1841 616980 507194 48183 61603 375161 440200 10528 10529 553699 774200 1271 1645 52965 52965 256085 295983 1196744 1522557 73180 111825 73180 111825 X 594304 736532 529260 674200 1123564 1410732 1196744 1522557 287168 X true X false true false X 433341 627074 436700 718512 777468 2993095 24813 20376 32049 20203 124808 222249 112780 37708 64963 215451 570934 685158 533712 738715 902276 3430795 3430795 7570 3255 8292 39898 59015 7570 3255 8292 39898 59015 578504 688413 542004 738715 942174 3489810 0.98310 0.99380 0.02000 0.01000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 256085 42582 2684 295983 302676 -43894 2697 256085 272066 33453 2843 302676 245154 26912 272066 205971 41416 2233 245154 1.00000 true false 7058 7058 30411 30411 15496 15496 X SCHEDULE D, PAGE 3, PART X NOHF COMPLIES WITH FASB ASC 740 - ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. FASB ASC 740 DETAILS HOW COMPANIES SHOULD RECOGNIZE, MEASURE, PRESENT AND DISCLOSE UNCERTAIN TAX POSITIONS THAT HAVE BEEN OR ARE EXPECTED TO BE TAKEN. AS SUCH, THE FINANCIAL STATEMENTS WOULD REFLECT EXPECTED FUTURE TAX CONSEQUENCES OF UNCERTAIN TAX POSITIONS PRESUMING THE TAXING AUTHORITIES FULL KNOWLEDGE OF THE POSITION AND ALL RELEVANT FACTS, IF THEY EXISTED. THE MANAGEMENT OF NOHF BELIEVES THAT THERE ARE NO UNCERTAIN TAX POSITIONS. NOHFS TAX YEARS THAT REMAIN SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE ARE FISCAL YEARS ENDED DECEMBER 31, 2020 AND FORWARD. BLACK AND BLUE 58258 58258 25995 UNITE WALK 51250 51250 4955 1 30705 30705 7076 140213 51250 88963 38026 38026 50937 FORM 990 - ORGANIZATION'S MISSION THE NORTHERN OHIO HEMOPHILIA FOUNDATION, INC. IS DEDICATED TO ENHANCING THE QUALITY OF LIFE FOR PEOPLE WITH GENETIC BLEEDING DISORDERS AND THEIR FAMILIES, THROUGH ADVOCACY, EDUCATION, RESEARCH AND OTHER CONSTITUENCY SERVICES. FORM 990, PAGE 2, PART III, LINE 4A THE PROGRAMS AND SERVICES OFFERED BY THE ORGANIZATION INCLUDE: -DADS IN ACTION: A PROGRAM DESIGNED BY HFA FOR MALE CAREGIVERS OF CHILDREN WITH BLEEDING DISORDERS. THE PROGRAM ENCOURAGES FATHERS TO TAKE AN ACTIVE ROLE IN THEIR CHILD'S LIFE AND PROVIDES INFORMATION, SUPPORT AND MENTORING FOR THEM. -BLOOD BROTHERHOOD: BLOOD BROTHERHOOD IS A NATIONAL PROGRAM DESIGNED BY HFA FOR ADULT MEN, DIAGNOSED AND LIVING WITH BLEEDING DISORDERS. IT IS DESIGNED TO BE A MULTI-AVENUE OUTREACH, TO PROVIDE EDUCATION AND SUPPORT, PROMOTE GOOD HEALTH, AND ESTABLISH A SENSE OF COMMUNITY FOR ADULT MEN. -WOMAN'S TASK FORCE: THIS PROJECT PROVIDES INFORMATION AND PROGRAMING FOR WOMEN WITH BLEEDING DISORDERS. THE PRIMARY FOCUS IS TO PROVIDE OUTREACH TO AID IN EARLIER DIAGNOSIS. WE PRIMARILY SERVE THE BLEEDING IS ORDERS COMMUNITY IN THE 24 COUNTIES IN NORTHEAST OHIO, ALTHOUGH OUR DENTAL PROGRAM AND ADVOCACY PROGRAM SERVES THE ENTIRE STATE. WE HAVE MANY STRONG RELATIONSHIPS IN THE BLEEDING DISORDER COMMUNITY. WE ARE A CHARTER MEMBER OF THE NATIONAL HEMOPHILIA FOUNDATION (NHF) AND A MEMBER ORGANIZATION OF THE HEMOPHILIA FOUNDATION OF