2024-08-26T16:05:03-04:00 2023-12-31 274760605 KULLMAN CPA LLC 888 BESTGATE ROAD SUITE 316 ANNAPOLIS MD 21401 990 2023-01-01 882591503 THE N 1 COLLABORATIVE INC N1CO 7726789669 7 CAROLE PLACE SOMERVILLE MA 02143 WINSTON YAN PRESIDENT 7726789669 2024-07-19 true STEPHEN J KULLMAN CPA P00308157 4102669885 2024-08-23 2023 2024-08-08 14:25:15Z WINSTON YAN 7 CAROLE PLACE SOMERVILLE MA 02143 397502 false X WWW.N1COLLABORATIVE.ORG X 2022 DE OUR MISSION IS TO MAKE INDIVIDUALIZED MEDICINES ROUTINELY AND RAPIDLY ACCESSIBLE TO RARE DISEASE PATIENTS WORLDWIDE. 7 7 2 60 0 92600 397502 0 0 0 92600 397502 0 0 24604 198432 0 50443 73807 81175 98411 279607 -5811 117895 26463 120320 32274 8236 -5811 112084 OUR MISSION IS TO MAKE INDIVIDUALIZED MEDICINES ROUTINELY AND RAPIDLY ACCESSIBLE TO RARE DISEASE PATIENTS WORLDWIDE. false false 59929 TO ESTABLISH STANDARDS AND ENSURE CONSISTENCY ACROSS DIVERSE INDIVIDUALIZED TREATMENT PROGRAMS WORLDWIDE. SPECIFIC EXAMPLE ACCOMPLISHMENT: BEST PRACTICES HAVE BEEN DISSEMINATED THROUGH COLLABORATIVE EFFORTS, INCLUDING WORKGROUPS, SEMINARS, PEER-REVIEWED PUBLICATIONS, AND IN-PERSON MEETINGS. THIS EXCHANGE OF KNOWLEDGE HAS DIRECTLY BENEFITTED OUR COMMUNITY OF 500 MEMBERS, COMPRISING ACADEMIC RESEARCHERS, CLINICIANS, PATIENTS, AND INDUSTRY STAKEHOLDERS. ADDITIONALLY, NON-MEMBERS SEEKING EDUCATIONAL RESOURCES FOR INDIVIDUALIZED MEDICINES CAN FREELY ACCESS THE INFORMATION. 59929 TO AGGREGATE AND DISSEMINATE PRECLINICAL AND CLINICAL DATA TO ENHANCE THE SAFETY AND EFFICACY OF INDIVIDUALIZED TREATMENTS AND SUPPORT REGULATORY DECISION-MAKING. SPECIFIC EXAMPLE: INITIATED PILOT PROJECTS TO ESTABLISH PRECLINICAL AND CLINICAL DATABASES, AIMING TO IDENTIFY THE MINIMUM VIABLE STRUCTURE REQUIRED FOR SUCH DATABASES. THIS ENDEAVOR ALLOWED US TO GAIN INSIGHTS INTO THE TECHNICAL, REGULATORY AND LEGAL FRAMEWORKS ESSENTIAL FOR SUPPORTING THESE DATABASES. APPROXIMATELY THIRTY PEOPLE DIRECTLY BENEFITED FROM THE PILOT PROJECTS, WITH A SIGNIFICANT NUMBER OF INDIRECT BENEFICIARIES ANTICIPATED ONCE THE PILOT IS EXPANDED TO THE PUBLIC. 13317 TO FACILITATE CONNECTIONS AND COLLABORATION AMONG STAKEHOLDERS INVOLVED IN THE DEVELOPMENT OF INDIVIDUALIZED MEDICINES VIA A COLLABORATIVE PLATFORM WHERE STAKEHOLDERS OFFERING GOODS, SERVICES, REFERRALS, AND SUPPORT CAN CONNECT WITH THOSE SEEKING THEM, THEREBY FOSTERING IMPROVED COMMUNICATION AND ADVANCEMENT WITHIN THE FIELD. SPECIFIC EXAMPLE ACCOMPLISHMENT: VALIDATED THE NECESSITY FOR THE DESCRIBED PLATFORM, INITIATED THE FORMULATION OF PROJECT SCOPES, ENGAGED IN DISCUSSIONS WITH KEY STAKEHOLDERS, AND BEGAN DEVELOPING INITIAL RESOURCES. APPROXIMATELY 20 PEOPLE DIRECTLY BENEFITED FROM INITIAL SCOPING ACTIVITIES, WITH A SIGNIFICANT NUMBER OF DIRECT AND INDIRECT BENEFICIARIES ANTICIPATED AS THE PROJECT DEVELOPS FURTHER. 133175 true true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 3 0 2 false false false false false false false false false X 7 7 false false false false false false false true true false false true true true true true true false true false X X EVA ZHECHEVA 9785488949 48 KENT RD LYNN MA 01904 X WINSTON YAN PRESIDENT 5.00 X X 0 0 0 JULIA VITARELLO SECRETARY 5.00 X X 0 0 0 TIM YU TREASURER 5.00 X X 0 0 0 ANNEMIEKE AARTSMA-RUS DIRECTOR 2.00 X 0 0 0 HOLM GRAESSNER DIRECTOR 1.00 X 0 0 0 NICOLE BOICE DIRECTOR 1.00 X 0 0 0 KEITH FLANAGAN DIRECTOR 1.00 X 0 0 0 false false false 397502 397502 397502 170204 102122 34041 34041 11867 6459 3255 2153 16361 9817 3272 3272 18978 18978 24014 24014 10977 10977 11641 11641 14777 14777 788 788 279607 133175 95989 50443 26463 120320 26463 120320 32274 8236 32274 8236 X -5811 112084 -5811 112084 26463 120320 117895 X false false X 92600 397502 490102 92600 397502 490102 421488 68614 490102 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990, PAGE 6, PART VI, LINE 11B A COPY OF FORM990WILL BE PROVIDED TO EACH MEMBER OF THE GOVERNING BODY, VIA EMAIL OR AT A BOARD MEETING, PRIOR TO SUBMISSION TO THE INTERNAL REVENUE SERVICE FORM 990, PAGE 6, PART VI, LINE 12C EACH BOARD MEMBER MUST SUBMIT A SIGNEDFORM ANNUALLY FORM 990, PAGE 6, PART VI, LINE 15B THE BOARD OF DIRECTORS PARTICIPATED IN PRIVATE DISCUSSIONS TO DETERMINE A BASIS FOR THE SALARY OF TWO EMPLOYEES. THE PROCESS USED TO ESTABLISH REASONABLE COMPENSATION WAS DETERMINED BY SEVERAL FACTORS INCLUDING, BUT NOT LIMITED TO: CENSUS DATA AND COMPENSATION REPORTS FOR COMPARABLE INDUSTRY POSITIONS, ANNUAL COST OF LIVING ADJUSTMENTS, JOB DESCRIPTION, ANNUAL PERFORMANCE REVIEW, ORGANIZATION'S BUDGET. FORM 990, PAGE 6, PART VI, LINE 19 THE GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST