2024-10-24T14:02:34-05:00 2023-12-31 351356555 DONOVAN PC 5151 E US HWY 36 AVON IN 46123 990 2023-01-01 842173231 PEDIATRIC DERMATOLOGY RESEARCH ALLIANCE INC PEDI 9713694690 205 SE SPOKANE ST 300 PORTLAND OR 97202 MICHAEL SIEGEL EXECUTIVE DIRECTOR 9713690373 2024-10-24 1 0 DAVID W LEMLER CPA CGMA P00378478 3177456411 2024-10-24 2023 2024-10-15 13:58:12Z MICHAEL SIEGEL 205 SE SPOKANE ST 300 PORTLAND OR 97202 1639866 0 X HTTPS://PEDRARESEARCH.ORG X 2019 IN CREATE, INSPIRE, AND SUSTAIN RESEARCH TO PREVENT, TREAT, AND CURE CHILDHOOD SKIN DISEASE. 15 15 6 50 2000 1000 1362310 1573144 29030 31696 10983 26805 0 7000 1402323 1638645 476992 500970 0 0 566242 609230 0 0 0 413226 520538 1456460 1630738 -54137 7907 1379282 1400026 484989 450112 894293 949914 CREATE, INSPIRE, AND SUSTAIN RESEARCH TO PREVENT, TREAT, AND CURE CHILDHOOD SKIN DISEASE. 0 0 386521 40850 31696 ANNUAL CONFERENCE - PEDRA'S ANNUAL CONFERENCE WELCOMES DEDICATED SCIENTISTS, PARTNERS FROM INDUSTRY AND GOVERNMENT, PATIENTS, ADVOCATES, AND CAREGIVERS TO LEARN, SHARE, AND ADVANCE DIRECT RESEARCH THAT IMPROVES THE LIVES OF CHILDREN AND FAMILIES FACING THE BURDEN OF PEDIATRIC SKIN DISEASES. 591886 460120 DIRECT RESEARCH - PEDRA IS DEDICATED TO ACCELERATING THE PACE OF DIRECT RESEARCH AND EQUIPPING HEALTH CARE PROVIDERS WITH TREATMENT OPTIONS THAT IMPROVE PATIENTS' LIVES ON A MEANINGFUL TIMELINE. PEDRA PROVIDES RESOURCES TO RESEARCHERS INTERESTED IN IMPROVING THE LIVES OF CHILDREN WITH SKIN DISEASE AND ALSO PROVIDES FUNDING IN SUPPORT OF STUDIES, INVESTIGATORS, AND IMPORTANT INITIATIVES. 201029 OUTREACH AND EDUCATION - PEDRA PROVIDES DIRECT RESEARCH-RELATED EDUCATION AND OUTREACH TO THOSE WHO TREAT CHILDHOOD SKIN DISEASE, PATIENTS, PARENTS, AND SCIENTISTS. 105176 105176 1284612 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 17 0 6 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 15 15 0 0 0 0 1 1 0 1 1 0 0 1 1 1 1 1 1 1 1 0 IN X X SUSAN MATLACK JONES & ASSOCIATES LLC 5032429360 2525 SW 1ST AVE SUITE OR 97202 MICHAEL SIEGEL PHD EXECUTIVE DIRECTOR 40.00 X 141056 0 0 MEGHA TOLLEFOSN MD DIRECTOR 1.00 X 0 0 0 ANNA BRUCKNER MD PRESIDENT 5.00 X X 0 0 0 KEITH CHOATE MD PHD PRESIDENT-ELECT 5.00 X X 0 0 0 LESLIE LAWLEY MD TREASURER 5.00 X X 0 0 0 ILONA FRIEDEN MD PAST PRESIDENT 1.00 X 0 0 0 ANDREA ZAENGLEIN MD DIRECTOR 1.00 X 0 0 0 CARRIE COUGHLIN MD DIRECTOR 1.00 X 0 0 0 ELENA HAWRYLUK MD PHD DIRECTOR 1.00 X 0 0 0 ESTEBAN FERNANDEZ FAITH MD DIRECTOR 1.00 X 0 0 0 FRANCESCA TENCONI MBA DIRECTOR 1.00 X 0 0 0 JEFFREY SUGARMAN MD PHD DIRECTOR 1.00 X 0 0 0 JENNIFER HUANG MD DIRECTOR 1.00 X 0 0 0 JIADE YU MD DIRECTOR 1.00 X 0 0 0 RAEGAN HUNT MD PHD DIRECTOR 1.00 X 0 0 0 YVONNE CHIU MD DIRECTOR 1.00 X 0 0 0 141056 0 0 1 0 0 0 0 30345 4895 1537904 1573144 ANNUAL CONFRENCE 541700 31696 31696 31696 26805 26805 6221 4895 1221 5000 5000 ADVERTISING 541800 2000 2000 2000 1638645 31696 2000 31805 470239 470239 30731 30731 141056 86645 54411 363568 223326 140242 16223 10863 5360 43559 29167 14392 44824 27517 17307 1298 1298 25383 25383 36551 19551 17000 22030 15116 6914 105481 71134 34347 63117 55188 7929 207331 188648 18683 55513 55513 3834 974 2860 1630738 1284612 346126 0 658210 371400 657738 732256 47371 296370 15963 1379282 1400026 86051 77236 268388 312926 130550 59950 484989 450112 X 835233 684271 59060 265643 894293 949914 1379282 1400026 7907 47714 0 X X 0 1 X 1 0 X 518737 1040930 1345859 1362310 1479451 5747287 33790 1351 19075 29030 32244 115490 552527 1042281 1364934 1391340 1511695 5862777 390190 868403 986379 942827 1062975 4250774 0 390190 868403 986379 942827 1062975 4250774 1612003 6200 3733 5122 10983 26805 52843 6200 3733 5122 10983 26805 52843 7000 7000 558727 1046014 1370056 1402323 1545500 5922620 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 1687580 47714 1221 48935 1638645 0 1638645 1631959 1221 1221 1630738 0 1630738 PART X, LINE 2: GENERALLY ACCEPTED ACCOUNTING PRINCIPLES IN THE UNITED STATES REQUIRE PEDRA TO EXAMINE ITS TAX POSITIONS FOR UNCERTAIN POSITIONS. PEDRA IS NOT AWARE OF ANY TAX POSITIONS THAT ARE MORE LIKELY THAN NOT TO CHANGE IN THE NEXT 12 MONTHS, OR THAT WOULD NOT SUSTAIN AN EXAMINATION BY APPLICABLE TAXING AUTHORITIES. PEDRA'S POLICY IS TO RECOGNIZE PENALTIES AND INTEREST AS INCURRED IN ITS STATEMENT OF ACTIVITIES AS A COMPONENT OF OPERATING EXPENSES, AND TOTAL $0 FOR THE YEARS ENDED DECEMBER 31, 2023 AND 2022. PEDRA'S FEDERAL AND STATE INCOME TAX RETURNS ARE SUBJECT TO EXAMINATION BY THE APPLICABLE TAX AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THE LATER OF THE ORIGINAL OR EXTENDED DUE DATE. PART XI, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 1,221. PART XII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 1,221. 1 0 0 0 0 0 0 0 0 0 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES PROVIDES RESOURCES TO RESEARCHERS INTERESTED IN IMPROVING THE LIVES OF CHILDREN WITH SKIN DISEASE AND ALSO PROVIDES FUNDING IN SUPPORT OF STUDIES, INVESTIGATORS, AND IMPORTANT INITIATIVES. 30731 0 N/A FMV 0 0 0 0 0 0 1 THE MEDICAL COLLEGE OF WISCONSIN 8701 W WATERTOWN PLANK RD MILWAUKEE WI 53226 390806261 80000 0 DEVELOPMENT OF THE MORPHEA ACTIVITY AND DAMAGE MEASURE (MADM) CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 25000 0 GENETIC LANDSCAPE OF PEDIATRIC PATIENTS WITH MONOGENIC SUSCEPTIBILITIES TO MILTON S HERSHEY MEDICAL CENTER 500 UNIVERSITY DR HERSHEY PA 17033 251854772 19512 0 EXPERT RECOMMENDATIONS FOR USE OF HORMONAL THERAPIES IN PREADOLESCENT AND YO CHILDREN'S NATIONAL HOSPITAL 111 MICHIGAN AVE NW WASHINGTON DC 20010 530196580 25000 0 SHARED JOURNEYS: A QUALITATIVE EXPLORATION OF PATIENT AND PARENT PERSPECTIVE JOHNS HOPKINS HOSPITAL 1800 ORLEANS ST BALTIMORE MD 21287 256023900 25000 0 UNDERSTANDING PATIENT-REPORTED OUTCOMES IN PEDIATRIC PATIENTS RECEIVING SYST ALBERT EINSTEIN COLLEGE OF MEDICINE 1300 MORRIS PARK AVE BRONX NY 10461 830621846 25000 0 NOVEL USE OF ORAL MINOXIDIL IN PEDIATRIC ALOPECIA PATIENTS UNIVERSITY OF CALIFORNIA SAN FRANCISCO 505 PARNASSUS AVE SAN FRANCISCO CA 94143 946036493 20000 0 PEDIATRIC AUTOIMMUNE DISEASE: COMPREHENSIVE CHARACTERIZATION OF A RHEUMATOLO UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST PHILADELPHIA PA 19104 231352685 20000 0 THERMOGRAPHY TO MONITOR PROLIFERATION IN EVOLVING HEMANGIOMAS AT RISK FOR AG HARVARD MEDICAL SCHOOL 25 SHATTUCK STREET BOSTON MA 02115 042103580 20000 0 QUALITY OF LIFE IN CHILDHOOD CANCER AND TRANSPLANT SURVIVORS WITH PERMANENT NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON