2024-10-02T10:04:15-07:00 2024-06-30 990 2023-07-01 113308775 ASHLEY ROSE FOUNDATION ASHL 5166600108 34 CLUB DRIVE MASSAPEQUA NY 11758 LINDA J PITEK President 2024-10-01 true 2023 2024-10-15 13:58:12Z LINDA PITEK 34 CLUB DRIVE MASSAPEQUA NY 11758 405674 false X N/A X 1996 SEE SUPPLEMENTAL STATEMENT ATTACHED: ORGANIZATIONS MOST SIGNIFICANT ACTIVITIES. 2 0 0 0 28623 14320 0 86794 -68065 0 115417 -53745 38265 68102 0 0 0 0 0 38265 68102 77152 -121847 573475 502265 0 573475 502265 THE ASHLEY ROSE FOUNDATION WAS FORMED IN 1996 BY RAY & LINDA PITEK IN MEMORY OF THEIR DAUGHTER ASHLEY WHO WAS LOST DUE TO COMPLICATIONS RELATING TO SPINA BIFIDA. THE THREEFOLD PURPOSE OF THE FOUNDATION IS TO 1)INCREASE THE PUBLIC'S AWARENESS OF SPINA BIFIDA AND THE BENEFIT OF TAKEN FOLIC ACID, 2)PROVIDE SUPPORT TO CHILDREN HAVING SPINA BIFIDA AS WELL AS TO THEIR FAMILIES, AND 3)FUND RESEARCH TOWARD THE PREVENTION OF SPINA BIFIDA. THE FOUNDATION IS CURRENTLY FOCUSED ON ONE PROGRAM, WHEREBY THE FOUNDATION ESTABLISHED THE ASHLEY ROSE PITEK NURSE SCHOLARS FELLOWSHIP AT VILLANOVA UNIVERSITY'S COLLEGE OF NURSING. THIS PROGRAM SPONSORS NURSE PRACTICIONERS FOR ENROLLMENT IN THE UNIVERSITY'S DOCTOR OF NURSING PRACTICE PROGRAMS FOR THE COMPLETION OF A DOCTORAL DEGREE FOCUSED ON A CRITICAL ASPECT OF SPINA BIFIDA CARE THAT COULD BE APPLIED IN PRACTICE AND WHICH WOULD CONTRIBUTE TO THE IMPROVED CARE AND QUALITY OF LIFE OF THESE CHILDREN AND THEIR FAMILIES. false false 68102 68102 SINCE THE ASHLEY ROSE PITEK NURSE SCHOLARS FELLOWSHIP WAS ESTABLISHED IN 2014 AT VILLANOVA UNIVERSITY'S COLLEGE OF NURSING, SIX RECIPIENTS OF THE AWARD HAVE COMPLETED THE FELLOWSHIP PROGRAM AND GRADUATED THROUGH DECEMBER 2023. THE SEVENTH CANDIDATE IN THE FELLOWSHIP PROGRAM IS EXPECTED TO GRADUTE IN DECEMBER 2024. 68102 true true false false false false false false false false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 0 0 false 0 false false false false false false false 0 false false false false false false false false false false X 2 0 false false false false false false false false false false false false false false false false false false NY X LINDA PITEK 5166600108 34 CLUB DRIVE MASSAPEQUA NY 11758 X LINDA PITEK President 1.00 0.00 X 0 0 0 RAY PITEK Treasurer 1.00 0.00 X 0 0 0 0 false false false 0 14320 14320 0 5731 5731 0 0 0 385623 459419 -73796 -73796 -73796 0 0 0 0 -53745 -68065 68102 68102 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 68102 68102 0 0 1097 1223 0 0 0 0 0 0 0 0 0 572378 501042 0 0 0 0 573475 502265 0 0 X 573475 502265 573475 502265 573475 502265 -121847 50637 X false false false X 32152 37379 33746 28623 14320 146220 0 0 0 0 32152 37379 33746 28623 14320 146220 0 0 146220 11508 13481 8173 7623 5731 46516 0 11508 13481 8173 7623 5731 46516 0 0 43660 50860 41919 36246 20051 192736 0.75870 0.79770 0.24130 0.20230 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true VILLANOVA UNIVERSITY NURSING 800 LANCASTER AVENUE VILLANOVA PA 19085 581342181 68102 0 SUPPORT VILLANOVA NURSING PROGRAM 0 1 Additional Supplemental Information THE ASHLEY ROSE FOUNDATION CAREFULLY SELECTS A RECIPIENT FROM A POOL OF CANDIDATES TO RECEIVE A FELLOWSHIP FOR ENROLLMENT IN THE VILLANOVA UNIVERSITY'S DOCTOR OF NURSING PRACTICE PROGRAM. THE