2024-08-13T17:31:12-04:00 2023-12-31 203746583 TAYLOR ROTH AND COMPANY 800 GRANT ST STE 205 DENVER CO 802032944 990 2023-01-01 471810644 KCNQ2 CURE ALLIANCE KCNQ 3038879532 3700 NORTHFIELD QUEBEC ST UNIT 100 DENVER CO 80207 JIM JOHNSON PRESIDENT 3038879532 2024-08-13 true true KEN ROTH P01389203 3038308109 2024-08-13 2023 2024-08-08 14:25:15Z JIM JOHNSON 3700 QUEBEC ST UNIT 100-118 DENVER CO 80207 298727 false X WWW.KCNQ2CURE.ORG X 2015 CO KCNQ2 CURE ALLIANCE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING RESEARCH FUNDS FOR KCNQ2 EPILEPTIC ENCEPHALOPATHY, A RARE AND CATASTROPHIC FORM OF EPILEPSY. BY OFFERING RESEARCH GRANTS FOR KCNQ2 RESEARCH WITH A NOVEL APPROACH, WE CAN MOVE RESEARCHERS AND THE MEDICAL COMMUNITY FORWARD TO FIND BETTER TREATMENTS AND A CURE WHILE ASSISTING AFFLICTED INDIVIDUALS AND THEIR FAMILIES. 4 4 0 0 115903 290960 56500 7767 0 0 172403 298727 4752 0 0 0 10 43702 129639 43702 134391 128701 164336 730127 881712 0 730127 881712 X KCNQ2 CURE ALLIANCE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING RESEARCH FUNDS FOR KCNQ2 EPILEPTIC ENCEPHALOPATHY, A RARE AND CATASTROPHIC FORM OF EPILEPSY. BY OFFERING RESEARCH GRANTS FOR KCNQ2 RESEARCH WITH A NOVEL APPROACH, WE CAN MOVE RESEARCHERS AND THE MEDICAL COMMUNITY FORWARD TO FIND BETTER TREATMENTS AND A CURE WHILE ASSISTING AFFLICTED INDIVIDUALS AND THEIR FAMILIES. false false 132489 4752 7767 IN COLLABORATION WITH BOSTON CHILDREN'S HOSPITAL THE GRANT FUNDED THE ACQUISITION AND CHARACTERISATION TO AN UPDATED KCNQ2 REGISTRY AND DRAFT NATURAL HISTORY STUDY OF OVER 100 INTERNATIONAL PATIENTS. COUNTRIES THUS INVOLVED AND EXPANDED IN THE STUDY INCLUDE BULGARIA, CHINA, AUSTRALIA, CANADA, NORWAY, SPAIN, CROATIA, UNITED KINGDOM AND THE UNITED STATES. ADDITIONALLY, THE GRANT RESEARCH LEADS AT BCH ARE PREPARING A REPORT ON THE OVERALL STATISTICAL IMPACT OF BUILDING OUT A REGISTRY BACKED WITH PUBLISHED ARTICLES DETAILING THE IMPACT THE DATA HAS PROVIDED TO ASSIST WITH THE CREATION OF HUMAN CELL LINES, CRISPR WORK AND ADDITIONAL INPUT TO TRANSLATIONAL THERAPIES SUCH AS RNA AND OTHER GENE THERAPY APPROACHES. 132489 true true false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 0 0 0 false false false false false false false false false false false false X 4 4 false false false false false false false true true false false false false false false false false false KCNQ2 CURE ALLIANCE 3038879532 3700 QUEBEC ST UNIT-100 DENVER CO 80207 X JIM JOHNSON PRESIDENT 5.00 X X 0 0 0 SARA JAMES VICE PRESIDE 5.00 X X 0 0 0 CAROLINE LOWEY TREASURER 5.00 X X 0 0 0 SCOTTY SIMS SECRETARY 20.00 X X 0 0 0 false false false 290960 7474 290960 SUMMIT REGISTRATION 7767 7767 7767 298727 7767 4752 4752 1150 1150 834 720 114 5114 5079 25 10 119311 119311 1811 1358 453 RESEARCH EXPENSES 1269 1269 MEMBERSHIP DUES 150 150 134391 132489 1892 10 718627 881085 11500 627 627 730127 881712 0 0 X 730127 881712 730127 881712 730127 881712 164336 -12751 X false false false X 162915 175590 177319 115903 290960 922687 162915 175590 177319 115903 290960 922687 405593 517094 922687 94209 0.56040 0.73470 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 627 627 627 FORM 990 - ORGANIZATION'S MISSION KCNQ2 CURE ALLIANCE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING RESEARCH FUNDS FOR KCNQ2 EPILEPTIC ENCEPHALOPATHY, A RARE AND CATASTROPHIC FORM OF EPILEPSY. BY OFFERING RESEARCH GRANTS FOR KCNQ2 RESEARCH WITH A NOVEL APPROACH, WE CAN MOVE RESEARCHERS AND THE MEDICAL COMMUNITY FORWARD TO FIND BETTER TREATMENTS AND A CURE WHILE ASSISTING AFFLICTED INDIVIDUALS AND THEIR FAMILIES. FORM 990, PAGE 6, PART VI, LINE 11B THE TREASURER AND OTHER BOARD MEMBERS REVIEW THE FORM 990 PRIOR TO FILING. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING AND FINANCIAL DOCUMENTS ARE AVAILABLE UPON REQUEST.