2024-06-25T14:18:53-07:00 2023-12-31 043068663 BERNARD JOHNSON & COMPANY PC 15 MAIN STREET TOPSFIELD MA 01983 990 2023-01-01 463749890 ALD CONNECT INC ALDC 8335253266 35 VILLAGE ROAD MIDDLETON MA 019491202 KATHLEEN O'SULLIVAN-FORTIN ESQ TREASURER 8335253266 2024-06-25 true KATHLEEN OSULLIVAN-F ESQ XXX-XX-XXXX true Timothy F Hagan CPA P00365920 9788872220 2024-06-25 3 AAL1 IAL1 FAL1 2023 2023-04-26 12:10:37Z KATHLEEN M O'SULLIVAN-FORTIN ESQ 35 VILLAGE ROAD MIDDLETON MA 01949 413327 false X www.aldconnect.org X 2013 MA TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY ("ALD") BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION 14 14 1 25 0 0 378083 412502 0 267 825 0 0 378350 413327 91196 17200 0 0 0 19242 395077 289662 486273 306862 -107923 106465 934444 1033151 22919 15161 911525 1017990 TO IMPROVE HEALTH OUTCOMES FOR INDIVIDUALS WITH X-LINKED ADRENOLEUKODYSTROPHY ("ALD") BY RAISING AWARENESS, EMPOWERING PATIENTS, AND ACCELERATING THE TRANSLATION false false 191254 17200 412502 ALDC SPONSORS AN ANNUAL MEDICAL CONFERENCE, MAINTAINS A WEBSITE WITH EDUCATIONAL CONTENT, PRODUCES FREE WEBINARS, HOSTS SUPPORT CALLS FOR VARIOUS PATIENT GROUPS, AND RAISES AWARENESS. ALDC ALSO HOSTS A PATIENT PORTAL AND COLLECTS PATIENT HEALTH DATA. ALDC WORKS WITH ITS INDUSTRY ADVISORY COUNCIL TO BRING INDUSTRY REPRESENTATIVES TOGETHER TO ENCOURAGE THEIR WORK IN THE ALD/AMN FIELD. 191254 true true false false false false false false false false false false false false false true false false false false true true false false false false false true true false false false false false false false false false false false false false false false false false false true 0 0 1 true false false false false false false false false false false X 14 14 false false false false false false false true true false false true true true true true true false false false MA AL AK AR CA CO CT FL HI IL KS KY ME MD MI MN MS NV NH NJ NM NY OH OK OR PA RI SC TN UT VA WA WV X X KATHLEEN M O'SULLIVAN-FORTIN 9782892395 6 BUTTONWOOD LANE IPSWICH MA 01938 FLORIAN EICHLER MD PRESIDENT 10.00 X X 0 0 0 KATHLEEN M O'SULLIVAN-FORTIN ESQ TREASURER 30.00 X X 0 0 0 PATRICIA CHAPMAN SECRETARY 5.00 X X 0 0 0 GREGORY BENTON DIRECTOR 2.00 X 0 0 0 JOSH BONKOWSKY MD PHD DIRECTOR 4.00 X 0 0 0 S ALI FATEMI MD DIRECTOR 5.00 X 0 0 0 STEPHAN KEMP PHD DIRECTOR 5.00 X 0 0 0 BENJAMIN LENAIL DIRECTOR 2.00 X 0 0 0 TROY LUND PHD MD DIRECTOR 2.00 X 0 0 0 TIMOTHY MAGUIRE DIRECTOR 2.00 X 0 0 0 AMBER SALZMAN PHD DIRECTOR 2.00 X 0 0 0 ALEX SHERMAN DIRECTOR 2.00 X 0 0 0 KEITH VAN HAREN MD DIRECTOR 2.00 X 0 0 0 KELLY MIETTUNEN EXECUTIVE DIRECTOR 10.00 X 100029 0 0 100029 0 0 1 false false false 69500 343002 412502 825 0 825 69500 413327 0 0 825 17200 17200 119326 43229 73436 2661 809 0 809 0 7454 0 7454 0 13599 4965 0 8634 17565 0 11084 6481 1805 0 1805 0 6858 6858 0 0 101937 101937 0 0 215 0 215 0 1303 0 1303 0 BANK SERVICE FEES 1726 0 260 1466 PATIENT SUPPORT/OUTREACH 