2024-08-22T14:31:33-05:00 2023-12-31 561945391 MPCOMPANY LLP 4600 MARRIOTT DRIVE SUITE 300 RALEIGH NC 27612 990 2023-01-01 680617198 HEALTH RESEARCH ALLIANCE INC HEAL 5129343164 3110 EDWARDS MILL ROAD 300 RALEIGH NC 27612 JENNA HICKS ASSISTANT DIRECTOR 5129343164 2024-08-13 1 0 SCOTT SEBBO P01444400 9198369200 2024-08-13 2023 2024-08-08 14:25:15Z X JENNA HICKS 3110 EDWARDS MILL ROAD 300 RALEIGH NC 27612 583743 0 X WWW.HEALTHRA.ORG X 2005 NC COMMITTED TO MAXIMIZING THE IMPACT OF BIOMEDICAL RESEARCH TO IMPROVE HUMAN HEALTH 14 14 3 50 0 0 656370 556451 0 0 4387 27292 0 0 660757 583743 0 0 0 0 386741 484727 0 0 95714 187771 224019 574512 708746 86245 -125003 922553 819243 27900 37718 894653 781525 X THE HEALTH RESEARCH ALLIANCE (HRA), A COLLABORATIVE MEMBER ORGANIZATION OF NONPROFIT RESEARCH FUNDERS, IS COMMITTED TO MAXIMIZING THE IMPACT OF BIOMEDICAL RESEARCH TO IMPROVE HUMAN HEALTH. TO ACHIEVE ITS MISSION, HRA: - FOSTERS OPEN COMMUNICATION AND COLLABORATION AMONG AND BETWEEN FUNDERS AND THE BROADER RESEARCH COMMUNITY- COLLECTS AND SHARES COMPREHENSIVE DATA AND ANALYSIS ABOUT NONPROFIT FUNDING FOR BIOMEDICAL RESEARCH AND TRAINING - PROVIDES LEADERSHIP, KNOWLEDGE, TOOLS, AND OPPORTUNITIES TO PROMOTE INNOVATIVE AND EFFECTIVE GRANTMAKING- ADDRESSES ISSUES THAT ARE KEY TO ACCELERATING RESEARCH DISCOVERY AND ITS TRANSLATIONCORE VALUES:- IMPACT: WE ENABLE EACH ORGANIZATION AND THE RESEARCH COMMUNITY COLLECTIVELY TO ENHANCE THE EFFECTIVENESS OF BIOMEDICAL RESEARCH. - COLLABORATE: WE OPENLY SHARE INFORMATION, EXPERIENCE AND KNOWLEDGE, AND WORK TOGETHER TO ACHIEVE OUR SHARED GOALS.- INNOVATE: WE FOSTER NOVEL APPROACHES TO ADDRESS CHALLENGES IN BIOMEDICAL RESEARCH 0 0 114217 CONVENE MEMBERSHIP TO FOSTER COMMUNICATION AND COLLABORATION.HRA IS AN INCLUSIVE AND DIVERSE COMMUNITY THAT PROVIDES A FORUM FOR SHARING EFFECTIVE PRACTICES AND TOOLS, ALONG WITH A SAFE SPACE FOR LEARNING FROM FAILURES. LEARNING FROM EACH OTHER ULTIMATELY HELPS MEMBERS IMPROVE THEIR ORGANIZATIONS AND BUILD THEIR CAPACITY. HRA CONVENES BOTH IN-PERSON (HYBRID) AND VIRTUAL MEMBERS MEETINGS. INCLUDING REMOTE ATTENDEES IN OUR IN-PERSON (HYBRID) MEETINGS, AND HOSTING COMPLETELY VIRTUAL MEETINGS, ENABLES PARTICIPATION BY MEMBERS WHO WOULDN'T NORMALLY HAVE THE OPPORTUNITY TO ATTEND IN-PERSON, RESULTING IN AN INCREASE FROM ABOUT 100 ATTENDEES AT IN-PERSON MEETINGS TO ZOOM MEETINGS WITH 200 MEMBERS ATTENDING SOME OF THE