2024-12-18T08:33:05-06:00 2023-12-31 WITHUMSMITHBROWN PC 4600 EAST WEST HWY 900 BETHESDA MD 208143423 990 2023-01-01 760585072 THE NASPGHAN FOUNDATION % EXECUTIVE DIRECTOR THEN 2156419800 714 N BETHLEHEM PIKE Suite 300 AMBLER PA 19002 MARGARET STALLINGS EXECUTIVE DIRECTOR 2156419800 2024-11-18 true true RICHARD Ruvelson P00234075 3012726000 2023 2024-10-15 13:58:12Z MARGARET STALLINGS 714 N BETHLEHEM PIKE300 AMBLER PA 19002 2280490 false X www.naspghan.org/content/84/en/foundation/abo X 1988 TX THE NASPGHAN FOUNDATION FUNDS AND SUPPORTS THE RESEARCH AND EDUCATION MISSION OF NASPGHAN. 10 10 0 50 0 1904598 1740118 0 0 90793 85428 0 0 1995391 1825546 834019 1121597 0 0 87996 138003 0 0 35784 589673 461779 1511688 1721379 483703 104167 6677645 7458927 1431689 1785821 5245956 5673106 X THE NASPGHAN FOUNDATION FUNDS AND SUPPORTS THE RESEARCH AND EDUCATION MISSIONS OF NASPGHAN IN ORDER TO ENHANCE THE HEALTH AND WELL-BEING OF CHILDREN WITH GASTROINTESTINAL, LIVER, PANCREAS AND NUTRITIONAL DISORDERS. false false 993403 971482 GRANTS AND AWARDS: [1] NASPGHAN/NASPGHAN FOUNDATION GEORGE FERRY YOUNG INVESTIGATOR DEVELOPMENT AWARD: - THIS TWO-YEAR GRANT IS AVAILABLE TO JUNIOR FACULTY TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL FOR EVOLUTION TO AN INDEPENDENT RESEARCH CAREER IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY OR NUTRITION. MONIES ARE AWARDED IN SUPPORT OF A MERITORIOUS RESEARCH PROJECT IN THE CLINICAL OR BASIC SCIENCES TO STUDY THE DISEASES OF THE GASTROINTESTINAL TRACT, LIVER OR PANCREAS AND NUTRITIONAL DISORDERS IN CHILDREN. [2] NASPGHAN FOUNDATION/NESTLE NUTRITION RESEARCH YOUNG INVESTIGATOR DEVELOPMENT AWARD: - THIS TWO-YEAR GRANT IS AVAILABLE TO JUNIOR FACULTY TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL FOR EVOLUTION TO AN INDEPENDENT RESEARCH CAREER IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY OR NUTRITION. THIS GRANT, GENEROUSLY SUPPORTED BY MEAD JOHNSON, IS AWARDED TO SUPPORT MERITORIOUS BASIC OR CLINICAL RESEARCH PROJECT RELATING TO NUTRITION IN INFANCY, CHILDHOOD OR ADOLESCENCE. [3] NASPGHAN FOUNDATION/TAKEDA PHARMACEUTICALS NORTH AMERICA INC RESEARCH INNOVATION AWARD: - THIS GRANT IS OFFERED IN ODD NUMBERED YEARS. THIS GRANT WILL PROVIDE $75,000 ANNUALLY FOR TWO YEARS (TOTAL $150,000) FOR INNOVATIVE, HIGH-IMPACT RESEARCH IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION. THE INTENT OF THIS RESEARCH AWARD IS TO STIMULATE SCIENTIFIC INQUIRY IN AN AREA THAT IS EXCEPTIONALLY INNOVATIVE AND HAS THE POTENTIAL TO IMPACT THE FIELD IN A HIGHLY NOVEL MANNER. APPLICANTS AT ANY CAREER LEVEL MAY APPLY. [4] NASPGHAN FOUNDATION/ASTRAZENECA RESEARCH IN PEPTIC ULCER DISEASES: - THIS GRANT WILL PROVIDE $75,000 ANNUALLY FOR TWO YEARS (TOTAL $150,000) FOR STUDIES FOCUSED ON THE EPIDEMIOLOGY, PATHOGENESIS, NATURAL HISTORY, GENETICS, DIAGNOSIS AND MANAGEMENT OF PEPTIC DISORDERS AND OTHER DISEASES OF THE UPPER GASTROINTESTINAL TRACT IN CHILDREN. DISEASES THAT ARE RELEVANT TO THIS ANNOUNCEMENT INCLUDE, BUT ARE NOT LIMITED TO GASTROESOPHAGEAL REFLUX, REFLUX ESOPHAGITIS, EOSINOPHILIC (ALLERGIC) ESOPHAGITIS, MOTILITY DISORDERS OF THE UPPER GASTROINTESTINAL TRACT, HELICOBACTER PYLORI INFECTION WITH OR WITHOUT ULCERATION, NON-ULCER DYSPEPSIA, AND NON-BACTERIAL ULCER DISEASES. APPLICANTS AT ANY CAREER LEVEL MAY APPLY. [5] NASPGHAN FOUNDATION MID-LEVEL CAREER DEVELOPMENT AWARD - THIS MID-LEVEL CAREER DEVELOPMENT AWARD IS FOR NASPGHAN MEMBERS PURSUING RESEARCH IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION AND ARE AT A MID-LEVEL IN THEIR CAREER. MID-LEVEL IS DEFINED AS A FACULTY MEMBER WHO HAS HELD A FACULTY APPOINTMENT