IL 60208 362167817 20000 0 CARDIOVASCULAR RISK IN PEDIATRIC PSORIASIS STANFORD UNIVERSITY 450 JANE STANFORD WAY STANFORD CA 94305 941156365 60000 0 A RANDOMIZED PHASE 2 CLINICAL TRIAL TO EVALUATE A TEMPORARY SKIN SUBSTITUTE UNIVERSITY OF CALIFORNIA LOS ANGELES 405 HILGARD AVENUE LOS ANGELES CA 90095 956006143 20000 0 BARRIERS TO CARE FOR PEDIATRIC ATOPIC DERMATITIS PATIENTS AND THE EFFECTS ON UNIVERSITY OF COLORADO 552 UCB BOULDER CO 80309 846000555 20000 0 INVESTIGATING ACCESS TO PEDIATRIC DERMATOLOGY CARE FOR MINORITIZED YOUTH UNIVERSITY OF MISSISSIPPI 1111 WEST JACKSON AVENUE OXFORD MS 38655 646001159 42975 0 ELUCIDATING PSYCHOLOGICAL WELL-BEING AND ACCESS TO SUPPORT IN FAMILIES OF CH 18 PART I, LINE 2 - PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS THE BOARD RECEIVES FINANCIAL REPORTS RELATED TO ALL ACTIVITY AND IS OVERSEEN BY AN EXECUTIVE DIRECTOR. DAWN SIEGEL BOARD MEMBER 102500 GRANT CAREER BRIDGE RESEARCH GRANT, RESEARCH FELLOWSHIP YVONNE CHIU BOARD MEMBER 40000 GRANT CAREER BRIDGE RESEARCH GRANT AMY PALLER FORMER BOARD MEMBER 24500 GRANT CONSENSUS GRANT ANDREA ZAENGLEIN BOARD MEMBER 9756 GRANT CONSENSUS GRANT ALBERT YAN FORMER BOARD MEMBER 20000 GRANT RESEARCH FELLOWSHIP JENNIFER HUANG BOARD MEMBER 21538 GRANT RESEARCH FELLOWSHIP, STUDY SUPPORT GRANT JOYCE TENG FORMER BOARD MEMBER 40000 GRANT RESEARCH FELLOWSHIP, RESEARCH GRANT ELENA POPE FORMER BOARD MEMBER 12865 GRANT RESEARCH GRANT ELAINE SIEGFRIED FORMER BOARD MEMBER 3550 GRANT STUDY SUPPORT GRANT FORM 990, PART VI, SECTION A, LINE 6 THE ORGANIZATION HAS MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A ORGANIZATION HAS MEMBERS THAT HAVE LIMITED VOTING AUTHORITY ACCORDING TO THE BYLAWS, INLCUDING ELECTION OF OFFICERS. FORM 990, PART VI, SECTION B, LINE 11B DRAFT OF THE RETURN IS REVIEWED BY THE EXECUTIVE DIRECTOR AND SHARED WITH THE BOARD BEFORE BEING FINALIZED AND FILED. FORM 990, PART VI, SECTION B, LINE 11B THE BOARD OF DIRECTORS (BOARD) REVIEWS THE FINANCIAL STATEMENTS. THE BOARD IS PROVIDED COPIES OF THE FINANCIAL STATEMENTS AT THE TIME OF REVIEW AND AT YEAR-END. FORM 990, PART VI, SECTION B, LINE 12C PEDRA REQUIRES ALL BOARD MEMBERS AND STAFF TO REVIEW THE CONFLICT OF INTEREST POLICY, EVALUATE ACTIVITIES WITH RESPECT TO THE POLICY, AND COMMUNICATE ANY POTENTIAL CONFLICTS TO THE PRESIDENT OR EXECUTIVE DIRECTOR ON AN ANNUAL BASIS. THE IDENTIFICATION, EVALUATION AND RESOLUTION OF THOSE ISSUES ARE DISCUSSED WITH THE APPROPRIATE INDEPENDENT MEMBERS OF MANAGEMENT AND THE EXECUTIVE COMMITTEE. FORM 990, PART VI, SECTION B, LINE 15 PEDRA'S KEY EMPLOYEES ARE PROVIDED A FORMAL EVALUATION AT LEAST ONCE EVERY FIVE YEARS. THE EXECUTIVE COMMITTEE OF THE BOARD REVIEWS AND APPROVES COMPENSATION PRIOR TO THE ANNUAL EVALUATION. COMPENSATION IS DETERMINED BASED ON COMPARABLE DATA, COMPILED FROM INDEPENDENT SOURCES, AND EVALUATED AGAINST THE ANNUAL BUDGET. FORM 990, PART VI, SECTION C, LINE 19 DOCUMENTS AVAILABLE UPON REQUEST AND SHARED ON THE WEBSITE FOR PUBLIC ACCESS. FORM 990, PART XII, LINE 2C: THE ORGANIZATION'S BOARD OF DIRECTORS ASSUMES THE OVERSIGHT OF THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT. THE SELECTION AND REVIEW PROCESS HAS NOT CHANGED FROM THE PREVIOUS YEAR.