2024-06-17T19:58:13-05:00 2023-07-31 320530003 QUIGLEY & MIRON 3550 WILSHIRE BLVD 1660 LOS ANGELES CA 90010 990 2022-08-01 464072112 SPONDYLOARTHRITIS RESEARCH AND TREATMENT NETWORK SPON 3606002170 PO BOX 55491 PORTLAND OR 97238 LISA SPIEGEL EXECUTIVE DIRECTOR 3606002170 2024-06-17 LISA SPIEGEL 999009999 0 ARMEN GRIGORIAN P01582463 2136393550 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z JOERG ERMANN MD PO BOX 55491 PORTLAND OR 97238 1072855 0 X WWW.SPARTANGROUP.ORG X 2013 CA OUR MISSION IS TO FOSTER SPONDYLOARTHRITIS RESEARCH AND EDUCATION IN NORTH AMERICA. WE ACCOMPLISH THIS MISSION BY ENGAGING IN RESEARCH PROJECTS, SUPPORTING YOUNG RESEARCHERS, AND CONDUCTING AN ANNUAL MEETING HIGHLIGHTING IMPORTANT EDUCATION AND RESEARCH PROGRAMS. OUR VISION IS A WORLD FREE OF SPONDYLOARTHRITIS THROUGH LEADERSHIP IN RESEARCH AND EDUCATION. 10 10 0 10 0 0 1196324 999000 1400 66600 113 0 111 7255 1197948 1072855 239978 110660 0 0 0 116163 0 0 0 1868543 593460 2108521 820283 -910573 252572 2490686 3043861 204181 201874 2286505 2841987 X THE MISSION OF SPARTAN IS TO FOSTER RESEARCH AND EDUCATION IN SPONDYLOARTHRITIS IN THE UNITED STATES. SPARTAN MEMBERS ACCOMPLISH THIS MISSION BY ENGAGING IN SPECIFIC RESEARCH PROJECTS AND THROUGH AN ANNUAL MEETING, WHICH HIGHLIGHTS IMPORTANT EDUCATION AND RESEARCH PROGRAMS. 0 0 299515 66600 SPARTAN ANNUAL MEETINGSPARTAN HOLDS AN ANNUAL MEETING TO HIGHLIGHT ADVANCES IN SPONDYLOARTHRITIS RESEARCH AND TREATMENT AND ENCOURAGE POST-DOCTORAL FELLOWS TO ENGAGE IN THE SPARTAN MISSION OF FOSTERING RESEARCH AND EDUCATION IN THE FIELD OF SPONDYLOARTHRITIS (SPA). THE RESEARCH AND EDUCATION MEETING IS ALSO AN OPPORTUNITY TO BRING TOGETHER EXPERT, DEDICATED RESEARCHERS TO IDENTIFY AND ADDRESS UNMET NEEDS IN THE FIELD OF SPA RESEARCH AND THERAPY. THE HYBRID MEETING IS ATTENDED BY SPARTAN MEMBERS FROM THROUGHOUT NORTH AMERICA - WITH ATTENDANCE OF 130 IN CLEVELAND, OHIO AND 50 VIRTUALLY. PRESENTERS IN THE SCIENTIFIC SESSIONS ARE THE PROMINENT INTERNATIONAL EXPERTS IN THEIR FIELDS. THE SPONDYLOARTHRITIS REVIEW COURSE IS A PRE-MEETING WORKSHOP FOR RHEUMATOLOGY FELLOWS AND OTHER TRAINEES. WE CONDUCTED AN MRI WORKSHOP ATTENDED BY MORE THAN 75 LEARNERS. 297720 SPARTAN RESEARCH PROJECTSCLASSIC (CLASSIFICATION OF AXIAL SPONDYLOARTHRITIS INCEPTION COHORT)THE PRIMARY STUDY OBJECTIVE IS TO TEST ("VALIDATE") THE PERFORMANCE OF THE CURRENT ASAS CLASSIFICATION CRITERIA IN A PROSPECTIVE COHORT OF PATIENTS PRESENTING WITH UNDIAGNOSED CHRONIC BACK PAIN TO RHEUMATOLOGISTS AT NORTH AMERICAN SITES IN US, MEXICO, AND CANADA GREATER THAN OR EQUAL TO 3 MONTHS DURATION WITH ONSET LESS THAN OR EQUAL TO 45 YEARS OF AGE. THE STUDY IS EXPECTED TO BE COMPLETED IN 2023 WITH 500 PATIENTS AT 25 SITES.BASIS (BIOMARKERS IN AXIAL SPONDYLOARTHRITIS INVESTIGATIVE STUDY) THE PRIMARY OBJECTIVE IS TO ESTABLISH A WELL-CHARACTERIZED BIOBANK FOR AXSPA AND IDENTIFY A DIAGNOSTIC BIOMARKER(S) UTILIZING A CROSS-SECTIONAL STUDY OF INDIVIDUALS WITHIN THE SPECTRUM OF AXSPA. THE BASIS STEERING COMMITTEE HAS DEVELOPED THE STUDY BUDGET AND DOCUMENTS AND IS SEEKING INDUSTRY SUPPORT. 