2024-11-05T16:56:37-05:00 2023-12-31 561743537 LANGDON & COMPANY LLP 223 US HIGHWAY 70 EAST SUITE 100 GARNER NC 275294051 990 2023-01-01 463405526 RARE CANCER RESEARCH FOUNDATION RARE 9198278373 703 FOSTER STREET DURHAM NC 27701 MARSHALL THOMPSON PRESIDENT 9198278373 2024-11-05 true true JESSICA DUPREE P02000926 9196621001 2024-11-05 2023 2024-10-15 13:58:12Z MARSHALL THOMPSON 703 FOSTER ST DURHAM NC 27701 3503960 false X WWW.RCRF.ORG X 2013 NC THE RARE CANCER RESEARCH FOUNDATION IS DEDICATED TO CURING RARE CANCERS THROUGH STRATEGIC INVESTMENTS AND COLLABORATIONS THAT CATALYZE EFFECTIVE RESEARCH AND ACCELERATE DEPLOYMENT OF PROMISING THERAPIES. 4 3 10 0 37638 2606409 891959 0 5592 37638 3503960 0 0 100045 1039281 0 0 233756 1128338 333801 2167619 -296163 1336341 757505 3033890 2089 942133 755416 2091757 THE RARE CANCER RESEARCH FOUNDATION IS DEDICATED TO CURING RARE CANCERS THROUGH STRATEGIC INVESTMENTS AND COLLABORATIONS THAT CATALYZE EFFECTIVE RESEARCH AND ACCELERATE DEPLOYMENT OF PROMISING THERAPIES. false false 889907 856707 PPOI (FORMERLY H37) IS ON A MISSION TO CREATE EXCEPTIONAL OUTCOMES FOR INDIVIDUALS FACING ADVANCED CANCER BY PUSHING THE BOUNDARIES OF SCIENCE, RESEARCH, AND CLINICAL INNOVATIONS. WORKING IN DEEP PARTNERSHIP WITH A SMALL GROUP OF CLIENTS WITH ADVANCED CANCERS, PPOI EXPLORES THE DETAILED MOLECULAR AND CLINICAL CHARACTERISTICS OF INDIVIDUAL CLIENT'S DISEASE TO HELP THEM AND THEIR CLINICAL TEAM MAKE MORE DATA-INFORMED DECISIONS ABOUT THEIR TREATMENT JOURNEY. WE HAVE ALREADY SEEN THE SUCCESS OF THIS PROGRAM IN THE FIRST PERSONALIZED VACCINE VALIDATED WITH MASS SPECTROMETRY IN THE COUNTRY AS WELL AS DAILY WINS AS WE WORK TO NAVIGATE THROUGH THIS COMPLEX AND EVER-CHANGING LANDSCAPE ON BEHALF OF THESE PATIENTS. 406457 35252 PATTERN.ORG IS A GROUNDBREAKING PLATFORM THAT ALLOWS RCRF TO WORK DIRECTLY WITH CANCER PATIENTS ACROSS THE COUNTRY TO IDENTIFY PATIENTS ELIGIBLE TO DONATE TISSUE TO RESEARCH, EDUCATE THOSE PATIENTS ON RESEARCH OPPORTUNITIES, CONSENT THEM INTO SUCH RESEARCH PROGRAMS, AND THEN COORDINATE THE BIO-LOGISTICS OF MOVING THEIR TISSUE FROM THEIR LOCAL HOSPITALS TO WORLD-CLASS RESEARCH INSTITUTIONS. PATTERN.ORG WAS LAUNCHED WITH GREAT SUCCESS IN 2016, AND IN 2023, DELIVERED HIGH QUALITY, VIABLE, LIVING RARE CANCER TISSUE FROM BOTH ACADEMIC AND COMMUNITY HOSPITALS ACROSS THE U.S. TO CRITICAL,INNOVATIVE RESEARCH INITIATIVES. 231263 A PROGRAM INITIATED IN 2023 TO DEVELOP A UNIFIED PLATFORM TO HOST COMBINED MOLECULAR AND CLINICAL RARE CANCER DATA WHICH WILL BE SHARED BROADLY WITH THE CANCER RESEARCH COMMUNITY. 1527627 true true false false false false false false false false false false false false false false false false false false false false false false false false false false false true false false false false false false true false true false false false false false false false false true 25 0 true 10 true false false false false false false false false false false false false X 4 3 true false false false false false false true true false false true true true true true true true true false X BARBARA VAN HARE 8168686352 81 OLD HICKORY TRAIL HENDERSONVILLE NC 28739 MARSHALL