2024-11-13T08:13:06-06:00 2024-06-30 134260189 BOISSELLE MORTON & WOLKOWICZ LLP 48 BAY ROAD PO BOX 374 HADLEY MA 01035 990 2023-07-01 262703521 US PAIN FOUNDATION INC USPA 8009102462 15 NORTH MAIN STREET 100 WEST HARTFORD CT 06107 NICOLE HEMMENWAY DYER PRESIDENT & CEO 8009102462 2024-11-08 1 0 KEVIN M BOISSELLE CPA P01312340 4135870099 2024-11-08 X 2023 2024-10-15 13:58:12Z NICOLE HEMMENWAY DYER 15 NORTH MAIN STREET 100 WEST HARTFORD CT 06107 1424164 0 X WWW.USPAINFOUNDATION.ORG X 2006 CT TO EMPOWER,EDUCATE,CONNECT, & ADVOCATE FOR PEOPLE LIVING WITH CHRONIC CONDITIONS AND SERIOUS INJURIES THAT CAUSE PAIN, AS WELL AS THEIR CAREGIVERS AND CLINICIANS. THROUGH ITS MULTIPLE PROGRAMS AND SERVICES, THE ORGANIZATION WORKS TO ENHANCE THE QUALITY OF LIFE FOR PEOPLE WITH PAIN, IMPROVE PATIENT OUTCOMES, ADDRESS ACCESS AND AFORDABILITY ISSUES, AND INCREASE PUBLIC AWARENESS AND EMPATHY FOR THE ISSUE OF PAIN. 4 4 10 104 0 0 609617 785344 0 103273 71 5478 34335 530069 644023 1424164 0 0 0 0 269011 559472 0 0 77627 358285 577967 627296 1137439 16727 286725 489859 804669 80541 108626 409318 696043 X THE MISSION OF THE U.S. PAIN FOUNDATION IS TO EMPOWER, EDUCATE, CONNECT, AND ADVOCATE FOR PEOPLE LIVING WITH CHRONIC CONDITIONS AND SERIOUS INJURIES THAT CAUSE PAIN, AS WELL AS THEIR CAREGIVERS AND CLINICIANS. THROUGH ITS MULTIPLE PROGRAMS AND SERVICES, THE ORGANIZATION WORKS TO ENHANCE THE QUALITY OF LIFE FOR PEOPLE WITH PAIN, IMPROVE PATIENT OUTCOMES, ADDRESS ACCESS AND AFFORDABILITY ISSUES, AND INCREASE PUBLIC AWARENESS AND EMPATHY FOR THE ISSUE OF PAIN. 0 0 1012499 103273 IN THE LAST WEEK OF JUNE, U.S. PAIN'S PEDIATRIC PAIN WARRIOR PROGRAM HELD ITS THIRD ANNUAL SUMMER CAMP, BRINGING CHILDREN LIVING WITH PAIN AND THEIR FAMILIES TO MORGAN'S CAMP IN TEXAS. THIS UNIQUE, FULLY ACCESSIBLE CAMP OFFERS CHILDREN WITH DIVERSE MEDICAL CONDITIONS THE CHANCE TO ENJOY A TRADITIONAL SUMMER CAMP EXPERIENCE TAILORED TO THEIR NEEDS. CAMPERS ENGAGED IN ACTIVITIES LIKE HORSEBACK RIDING, A CHALLENGING ROPES COURSE, ROCK CLIMBING, SWIMMING, AND ARCHERY, ALL DESIGNED TO BE FULLY INCLUSIVE AND ADAPTABLE.THROUGHOUT THE WEEK, U.S. PAIN FACILITATED DAILY PEER SUPPORT GROUP MEETINGS FOR PEDIATRIC PAIN WARRIORS, THEIR SIBLINGS, AND PARENTS, CREATING MEANINGFUL OPPORTUNITIES FOR CONNECTION, SHARING, AND SUPPORT. ADDITIONALLY, A RANGE OF EDUCATIONAL AND RECREATIONAL PROGRAMS ENRICHED THE EXPERIENCE, ENSURING EVERY CAMPER COULD PARTICIPATE AND ENJOY A MEMORABLE WEEK. U.S. PAIN'S FLAGSHIP PROGRAM, THE INVISIBLE PROJECT, IS A PRINT AND ONLINE MAGAZINE THAT BRINGS TO LIGHT THE REALITIES OF LIVING WITH CHRONIC PAIN THROUGH POWERFUL STORIES, PERSONAL PHOTOGRAPHS, AND EDUCATIONAL ARTICLES. IN 2024, THE ORGANIZATION PUBLISHED ITS FIRST DIABETES EDITION, EXPANDING ITS FOCUS TO HIGHLIGHT THE UNIQUE CHALLENGES FACED BY PEOPLE WITH DIABETES-RELATED PAIN. EACH EDITION IS CELEBRATED WITH A VIRTUAL EVENT, PROVIDING A PLATFORM FOR READERS, CONTRIBUTORS, AND ADVOCATES TO CONNECT AND DISCUSS THE LATEST INSIGHTS FEATURED IN THE MOST CURRENT MAGAZINE. EDUCATION IS ESSENTIAL FOR STRENGTHENING PATIENT-PROVIDER RELATIONSHIPS, ACHIEVING POSITIVE TREATMENT OUTCOMES, AND FOSTERING GREATER PATIENT ENGAGEMENT WITHIN THE HEALTHCARE SYSTEM. RECOGNIZING THE NEED FOR ENHANCED PATIENT EDUCATION, IN 2024 WE EXPANDED OUR OFFERINGS WITH MORE VALUABLE RESOURCES, INCLUDING BUILDING YOUR TOOLBOX ONLINE SESSIONS, INFORMATIVE ARTICLES, AND EDUCATIONAL MATERIALS. THESE RESOURCES INCLUDE A NEW CHRONIC PAIN FACTS SHEET, THE UPDATED LIVING WELL WITH CHRONIC PAIN BOOKLET, THE LIVING WELL WITH CHRONIC PAIN SERIES FOR KIDS, AND MORE. ALL OF OUR RESOURCES ARE ACCESSIBLE ONLINE AND AVAILABLE TO ORDER AT NO COST. 1012499 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 1 24 0 10 1 0 0 0 0 0 0 0 0 0 0 0 0 X 4 4 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CT AL AR CA FL GA HI IL KS KY MD MA MI MN MS NH NJ NM NY NC OR PA RI SC TN UT VA WV WI CO ME ND AK X X X PAMELA LYNCH 8606049482 14 EBB ROAD YARMOUTHPORT MA 02675 JESSICA BEGLEY SECRETARY 7.00 X X 0 0 0 SHAWN DICKENS CHAIRMAN 7.00 X X 0 0 0 ED BILSKY TREASURER 7.00 X X 0 0 0 ELLEN LENOX SMITH BOARD MEMBER 7.00 X 0 0 0 NICOLE HEMMENWAY DYER PRESIDENT 35.00 X 125000 0 0 PAMELA LYNCH ASSISTANT TREASURER & CFO 20.00 X 65000 0 0 190000 0 0 1 0 0 0 0 785344 130749 785344 PROGRAM SERVICE FEES 900099 103273 103273 103273 5478 5478 LEGAL SETTLEMENT 900099 525398 525398 OTHER INCOME 900009 4671 4671 530069 1424164 103273 0 535547 513569 452111 18879 42579 45903 40410 1687 3806 12929 10760 262 1907 5530 4467 1033 30 86294 71326 7432 7536 145538 134407 3474 7657 6395 5087 1308 17951 15632 316 2003 52711 42070 10641 347 347 23525 11633 11892 PROGRAM AND EVENTS 217649 217649 MEMBERSHIP AND COALITIO 6549 5100 1449 UNCOLLECTIBLE PLEDGES 1500 1500 OTHER EXPENSE 540 521 19 509 509 1137439 1012499 47313 77627 315494 28399 663981 168000 110000 4451 1022 1990 723 1614 1267 300 0 489859 804669 80541 108626 80541 108626 X 298318 681043 111000 15000 409318 696043 489859 804669 286725 0 X 0 1 X 1 0 X 1282617 851628 690276 936165 785344 4546030 1282617 851628 690276 936165 785344 4546030 4546030 9546 1679 1972 67 5478 18742 133817 110555 135144 3736 530069 913321 5478093 103273 