AMERICA (HFA). STAFF ATTENDS CONFERENCES THROUGH BOTH ORGANIZATIONS TO KEEP UPDATED ON NEW TREATMENTS, MEDICATION, AND EDUCATIONAL ADVANCEMENTS. WE ARE ALSO A MEMBER OF THE OHIO BLEEDING DISORDER COUNCIL (OBDC). THIS STATEWIDE GROUP PROVIDES INFORMATION ABOUT ADVOCACY WITHIN THE STATE AND NATIONALLY. NOHF PARTICIPATES IN WASHINGTON DAYS AND STATEHOUSE DAYS TO GIVE OUR MEMBERS THE CHANCE TO MEET WITH STATE AND NATIONAL OFFICIALS. -YOUTH GOLF PROGRAM: THIS PROGRAM IS AVAILABLE TO CHILDREN AGE 10 TO 18 TO LEARN THE GAME OF GOLF. THE PROGRAM RUNS WEEKLY FOR 8 WEEKS, AT A CENTRALLY LOCATED COURSE, DURING THE SUMMER TO TEACH NEW SKILLS AND ALSO PROVIDE WEEKLY EDUCATIONAL PROGRAMS RELATING TO THEIR BLEEDING DISORDERS. SIBLINGS ARE ALSO WELCOME TO ATTEND THIS PROGRAM. -SWIM PROGRAM: THIS PROGRAM PROVIDES 8 WEEKS OF SWIM CLASSES AT THREE INDOOR POOLS, INCLUDING YMCA AND COMMUNITY POOLS, IN NORTHEAST OHIO. THE PROGRAM IS OPEN TO ALL AGES TO LEARN HOW TO SWIM OR TO INCREASE THEIR SWIMMING SKILLS. THE PROGRAM RUNS FROM JANUARY THROUGH MARCH. -VARIOUS WELLNESS INITIATIVES: WE OFFER VARIOUS WELLNESS INITIATIVES THROUGHOUT THE YEAR INCLUDING YOGA, RUN TRAINING PROGRAMS AND GUIDED IMAGERY. -STEPS FOR LIVING: A PROGRAM FOR NEWLY DIAGNOSED FAMILIES BASED ON THE MODEL PROVIDED BY NHF. IT PROVIDES EDUCATIONAL QUARTERLY MEETINGS AND SUPPORT FOR PARENTS AND OTHER FAMILY MEMBERS DURING THE EARLY COPING YEARS THROUGH FAMILY-TO-FAMILY SUPPORT AND MENTORING. -COUNSELING: UP TO 500 PER FAMILY PER YEAR FOR INDIVIDUAL OR FAMILY COUNSELING. -CAMP SCHOLARSHIPS: WE SEND CHILDREN TO HEMOPHILIA-GEARED CAMPS AND PROVIDE EITHER TRANSPORTATION OR MILEAGE REIMBURSEMENT. -EDUCATIONAL SCHOLARSHIPS: WE PROVIDE UP TO 500 EACH YEAR FOR PEOPLE WITH BLEEDING DISORDERS AND THEIR CAREGIVERS FOR TUITION, TUTORING OR EDUCATIONAL SUPPLIES, SUCH AS BOOKS. -MEDICALERT: WE PROVIDE EMBLEMS AND YEARLY MEMBERSHIP TO CHILDREN AND ADULTS WITH BLEEDING DISORDERS. -EMERGENCY FINANCIAL ASSISTANCE: ELIGIBLE FAMILIES MAY REQUEST 500 PER YEAR FOR ASSISTANCE IF THEIR FINANCIAL DURESS IS DIRECTLY RELATED TO THEIR BLEEDING DISORDER FORM 990, PAGE 6, PART VI, LINE 11B THE FEDERAL LINE 990 WAS REVIEWED BY THE EXECUTIVE DIRECTOR AND TREASURER, THEN PRESENTED TO THE BOARD FOR APPROVAL BEFORE FILING. FORM 990, PAGE 6, PART VI, LINE 12C WHEN A NEW BOARD MEMBER JOINS THEY ARE REQUESTED TO READ AND THEN SIGN A COPY OF THE ORGANIZATION'S CONFLICT OF INTEREST POLICY. ON A ANNUAL BASIS ALL BOARD MEMBERS ARE REQUESTED TO UPDATE THEIR INFORMATION AND DISCLOSE ANY CONFLICTS. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE DIRECTOR'S SALARY IS DETERMINED AND APPROVED BY THE BOARD. FORM 990, PAGE 6, PART VI, LINE 19 CONSISTENT WITH THE REQUIREMENTS OF SECTION 6104 (D) OF THE INTERNAL REVENUE CODE AND THE REGULATIONS THEREUNDER, COPIES OF THE ORGANIZATION'S FORM 990 AND GOVERNING DOCUMENTS ARE MADE AVAILABLE UPON REQUEST, IN A TIMELY MANNER, AND SUBJECT TO THE CHARGES PERMITTED BY LAW TO ANY INDIVIDUAL WHO REQUESTS IT.