SESSIONS. WE HOST A MEMBERS MEETING TWICE A YEAR, AND THE AGENDAS ARE CREATED BY A PROGRAM COMMITTEE, MADE UP OF HRA MEMBERS AND SUPPORTED BY HRA STAFF. THE PROGRAM COMMITTEE DEVELOPS SESSIONS FOR MEMBERS MEETINGS THAT FOSTER COLLABORATION AND ADDRESS IMPORTANT AND CHALLENGING ISSUES FOR PHILANTHROPY AND THE BIOMEDICAL RESEARCH SECTOR. THESE SESSIONS OFTEN ALIGN WITH OUR "LEARNING COMMUNITIES," TO BRING IN EXTERNAL EXPERTS AND HIGHLIGHT DISCUSSIONS AROUND DEI, SUSTAINABILITY OF THE RESEARCH WORKFORCE, OPEN SCIENCE, AI/LLM, HOSTING PATIENT REGISTRIES, AND OTHER TOPICS HRA MEMBERS DISCUSS YEAR-ROUND. THE PROGRAM COMMITTEE ALSO DEVELOPS MEETING SESSIONS AROUND BROADER TOPICS LIKE STRATEGIC PLANNING, EFFECTIVE COLLABORATION STRATEGIES, OR PATIENT ENGAGEMENT, WHICH ARE JUST AS URGENT FOR FUNDERS TO TACKLE, AND THOSE SESSIONS GARNER A MUCH MORE DIVERSE AUDIENCE THAN THE SPECIFIC TOPICS ADDRESSED BY THE LEARNING COMMUNITIES. IN ADDITION TO OUR MEMBERS MEETINGS, WE ALSO PERIODICALLY HOST REGIONAL MEETINGS LED BY HRA MEMBER ORGANIZATIONS AND SUPPORTED BY HRA STAFF. WE CONTINUE TO HOST VIRTUAL CEO ROUNDTABLES SEVERAL TIMES A YEAR WHICH LEAD TO OTHER ACTIVITIES SUCH AS HOSTING TARGETED WEBINARS AND CREATING RESOURCES THAT OFTEN DEAL WITH HUMAN RESOURCE ISSUES WHERE CEOS FIND LEARNING FROM THEIR PEERS INVALUABLE. UPON RECOMMENDATION FROM THE CEOS, WE NOW HAVE A PROFESSIONAL DEVELOPMENT PROGRAM FOR STAFF AT HRA MEMBER ORGANIZATIONS, WHICH HOSTS WEBINARS INTENDED TO INCREASE STAFF CAPACITY IN AREAS SUCH AS COMMUNICATION, LEADERSHIP, AND NETWORKING. 157477 SUPPORT INFRASTRUCTURE AND PRACTICES TO SHARE RESEARCH, DATA, AND ANALYSIS. HRA'S CURRENT STRATEGIC PLAN SETS OUT 4 GOALS AND STRATEGIES RECOMMENDED TO ACHIEVE THOSE GOALS STRATEGIES WE CONTINUE TO IMPLEMENT AND USE TO EVALUATE PROGRESS TOWARD THE PLAN. MANY OF THE STRATEGIES RECOMMENDED INVOLVE SUPPORTING HRA'S INFRASTRUCTURE AND PRACTICES TO SHARE RESEARCH, DATA, AND ANALYSIS. FOR EXAMPLE, HRA ANALYZER IS HRA'S PROPRIETARY DATABASE THAT PROVIDES DATA-DRIVEN ANALYSIS ENABLING MEMBERS TO BETTER UNDERSTAND THE IMPACT OF THEIR GRANTMAKING PRACTICES, AS WELL AS PERFORM LANDSCAPE ANALYSES TO UNDERSTAND THE BROADER BIOMEDICAL RESEARCH FUNDING LANDSCAPE. HRA HOSTS FREQUENT "LUNCH AND LEARN" SESSIONS TO HELP HRA MEMBERS UNDERSTAND THE VALUE OF HRA ANALYZER. THESE PERIODIC WEBINARS INCLUDE LEARNING HOW TO UPLOAD DATA; USING THE DATABASE