2024-11-11T09:14:12-06:00 2023-12-31 521392008 GELMAN ROSENBERG & FREEDMAN 4550 MONTGOMERY AVE SUITE 800N BETHESDA MD 208142930 990 2023-01-01 814532089 PALTOWN DEVELOPMENT FOUNDATION PALT 4108499660 969 DIGGS ROAD CROWNSVILLE MD 21032 TIFFANY S FREEMAN DIR. OPERATIONS & FINANCE 4108499660 2024-11-11 1 0 ELIZABETH W HELLER P00397829 3019519090 2023 2024-10-15 13:58:12Z LINDSAY SICHTA 969 DIGGS ROAD CROWNSVILLE MD 21032 704970 0 X WWW.PALTOWN.ORG X 2016 MD SEE PART III, LINE 1. 10 10 3 120 0 0 699483 704965 0 0 25 5 0 0 699508 704970 0 0 0 0 187358 273994 0 0 84697 456932 505558 644290 779552 55218 -74582 306323 216976 6710 12529 299613 204447 X EMPOWERING PATIENTS AND CAREGIVERS BY CREATING DISEASE-SPECIFIC COMMUNITIES TO ADDRESS SOCIAL ISOLATION AND INFORMATION NEEDS THROUGH TRAINING, TECHNOLOGY, AND DEVELOPING PURPOSE-DRIVEN LEADERSHIP. 1 0 285541 COLONTOWN: ONLINE COMMUNITY FOR COLORECTAL CANCER PATIENTS AND CAREGIVERS. COLONTOWN GREW BY OVER 2,000 MEMBERS IN 2023 AND SERVED 10,000 BY END OF YEAR. THE COMMUNITY INCLUDES 125 GROUPS, AND IS MANAGED BY A TEAM OF PATIENTS AND CAREGIVERS, INCLUDING A FULL TIME PROGRAM MANAGER, ALONG WITH MORE THAN 100 VOLUNTEER MEMBER ADMINS. 63502 COLONTOWN UNIVERSITY IS AN ONLINE DISEASE EDUCATION RESOURCE FOR COLORECTAL CANCER PATIENTS AND CAREGIVERS, PROVIDING MULTIMEDIA LEARNING CENTERS ON TOPICS OF HIGH INTEREST TO PATIENTS. COLONTOWN UNIVERSITY OFFERS HUNDREDS OF PAGES OF HIGH QUALITY EDUCATIONAL CONTENT, INCLUDING MORE THAN 70 ZOOM PRESENTATIONS BY RESEARCHERS AND CLINICIANS. COLONTOWN UNIVERSITY SERVES OVER 50,000 VISITORS. 52774 EMPOWERED PATIENT LEADERS WORKSHOPS: PALTOWN'S EMPOWERED PATIENT LEADERS (EPL) WORKSHOPS TRAIN PATIENTS AND CAREGIVERS TO BE COMMUNITY LEADERS AND SOCIAL INFLUENCERS FOR THEIR NETWORKS IN AND BEYOND COLONTOWN. SINCE 2018, OUR EPL WORKSHOPS HAVE WELCOMED MORE THAN 250 PARTICIPANTS. PALTOWN'S PROGRAM AND MANAGEMENT STAFF IS DRAWN ALMOST ENTIRELY FROM THE RANKS OF EPL GRADUATES, AS ARE OUR COLONTOWN NEIGHBORHOOD ADMINS. PARTICIPANTS LEARN BEST PRACTICES IN COMMUNITY MANAGEMENT, SHARE EXPERIENCES, AND WORK TOGETHER TO DEVELOP SOLUTIONS FOR THE MANY ISSUES THAT ARISE IN THE CONVERSATIONS IN COLONTOWN'S 100+ NEIGHBORHOODS. 43342 CLINICAL TRIALS EDUCATION: THIS PROGRAM PROVIDES PATIENTS WITH EDUCATION AROUND IDENTIFYING APPROPRIATE CLINICAL TRIALS OPTIONS AND UNDERSTANDING RESEARCH RESULTS IN THE CONTEXT OF TREATMENT DECISIONS. PROGRAM COMPONENTS INCLUDE A REGISTRY OF PATIENT-REPORTED OUTCOMES, A TRIALS CURATOR TO TRANSLATE RESEARCH RESULTS FOR PATIENTS, 2 MULTIMEDIA LEARNING CENTERS ON THE COLONTOWN UNIVERSITY WEBSITE, AND A NEW WORKSHOP SERIES, SEARCHING SAFARI, DESIGNED TO HELP STAGE IV PATIENTS NAVIGATE THE CLINICAL TRIALS INFORMATION ECOSYSTEM. 29047 DERRIERE DIPLOMATS: INTRODUCED IN EARLY 2023, THE DIPLOMATS PROGRAM RECRUITS COLONTOWN COMMUNITY MEMBERS TO SPREAD THE WORD ABOUT THE EDUCATION, SUPPORT, AND CONNECTION OFFERED BY OUR PROGRAMS TO NCI-DESIGNATED CANCER CENTERS. IN ITS FIRST YEAR, MORE THAN 150 DERRIERE DIPLOMATS PUT ON THEIR COLONTOWN SHIRTS AND DELIVERED RESOURCES FOR NEWLY DIAGNOSED PATIENTS AND THEIR CARE TEAMS AT OVER 170 LOCATIONS IN THE US AND CANADA. 