17065 17065 0 0 306862 191254 96366 19242 746880 842554 183986 184810 0 2500 894 818 2684 2469 934444 1033151 22919 15161 22919 15161 X 908390 1017990 3135 0 911525 1017990 934444 1033151 106465 X true X false false false X 0 0 133805 339880 461563 378083 412502 1725833 12825 0 -510 0 0 12315 0 0 146630 339880 461053 378083 412502 1738148 0 0 0 1738148 0 0 0 267 825 1092 0 0 0 267 825 1092 1739240 0.99940 0.99980 0.00060 0.00020 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X Pt X, Line 2 THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE FINANCIAL STATEMENTS. UNDER THAT GUIDANCE, ALD CONNECT MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WILL BE SUSTAINED ON EXAMINATION BY THE TAXING AUTHORITIES BASED ON THE TECHNICAL MERITS OF THE POSITION. THE TAX BENEFITS RECOGNIZED IN THE FINANCIAL STATEMENTS FROM SUCH A POSITION ARE MEASURED BASED ON THE LARGEST BENEFIT THAT HAS A GREATER THAN 50% LIKELIHOOD OF BEING REALIZED UPON ULTIMATE SETTLEMENT. THERE WERE NO UNRECOGNIZED TAX BENEFITS IDENTIFIED OR RECORDED AS LIABILITIES AT DECEMBER 31, 2023. true Europe 0 0 MEDICAL RESEARCH GRANTMAKING 50000 0 0 0 0 50000 50000 Europe RESEARCH 1 false false false false false false Pt I Line 2 INTERNATIONAL ORGANIZATIONS MUST BE PREDETERMINED TO BE EQUIVALENT TO DOMESTIC 501(C)(3) ORGANIZATIONS OR FOLLOW THE EXPENDITURE RESPONSIBILITY PROCESS FOR ALD CONNECT TO CONSIDER THEM ELIGIBLE TO RECEIVE GRANTS. GRANTS ARE MONITORED THROUGH PERIODIC FINANCIAL REPORTS. GRANTEES ARE REQUIRED TO SUBMIT A FINANCIAL REPORT ACCOUNTING FOR THE USE OF GRANT FUNDS, INCLUDING AN ITEMIZATION OF EXPENSES, A LIST OF OTHER SOURCES OF FUNDING, AND OTHER RELEVANT ACCOUNTING INFORMATION. DETAILED REPORTS COVERING THE IMPLEMENTATION OF PROJECTS, ANALYSIS OF RESEARCH OUTCOMES, AND MEETING WITH REPRESENTATIVES OF GRANTEE ORGANIZATIONS AND BENEFICIARIES ARE FILED BY STAFF OR CONTRACTORS. true UNIVERSITY OF UTAH 100 N MARIO CAPECCHI DRIVE SALT LAKE CITY UT 84113 876000525 6600 0 0 RESEARCH Lucile Packard Foundation for Children's Health 400 Hamilton Ave 340 Palo Alto CA 94301 770440090 54000 0 0 RESEARCH Kennedy Krieger Institute 707 N Broadway Baltimore Baltimore MD 21205 521734695 6600 0 0 RESEARCH 0 0 Pt VI, Line 11b A DRAFT OF FORM 990 IS DISTRIBUTED TO ALL BOARD MEMBERS; IN PARTICULAR, THE BOARD TREASURER, TO REVIEW AND APPROVE PRIOR TO FILING. ANY CONCERNS ARE BROUGHT TO THE ATTENTION OF THE BOARD TREASURER FOR DISCUSSION AND RESOLUTION. Pt VI, Line 12c ON AN ANNUAL BASIS, EACH BOARD MEMBER AND KEY EMPLOYEE COMPLETES, SIGNS AND DELIVERS TO THE BOARD TREASURER OR BOARD PRESIDENT AN ANNUAL AFFILIATION DISCLOSURE STATEMENT NAMING ANY AFFILIATION WITH ALD CONNECT'S COMPETING/COLLABORATING ORGANIZATIONS, VENDORS AND CONSULTANTS OR OTHER BOARD MEMBERS. ALL RESPONSES ARE REVIEWED BY THE EXECUTIVE BOARD. ANY RESPONSES RAISING CONCERN ARE ADDRESSED AND RESOLVED IN COMPLIANCE WITH POLICY REGARDING CONFLICTS OF INTEREST.