GRANT IS DISBURSED ON BEHALF OF THE RECIPIENT THAT RECEIVED THE FELLOWSHIP. PROGRESS OF RECIPIENT AND COMPLETION BY THE RECIPIENT OF THE NURSING PRACTICE PROGRAM IS MONITORED BY THE PRESIDENT OF THE ASHLEY ROSE FOUNDATION BY MAINTAINING CONTACT WITH UNIVERSITY OFFICIALS AND THE AWARD RECIPIENT TO ENSURE THE PROGRAM'S CURRENT GOAL IS ACHIEVED (WHICH IS TO PROVIDE A NURSING DEGREE FROM THE VILLANOVA UNIVERSITY'S SCHOOL OF NURSING FOR THE RECIPIENT TO BE EMPLOYED AT A LEADING CHILDREN'S HOSPITAL IN THE US). Form 990, Part VI, Section B, Line 11b FORM 990 PREPARED AND REVIEWED BY AN INDEPENDENT CERTIFIED PUBLIC ACCOUNTANT. Form 990, Part VI, Section C, Line 19 THE FOUNDATION CURRENTLY HAS A LIMITED NUMBER OF TRANSACTIONS (LESS THAN 10 PER YEAR)FOR DONATIONS AND FUNDING OF PROGRAM EXPENSES FOR ITS FELLOWSHIP PROGRAM. THIS DOCUMENTAION IS AVALAIBLE TO THE PUBLIC FOR INSPECTION UPON REQUEST. Statement Note 1 ORGANIZATIONS MOST SIGNIFICANT ACTIVITIESTHE ASHLEY ROSE FOUNDATION WAS FORMED IN 1996 BY RAY & LINDA PITEK IN MEMORY OF THEIR DAUGHTER ASHLEY WHO WAS LOST DUE TO COMPLICATIONS RELATING TO SPINA BIFIDA. THE THREEFOLD PURPOSE OF THE FOUNDATION IS 1)TO INCREASE THE PUBLIC'S AWARENESS OF SPINA BIFIDA AND THE BENEFIT OF TAKEN FOLIC ACID, 2)PROVIDE SUPPORT TO CHILDREN HAVING SPINA BIFIDA AS WELL AS TO THEIR FAMILIES, AND 3)FUND RESEARCH TOWARD THE PREVENTION OF SPINA BIFIDA. REGARDING THE FIRST TWO OBJECTIVES, THE INITIAL FOCUS OF THE FOUNDATION WAS TO SPONSOR VARIOUS ACTIVITIES WHICH RESULTED IN PROVIDING FINANCIAL SUPPORT TO CHILDREN AND THEIR FAMILIES AFFECTED BY SPINA BIFIDA. THE FOUNDATION ALSO COLLABORATED WITH THE TRI-STATE SPINA BIFIDA ASSN IN ESTABLISHING THE TELECOMMUNITY PROGRAM. THE FOUNDATION BELIEVES THAT THE INFORMATION AND SUPPORT THAT IS PROVIDED TO FAMILIES AND INDIVIDUALS WITH SPINA BIFIDA THROUGH THIS PROGRAM CANNOT BE FOUND ANYWHERE ELSE IN THE REGION. IN ADDITION, THE TELEGROUP SESSIONS PROVIDE OPPORTUNITIES FOR THOSE INDIVIDUALS IN THE NY METRO AREA TO CONNECT WITH OTHERS WHO HAVE SIMILAR CONCERNS OR ISSUES. WITH RESPECT TO RESEARCH, THE FOUNDATION'S FIRST RESEARCH STUDY IN 2005 INVESTIGATED THE EFFECTIVENESS OF FOLIC ACID MOVING THROUGH THE MOTHER'S BODY INTO THAT OF THE DEVELOPING FETUS. IT HAS BEEN DEMONSTRATED THAT FOLIC ACID CAN REDUCE THE CHANCES OF HAVING A BABY AFFECTED BY SPINA BIFIDA BY AS MUCH AS 70%. IT IS CRITICAL TO LEARN WHAT PREVENTS THIS LIFE-SAVINGS B VITAMIN FROM CROSSING OVER TO THE BABY IN THE OTHER 30% OF CASES. DURING THE ENSUING EIGHT YEARS, THE FOUNDATION SPONSORED 12 SCIENTISTS WHO DEDICATED SIGNIFICANT TIME TO LEARNING ABOUT THE CAUSES OF SPINA BIFIDA AND TO FINDING ITS CURE. IN 2014, THE FOUNDATION ESTABLISHED THE ASHLEY ROSE PITEK NURSE SCHOLARS FELLOWSHIP AT VILLANOVA UNIVERSITY'S COLLEGE OF NURSING. THE GOAL OF THE FELLOWSHIP IS TO SELECT NURSE PRACTITIONERS (PREFERABLY FROM THE CHILDREN'S HOSPITAL OF PHILADELPHIA) WHO WOULD ENROLL IN THE UNIVERSITY'S DOCTOR OF NURSING PRACTICE PROGRAMS. THE REQUIRED PROJECT FOR COMPLETION OF THE DOCTORAL DEGREE WOULD BE FOCUSED ON A CRITICAL ASPECT OF SPINA BIFIDA CARE THAT COULD BE APPLIED IN PRACTICE AND WHICH WOULD CONTRIBUTE TO THE IMPROVED CARE AND QUALITY OF LIFE OF THESE CHILDREN AND THEIR FAMILIES.