21475 2ND OPINION PROJECT: PROVIDES FINANCIAL SUPPORT FOR STAGE IV COLORECTAL CANCER PATIENTS SEEKING SECOND OPINIONS AND NEW TREATMENT OPTIONS. SUPPORT IS PROVIDED FOR TRAVEL, LODGING, AND OTHER EXPENSES DIRECTLY RELATED TO THE SECOND OPINION APPOINTMENT. 22370 LEADERSHIP SUMMIT: AS AN ENTIRELY VIRTUAL ORGANIZATION, WE TRY TO GATHER IN PERSON ONCE A YEAR TO PLAN FOR THE COMING YEAR'S PROGRAMS. WE HELD OUR 2023 RETREAT IN THE DC AREA, WORKING THROUGH A FULL AGENDA GENERATING A WEALTH OF IDEAS AND ENERGY FOR THE FUTURE OF PALTOWN. WE ALSO ENJOYED THE RARE CHANCE TO ENGAGE IN TEAM-BUILDING EXERCISES. 116234 518051 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 27 0 1 3 1 0 0 0 0 0 0 0 0 0 0 0 0 X 10 10 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 MD X X X DONEEN FRAZIER 2408638305 56 ELLSWORTH HEIGHTS ST SILVER SPRING MD 20910 HOWARD BROWN DIR. TRANS TO CHAIR ( 02/23) 2.00 X X 0 0 0 TREVOR BARLOW CHAIR (UNTIL 02/23) 2.00 X X 0 0 0 SAM DHARIA DIR. TRANS TO TREAS. (02/23) 0.25 X X 0 0 0 LINH NGUYEN TREASURER (UNTIL 02/23) 0.25 X X 0 0 0 KELLY NELSON DIRECTOR 0.25 X 0 0 0 MICHAEL SCHOENBAUM DIRECTOR 0.25 X 0 0 0 MARY HANNON DIRECTOR 0.25 X 0 0 0 JULIE WRIGLEY DIRECTOR 0.25 X 0 0 0 ALEXA MORRELL DIRECTOR (FROM 05/23) 0.25 X 0 0 0 LESLIE CLOUD DIRECTOR (FROM 05/23) 0.25 X 0 0 0 SUSAN PFAU DIRECTOR (FROM 05/23) 0.25 X 0 0 0 JACQUELYN ROBINS DIRECTOR (FROM 05/23) 0.25 X 0 0 0 SUSAN WYSOKI EXECUTIVE DIR. (UNTIL 12/23) 40.00 X 150651 0 5433 NANCY SEYBOLD COO 40.00 X 40000 0 4914 190651 0 10347 1 0 1 0 0 704965 704965 5 5 704970 0 0 5 X 200998 85872 65888 49238 55833 21959 15626 18248 2018 2018 15145 5956 4239 4950 40193 40193 253458 237137 7777 8544 11029 9565 979 485 40926 17391 20705 2830 27386 26144 1242 21295 11989 9306 65444 65444 3090 3090 PATIENT SUPPORT 30874 30874 VOLUNTEER SUPPORT 5573 4976 195 402 MERCHANT FEES 3215 60 3155 PAYROLL PROCESSING FEES 1701 1701 1374 684 690 779552 518051 176804 84697 178384 279541 615 20000 26779 6782 11198 306323 216976 6710 12529 6710 12529 X 214034 201418 85579 3029 299613 204447 306323 216976 -74582 4416 -25000 0 X 1 X 0 1 0 X 427837 440319 566444 699483 704965 2839048 427837 440319 566444 699483 704965 2839048 1008812 1830236 109 23 25 5 162 2 2 2839212 195 0.64460 0.65530 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED NORTH AMERICA 0 3 PROGRAM SERVICES COLONTOWN COMMUNITY SUPPORT, 2ND OPINION PROJECT, CLINICAL TRIALS PROGRAMMING, COLONTOWN UNIVERSITY, SEARCHING SAFARI, & EPL. 30680 0 3 0 0 0 3 30680 0 30680 0 0 0 0 0 0 X 0 0 0 0 0 0 0 1 0 SUSAN WYSOKI EXECUTIVE DIR. (UNTIL 12/23) 110651 0 0 0 40000 0 0 0 5433 0 156084 0 0 0 PART I, LINE 7 AS PART OF HER COMPENSATION NEGOTIATION FOR EXECUTIVE DIRECTOR, THE BOD APPROVED SUSAN WYSOKI TO RECEIVE $40,000 IN ADJUSTMENTS FOR CONTRACTED WORK DONE IN 2022. THESE ADJUSTMENT CHECKS WERE SENT IN Q1 OF 2023. FORM 990, PART III, LINE 2 THE ORGANIZATION BEGAN TWO NEW PROGRAMS THE "DERRIERE DIPLOMATS AND "LEADERSHIP SUMMT". FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY OUTSIDE ACCOUNTANTS AND DISTRIBUTED ELECTRONICALLY TO THE BOARD OF DIRECTORS. THE COO REQUESTS FEEDBACK AND RECEIVED WRITTEN APPROVAL TO FILE FROM THE BOARD CHAIR AND TREASURER PRIOR TO SUBMITTING TO THE IRS. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, PRINCIPAL OFFICER, AND MEMBER OF A COMMITTEE WITH GOVERNING BOARD DELEGATED POWERS ANNUALLY SIGNS A CONFLICT OF INTEREST STATEMENT. IN CONNECTION WITH ANY ACTUAL OR POSSIBLE CONFLICT OF INTEREST, AN INTERESTED PERSON DISCLOSES THE POSSIBLE CONFLICT AND IS GIVEN THE OPPORTUNITY TO DISCLOSE ALL MATERIAL FACTS TO THE DIRECTORS AND MEMBERS OF COMMITTEES WITH GOVERNING BOARD DELEGATED POWERS CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. AFTER ANY DISCUSSION WITH THE INTERESTED PERSON, HE OR SHE LEAVES THE GOVERNING BOARD OR COMMITTEE MEETING WHILE THE DETERMINATION OF A CONFLICT OF INTEREST IS DISCUSSED AND VOTED UPON. THE CHAIRPERSON OF THE GOVERNING BOARD OR COMMITTEE, IF APPROPRIATE, APPOINTS A DISINTERESTED PERSON OR COMMITTEE TO INVESTIGATE ALTERNATIVES TO THE PROPOSED TRANSACTION OR ARRANGEMENT. AFTER EXERCISING DUE DILIGENCE, THE GOVERNING BOARD OR COMMITTEE DETERMINS WHETHER THE FOUNDATION CAN OBTAIN WITH REASONABLE EFFORTS A MORE ADVANTAGEOUS TRANSACTION OR ARRANGEMENT FROM A PERSON OR ENTITY THAT WOULD NOT RISE TO A CONFLICT OF INTEREST. IF THIS IS NOT REASONABLY POSSIBLE, THE GOVERNING BOARD OR COMMITTEE DETERMINES BY A MAJORITY VOTE OF THE DISINTERESTED DIRECTORS WHETHER THE TRANSACTION OR ARRANGEMENT IS IN THE FOUNDATION'S BEST INTEREST, FOR ITS OWN BENEFIT, AND WHETHER IT IS FAIR AND REASONABLE. IN CONFORMITY WITH THE ABOVE DETERMINATION IT MAKES ITS DECISION AS TO WHETHER TO ENTER INTO THE TRANSACTION OR ARRANGEMENT. ALL DISCUSSIONS ARE RECORDED IN THE BOARD MEETING MINUTES. IF A GOVERNING BOARD OR COMMITTEE HAS REASONABLE CAUSE TO BELIEVE A PERSON HAS FAILED TO DISCLOSE ACTUAL OR POSSIBLE CONFLICTS OF INTEREST, IT INFORMS THE PERSON OF THE BASIS FOR THE BELIEF AND AFFORDS THE PERSON AN OPPORTUNITY TO EXPLAIN THE ALLEGED FAILURE TO DISCLOSE. IF, AFTER HEARING THE PERSON'S RESPONSE AND AFTER MAKING FURTHER INVESTIGATION AS WARRANTED BY THE CIRCUMSTANCES, THE GOVERNING BOARD OR COMMITTEE DETERMINES THE PERSON HAS FAILED TO DISCLOSE AN ACTUAL OR POSSIBLE CONFLICT OF INTEREST, IT TAKES APPROPRIATE DISCIPLINARY AND CORRECTIVE ACTION. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION OF OFFICERS IS DETERMINED AND APPROVED BY THE BOARD AND DOCUMENTED IN THE BOARD MEETING MINUTES. THE LAST COMPENSATION REVIEW TOOK PLACE NOVEMBER 2023. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. THE DOCUMENTS ARE ALSO AVAILABLE ON THE ORGANIZATIONS WEBSITE, AND GUIDESTAR. FORM 990, PART IX, LINE 11G PROFESSIONAL SERVICES: PROGRAM SERVICE EXPENSES 15,615. MANAGEMENT AND GENERAL EXPENSES 7,777. FUNDRAISING EXPENSES 8,544. TOTAL EXPENSES 31,936. PROGRAM MANAGER : PROGRAM SERVICE EXPENSES 221,522. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 221,522.