2024-10-10T09:50:52-05:00 2023-12-31 824956115 ECK TAX & ACCOUNTING 91 MILL ROAD PARK RIDGE NJ 07656 990 2023-01-01 900616879 COALITION TO CURE CALPAIN 3 COAL 2038299656 15 COMPO PARKWAY WESTPORT CT 06880 MICHELE WRUBEL SENIOR VICE PRESIDENT 2038299656 2024-10-09 1 0 CHRISTOPHER ECK P00856686 2013165582 2024-10-09 X 2023 2024-10-15 13:58:12Z MICHELE WRUBEL 711922 0 X WWW.CURECALPAIN3.ORG X 2011 CT COALITION TO CURE CALPAIN 3 MISSION IS TO FUND RESEARCH TO CURE OR TREAT LIMB-GIRDLE MUSCULAR DYSTROPHY TYPE 2A (LGMD2A/R1),A FORM OF CALPAINOPATHY, AND TO RAISE GLOBAL AWARENESS OF THE DISEASE AMONG THE SCIENTIFIC COMMUNITY, PATIENTS, AND THE PUBLIC. 5 5 1 0 0 0 410173 711922 0 0 0 0 0 0 410173 711922 419087 538695 0 0 125601 137867 0 0 1700 80292 93897 624980 770459 -214807 -58537 151536 252048 261298 420347 -109762 -168299 TO FUND RESEARCH TO CURE OR TREAT LIMB-GIRDLE MUSCULAR DYSTROPHY TYPE 2A (LGMD2A/R1),A FORM OF CALPAINOPATHY, AND TO RAISE AWARENESS OF THE DISEASE AMONG THE SCIENTIFIC COMMUNITY, PATIENTS, AND THE PUBLIC. 0 0 537195 ELISABETH BARTON & LAN WEI-LAPIERRE (UNIVERSITY OF FLORIDA): "STRATEGIES TO IMPROVE CALCIUM HANDLING IN LGMDR1/2A" SIRI BOLDING (CASIMIR): "A CONCEPT ELICITATION/FEASIBILITY STUDY FOR THE LIMB GIRDLE VIDEO ASSESSMENT" JORDI DIAZ-MANERA (NEWCASTLE UNIVERSITY): "IMPROVING CLINICAL TRIAL READINESS BY INVESTIGATING THE SUITABILITY OF CLINICAL OUTCOME ASSESSMENTS AND DOCUMENTING THE NATURAL PROGRESSION OF LGMD2A/R1 - A RETROSPECTIVE ANALYSIS"KEVIN FORREST (KATE THERAPEUTICS): "GENE THERAPY FOR LGMD2A" 17688 PARTICIPATED IN OUTREACH INITIATIVES TO SCIENTIFIC COMMUNITY AND PATIENTS TO EDUCATE AND BUILD AWARENESS OF LGMD2A 9116 DEVELOPING NEW PATIENT REGISTRY WITH NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD) 170701 170701 734700 1 0 0 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 X 5 5 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 IL CT X MICHELE WRUBEL 2038299656 15 COMPO PARKWAY WESTPORT CT 06880 JORDAN BOSLEGO PRESIDENT 6.00 X X 0 0 0 MICHELE WRUBEL SENIOR V. PRESIDENT 25.00 X X 0 0 0 LEE WRUBEL TREASURER 5.00 X X 0 0 0 DEMOSTHENES MADUREIRA DE PINHO NETO DIRECTOR 1.00 X X 0 0 0 ALBERTO NOBREGA DIRECTOR 3.00 X X 0 0 0 CAROL ABRAHAM DIRECTOR 10.00 X X 0 0 0 0 0 0 0 0 0 0 0 711922 711922 711922 0 0 0 538695 538695 122606 122606 5500 5500 9761 9761 12400 12400 15542 15542 783 783 5937 5937 9459 9459 180 180 HONORARIUM 12000 12000 CONSULTING 10050 10050 STIPEND 10000 10000 SPECIAL PROJECTS 9116 9116 8430 6730 1700 770459 734700 34059 1700 114210 209344 234 356 1801 720 1261 1081 35831 41267 151536 252048 259287 417111 2011 3236 261298 420347 X -109762 -168299 -109762 -168299 151536 252048 -58537 0 X 0 0 0 X 599915 299509 469236 410173 711922 2490755 599915 299509 469236 410173 711922 2490755 2490755 2490755 1.00000 1.00000 X 1801 720 1081 1081 UNDEPOSITED FUNDS 41267 41267 CREDIT CARDS PAYABLE 3236 3236 0 FORM 990, PART VI, SECTION B, LINE 11B FORM 990, PART VI LINE 11B - ORGANIZATION'S PROCESS TO REVIEW FORM 990. NO REVIEW WAS OR WILL BE CONDUCTED. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC DURING THE YEAR UPON REQUEST.