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        <ExplanationTxt>ACCOUNTING AND BOOKKEEPING SERVICES, WEBSITE, SPECIAL EVENT PLANNING</ExplanationTxt>
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        <FormAndLineReferenceDesc>FORM 990, PAGE 2, PART III, LINE 4D</FormAndLineReferenceDesc>
        <ExplanationTxt>RESEARCH AND PROVIDED GRANTS AND BENEVOLENT ASSITANCE TO US NONPROFIT ORGANIZATIONS AND FOREIGN INDIVIDUALS TO FURTHER MEDICAL ADVANCES AND TO SUPPORT DUCHENNE PATIENTS AND FAMILIES IN NEED</ExplanationTxt>
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      <SupplementalInformationDetail>
        <FormAndLineReferenceDesc>FORM 990, PAGE 6, PART VI, LINE 11B</FormAndLineReferenceDesc>
        <ExplanationTxt>PREPARATION OF REVIEW FINANCIAL STATEMENTS BY OUTSIDE CPA FIRM. FINANCIAL STATEMENTS AND SUBSEQUENT 990 ARE GIVEN TO FAMILY MEMBERS OF THE GOVERNING BODY FOR REVIEW. CHANGES MADE BY FAMILY MEMBERS ARE GIVEN TO THE OUTSIDE CPA FIRM FOR FINAL REVIEW.</ExplanationTxt>
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      <SupplementalInformationDetail>
        <FormAndLineReferenceDesc>FORM 990, PAGE 6, PART VI, LINE 12C</FormAndLineReferenceDesc>
        <ExplanationTxt>ARTICLE VII SECTION 3 ADDRESSES THE CONFLICT OF INTEREST POLICY OF THE ORGANIZATION.</ExplanationTxt>
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        <FormAndLineReferenceDesc>FORM 990, PAGE 6, PART VI, LINE 15A</FormAndLineReferenceDesc>
        <ExplanationTxt>N/A</ExplanationTxt>
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        <ExplanationTxt>N/A</ExplanationTxt>
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