FOR AT LEAST 6 YEARS AT THE TIME OF THE APPLICATION, BUT HAS NOT YET REACHED PROFESSOR LEVEL. THIS AWARD WILL PROVIDE UP TO $100,000 IN DIRECT FUNDING FOR 2 YEARS ($50,000 PER YEAR) FOR THE ADVANCEMENT OF RESEARCH CAREERS FOR APPLICANTS WITH SIGNIFICANT PROMISE IN THEIR MID-YEARS AS FACULTY. THE PROPOSAL MUST INCLUDE A FOCUSED AREA OF RESEARCH THAT WILL DIRECTLY ENHANCE THE APPLICANT'S ABILITY TO ACHIEVE FURTHER NATIONAL PEER-REVIEWED RESEARCH FUNDING AND RESULT IN SIGNIFICANT IMPACT ON GASTROINTESTINAL, NUTRITION AND LIVER HEALTH IN CHILDREN. BASIC, CLINICAL, TRANSLATIONAL, EPIDEMIOLOGIC, DISSEMINATION AND IMPLEMENTATION RESEARCH ARE ALL ENCOURAGED. THIS AWARD IS TO FOSTER EITHER A NEW AREA OF ENQUIRY OR TO PROVIDE PILOT DATA IN AN ONGOING AREA OF RESEARCH WITH SUBSTANTIAL POTENTIAL FOR NEW FUNDING. [6] NASPGHAN FOUNDATION/APGNN SUSAN MOYER NURSING RESEARCH GRANT - THIS ONE-YEAR GRANT IS AVAILABLE TO PEDIATRIC GASTROENTEROLOGY, NUTRITION AND HEPATOLOGY NURSES TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL TO ADVANCE NURSING CARE OF PATIENTS AND FAMILIES OF CHILDREN WITH GASTROINTESTINAL, HEPATOBILIARY, PANCREATIC OR NUTRITIONAL DISORDERS. MONIES ARE AWARDED IN SUPPORT OF A MERITORIOUS RESEARCH PROJECTS TO STUDY THE NURSING CARE OF FAMILIES AND CHILDREN WITH PEDIATRIC GASTROINTESTINAL, HEPATOBILIARY, PANCREATIC OR NUTRITIONAL DISORDERS. [7] NASPGHAN FOUNDATION/ABBOTT NUTRITION ADVANCED FELLOWSHIP TRAINING IN PEDIATRIC NUTRITION - THE AWARD IS EXPECTED TO BEGIN ON JULY 1 OF EACH ACADEMIC TERM ALTHOUGH ALTERNATE START DATES WILL BE CONSIDERED TO ACCOMMODATE NON-TRADITIONAL ACADEMIC SCHEDULES. PEDIATRIC NUTRITION IS ONE OF THE FASTEST GROWING AREAS OF SCIENTIFIC AND CLINICAL IMPORTANCE TO CHILD AND POPULATION HEALTH. TO ADDRESS THIS GROWING INTEREST AND TO ACCELERATE THE TRAINING OF PEDIATRIC EXPERTS, THE NASPGHAN FOUNDATION HAS PARTNERED WITH ABBOTT NUTRITION TO DEVELOP A PATHWAY FOR ADVANCED FELLOWSHIP TRAINING IN PEDIATRIC NUTRITION. THE NASPGHAN FOUNDATION/ABBOTT NUTRITION ADVANCED FELLOWSHIP IN NUTRITION WILL PROVIDE UP TO $75,000 IN DIRECT FUNDING TO SUPPORT ONE YEAR OF ADVANCED TRAINING IN PEDIATRIC NUTRITION FOR A NASPGHAN MEMBER. APPLICANTS ARE EXPECTED TO IDENTIFY A MENTOR AND A HOST NUTRITION RESEARCH PROGRAM PRIOR TO APPLICATION FOR FUNDING. THE FELLOWSHIP MUST INCLUDE A WELL-DEFINED CLINICAL EXPERIENCE AS WELL AS A FOCUSED RESEARCH PROJECT. EXAMPLES OF AREAS FOR EMPHASIS INCLUDE BUT ARE NOT LIMITED TO: FETAL GROWTH AND NEONATAL NUTRITION, TYPICAL DEVELOPMENT OF FEEDING SKILLS/BEHAVIORS AND FEEDING DISORDERS; NUTRITIONAL ASPECTS OF EATING DISORDERS SUCH AS ANOREXIA NERVOSA AND BULIMIA; MALNUTRITION AND FAILURE TO THRIVE; NUTRITION EDUCATION; NUTRITION IN SPECIFIC SYSTEMIC DISEASES OR CLINICAL STATES SUCH AS CYSTIC FIBROSIS, LIVER DISEASE, INTESTINAL FAILURE, AND ORGAN TRANSPLANTATION; NUTRITION SUPPORT; COMMUNITY NUTRITION; NUTRITION EPIDEMIOLOGY; ENERGY HOMEOSTASIS; NUTRITION AND THE MICROBIOME; MICRONUTRIENT HOMEOSTASIS; NUTRIGENOMICS; OBESITY; BREAST MILK AND BREAST FEEDING; AND BASIC LABORATORY NUTRITIONAL SCIENCE. THE PRIMARY OBJECTIVE OF THE FELLOWSHIP IS TO CATALYZE AND INCREASE THE NUMBER OF HIGHLY-TRAINED, EXPERT NUTRITION CLINICIANS, EDUCATORS AND SCIENTISTS AMONG THE MEMBERSHIP OF NASPGHAN, AS A MEANS TO IMPROVE SERVICE TO OUR PATIENTS AND THE PUBLIC. [8] NASPGHAN FOUNDATION INNOVATIONS IN CLINICAL CARE GRANT - THE AIM OF THIS GRANT IS TO ENCOURAGE AND SUPPORT THE DEVELOPMENT OF INNOVATIVE APPROACHES TO OPTIMIZE THE QUALITY OF CARE AND HEALTH CARE DELIVERY TO CHILDREN WITH DIGESTIVE DISEASES BY THE CLINICALLY FOCUSED