0.82990 0.93180 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 13164 1 7340 0 1 13207 1 2643 1 5892 42246 0 PART II-B A: USPF PROVIDES ACTION ALERTS AND WEBINARS TO VOLUNTEERS TO TAKE ACTION REGARDING VARIOUS POLICIES THAT IMPACT HEALTH B: USPF STAFF INCLUDES AN ADVOCACY DEPARTMENT THAT HAS EFFORTS FOCUSING ON IMPROVING PAIN POLICY, WHICH SOMETIMES INVOLVE LEGISLATION D: USPF UTILIZES ENGAGEMENT PLATFORMS TO HELP PUBLIC LEARN ABOUT POLICY ISSUES AND CONTACT REPRESENTATIVES TO EDUCATE THEM ON PAIN ISSUES, WHICH SOMETIMES INVOLVES SOPPORTING OR OPPOSING LEGISLATION IMPACTING THE PAIN COMMUNITY E: USPF AUTHORS OP-EDS AND COMMENTARY, AS WELL AS BROADCASTS ADVOCACY WEBINAR EVENTS ON THE NEGATIVE AND/OR POSITIVE IMPACTS OF VARIOUS POLICIES AFFECTING PAIN CARE, WHICH COULD INCLUDE GUIDELINES, GUIDANCE, RECOMMENDATIONS, PROPOSED RULES AND BILLS G : USPF STAFF, AS WELL AS VOLUNTEERS MET IN-PERSON AND VIRTUALLY WITH POLICYMAKERS TO DISCUSS ISSUES IMPEDING OR IMPROVING PAIN CARE, SUCH AS COVERAGE FOR THERAPIES, BEST PRACTICE RECOMMENDATIONS FOR PAIN, TELEHEALTH COVERAGE, GUIDELINES FOR PAIN MANAGEMENT, MEDICAL CANNABIS, ETC. SOME OF THESE RELATE TO POSSIBLE LEGISLATION AND SOME DO NOT. H : USPF STAFF AND MANAGEMENT SPOKE ON ISSUES REGARDING PAIN CARE THROUGHOUT THE YEAR. USPF HOSTED ADVOCACY WEBINARS TO DISCUSS POLICY ISSUES. ADDITIONALLY, USPF HELD A VIRTUAL ADVOCACY DAY TO IMPROVE PATIENT ACCESS TO CARE AS WELL AS ITS THIRD VIRTUAL ADVOCACY TRAINING SERIES. USPF ALSO SPONSORED PATIENT VOLUNTEERS ATTENDING AN EDUCATIONAL PROGRAM FOLLOWED BY MEETINGS WITH LAWMAKERS ADDRESSING LEGISLATION AIMED AT ENHANCING PATIENT ACCESS TO THERAPY OPTIONS. I: USPF IS A MEMBER OF DIFFERENT COALITIONS AND ALLIANCES TO AMPLIFY THE PATIENT VOICE AND THE NEED FOR BETTER ACCESS TO EQUITABLE CARE. IN ADDITION, USPF REVIEWED LEGISLATIVE LANGUAGE TO IMPROVE PAIN CARE AND PAIN POLICY. 1990 723 1267 1267 1424164 0 1424164 0 1424164 1137439 0 1137439 0 1137439 LAW OFFICES OF MARTIN COHEN SPOUSE OF EMPLOYEE 11022 LEGAL SERVICES 0 X CONSUMABLE SUPPLIES 0 130749 FAIR MARKET VALUE 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B BOARD WILL RECEIVE A COPY OF 990 BY EMAIL AND HAVE THE OPPORTUNITY TO ASK QUESTIONS PRIOR TO FILING FORM 990, PART VI, SECTION B, LINE 12C CHAIRMAN RECEIVES FORMS ON AN ANNUAL BASIS FORM 990, PART VI, SECTION B, LINE 15 ALL COMPENSATION DECISIONS INVOLVING THE PRESIDENT, CFO AND TOP MANAGEMENT OFFICIALS ARE REVIEWED BY THE BOARD FORM 990, PART VI, SECTION C, LINE 18 BY REQUEST, GUIDESTAR.ORG AND ORGANIZATION'S WEBSITE FORM 990, PART VI, SECTION C, LINE 19 BY REQUEST