FOR GAP ANALYSES TO BETTER TARGET LIMITED FUNDS; EVALUATING PROGRESS AND DEVELOPING NEW PROGRAMS TO ADVANCE A MORE EQUITABLE BIOMEDICAL RESEARCH WORKFORCE; IDENTIFYING COLLABORATING ORGANIZATIONS OR REVIEWERS; AND MANY OTHER USE CASES. WE WORK WITH GRANTS MANAGEMENT SYSTEMS SUCH AS PROPOSALCENTRAL AND SMARTSIMPLE TO FACILITATE EASIER DATA UPLOADS INTO HRA ANALYZER. WE ALSO EMPLOY A CONTRACTOR TO HELP ORGANIZATIONS UPLOAD DATA AND USE THE ANALYTICAL FUNCTIONALITY IN HRA ANALYZER FOR THEIR OWN USES. HRA OFTEN USES THE ANALYTICAL TOOLS IN HRA ANALYZER DATA ON BEHALF OF MEMBERS TO HELP THEM FIND COLLABORATING ORGANIZATIONS OR IDENTIFY AREAS OF UNDERFUNDING TO EXPLORE. IN ANOTHER EXAMPLE OF HRA'S POWERFUL INFRASTRUCTURE, HRA OPEN IS A PLATFORM DEVELOPED BY HRA TO ENABLE PUBLICATIONS AND OTHER RESEARCH OUTPUTS TO BE MADE OPEN AND FREELY ACCESSIBLE - NOT ONLY TO THE SCIENTIFIC COMMUNITY BUT TO ANYONE. HRA OPEN FOSTERS OPEN SCHOLARSHIP ACROSS HRA MEMBER ORGANIZATIONS AND THEIR RESEARCHERS, WHICH CONTINUES TO BE AN IMPORTANT STRATEGY TO IMPACT INVESTMENT IN BIOMEDICAL RESEARCH. IN ADDITION TO ENABLING MEMBERS' OPEN SCIENCE POLICIES, HRA OPEN IS A POWERFUL RECRUITING TOOL. IT HAS LED NEW FUNDERS TO JOIN HRA MAINLY TO BE ABLE TO USE THIS INFRASTRUCTURE. HRA ALSO SURVEYS OUR MEMBERSHIP ANNUALLY TO UNDERSTAND CHALLENGES TO FUNDRAISING AND OTHER IMPACTS ON REVENUE, AS WELL AS ISSUES RELATED TO GRANTMAKING AND PROGRAMMING. WE MAKE THOSE DATA AVAILABLE TO HRA MEMBERS AND PERIODICALLY PUBLISH THAT ANALYSIS MORE WIDELY. FINALLY, HRA USES THE INFRASTRUCTURE OF OUR WEBSITE AS A CENTRAL REPOSITORY OF CURATED RESOURCES, AND TO PUBLICIZE EVENTS. 232526 GATHER AND DISSEMINATE KNOWLEDGE TO FOSTER INNOVATIVE GRANTMAKING AND ADDRESS CHALLENGES IN BIOMEDICAL RESEARCH. GOAL 2 OF HRA'S STRATEGIC PLAN "DRIVE INSTITUTIONAL LEARNING TO INCREASE MEMBER ORGANIZATIONS' EFFECTIVENESS" SPECIFICALLY TARGETS THIS ACCOMPLISHMENT, THOUGH MANY OTHER PARTS OF THE PLAN CONTRIBUTE AS WELL. HRA GATHERS AND DISSEMINATES KNOWLEDGE TO FOSTER INNOVATIVE GRANTMAKING AND ADDRESS CHALLENGES IN BIOMEDICAL RESEARCH BY PROVIDING LEADERSHIP, KNOWLEDGE, TOOLS, AND OPPORTUNITIES TO COLLABORATE AND IDENTIFY EFFECTIVE GRANTMAKING STRATEGIES. WE USE HRA'S LISTSERV AS A FORUM FOR HRA MEMBERS TO SEEK GUIDANCE, ASK QUESTIONS, AND POSE CHALLENGES TO FELLOW MEMBERS OUTSIDE OF FORMAL GROUPS OR MEETINGS. HRA'S "LEARNING COMMUNITIES" ALSO