PEDIATRIC GASTROENTEROLOGIST. THE FOUNDATION WILL AWARD UP TO TWO GRANTS, EACH RANGING FROM $2,000 TO $5,000 FOR A ONE-YEAR PERIOD. SELECTION CRITERIA INCLUDE POTENTIAL IMPACT OF THE PROJECT ON PATIENT CARE AND THE APPLICABILITY OF THE PROJECT TO THE GENERAL NASPGHAN COMMUNITY. CLINICALLY ORIENTED PHYSICIANS ARE STRONGLY ENCOURAGED TO APPLY. [9] NASPGHAN FOUNDATION/QOL RESEARCH AWARD FOR THE STUDY OF DISORDERS ASSOCIATED WITH CARBOHYDRATE MALABSORPTION - THIS AWARD WILL PROVIDE $75,000 ANNUALY FOR TWO YEARS (TOTAL $150,000) FOR STUDIES FOCUSED ON DISORDERS OF CARBOHYDRATE (CHO) MALDIGESTION/MALABSORPTION IN CHILDREN. RELEVANT CONDITIONS INCLUDE, BUT ARE NOT LIMITED TO LACTOSE INTOLERANCE, CONGENITAL SUCROSE-ISOMALTASE DEFICIENCY, DISEASES LEADING TO INTESTINAL EPITHELIAL CELL DYSFUNCTION, SIBO, OR INFLAMMATORY CONDITIONS AFFECTING CHO ABSORPTION. APPLICANTS AT ANY CAREER LEVEL MAY APPLY. [10] NASPGHAN FOUNDATION/CPNP NUTRITION RESEARCH GRANT - THIS ONE-YEAR GRANT IS AVAILABLE TO PEDIATRIC DIETITIANS TO SUPPORT RESEARCH ACTIVITIES THAT HAVE THE POTENTIAL TO ADVANCE THE NUTRITION CARE OF PATIENTS AND FAMILIES OF CHILDREN WITH NUTRITIONAL DISORDERS. THE NASPGHAN FOUNDATION WILL AWARD GRANTS RANGING FROM $500 TO $5,000 FOR ONE YEAR. 402291 EDUCATIONAL CAMPAIGNS: THE FOUNDATION SUPPORTS THE EDUCATIONAL MISSION OF NASPGHAN THROUGH A DIVERSE PORTFOLIO OF PROFESSIONAL AND PUBLIC EDUCATION INITIATIVES. TOPIC AREAS ARE REFLUX AND GERD, INFLAMMATORY BOWEL DISEASE, CELIAC DISEASE AND GLUTEN-RELATED DISORDERS, CONSTIPATION, EOSINOPHILIC ESOPHAGITIS, NUTRITION, ENDOSCOPY, AND NONALCOHOLIC FATTY LIVER DISEASE IN CHILDREN, ADOLESCENTS AND YOUNG ADULTS. THE FOUNDATION'S GOAL IS TO EDUCATE MEDICAL PROFESSIONALS AND THE PUBLIC, AND TO SUPPORT THE DEVELOPMENT OF NEW RESEARCH IN THESE AREAS. THE PRIMARY OBJECTIVES ARE TO IMPROVE THE QUALITY OF LIFE AND TO CHANGE PEDIATRIC AND ADULT HEALTH OUTCOMES BY EARLY DETECTION AND INTERVENTION. GIKIDS IS THE PATIENT OUTREACH AND EDUCATION EFFORT OF NASPGHAN. WITH GIKIDS, NASPGHAN AND THE FOUNDATION ARE WORKING TO REACH OUT DIRECTLY TO FAMILIES, KIDS AND TEENS WHO LIVE WITH DIGESTIVE CONDITIONS TO PROVIDE THEM WITH THE INFORMATION THEY NEED TO: -UNDERSTAND AND IMPROVE THEIR DIGESTIVE HEALTH -WORK WITH THEIR HEALTH CARE PROVIDERS -LIVE A MORE INDEPENDENT LIFE -UNDERSTAND WHAT WORKS IN PLAIN LANGUAGE "A PRACTICAL APPROACH TO NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISEASES: TIPS FOR PATIENTS AND CAREGIVERS" WEBINAR AND ON DEMAND PROGRAM CHILDREN WITH CHOLESTATIC LIVER DISEASES HAVE UNIQUE NUTRITIONAL REQUIREMENTS. OBJECTIVES: 1.OVERVIEW OF THE CLINICAL PRESENTATION AND LONG-TERM IMPLICATIONS OF MALNUTRITION AND FAT-SOLUBLE VITAMIN DEFICIENCIES IN CHILDREN WITH CHOLESTATIC LIVER DISORDERS. 2.REVIEW CURRENT AVAILABLE FORMULATION AND PRACTICAL TIPS FOR THE CARE PROVIDER. 3.REVIEW THE CURRENTLY AVAILABLE VITAMIN SUPPLEMENTS, FORMULATIONS AND DISCUSSION. 4.DISCUSS LACK OF INSURANCE COVER FOR MEDICAL FOOD, VITAMINS AND FINANCIAL BURDEN TO THE FAMILIES. HEPATITIS C SLIDE SET AND GRAND ROUNDS HCV INFECTION IS CHILDREN IS FREQUENTLY UNRECOGNIZED. RECENTLY PROPOSED UNIVERSAL TESTING STRATEGIES DURING PREGNANCY NEED TO BE IMPLEMENTED. ALTHOUGH LIVER DISEASE IS GENERALLY MILD IN CHILDREN, CHRONIC HEPATITIS AND CIRRHOSIS OCCURS. DIRECT ACTIVE ANTIVIRALS ARE VERY EFFICACIOUS AND SAFE. THEREFORE, ALL HCV INFECTED CHILDREN > 3 YEARS OF AGE SHOULD BE CONSIDERED FOR TREATMENT. PUBLIC AND PROFESSIONAL EDUCATION IS CRITICALLY IMPORTANT TO INCREASE HCV AWARENESS. THE FOUNDATION DEVELOPED A SLIDE DECK AND GRAND ROUNDS PROGRAM TO INCREASE AWARENESS