2024-08-23T10:13:31-05:00 2023-12-31 HW&CO 28601 Chagrin Blvd 210 Woodmere OH 44122 990 2023-01-01 237198807 Epilepsy Association % PATRICIA VARANESE EPIL 2165791330 2831 Prospect Avenue E Cleveland OH 441152606 Patricia Varanese EXECUTIVE DIRECTOR 2165791330 2024-06-06 true true David M Reape CPA P00068117 2168311200 2023 2024-08-08 14:25:15Z PATRICIA VERANESE 2831 Prospect Avenue E CLEVELAND OH 441152606 771370 false X WWW.EPILEPSYINFO.ORG X 1972 OH PROVIDING SPECIALIZED SERVICES FOR CHILDREN, TEENS, ADULTS AND FAMILIES AFFECTED BY EPILEPSY. 28 28 9 110 0 545700 473424 213923 168257 25983 29743 -38370 -19344 747236 652080 0 0 0 0 508799 512062 0 0 98402 198891 193118 707690 705180 39546 -53100 1326942 1351641 144782 101775 1182160 1249866 EPILEPSEY ASSOCIATION RAISES AWARENESS FOR CHILDREN, ADULTS ANDFAMILIES IN NORTHEAST OHIO THAT ARE IMPACTED BY EPILEPSY IN THECOMMUNITY, PROVIDE EDUCATION, ADVOCACY AND DIRECT SERVICES THAT LEADTO AN INCREASED UNDERSTANDING OF THE DISORDER AND TO BETTERMANAGEMENT OF THE CONDITION, RESILIENCE, PERSONAL FULFILLMENT, INDEPENDENCE AND THE ABILITY TO CONTRIBUTE MEANINGFULLY TO THECOMMUNITY. false false 331203 168257 PATIENT SERVICES: THE ASSOCIATION PROVIDES COMMUNITY CASE MANAGEMENT AND MENTAL HEALTH ASSESSMENT SERVICES TO ADULT CLIENTS WHO ARE AFFECTED BY EPILEPSY. CLIENTS MEET WITH AGENCY SOCIAL WORKERS TO ESTABLISH INDIVIDUALIZED GOALS. PLANS ARE ESTABLISHED TO ASSIST CLIENTS IN MEETING THOSE NEEDS. AN EMPHASIS IS PLACED ON CONSUMER CHOICE, MAINTAINING MEDICAL STABILITY, AND IMPROVING THE QUALITY OF LIFE FOR CLIENTS. IN 2023, THERE WERE 1,312 ADULTS WHO RECEIVED CASE MANAGEMENT AND OTHER SOCIAL SERVICES. 122849 PUBLIC HEALTH EDUCATION: THE ASSOCIATION PROVIDES EDUCATIONAL PRESENTATIONS TO A VARIETY OF COMMUNITY GROUPS, STUDENTS, TEACHERS, AND THE GENERAL PUBLIC TO INCREASE THE AWARENESS AND UNDERSTANDING OF EPILEPSY. EDUCATION IS PROVIDED ABOUT EPILEPSY FACTS, SEIZURE RECOGNITION, AND EPILEPSY FIRST AID. 14,799 INDIVIDUALS WERE REACHED THROUGH COMMUNITY EDUCATION PROGRAMS AND ANOTHER 186 INDIVIDUALS ACCESSED ASSISTANCE THROUGH INFORMATION AND REFERRAL PROGRAMMING. 123446 KIDS AND FAMILY: THE ASSOCIATION PROVIDES SUPPORT FOR FAMILIES WHO HAVE A CHILD WITH EPILEPSY. THE ASSOCIATION STAFF ASSESS THE NEEDS OF EACH FAMILY MEMBER WITH ONE-ON-ONE SUPPORT AND CONNECTS THEM WITH COMMUNITY SERVICES, PROVIDES GENERAL ASSISTANCE, EPILEPSY EDUCATION AND ADVOCACY. SERVICES ARE TAILORED TO MEET THE UNIQUE NEEDS OF EACH FAMILY. IN 2023, THERE WERE 300 CHILDREN AND FAMILIES WHO WERE SERVED THROUGH PROGRAMMING AND 125 VIRTUAL VISITS PROVIDED TO INDIVIDUALS AND SCHOOLS. 