2024-11-13T11:04:52-06:00 2023-12-31 363321958 Desmond & Ahern Ltd 10827 S Western Avenue Chicago IL 60643 990EZ 2023-01-01 202049037 Scarring Alopecia Foundation SCAR 2676139811 1586 Sumneytown Pike 1322 Kulpsville PA 19443 Larraine Bernstein President 2676139811 2024-11-13 1 1 Mel Padillo P03172019 7737794720 2024-11-13 2023 2024-10-15 13:58:12Z X www.scarringalopecia.org X X 140864 X 109544 31320 140864 83571 19633 103204 37660 59770 -40155 57275 X 19657 57275 40113 0 59770 57275 0 0 59770 57275 X The mission of Scarring Alopecia Foundation (SAF) is to provide education and patient support, raise public awareness and advance and promote research. SAF is the only patient advocacy organization in the world dedicated to the scarring alopecia community. SAF is an active leader in patient education and support and drives research to find better treatments and a cure. SAF accomplishes this by providing educational webinars, various resources, virtual support groups, and peer-to-peer connections. SAF participates in industry and physician meetings and speaks to the unmet needs of this growing hair loss patient base. SAF is conducting a cicatricial alopecia patient assessment and impact report by engaging patients in survey data to raise the much-needed attention to drive research forward. 0 0 SAF maintains a medically-vetted website which serves as a resource and portal to the organization and produces timely communications, including a newsletter and frequent e-news blasts to keep members informed and engaged. When diagnosed with this irreversible hair loss condition, being part of a community who understands and supports you, is immeasurable and life-saving. 0 0 0 X Kris Wharton Director 0.25 0 0 0 Yolanda Lenzy MD MPH Director 0.25 0 0 0 Maria K Hordinsky MD Director 0.25 0 0 0 Kristen LoSicco MD Director 0.25 0 0 0 Elise Olsen Director 0.25 0 0 0 Courtney Harris Director 0.25 0 0 0 Andrew F Alexis MD MPH Director 0.25 0 0 0 Andrea Furgala Director 0.25 0 0 0 Maryanne Senna MD Vice President 0.50 0 0 0 Chandra Kasakevich Treasurer 0.25 0 0 0 Jeff Donovan MD Secretary 0.25 0 0 0 Larraine Bernstein President 1.00 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 CA PA Jean R Pickford 1586 Sumneytown Pike Kulpsville PA 19443 2676139811 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 85970 82838 134184 149827 109544 562363 85970 82838 134184 149827 109544 562363 53716 508647 562363 181776 0.90450 0.93960 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 16 - Other Expenses Description: Insurance. Amount: 2,515. Description: Software. Amount: 7,247. Description: Webinars. Amount: 1,350. Description: Office expense. Amount: 2,379. Description: Board & SAB Expenses. Amount: 2,776. Description: Dues & Subscriptions. Amount: 450. Description: Travel. Amount: 2,541. Description: License Fees & Permits. Amount: 375. Total to Form 990-EZ, line 16: 19,633. Form 990-EZ, Part I, Line 20 - Other Changes in Net Assets Description: Prior period adjustment to accounts payable. Amount: -40,155. Form 990-EZ, Part II, Line 24 - Other Assets Description: Accounts receivable. Beg. of Year Amount: 40,113. End of Year Amount: 0. The organization did not, during the year, receive any funds, directly,or indirectly, to pay premiums on a personal benefit contract.The organization, did not, during the year, pay any premiums, directly,or indirectly, on a personal benefit contract.