REGARDING TESTING AND MANAGEMENT OF HCV. "NUTRITION AND LIVER DISEASE IN PEROXISOMAL BIOGENESIS DISORDERS: DIAGNOSIS AND MANAGEMENT" NASPGHAN NUTRITION UNIVERSITY (N2U) THIS COURSE IS DESIGNED TO PROVIDE SPECIALIZED NUTRITION EDUCATION IN AREAS ASSOCIATED WITH THE PRACTICE OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION TO 3RD YEAR FELLOWS, JUNIOR FACULTY AND DIETITIANS. IT TARGETS TWO GROUPS: CANDIDATES WHO RECEIVED MINIMAL NUTRITION EDUCATION DURING THEIR FELLOWSHIP OR WHOM PLAN TO PURSUE PEDIATRIC NUTRITION AS THEIR CAREER FOCUS. TEACHING AND TOMORROW UNDERREPRESENTED IN MEDICINE (URIM) PROGRAM THE PEDIATRIC GI TEACHING AND TOMORROW PROGRAM OF NASPGHAN STRIVES TO ATTRACT THE BRIGHTEST RESIDENTS TO SUBSPECIALTY TRAINING IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION. DUE TO THE EXCELLENT INTEREST IN THIS INNOVATIVE NASPGHAN PROGRAM, WE HAVE SEEN CONTINUAL GROWTH IN THE INTEREST AND APPLICATIONS TO GI TRAINING PROGRAMS THROUGH THE YEARS. THIS PROGRAM HAS BEEN RECENTLY EXPANDED TO PROVIDE SCHOLARSHIPS TO INTERESTED 1ST AND 2ND YEAR PEDIATRIC RESIDENTS AND 4TH YEAR MEDICAL STUDENTS WHO SELF-IDENTIFY AS UNDERREPRESENTED IN MEDICINE (URIM). IN ADDITION TO NETWORKING WITH OTHER PARTICIPANTS WHILE ATTENDING THE PROGRAM'S SCHEDULED SESSIONS, THE URIM PROGRAM ATTENDEES ARE MATCHED UP WITH A NASPGHAN FELLOW AND/OR ATTENDING PHYSICIAN (A TEACHING AND TOMORROW PROGRAM ALUMNUS) WHO SERVES AS A POINT OF CONTACT AND AMBASSADOR TO THE ANNUAL MEETING. URIM NASPGHAN/NASPGHAN FOUNDATION MEDICAL STUDENT MENTORED SUMMER RESEARCH PROGRAM THE URIM NASPGHAN/NASPGHAN FOUNDATION MEDICAL STUDENT MENTORED SUMMER RESEARCH PROGRAM TAKES PLACE AT MULTIPLE SITES THROUGHOUT THE U.S. AND CANADA AND PROVIDES MEDICAL STUDENTS WHO SELF-IDENTIFY AS URIM WITH A 10-WEEK RESEARCH EXPERIENCE UNDER THE MENTORSHIP OF BASIC OR CLINICAL SCIENTISTS WITH A RESEARCH FOCUS IN PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY, OR NUTRITION. CANDIDATES FOR THESE SCHOLARSHIPS MUST HAVE COMPLETED AT MINIMUM THEIR FIRST YEAR OF MEDICAL TRAINING AND BE IN GOOD STANDING AT ACCREDITED MEDICAL SCHOOLS IN THE U.S. AND CANADA. REFERENCE IS GIVEN TO STUDENTS WHO ARE SEEKING A RESEARCH EXPERIENCE PREFERENCE IS GIVEN TO STUDENTS WHO ARE SEEKING A RESEARCH EXPERIENCE BETWEEN THE FIRST AND SECOND YEARS OF MEDICAL SCHOOL, THOUGH APPLICATIONS FROM ALL CURRENTLY ENROLLED STUDENTS ARE CONSIDERED. THESE STUDENTS ARE ALSO INVITED TO ATTEND THE ANNUAL MEETING, PRESENT A POSTER OF THEIR PROJECT AND PARTICIPATE IN THE TEACHING AND TOMORROW PROGRAM. EDUCATION THE FOUNDATION SUPPORTS THE EDUCATIONAL MISSION OF NASPGHAN THROUGH A DIVERSE PORTFOLIO OF PROFESSIONAL AND PUBLIC EDUCATION INITIATIVES. THE FOUNDATION'S GOAL IS TO EDUCATE MEDICAL PROFESSIONALS AND THE PUBLIC, AND TO SUPPORT THE DEVELOPMENT OF NEW KNOWLEDGE THROUGH RESEARCH. THE PRIMARY OBJECTIVES ARE TO IMPROVE THE QUALITY OF LIFE AND TO IMPROVE HEALTH OUTCOMES THROUGH EDUCATION, EARLY DETECTION AND EVIDENCE-BASED CARE. WEBINARS AND ON-DEMAND EDUCATIONAL MODULES EGIDS: BEYOND THE ESOPHAGUS EGIDS ARE A COLLECTION OF CHRONIC INFLAMMATORY DISEASES INCLUDING EOSINOPHILIC ESOPHAGITIS (EOE), EOSINOPHILIC GASTRITIS (EG) EOSINOPHILIC GASTROENTERITIS (EGE), AND EOSINOPHILIC COLITIS (EC). AMONG THE EGIDS, EOE HAS BECOME AN INCREASINGLY RECOGNIZED AND STUDIED CONDITION. VALIDATED METRICS HAVE BEEN ESTABLISHED TO QUANTIFY QUALITY OF LIFE, SYMPTOMS, HISTOLOGIC AND ENDOSCOPIC FINDINGS. IN ADDITION, THERE ARE WELL-ESTABLISHED, EFFECTIVE TREATMENTS. THE SAME CANNOT BE SAID FOR EG, EGE, OR EC, WHICH LACKS WELL ESTABLISHED HISTOLOGIC CRITERIA FOR DIAGNOSIS, AND