PROVIDE LEADERSHIP, KNOWLEDGE, TOOLS, AND OPPORTUNITIES ON TOPICS THAT ARE CRITICAL TO THE BIOMEDICAL RESEARCH FUNDING SECTOR. LEARNING COMMUNITY TOPICS INCLUDE AI/LLM, CLINICAL TRIALS, DIVERSITY, EQUITY, & INCLUSION, DRUG AND OTHER THERAPY DEVELOPMENT, GRANTS ADMINISTRATION, MISCONDUCT AND ETHICS, OPEN SCIENCE & DATA SHARING, PROGRAM EVALUATION, REGISTRY AND BIOREPOSITORY, AND RESEARCH WORKFORCE AND EARLY CAREER DEVELOPMENT. THE COMMUNITIES WORK BY CONVENING REGULARLY VIA ZOOM, CREATING TOOLS, AND COLLECTING EFFECTIVE STRATEGIES TO SHARE WITH THE MEMBERS. THESE COMMUNITIES DIVE DEEP INTO ISSUES THAT IMPACT OUR MEMBERS, AND DEVELOP RECOMMENDATIONS, IDENTIFY RESOURCES, OR FACILITATE DISCUSSION ABOUT WHAT HRA AND HRA MEMBERS CAN IMPLEMENT OR SUPPORT TO MAKE PROGRESS IN VARIOUS AREAS. COMMUNITIES ARE CREATED WHEN A NEED ARISES BUT ALSO SUNSET WHEN THE APPLICABILITY TO HRA MEMBER ORGANIZATIONS SIGNIFICANTLY DECREASES. WE ALSO HOST ON HRA'S WEBSITE A FREQUENTLY UPDATED GRANTMAKING HANDBOOK FOR HRA MEMBERS AND THE COMMUNITY (INCLUDING "HOW TO'S" FOR BIOMEDICAL GRANTMAKING). 504220 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 10 0 3 1 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 X X CHRISTINE LAGANA RIORDAN 5129343164 3110 EDWARDS MILL ROAD 300 RALEIGH NC 27612 HEATHER SNYDER PHD PAST CHAIR 1.00 X X 0 0 0 SINDY ESCOBAR-ALVAREZ PHD CHAIR 1.00 X X 0 0 0 KARA COLEMAN SECRETARY 1.00 X X 0 0 0 SALVATORE LAROSA PHD TREASURER 1.00 X X 0 0 0 LARA BETHKE DIRECTOR 1.00 X 0 0 0 STACY CLOUD DIRECTOR 1.00 X 0 0 0 DIANE BOVENKAMP DIRECTOR 1.00 X 0 0 0 AMY LASTER DIRECTOR 1.00 X 0 0 0 KELLY ROSE DIRECTOR 1.00 X 0 0 0 ANNE HULTGREN INTERIM TREASURER 1.00 X X 0 0 0 KRISTEN MUELLER DIRECTOR 1.00 X 0 0 0 KRISSA SMITH DIRECTOR 1.00 X 0 0 0 HEATHER CALDERONE DIRECTOR 1.00 X 0 0 0 GLEN DILLON DIRECTOR 1.00 X 0 0 0 BRENT DOLEZALEK DIRECTOR 1.00 X 0 0 0 MARYROSE FRANKO PHD EXECUTIVE DIRECTOR 40.00 X 237757 0 30939 ANNETTE HUETTER DIRECTOR OF OPERATIONS 40.00 X 72485 0 15457 JENNA HICKS ASSISTANT DIRECTOR 40.00 X 88409 0 4785 398651 0 51181 1 0 1 0 0 556451 556451 27292 27292 583743 0 0 27292 X 449831 312588 55059 82184 5047 3507 618 922 1865 1296 228 341 27984 19446 3425 5113 8524 8524 13350 13350 71063 44577 24198 2288 5579 3772 815 992 82380 79481 1163 1736 31422 31422 9045 6285 1107 1653 2656 1846 325 485 708746 504220 108812 95714 35258 27395 845259 734421 22500 20912 