2024-05-06T03:25:56Z 2023-12-31 990EZ 2023-01-01 382110097 THE MYASTHENIA GRAVIS FOUNDATION GREAT LAKES CHAPTER MYAS 6169560622 2660 Horizon Drive Suite235 Grand Rapids MI 49546 Priscilla A Walden Treasurer 6169560622 2024-05-06 2023 2023-04-26 12:10:37Z X X mg-mi.org X X 94312 X 28629 360 65323 4043 61280 90269 2275 30430 7297 6022 15268 61292 28977 165125 194102 164274 194513 0 2635 2641 166909 197154 1784 3052 165125 194102 The Myasthenia Gravis Foundation - Great Lakes Chapter is committed to the Michigan MG Community by providing patient support, community connections, education and advocacy. Public/ Professional Health Education/ Community Health Services Provide awareness of Myasthenia Gravis (MG) through the Foundations website, eblasts and social media. Facebook posts featuring an aspect of MG during June Awareness Month, information about support groups, fundraising events, the Annual Patient Education Conference, patient resources and various additional posts throughout the year. Published four quarterly newsletters that included feature stories on new treatment options, support groups, fundraising events, volunteer awards, organizational updates, and gave tips on living with the illness. Newsletters were emailed to 838 MailChimp subscribers and mailed to over 720 recipients. Hosted a live, virtual educational conference with seven presentations over three days, viewed by over 80 (130 registrations) MG patients, caregivers and health care providers. The presentations included: o MG-MI Community Inspiring Another People with Different Types of MG o Myasthenia Gravis: Diagnosis and Treatment o Seronegative Myasthenia Gravis: an update o Wellness in Myasthenia Gravis o Living your Best Life with MG o Sleep Apnea and MG o Emerging Therapies in MG 0 10687 Patient Services were offered to 228 persons with Myasthenia Gravis (MG). The Foundation hosted 13 in-person support groups in nine cities throughout Michigan, including Cadillac, Elk Rapids, Gaylord, Grand Rapids/Grandville, Holland, Kalamazoo, Lansing, Livonia, Saginaw. In-person meetings average attendance of 10 people. Six virtual support sessions hosted an average of 13 attendees. 10394 21081 Rhonda Wentworth Director 22.00 26424 Susan Woolner President 10.00 0 Priscilla Walden Treasurer 10.00 0 James Booth Burr Trustee 1.00 0 Dr Amit Sachdev Trustee 2.00 0 Mallary Cole Trustee 1.00 0 Drew Schramm Trustee 10.00 0 Esther Land Secretary 20.00 0 Lisa Gigliotti Trustee 10.00 0 Janet Gentle Trustee 10.00 0 false false false false false false false false false Priscilla Walden Treasurer 9660 Horizon Drive SE Suite 235 Grand Rapids MI 49546 6169560622 false false false false false false false false false false false false NONE 0 NONE 0 true X 0 21936 43273 35887 21855 28629 151580 0 0 0 0 0 0 0 0 0 0 21936 43273 35887 21855 28629 151580 151580 750 541 338 222 360 2211 39684 35941 46433 46418 65323 233799 387590 0.39110 0.40100 X Part II, Line 18 Gross income from fundraising events Fun Run/Walk 20632 20632 75 731 275 64 Annual Patient Conference 45000 45000 2945 0 65632 0 65632 0 0 75 731 275 3009 4090 61542 Part I, Line 10 Board of Trustees and Staff Strategic Planning