HAS A MORE UNCLEAR NATURAL HISTORY, NOR WELL-ESTABLISHED TREATMENTS. EGIDS: BEYOND THE ESOPHAGUS BRINGS TO LIGHT THE LATEST ON NON-EOE EGID, INCLUDING THE SIGNS AND SYMPTOMS; THE CRITERIA TO MAKE A DIAGNOSIS; WHAT OPTIONS EXIST FOR THERAPY, AND THE POTENTIAL MECHANISMS OF DISEASE. PRACTICAL TIPS IN THE NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISORDERS: A WEBINAR FOR PATIENTS, FAMILIES AND CAREGIVERS. THIS WEBINAR EXPLORES PRACTICAL APPROACHES TO THE NUTRITIONAL MANAGEMENT OF CHILDREN WITH CHOLESTATIC LIVER DISEASES, WITH SPECIAL TIPS FOR PATIENTS AND CAREGIVERS. PARTICIPANTS LEARN THE CLINICAL PRESENTATION AND LONG-TERM IMPLICATIONS OF MALNUTRITION AND FAT-SOLUBLE VITAMIN DEFICIENCIES IN CHILDREN WITH CHOLESTATIC LIVER DISORDERS, BECOME ACQUAINTED WITH DIFFERENCES AMONG THE CURRENTLY AVAILABLE FORMULATION TO SUPPORT NUTRITION IN CHOLESTATIC BABIES, AND THE CURRENTLY AVAILABLE VITAMIN SUPPLEMENTS AND FORMULATIONS. THE LACK OF INSURANCE COVERAGE FOR MEDICAL FOOD AND VITAMINS IS ALSO DISCUSSED. 193509 1589203 true true false false false false false false false true false false false false false false false false false false false false false false false false false true true true false false false false false false false false false false false false false true false false false true 9 0 true 0 false false false false false false false false false false false false X 10 10 false false false false false false false true true false false true true true true true true false false false PA X EXECUTIVE DIRECTOR 2152330808 714 N BETHLEHEM PIKE STE 300 AMBLER PA 19002 MARGARET STALLINGS EXECUTIVE DIRECTOR 20.0 23.0 X 50000 167072 6096 MENNO VERHAVE MD PRESIDENT 2.0 0.0 X X 0 0 0 ANN SCHEIMANN MD MBA PRESIDENT 2.0 0.0 X X 0 0 0 PRAVEEN GODAY MD DIRECTOR 1.0 0.0 X 0 0 0 BENJAMIN GOLD MD FAAP FACG DIRECTOR 1.0 0.0 X 0 0 0 JEANIE HUANG MD MPH DIRECTOR 1.0 0.0 X 0 0 0 KAREN MURRAY MD DIRECTOR 1.0 0.0 X 0 0 0 VICKY NG MD DIRECTOR 1.0 0.0 X 0 0 0 PATRICIA ROBUCK PHD MPH DIRECTOR 1.0 0.0 X 0 0 0 JOEL ROSH MD DIRECTOR 1.0 0.0 X 0 0 0 Robert Dahms DIRECTOR 1.0 0.0 X 0 0 0 50000 167072 6096 0 false true false 0 250000 1490118 1740118 0 134614 134614 0 0 0 0 0 405758 454944 -49186 -49186 -49186 0 0 0 0 0 0 0 0 0 0 1825546 85428 134597 134597 987000 987000 0 0 50000 32955 11365 5680 0 76308 50294 17345 8669 0 6353 4187 1444 722 5342 3074 885 1383 0 600 600 25691 10284 1469 13938 0 0 22998 22998 13954 1252 12702 0 14269 9889 2908 1472 1240 1240 0 23026 16118 4605 2303 8241 5769 1648 824 0 10741 10741 0 0 0 3965 2776 396 793 EDUCATION MATERIALS 331008 331008 DONOR RECEPTION 5216 5216 FILING FEES 350 350 MISC EXPENSES 480 480 1721379 1589203 96392 35784 2190999 2295715 352860 399489 115001 0 29738 448375 0 0 0 0 0 0 0 0 12756 2586 0 0 3976291 4312762 0 0 0 0 0 0 0 0 6677645 7458927 95689 394571 1286000 1391250 50000 0 0 0 0 0 0 0 0 0 0 0 0 0 1431689 1785821 X 2085087 5673106 3160869 0 5245956 5673106 6677645 7458927 104167 322983 X false false false X 1543373 1387107 1700963 1904598 1740118 8276159 0 0 1543373 1387107 1700963 1904598 1740118 8276159 2811601 5464558 110280 93673 92653 104663 134614 535883 0 0 8812042 0.62012 0.44720 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2058000 204739 150000 2112739 2486243 -278243 150000 2058000 2472426 163817 150000 2486243 2423819 198607 150000 2472426 2312696 261123 150000 2423819 0.00000 1.00000 0.00000 false false PART V, LINE 4: INTENDED USE FOR ENDOWMENT FUNDS IT CONSISTS OF TWO ENDOWMENTS, BOTH WERE RECEIVED FROM PHARMACEUTICAL COMPANIES. THE INVESTMENT INCOME FOR EACH ENDOWMENT FUND IS RESTRICTED FOR THE