21024 103984 90081 21124 13903 922553 819243 21650 35218 6250 2500 27900 37718 X 737760 752753 156893 28772 894653 781525 922553 819243 -125003 11875 0 X 0 1 X 1 0 X 512065 625413 503349 656370 556451 2853648 512065 625413 503349 656370 556451 2853648 53262 2800386 31028 15698 8891 4387 27292 87296 2940944 0.95220 0.93250 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 103984 90081 13903 13903 595618 11875 11875 583743 0 583743 708746 0 708746 0 708746 X X X X 0 0 0 0 0 0 0 0 0 MARYROSE FRANKO PHD EXECUTIVE DIRECTOR 237757 0 0 0 0 0 30939 0 0 0 268696 0 0 0 FORM 990, PART VI, SECTION A, LINE 1A THE EXECUTIVE COMMITTEE HAS BROAD AUTHORITY DELEGATED BY THE BOARD UNDER HRA BYLAWS. THE EXECUTIVE COMMITTEE IS COMPOSED OF ALL OFFICERS (CHAIR, VICE CHAIR, SECRETARY, TREASURER, PAST CHAIR) PLUS THE EXECUTIVE DIRECTOR AND ONE AT-LARGE MEMBER FROM THE BOARD. HRA BYLAWS GIVE THE EXECUTIVE COMMITTEE "GENERAL SUPERVISION OF THE AFFAIRS OF THE CORPORATION BETWEEN MEETINGS OF THE BOARD...AND SHALL ACT WITH THE AUTHORITY OF THE BOARD OF DIRECTORS IN THE MANAGEMENT OF THE CORPORATION." THE EXECUTIVE COMMITTEE HAS NO AUTHORITY IN THE FOLLOWING MATTERS: (A) THE AUTHORIZATION OF DISTRIBUTIONS (B) THE DISSOLUTION OR MERGER OF THE ORGANIZATION OR THE SALE OF ORGANIZATION'S ASSETS (C) ELECTION OR REMOVAL OF DIRECTORS OR FILING OF VACANCIES ON THE BOARD (D) HIRING/TERMINATION OF EXECUTIVE DIRECTOR (E) CHANGES IN ARTICLES/BYLAWS FORM 990, PART VI, SECTION A, LINE 6: THE ORGANIZATION DOES HAVE ORGANIZATIONAL MEMBERS THAT PAY YEARLY DUES. ALTHOUGH ONLY REPRESENTATIVES FROM MEMBER ORGANIZATIONS ARE ELIGIBLE TO PARTICIPATE IN HRA'S GOVERNING BODY, BEYOND THAT MEMBERS DO NOT HAVE THE RIGHT TO PARTICIPATE IN THE ORGANIZATION'S GOVERNANCE OR TO RECEIVE DISTRIBUTIONS OF INCOME OR ASSETS FROM THE ORGANIZATION. THEREFORE, THE ORGANIZATION DOES NOT HAVE MEMBERS ACCORDING TO THE DEFINITION OF "MEMBER" IN THE FORM 990 INSTRUCTIONS. FORM 990, PART VI, SECTION B, LINE 11B HRA POLICY G-3 (POLICY REGARDING BOARD OF DIRECTORS' REVIEW OF THE HEALTH RESEARCH ALLIANCE'S IRS FORM 990) SPECIFIES THAT THE FINANCE COMMITTEE REVIEW THE HEALTH RESEARCH ALLIANCE'S IRS FORM 990 OR FORM 990EZ AND PRESENT A RECOMMENDATION TO THE FULL BOARD OF DIRECTORS FOR APPROVAL. THIS RECOMMENDATION AND AN ELECTRONIC COPY OF THE IRS FORM 990 OR FORM 990EZ WILL BE PROVIDED TO EACH DIRECTOR APPROXIMATELY THREE WEEKS PRIOR TO THE DATE THE RETURN WILL BE FILED. DIRECTORS WILL BE GIVEN FIVE DAYS TO REVIEW THE FORM AND TO ASK QUESTIONS. AFTER THE REVIEW PERIOD, AND INCORPORATION OF COMMENTS, ALL DIRECTORS MUST VOTE ON ACCEPTANCE OF THE FORM AS PRESENTED. VOTING BY EMAIL OR BY CONFERENCE CALL IS ACCEPTABLE. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, PRINCIPAL OFFICER AND MEMBER OF A COMMITTEE WITH GOVERNING BOARD-DELEGATED POWERS SHALL ANNUALLY SIGN A STATEMENT. TO ENSURE THE ORGANIZATION OPERATES IN A MANNER CONSISTENT WITH CHARITABLE PURPOSES AND DOES NOT ENGAGE IN ACTIVITIES THAT COULD JEOPARDIZE ITS TAX-EXEMPT STATUS, PERIODIC REVIEWS SHALL BE CONDUCTED. IN ADDITION, IF THE GOVERNING BOARD OR COMMITTEE HAS REASONABLE CAUSE TO BELIEVE A MEMBER HAS FAILED TO DISCLOSE ACTUAL OR POSSIBLE CONFLICTS OF INTEREST, IT SHALL INFORM THE MEMBER OF THE BASIS FOR SUCH BELIEF AND AFFORD THE MEMBER AN OPPORTUNITY TO EXPLAIN THE ALLEGED FAILURE TO DISCLOSE. IF, AFTER HEARING THE MEMBER'S RESPONSE AND AFTER MAKING FURTHER INVESTIGATION AS WARRANTED BY THE CIRCUMSTANCES, THE GOVERNING BOARD OR COMMITTEE DETERMINES THE MEMBER HAS FAILED TO DISCLOSE AN ACTUAL OR POSSIBLE CONFLICT OF INTEREST, IT SHALL TAKE APPROPRIATE DISCIPLINARY AND CORRECTIVE ACTION. FORM 990, PART VI, SECTION B, LINE 15A THE EXECUTIVE COMMITTEE OF THE HRA BOARD OF DIRECTORS SERVES AS THE COMPENSATION COMMITTEE FOR THE PURPOSE OF ESTABLISHING THE COMPENSATION OF THE EXECUTIVE DIRECTOR. CHANGES IN THE SALARY OF THE EXECUTIVE DIRECTOR ARE DETERMINED AT A MEETING OF THE COMPENSATION COMMITTEE BASED ON THE RESULTS OF THE PERFORMANCE APPRAISAL, CHANGES IN THE SCOPE OF THE ROLE AND DUTIES OF THE EXECUTIVE DIRECTOR, CHANGES IN THE COMPLEXITY OF THE ENVIRONMENT IN WHICH THE ORGANIZATION OPERATES, AND AVAILABLE RESOURCES. THE EXECUTIVE COMMITTEE USES MARKET DATA FROM SIMILAR ORGANIZATIONS TO PERFORM PERIODIC MARKET REASSESSMENTS OF THE COMPENSATION LEVEL FOR THE EXECUTIVE DIRECTOR POSITION EVERY THREE YEARS, OR MORE OFTEN IF NEEDED. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON WRITTEN REQUEST AT THE OFFICE OF THE ORGANIZATION. FORM 990, PART IX, LINE 11G DUES AND FEES: PROGRAM SERVICE EXPENSES 3,701. MANAGEMENT AND GENERAL EXPENSES 652. FUNDRAISING EXPENSES 973. TOTAL EXPENSES 5,326. PROFESSIONAL CONTRACT SERVICES: PROGRAM SERVICE EXPENSES 40,876. MANAGEMENT AND GENERAL EXPENSES 23,546. FUNDRAISING EXPENSES 1,315. TOTAL EXPENSES 65,737.