577498 true true false false false false false false false true true false false false true true true false false false false false false false true false false false false true false false false false false false false false true false false false false false false false false true 4 0 true 9 true false false false false false true true false false false false false false X 28 28 false false false false false false false true true false false false true true true true true true false false OH X PATRICIA VARANESE 2165791330 2831 PROSPECT AVENUE E CLEVELAND OH 441152606 KELLEY NEEDHAM CEO 40.0 0.0 X 121104 0 40551 PATRICIA VARANESE ED 40.0 0.0 X 20983 0 5693 BEN YOUNG DIRECTOR 1.0 0.0 X 0 0 0 BRITTANY FOLINO DIRECTOR 1.0 0.0 X 0 0 0 JOSEPH MURLIN DIRECTOR 1.0 0.0 X 0 0 0 LOUIS BROUSSARD DIRECTOR 1.0 0.0 X 0 0 0 MIKE BARRETT DIRECTOR 1.0 0.0 X 0 0 0 RICHARD BASS DIRECTOR 1.0 0.0 X 0 0 0 KAREN JOHNSON DIRECTOR 1.0 0.0 X 0 0 0 SEAN MEDINA DIRECTOR 1.0 0.0 X 0 0 0 JEFFERY KARLOVEC DIRECTOR 1.0 0.0 X 0 0 0 SUSAN KRANTZ DIRECTOR 1.0 0.0 X 0 0 0 TAKIYAH DURHAM DIRECTOR 1.0 0.0 X 0 0 0 MICHAEL BLAKE DIRECTOR 1.0 0.0 X 0 0 0 MARQUETTES ROBINSON DIRECTOR 1.0 0.0 X 0 0 0 ADAM ZUCCARO DIRECTOR 1.0 0.0 X 0 0 0 APRIL KINGSBURY WALSH DIRECTOR 1.0 0.0 X 0 0 0 ROCCO DIPUCCIO DIRECTOR 1.0 0.0 X 0 0 0 STEPHEN HANTUS MD DIRECTOR 1.0 0.0 X 0 0 0 GUADALUPE FERNANDEZ-BACA VACA MD DIRECTOR 1.0 0.0 X 0 0 0 JUN PARK MD DIRECTOR 1.0 0.0 X 0 0 0 COURTNEY SCHMIDT DIRECTOR 1.0 0.0 X 0 0 0 DIANE SPIRNAK DIRECTOR 1.0 0.0 X 0 0 0 TRAVIS OKEL DIRECTOR 1.0 0.0 X 0 0 0 MARVIN ROSSI DIRECTOR 1.0 0.0 X 0 0 0 SARAH SALISBURY TREASURER 1.0 0.0 X 0 0 0 SUSAN STAMBERGER PRESIDENT 1.0 0.0 X 0 0 0 CAROLE BARITA SECRETARY 1.0 0.0 X 0 0 0 MARK HOLCOMB VICE PRESIDENT 1.0 0.0 X 0 0 0 142087 0 46244 1 false true false 0 3357 234449 235618 44438 473424 PROGRAM SERVICE REVENUE 624100 168257 168257 168257 26203 26203 0 0 0 0 0 45012 41472 3540 3540 3540 58474 234449 77818 -19344 -19344 0 0 0 0 0 0 0 652080 168257 10399 0 0 0 0 188331 154243 7816 26272 0 241527 197783 10034 33710 11236 9200 467 1569 36971 30275 1536 5160 33997 27841 1412 4744 0 0 0 0 0 5491 4497 228 766 78367 64180 3252 10935 2214 1814 91 309 17602 14415 731 2456 25212 20646 1049 3517 0 30600 25061 1270 4269 15933 13048 661 2224 0 0 0 0 4657 3814 193 650 7606 6228 316 1062 MISCELLANEOUS EXPENSE 3194 2616 132 446 COMMUNITY TIME 2062 1689 85 288 REPAIR & MAINTENANCE 180 148 7 25 705180 577498 29280 98402 17750 258 243755 153849 0 0 14464 57749 0 0 0 0 0 0 0 0 1460 723 48721 29116 8241 19605 947986 1053522 0 0 0 0 0 0 93286 65935 1326942 1351641 30490 25869 0 0 21010 10000 0 0 0 0 0 0 0 0 0 0 93282 65906 144782 101775 X 947160 1014866 235000 235000 1182160 1249866 1326942 1351641 -53100 120806 X false true X true false X 414797 511966 559733 545700 473424 2505620 0 0 414797 511966 559733 545700 473424 2505620 6029 2499591 11696 11830 17022 21831 26203 88582 0 2086 5943 8029 2602231 786888 0.96056 0.96418 X SCHEDULE A, PART II - OTHER INCOME RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 947986 145059 39523 1053522 1094662 10000 -162732 -6056 947986 956973 131644 -6045 1094662 850274 1868 101783 -3048 956973 717023 127884 -5367 850274 0.77690 0.22310 false false 3384 1523 1861 45337 27593 17744 19605 0 LEASE LIABILITIES 