FOLLOWING PURPOSES: [1]THE INVESTMENT INCOME FROM $1,500,000 IS RESTRICTED FOR INNOVATIVE RESEARCH AWARDS. [2]THE INVESTMENT INCOME FROM $1,000,000 IS RESTRICTED FOR RESEARCH GRANTS IN ACID-PEPTIC DISORDERS. true North American Soc for Pediatric Gastroenterology 714 N Bethlehem Pike No 300 Ambler PA 19002 841264966 501(c)(3) 15000 general support 1 GEORGE FERRY YOUNG INVESTIGATOR GRANT 1 150000 SUMMER STUDENT PROGRAM 3 14000 QOL/Carbo Grant 1 150000 Endoscopy Fellowship 1 75000 Innovative Research Award 1 150000 Mid-Level Career Grant 1 100000 Nutrition YIA Grant 1 150000 NUTRITION FELLOWSHIP 1 75000 Pancreas Grant 1 75000 URIM Summer Student Program 10 31000 APGNN GRANT 1 5000 CVSA/B LI AWARD 1 500 Clinical Care Grant 1 5000 Grand Watkins Prize 1 750 Odell Prize 1 750 QOL/CPNP Grant 1 5000 Part I Description of Procedure for Monitoring Use of Funds PROCEDURE FOR MONITORING USE OF GRANT FUNDS [1] PROGRESS REPORTS FROM RECIPIENT ARE REVIEWED BY GRANT COMMITTEE; [2] FINAL ACCOUNTING; AND [3] GRANT RECIPIENTS MUST GIVE PRESENTATION AT ANNUAL MEETING ON PROGRESS OF THEIR RESEARCH. X X X false false false false false false false false false MARGARET STALLINGS EXECUTIVE DIRECTOR 50000 167072 0 0 0 0 0 0 0 6096 50000 173168 0 0 PART I, QUESTION 3 THE RELATED ORGANIZATION, NORTH AMERICAN SOCIETY FOR PEDIATRIC GASTROENTEROLOGY HEPATOLOGY AND NUTRITION (NASPGHAN), DETERMINES THE COMPENSATION FOR THE FOUNDATION'S EXECUTIVE DIRECTOR. NASPGHAN'S PROCESS FOR DETERMINING COMPENSATION INCLUDES THE REVIEW OF SIMILAR SOCIETIES AND AN ANNUAL EVALUATION. FORM 990, PART VI, SECTION B, LINE 11B GOVERNING BODY REVIEW OF FORM 990 PRIOR TO ITS FILING WITH THE IRS, A COPY OF THE FORM 990 IS REVIEWED BY BOARD OF DIRECTORS EITHER ELECTRONICALLY OR AT ANNUAL BOARD MEETING. FORM 990, PART VI, SECTION B, LINE 12C MONITORING AND ENFORCEMENT OF CONFLICTS POLICY ALL FOUNDATION OFFICERS AND DIRECTORS ARE REQUIRED TO COMPLETE A CONFLICT OF INTEREST DISCLOSURE AND UPDATE IT ON AN ANNUAL BASIS VIA THE "DISCLOSURE WEBSITE". THE CONFLICT OF INTEREST SUBCOMMITTEE OF NASPGHAN, A RELATED ORGANIZATION, MADE UP OF THE CHAIR OF CLINICAL CARE AND QUALITY, CHAIR OF ETHICS, AND CHAIR OF PROFESSIONAL DEVELOPMENT REVIEWS ALL SUBMITTED DISCLOSURES. IF A CONFLICT EXISTS, PARTICIPATION IN BOARD ACTIVITY MAY BE LIMITED OR PROHIBITED. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR THE FOUNDATION'S EXECUTIVE DIRECTOR IS SET BY NASPGHAN, A RELATED ORGANIZATION. COMPENSATION FOR THE DEVELOPMENT DIRECTOR IS DETERMINED AND REVIEWED BY THE FOUNDATION BOARD BASED ON INDUSTRY STANDARDS AND PERFORMANCE EVALUATION AND REVIEW. FORM 990, PART VI, SECTION C, LINE 19 PUBLIC AVAILABILITY OF OTHER DOCUMENTS THEY ARE AVAILABLE UPON REQUEST AND FOR INSPECTION AT THE ORGANIZATION'S OFFICE. SCHEDULE R, PART II, COLUMN B, NASPGHAN'S PRIMARY ACTIVITY: THE MISSION OF THE NORTH AMERICAN SOCIETY FOR PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY AND NUTRITION IS TO ADVANCE THE UNDERSTANDING OF NORMAL DEVELOPMENT, PHYSIOLOGY AND PATHOPHYSIOLOGY OF DISEASES OF THE GASTROINTESTINAL TRACT AND LIVER IN CHILDREN, IMPROVE QUALITY OF CARE BY FOSTERING THE DISSEMINATION OF THIS KNOWLEDGE THROUGH SCIENTIFIC MEETINGS, PROFESSIONAL AND PUBLIC EDUCATION, AND POLICY DEVELOPMENT, AND SERVE AS AN EFFECTIVE VOICE FOR MEMBERS AND THE PROFESSION. FORM 990, PART III, LINE 4D, OTHER PROGRAM SERVICES: CHILDREN WITH CHOLESTATIC LIVER DISEASE: DIAGNOSTICS CHOLESTATIC JAUNDICE IS A RARE PRESENTATION OF VARIOUS HEPATOBILIARY, METABOLIC, AND GENETIC DISORDERS. CHOLESTASIS TYPICALLY PRESENTS IN THE NEONATAL/INFANTILE PERIOD BUT CAN ALSO PRESENT