2024-08-17T20:00:02Z 2022-12-31 990EZ 2022-01-01 843343395 GLOBAL DARE FOUNDATION GLOB 2075900299 147 COTTAGE RD WINDHAM ME 04062 Kristie DeMarco President 2075900299 2024-08-17 2022 2024-08-08 14:25:15Z X https://www.defeatadultrefsumeverywhere.org/ X X 67917 X 67917 0 0 0 0 0 0 0 0 0 0 0 0 0 0 67917 10000 0 0 185 0 0 3257 13442 54475 123390 0 177865 123390 177865 0 0 0 0 123390 177865 0 0 123390 177865 Global DARE Foundations mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease by supporting research education initiatives awareness campaigns and advocacy The Global DARE Foundation has committed a total of 30000 to the Kennedy Krieger Institute to cosponsor a fellowship in biochemical genetics This grant disbursed over three years is intended to partially fund a postdoctoral research position within the Hugo W Moser Research Institute at Kennedy Krieger and Johns Hopkins School of Medicine The fellowship is designed to advance research in biochemical genetics focusing on rare genetic disorders The first payment of 10000 was made in 2022 to initiate the fellowship and support the ongoing research activities This grant aligns with the Global DARE Foundations mission to support research and education in the field of rare diseases 10000 0 Kristie DeMarco President 20.00 0 0 0 Susan Kuranoff Vice President 10.00 0 0 0 John DeMarco Treasurer 8.00 0 0 0 Kim Bruce Secretary 2.00 0 0 0 Reenita Malhortra Director 2.00 0 0 0 Christopher Metzler Director 2.00 0 0 0 Jasper Tolarba Director 2.00 0 0 0 Darrell Gunter Director 2.00 0 0 0 Mark Liquorish Director 2.00 0 0 0 Zahra Dhanani Director 2.00 0 0 0 Marissa Roussow Director 2.00 0 0 0 Mohammed Al Otaibi Director 2.00 0 0 0 false false false false false false false 0 0 0 false 0 0 false ME Kristie DeMarco POBox 865 Windham ME 04062 2075900299 false false false false false false false false false false false NONE NONE true X 0 0 10281 43785 104106 67756 225928 10281 43785 104106 67756 225928 3260 6942 7532 10832 28566 3260 6942 7532 10832 28566 197362 0 10281 43785 104106 67756 225928 0 0 0 0 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Schedule O: Part 1.10.Grants and similar amounts paid: The Global DARE Foundation has committed a total of $30,000 to the Kennedy Krieger Institute to cosponsor a fellowship in biochemical genetics. This grant, disbursed over three years, is intended to partially fund a postdoctoral research position within the Hugo W. Moser Research Institute at Kennedy Krieger and Johns Hopkins School of Medicine. The fellowship is designed to advance research in biochemical genetics, focusing on rare genetic disorders. The first payment of $10,000 was made in 2022 to initiate the fellowship and support the ongoing research activities. This grant aligns with the Global DARE Foundations mission to support research and education in the field of rare diseases. Part 1.16. Other expenses: The other expenses primarily included costs for a donor management system, membership fees for NORD, bank fees, post office box fee, raising awareness fees, teleconference fees and website fees.