65906 65906 767396 120806 120806 646590 5490 5490 652080 699690 699690 5490 5490 705180 SCHEDULE D, PART V, #4 INTENDED USES OF ENDOWMENT FUNDS: THE PURPOSE OF THE ENDOWMENT IS TO PROVIDE CAPITAL SUPPORT/STABILITY FOR THE ORGANIZATION. EXCEPT FOR THE PRINCIPAL, THE FUND IS AVAILABLE FOR OPERATING DEFICITS OF EPILEPSY ASSOCIATION. OTHER SPECIFIC PURPOSES MAY BE DETERMINED BY FUTURE DONORS TO THE ENDOWMENT. EPILEPSY ASSOCIATION'S ENDOWMENT CONSISTS OF TWO ENDOWMENT FUNDS ESTABLISHED FOR A VARIETY OF PURPOSES. ITS ENDOWMENT INCLUDES BOTH DONOR-RESTRICTED ENDOWMENT FUNDS AND FUNDS DESIGNATED BY THE BOARD OF DIRECTORS. PAGE 3, PART IV, #11F The Association is a tax-exempt organization as described in Section 501(c)(3) of the Internal Revenue Code and is exempt from Federal income taxes on related income pursuant to Section 501(a) of the Code. Gala 134511 109312 25199 0 0 0 26701 1350 14722 Winter Walk 55862 53342 2520 0 2700 950 0 760 0 4 102549 71795 30754 185 354 11212 2810 0 16073 292922 234449 58473 185 3054 12162 29511 2110 30795 77817 -19344 KELLEY NEEDHAM CEO 121104 0 23582 16969 161655 0 X In-Kind work for videos 1 15000 fmv X Various 132 29438 fmv false false false PAGE 6, PART VI, SECTION B, #11B FORM 990 REVIEW PROCESS: THE FORM 990 IS REVIEWED BY THE CEO AND THE TREASURER OF THE BOARD WHO IS THE CHAIR OF THE FINANCE COMMITTEE AND BRINGS ANY CONCERNS OR QUESTIONS, NOT ADEQUATELY ADDRESS BY THE AUDITOR OR MANAGEMENT STAFF, TO THE ATTENTION OF THE BOARD OF TRUSTEES. PAGE 6, PART VI, SECTION B, #15A & 15B PROCESS FOR DETERMINING COMPENSATION: THE PRESIDENT OF THE BOARD APPOINTS AN AD HOC COMPENSATION COMMITTEE COMPRISED OF THE PRESIDENT, VICE PRESIDENT, TREASURER, PAST PRESIDENT AND SECRETARY OF THE BOARD. PART OF THE PERFORMANCE EVALUATION PROCESS IS A REVIEW OF PERFORMANCE AGAINST GOAL AND COMPARABILITY DATA RELATIVE TO COMPENSATION IN THE FORM OF SALARY SURVEYS AND OTHER RELATED INFORMATION. THE COMMITTEE REVIEWS AND DISCUSSES THE INFORMATION AS A GROUP CONFIDENTIALLY AND THEN MEETS WITH THE OFFICER TO CONDUCT THE PERFORMANCE REVIEW. THE BOARD OF DIRECTORS IS INFORMED OF THE REVIEW PROCESS AND SUCH IS NOTED IN THE MEETING MINUTES. ALL PROCESSESS ARE DOCUMENTED AT THE TIME THE DECISIONS ARE MADE. PAGE 6, PART VI, SECTION C, #19 DOCUMENTS AVAILABLE TO THE PUBLIC: ANNUALLY, THE ASSOCIATION DISTRIBUTES THE ANNUAL REPORT CONTAINING AUDITED FINANCIALS TO THE AGENCY BOARD OF DIRECTORS, PROFESSIONAL ADVISORY BOARD, AND EMPLOYEES. THE REPORT IS MADE AVAILABLE TO THE PUBLIC ON THE AGENCY WEBSITE. PAGE 6, PART VI, SECTION B, #12C: MONITOR AND ENFORCE CONFLICT OF INTEREST POLICY: OFFICERS, DIRECTORS OR TRUSTEES, AND KEY EMPLOYEES MEET TO CONDUCT AN ANNUAL POLICY REVIEW. DURING THIS REVIEW, THE BOARD AND ALL EMPLOYEES ARE REQUIRED TO DISCLOSE ANY POTENTIAL CONFLICTS OF INTEREST AND SIGN THE CONFLICT OF INTEREST STATEMENT AS APPROPRIATE. FORM 990 PART IX LINE 11G DESCRIPTION:PROFESSIONAL SERVICES TOTAL FEES:78367