LATE IN OLDER CHILDREN OR EVEN ADULTS. EARLY DIAGNOSIS AND APPROPRIATE MANAGEMENT OF THE UNDERLYING CONDITION ARE OF PARAMOUNT IMPORTANCE FOR OPTIMAL PROGNOSIS. DIAGNOSIS OF CHOLESTASIS NEEDS AN ARRAY OF INVESTIGATIONS INCLUDING BLOOD TESTS, IMAGING, GENETIC TESTING, AND INVASIVE PROCEDURES LIKE LIVER BIOPSY. LIVER BIOPSY IS ONE OF THE CENTRAL CRUCIAL INVESTIGATIONS DONE IN EVALUATING CHILDREN WITH CHOLESTASIS, HOWEVER, CAN BE ASSOCIATED WITH COMPLICATIONS INCLUDING BLEEDING. UNDERSTANDING WHEN TO USE A LIVER BIOPSY IN CHILDREN WITH CHOLESTASIS ALONG WITH ITS LIMITATIONS IS EXTREMELY IMPORTANT TO GAIN THE MAXIMUM BENEFIT OUT OF AN INVASIVE PROCEDURE. OVER THE LAST DECADE, THE GROWTH IN GENETIC TECHNIQUES AND THE IDENTIFICATION OF NEW GENES LEADING TO CHOLESTASIS IN CHILDREN HAVE EVOLVED SIGNIFICANTLY AND HAVE LED TO THE SHRINKING OF THE UNIDENTIFIED ETIOLOGIES. THIS WEBINAR ADDRESSES THE RAPIDLY EVOLVING FIELD OF GENETIC CHOLESTASIS AND WHEN TO PERFORM A LIVER BIOPSY, ITS UTILITY, AND LIMITATIONS. MEDICAL MANAGEMENT OF CHRONIC PANCREATITIS IN CHILDREN: MAXIMIZING TREATMENT AND IMPROVING OUTCOMES CHRONIC PANCREATITIS (CP) IN CHILDREN IS ASSOCIATED WITH SIGNIFICANT MORBIDITY AND POOR QUALITY OF LIFE. THE INCIDENCE OF CP IN CHILDREN HAS RISEN OVER THE PAST FEW DECADES AND IS APPROACHING THAT SEEN IN THE ADULT POPULATION. CP IS AN INFLAMMATORY DISEASE RESULTING IN IRREVERSIBLE CHANGES IN THE PANCREAS INCLUDING ACINAR CELL LOSS, FIBROSIS, DUCTAL CHANGES, AND CALCIFICATIONS. PATIENTS WITH CP MAY SUFFER FROM ABDOMINAL PAIN AND COMPLICATIONS OF EXOCRINE PANCREATIC INSUFFICIENCY (EPI) AND DIABETES MELLITUS. MEDICAL MANAGEMENT OF CHRONIC PANCREATITIS IN CHILDREN: MAXIMIZING TREATMENT AND IMPROVING OUTCOMES BRINGS TOGETHER LEADING EXPERTS TO DISCUSS HOW TO ENSURE THAT CHILDHOOD CP IS RECOGNIZED EARLY AND ITS SEQUALAE TREATED PROMPTLY. REMOVING DIETING FROM DIET THERAPIES IN PEDIATRIC GI OBESITY WAS DECLARED AN EPIDEMIC BY THE CDC IN THE 1990S, YET SIGNIFICANT AND SUSTAINED WEIGHT LOSS CONTINUES TO BE PROBLEMATIC FOR AMERICANS AS A POPULATION. CRITICAL FACTORS ARE OFTEN OVERLOOKED WHEN ADDRESSING OBESITY SUCH AS RACIAL DISCRIMINATION, DISABILITY STATUS, AND ENVIRONMENTAL FACTORS. IN CONJUNCTION, "WEIGHT STIGMA", OR BIAS THAT DEVALUES PEOPLE WITH LARGER BODIES, CAN CAUSE INCREASED MORBIDITY AND MORTALITY, INDEPENDENT OF BMI. AS A RESPONSE, A MOVEMENT IS TAKING PLACE, KNOWN BY SEVERAL NAMES INCLUDING "ANTI-DIET"INTUITIVE EATING". THIS IS AN INCLUSIVE MOVEMENT THAT RECOGNIZES ONE'S SIZE AS PART OF HIS OR HER IDENTITY AS MUCH AS RACE, NATIONAL ORIGIN, AND SEXUALITY. IT CONSIDERS SOCIAL, ECONOMIC, AND PHYSICAL BARRIERS TO OBESITY, RATHER THAN ASSUMING LACK OF WILLPOWER OR EDUCATION ARE THE CAUSE. IT'S ABOUT RECOGNIZING "DIET CULTUREDISMANTLING THE ANTI-FAT AND PRO-THIN MESSAGES THAT INFILTRATE SOCIETY. THIS INFORMATIVE AND INTERACTIVE WEBINAR HELPS HEALTHCARE PROVIDERS RECOGNIZE WEIGHT STIGMA AND PROMOTE A POSITIVE RELATIONSHIP WITH FOOD, PARTICULARLY IN PATIENTS WITH GI-RELATED HEALTH CONDITIONS AND THOSE FOLLOWING THERAPEUTIC DIETS. THE WHAT, HOW AND IFS OF OPTIMIZING EARLY CHILDHOOD GROWTH AND LONG-TERM OUTCOMES: PART ONE UNDERSTANDING NORMAL GROWTH AND DEVELOPMENT IS CRITICALLY ESSENTIAL FOR QUICK RECOGNITION AND INTERVENTION FOR DEVIATIONS IN CHILDHOOD GROWTH AND NUTRIENT INTAKE PRACTICES ASSOCIATED WITH INCREASED RISK FOR DISEASE AND POOR LONG-TERM HEALTH. NUTRIENT AND NON-NUTRIENT FACTORS INFLUENCE HEALTH OUTCOMES THROUGHOUT THE LIFECYCLE. THIS WEBINAR AND PODCAST SERIES, THE WHAT, HOW AND IFS OF OPTIMIZING EARLY CHILDHOOD GROWTH AND LONG-TERM OUTCOMES DISCUSSES