2024-09-20T16:04:57-07:00 2023-12-31 811513563 The Charity CFO LLC 1310 Papin Street Suite 300 Saint Louis MO 63103 990 2023-01-01 853950356 COALITION FOR HEADACHE AND MIGRAINE PATIENTS COAL 7074693865 1001 Lootens Place Suite 200 San Rafael CA 94901 Susan Doughty Interim Executive Director 8562616873 2024-05-31 1 1 Zachary Meyer P02529579 3143901301 2024-04-30 2023 2024-10-15 13:58:12Z Susan Doughty 2041 East St PMB 222 Concord CA 94520 1346511 0 X https://headachemigraine.org/ X 2020 CA CHAMP's mission is to improve the lives of people with migraine, cluster, and other headache diseases by aligning coalition participants and empowering patient voices. CHAMP brings together the most influential patient advocacy organizations and leaders in the area of migraine, cluster and headache diseases. CHAMP enhances communication, coordination, and collaboration to more effectively fight stigma and help people achieve fair access to treatments. Our greatest strength is our coalition participants. They show the strength of people who live with headache diseases. 3 3 7 3 0 0 1323893 1302089 0 42734 186 269 9861 1419 1333940 1346511 0 0 0 0 691223 536226 0 0 90813 1104395 945851 1795618 1482077 -461678 -135566 1576320 715926 897037 196768 679283 519158 CHAMP mission is to improve the lives of people with migraine, cluster, and other headache diseases by aligning coalition participants and empowering patient voices. 0 0 532418 0 0 The Coalition for Headache and Migraine Patients (CHAMP) engages its 22 coalition leaders in meetings throughout the year to communicate, educate and advocate on behalf of people living with headache diseases. In 2023, we reached an estimated 1.4 million individuals through our collective social media efforts. Our Think, Talk, Treat public awareness campaign garnered 100 million impressions, with messaging dedicated to helping patients identify migraine and seek treatment. 312546 0 0 In 2023, CHAMP connected over 53 patients, doctors, advocacy organizations, industry partners and national nonprofit leaders through a series of 3 meetings to strategize and partner on migraine disease priorities. These included payer engagement, barriers to treatment and care, and disease education efforts for patients and healthcare providers. Elevate continues to support the following programs it incubated and funded: Migraine at School, MigraineNation, ActNow, HeadEd, DiHAC, Patient Education Video Series. 320505 0 31309 Retreat Migraine is the only conference in the U.S. created by and designed for people living with migraine disease. With a focus on education, advocacy, and community-building from the patient-perspective, this experiential 3-day hybrid event brings together patients and care-givers with leading migraine stakeholders. 2023 highlights included: 254 attendees (144 in-person and 110 virtual); 20% of attendees were local to Minneapolis (in 2022 local attendees were <3%); 21 Workshops; Daily support group sessions; 3 Patient focus groups; Improved therapy room focused on device, movement and alternative migraine relief therapies. 41142 0 0 Migraine at School collects and creates the best resources to ensure every student has the opportunity to flourish in school. In 2023, this program as active in 126 schools in 36 states. It currently has 100+ volunteer ambassadors in the U.S. 0 11425 In partnership with Vector Psychometric Group for the project Migraine Clinical Output Assessment System, CHAMP provided professional review of and feedback on the project's qualitative material including the Interview Guide, Study Advertisements, and other related materials. Study Advertising Material supplied by VPG was distributed to coalition members via social media posts and email blasts. 41142 0 11425 1206611 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 9 0 1 7 1 0 0 0 0 0 0 0 0 0 0 0 0 X 3 3 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 1 0 0 0 CA X X The Charity CFO LLC 3143901301 1310 Papin St Suite 300 Saint Louis MO 63103 Susan Doughty Interim ED starting 9/15/2023 40 0 X 105304 0 0 Meghan Buzby Executive Director through 9/15/2023 40 0 X 104462 0 0 William Young Board President 10 0 X X 0 0 0 Vera Gibb Board Secretary 2 0 X X 0 0 0 Isiah Lineberry Board Treasurer 2 0 X X 0 0 0 209766 0 0 2 0 0 0 0 0 5525 0 0 0 1296564 59196 1302089 Retreat Migraine 900099 31309 31309 0 0 Professional Review of Qualitative Material 541990 10000 10000 0 0 Ad Council Consulting Services 541990 1425 1425 0 0 0 0 0 0 42734 269 0 0 269 0 0 0 0 0 0 0 0 0 0 0 0 0 Other Income 900099 1419 0 0 1419 0 0 0 0 1419 1346511 42734 0 1688 209766 115329 62930 31507 0 231515 167665 23134 40716 23360 14793 4792 3775 35768 22650 7337 5781 35817 23049 7068 5700 942 0 942 0 43233 0 43233 0 14582 14322 260 540357 538196 0 2161 25729 2248 23476 5 10112 592 9520 0 4785 4307 478 0 296426 296426 0 0 2457 2457 7228 4577 1483 1168 1482077 1206611 184653 90813 1083030 73575 465373 633122 13000 5150 14917 4079 1576320 715926 47037 46768 850000 150000 897037 196768 X 97874 477820 581409 41338 679283 519158 1576320 715926 -135566 0 0 0 -24559 0 X 0 0 0 X 2068358 1310893 1302089 4681340 0 0 2068358 1310893 1302089 4681340 3219598 1461742 2687 186 269 3142 4684482 67603 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X products for Retreat Migraine 46 57946 value of items donated X use of therapeutic booth room during Retreat Migraine 2 1250 cost of use 0 0 0 0 Form 990, Part VI, Section B, Line 11b The Board of Directors reviews Form 990 upon its completion. Once accepted by the board, the return is then filed. Form 990, Part VI, Section B, Line 12c Conflicts of interest are documented by the board, signed, and reviewed on an annual basis. Form 990, Part VI, Section C, Line 19 Documents are available upon request.