2024-04-26T15:31:20-07:00 2022-12-31 990EZ 2022-01-01 834532605 KCNMA1 Channelopathy International Advocacy Foundation Inc KCNM 2126001542 425 E 63RD ST APT E12F NEW YORK NY 10065 Sotirios Keros President, Treasurer 2126001542 2024-04-26 Sotirios Keros 999009999 1 1 11 0 AAL2 2022 2023-04-26 12:10:37Z X X WWW.KCIAF.ORG X X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 3500 0 0 0 0 3500 -3500 4674 0 1174 4674 1174 0 0 0 0 4674 1174 0 0 4674 1174 KFIAF IS A PATIENT ADVOCACY GROUP PROVIDING EDUCATION ABOUT THE RARE DISEASE KCNMA1 LINKED CHANNELOPATHY TO FAMILIES AND HEALTHCARE WORKERS, AS WELL AS HELPING TO PROMOTE AND FACILITATE RESEARCH IN THIS AREA. WE COMMUNICATE THROUGH WEBSITE, EMAIL, AND DIRECT PERSONAL COMMUNICATIONS TO THOSE WITH NEW DIAGNOSES. WE MAINTAIN AN INTERNET FORUM FOR FAMILIES AND PROVIDERS TO SHARE THEIR EXPERIENCES. WEBSITE EDUCATION AND OUTREACH. OUR WEBSITE SERVES AS THE MAIN REPOSITORY FOR NEW RESEARCH WHICH ALLOWED UNIVERSITY RESEARCHERS ACCESS TO FAMILY DATA LEADING TO ADVANCEMENTS IN THE STATE OF KNOWLEDGE IN KCNMA1-RELATED DISORDERS. IN ADDITION, WE PROVIDE INFORMATION FOR FAMILIES AND PHYSICIANS. WE HAD APPROXIMATELY 1500 UNIQUE VISITORS FROM 50 DIFFERENT COUNTRIES DURING 2021. WE PROVIDED FUNDS ($3000) TO MAKE RESEARCH PUBLICATIONS FREELY AVAILABLE TO THE PUBLIC, WHICH OTHERWISE REQUIRED VIEWING FEES. 0 0 0 SOTIRIOS KEROS PRESIDENT 0.1 0 0 0 ANDREA MEREDITH VICE-PRESIDENT 0.1 0 0 0 MICHAEL KRUER BOARD MEMBER 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 NY SOTIRIOS KEROS 425 E 63RD ST APT E12F NEW YORK NY 10065 2126001542 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 3228 2751 5370 0 11349 0 3228 2751 5370 0 11349 11349 0 3228 2751 5370 0 11349 X Our organization essentially ceased operating during 2022 holding only $1174 in a checking account at year end and with only one transaction for the entire year. The president (me) hoped to find others to continue/resume our charitable work (and also take over administrative duties such as this tax filing) but was unsuccessful and I began the process of terminating this entity. This led to a delay in filing the 2022 990-EZ.