THOMPSON PRESIDENT 40.00 X X 189251 0 5175 AMBER SMITH BIOBANK MANA 40.00 X 136717 0 5175 BARBARA VAN HARE PRES. OF PAT 40.00 X X 121264 0 5400 CHRIS HEERY DIRECTOR 1.00 X X 0 0 0 MARK LAABS FOUNDER & CH 15.00 X X 0 0 0 RYAN PRIPSTEIN DIRECTOR 1.00 X X 0 0 0 447232 15750 3 false true false WILLIAM HOOS 128 GRAYLYN DRIVE CHAPEL HILL NC 27516 CONSULTANT 158330 1 2606409 48751 2606409 PARTICIPANT SERVICE FEES 695457 695457 PARTICIPANT REIMBURSABLE REV. 161250 161250 PROGRAM SERVICE REVENUE 35252 35252 891959 DELIVERED PATIENT SAMPLES 5500 5500 BIO BANKING FEES 92 92 5592 3503960 897551 X 321090 224187 96903 618392 431361 187031 14272 10238 4034 85527 44773 40754 53895 44566 9329 24904 24904 385594 210702 174892 13515 13515 24814 7519 17295 48103 5869 42234 46473 24187 22286 1270 1270 PROGRAM SERVICE EXPENSE 514025 514025 PAYROLL PROCESSING FEES 14710 10200 4510 MERCHANDISE 1035 1035 2167619 1527627 639992 0 755842 2881110 127681 331 25099 1332 757505 3033890 112964 829169 2089 2089 942133 X 755416 2091757 755416 2091757 757505 3033890 1336341 X false false false X 38755 23945 1050279 37638 2606409 3757026 38755 23945 1050279 37638 2606409 3757026 1349717 2407309 3757026 361507 0.64070 0.34220 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false false false false false false false MARSHALL THOMPSON PRESIDENT 189251 5175 194426 BARBARA VAN HARE FAMILY MEMBER 121264 COMPENSATION false SCHEDULE L, PART V BARBARA VAN HARE, THE AUNT OF PRINCIPAL OFFICER MARK LAABS, IS EMPLOYED BY RCRF AS THE DIRECTOR OF PARTNERSHIPS. X 1 48751 false false false FORM 990, PAGE 6, PART VI, LINE 2 BARBARA VAN HARE MARK LAABS DIRECTOR OFFICER AUNT FORM 990, PAGE 6, PART VI, LINE 11B THE FORM 990 "REVIEW PROCESS" WILL INVOLVE E-MAIL CIRCULATION AND INSPECTION BY EACH OF THE BOARD MEMBERS FOLLOWED BY DOCUMENTED APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C TO ENSURE THE CORPORATION OPERATES IN A MANNER CONSISTENT WITH CHARITABLE PURPOSES AND DOES NOT ENGAGE IN ACTIVITIES THAT COULD JEOPARDIZE ITS TAX- EXEMPT STATUS, PERIODIC REVIEW SHALL BE CONDUCTED. THE PERIODIC REVIEWS SHALL, AT A MINIMUM, INCLUDE WHETHER COMPENSATION ARRANGEMENTS AND BENEFITS ARE REASONABLE, BASED ON COMPETENT SURVEY INFORMATION, AND THE RESULT OF ARM'S LENGTH BARGAINING, AND WHETHER PARTNERSHIPS, JOINT VENTURES, AND ARRANGEMENTS WITH MANAGEMENT ORGANIZATIONS CONFORM TO THE CORPORATION'S WRITTEN POLICIES, ARE PROPERLY RECORDED, REFLECT REASONABLE INVESTMENT OR PAYMENTS FOR GOODS AND SERVICES, FURTHER CHARITABLE PURPOSES AND DO NOT RESULT IN INUREMENT, IMPERMISSIBLE PRIVATE BENEFIT OR IN AN EXCESS BENEFIT TRANSACTION. FORM 990, PAGE 6, PART VI, LINE 15A NO EXECUTIVE OFFICERS WERE COMPENSATED IN THE CURRENT YEAR. FORM 990, PAGE 6, PART VI, LINE 15B NO EXECUTIVE OFFICERS WERE COMPENSATED IN THE CURRENT YEAR. FORM 990, PAGE 6, PART VI, LINE 19 ALL DOCUMENTS ARE CURRENTLY AVAILABLE TO THE PUBLIC UPON REQUEST. PROSPECTIVELY, ALL INFORMATION WILL ALSO BE AVAILABLE ON WWW.GUIDESTAR.COM. FORM 990, PART IX, LINE 11G CONSULTING SERVICES 196,484 119,068 0 REGULATORY FEES 4,210 0 0 REGISTERED AGENT FEES 0 4,005 0 CONTRACT LABOR 10,008 51,819 0 TOTAL 210,702 174,892 0