HOW TO IMPLEMENT NUTRIENT AND NON-NUTRIENT FACTORS THAT OPTIMIZE LONG-TERM HEALTH, RECOGNIZE CHILDHOOD GROWTH AND NUTRIENT INTAKE PATTERNS ASSOCIATED WITH DISEASE, CHILDHOOD MICROBIOME AND LONG-TERM RISK FOR DISEASE, AND EARLY DIAGNOSIS AND MANAGEMENT STRATEGIES FOR CHILDHOOD FEEDING DISORDERS. THE WHAT, HOW AND IFS OF OPTIMIZING EARLY CHILDHOOD GROWTH AND LONG-TERM OUTCOMES: PART TWO UNDERSTANDING NORMAL CHILDHOOD GROWTH IS ESSENTIAL FOR QUICK RECOGNITION AND INTERVENTION FOR DEVIATIONS IN GROWTH AND NUTRIENT INTAKE ASSOCIATED WITH LONG-TERM RISK FOR DISEASE AND POOR HEALTH. THEREFORE, THE 'WHAT, HOW, AND IFS OF OPTIMIZING CHILDHOOD GROWTH AND LONG-TERM OUTCOMES' WEBINAR SERIES ADDRESSES THE KNOWLEDGE AND PRACTICE GAPS ABOUT NUTRIENT AND NON-NUTRIENT FACTORS ESSENTIAL FOR OPTIMIZING LONG-TERM HEALTH OUTCOMES. THE FIRST WEBINAR ADDRESSES THE EARLY LIFE NUTRITIONAL FACTORS THAT PROMOTE HEALTHY GROWTH, THE DEVELOPMENT OF A MICROBIOME ASSOCIATED WITH OPTIMIZED LONG-TERM HEALTH, AND THE RECOGNITION OF EARLY CHILDHOOD GROWTH PATTERNS RELATED TO LONG-TERM RISK FOR OVERWEIGHT AND OBESITY. THIS PART TWO WEBINAR FOCUSES ON A NUTRITIONAL ASSESSMENT APPROACH THAT QUICKLY RECOGNIZES DISEASE, NUTRITIONAL MANAGEMENT OF CHILDHOOD FEEDING DISORDERS, AND PRINCIPLES AND STRATEGIES FOR WEANING CHILDREN FROM DEPENDENCE ON TUBE FEEDS. CHILDREN WITH CHOLESTATIC LIVER DISEASE: PRURITIS MANAGEMENT PRURITUS IS A COMMON COMPLICATION OF CHOLESTATIC LIVER DISEASE THAT CAN SIGNIFICANTLY IMPAIR QUALITY OF LIFE. INTRACTABLE PRURITUS IS AN INDICATION FOR LIVER TRANSPLANT REGARDLESS OF PELD/MELD SCORE. THE PATHOPHYSIOLOGY OF PRURITUS IS COMPLEX. SEVERAL MEDICATIONS SERVE AS STANDARDS FOR TREATMENT AND RECENT ADVANCES IN QUANTIFICATION HAS ALLOWED FOR RIGOROUS AND CONTROLLED STUDY OF NEW MEDICATIONS. IN CERTAIN CIRCUMSTANCES, LIVER TRANSPLANT CAN BE AVOIDED OR DELAYED WITH SURGICAL BILIARY INTERVENTION. NASPGHAN FELLOWS TOOLBOX WEBSITE THE NASPGHAN TOOLBOX WEBSITE IS DESIGNED TO DELIVER PEDIATRIC GASTROENTEROLOGY INFORMATION TO CARE PROVIDERS IN A FORMAT THAT IS USER FRIENDLY. THE TOOLBOX PROVIDES EASY ACCESS TO CLINICAL GUIDELINES FOR PEDIATRIC GASTROENTEROLOGISTS AND TRAINEES AND IS NOW AVAILABLE AS A DISTINCT WEBSITE LINKED FROM THE NASPGHAN WEBSITE. FEATURES OF THE TOOLBOX INCLUDE ALGORITHMS TO NAVIGATE CLINICAL GUIDELINES FOR VARIOUS DISEASES; HIGH QUALITY IMAGES OF GI PATHOLOGY; HELPFUL TABLES ON MANAGING NUTRITIONAL NEEDS; SCORES AND CALCULATORS TO ASSIST IN CALCULATING IMPORTANT PEDIATRIC GI SCORES; AND A CONVENIENT SEARCH FEATURE. BOWEL SOUNDS EPISODES ON EARLY NUTRITION BOWEL SOUNDS IS A PODCAST ON ALL THINGS RELATED TO PEDIATRIC GASTROENTEROLOGY, HEPATOLOGY, AND NUTRITION. EPISODES FEATURE INTERVIEWS WITH EXPERTS OFFERING CLINICAL AND ACADEMIC PEARLS AND CAREER ADVICE WITH SOMETHING FOR EVERYONE REGARDLESS OF CAREER STAGE OR DISCIPLINE. NEW EPISODES ARE RELEASED EVERY OTHER MONDAY. TWO BOWEL SOUNDS EPISODES WHICH FOCUS ON EARLY CHILDHOOD NUTRITION INCLUDE: EARLY LIFE NUTRITION AND IMPACT ON CHILDHOOD DEVELOPMENT AND THE ROLE OF THE MICROBIOME IN HEALTHY INFANT AND EARLY CHILDHOOD NUTRITION. NORTH AMERICAN SOC FOR PEDIATRIC GASTRO 714 N BETHLEHEM PIKE Suite 300 Ambler PA 19002 841264966 SCHEDULE O DC 501(C)3 509(a)(2) NA false false true true false true false false false false false true false false true true true false false false PART II, IDENTIFICATION OF RELATED TAX-EXEMPT ORGANIZATIONS: NAME, ADDRESS, AND EIN OF RELATED ORGANIZATION: NORTH AMERICAN SOC. FOR PEDIATRIC GASTROENTEROLOGY HEPATOLOGY AND NUTRITION EIN: 84-1264966 714 N. BETHLEHEM PIKE, SUITE 300 AMBLER, PA 19002