119890 110660 SPARTAN GRANTSTHE MISSION OF SPARTAN IS TO ADVANCE RESEARCH AND EDUCATION TO IMPROVE THE CARE OF PATIENTS WITH SPONDYLOARTHRITIS. WE FEEL STRONGLY THAT LAYING THE FOUNDATION FOR THE NEXT GENERATION OF RESEARCHERS AND LEADERS IN SPA IS AN IMPORTANT PORTAL TO ACHIEVE THIS MISSION. THE GOAL OF OUR GRANT PROGRAMS IS TO SUPPORT THE EARLY STAGES OF A FELLOW-LED RESEARCH PROJECT. WITH THE AIM OF ENCOURAGING FELLOWS TO TAKE UP RESEARCH PROJECTS UNDER MENTORS WITH EXPERTISE IN SPA, SPARTAN SUPPORTS TO 2 MENTORED FELLOWSHIP PROJECTS EACH YEAR ($10,000 PER PROJECT - WITH $5000 EACH FOR THE MENTOR AND MENTEE). SPARTAN'S SEED FUND GRANT SUPPORTS EARLY CAREER INVESTIGATORS WHO ARE WORKING IN THE FIELD OF AXIAL SPONDYLOARTHRITIS AND HAS BEEN RENAMED THE EARLY CAREER INVESTIGATOR (ECI) AWARD WITH UP TO 2 NEW GRANTS SUPPORTED ($25,000 PER PROJECT PER YEAR FOR TWO YEARS) ANNUALLY. TRAVEL AWARDS GO TO THE TOP 3 ABSTRACTS TO SUPPORT TRAVEL TO INDUSTRY MEETINGS (3 AWARDS @ $1000 EACH). 717125 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 17 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 10 10 0 0 0 0 0 0 0 1 1 0 0 1 1 1 0 1 1 0 0 0 CA X X LISA SPIEGEL 3606002170 PO BOX 55491 PORTLAND OR 97238 MATTHEW STOLL PHD MD TREASURER 4.00 X X 0 0 0 JOERG ERMANN MD CHAIR 10.00 X X 0 0 0 JUDITH SMITH PHD MD PAST CHAIR 2.00 X X 0 0 0 SIBA RAYCHAUDHURI MD DIRECTOR 1.00 X 0 0 0 MAUREEN DUBREUIL MD DIRECTOR 3.00 X 0 0 0 NIGIL HAROON PHD MD DIRECTOR 3.00 X 0 0 0 WALTER MAKSYMOWYCH MD SECRETARY 3.00 X X 0 0 0 MARINA MAGREY MD DIRECTOR 3.00 X 0 0 0 JOHN REVEILLE MD DIRECTOR 3.00 X 0 0 0 RUNSHENG WANG MD DIRECTOR 3.00 X 0 0 0 LISA SPIEGEL EXECUTIVE DIRECTOR 40.00 X 107412 0 0 107412 0 0 1 0 0 0 0 510000 489000 999000 CONTRACTED SERVICES 900099 64850 64850 ANNUAL MEETING REGISTR 900099 1750 1750 66600 OTHER REVENUE 900099 7255 7255 7255 1072855 66600 0 7255 X 100660 100660 10000 10000 116163 20163 96000 5115 945 4170 93192 93192 4401 3890 511 1780 1225 555 194205 194205 1922 1922 PROFESSIONAL FEES - CLA 155000 155000 SITE COSTS 137845 137845 820283 717125 103158 0 242457 432349 190000 400000 2058229 2211512 2490686 3043861 204181 201874 204181 201874 X 2230034 2596137 56471 245850 2286505 2841987 2490686 3043861 252572 153283 149627 0 X X 0 0 0 X 1728125 1030000 892975 1196324 999000 5846424 1728125 1030000 892975 1196324 999000 5846424 4255163 1591261 13090 19537 9766 113 42506 415 1585 1232 111 7255 10598 5899528 80569 0.26970 0.20540 X 1. SPONDYLOARTHRITIS RESEARCH AND TREATMENT NETWORK (SPARTAN) HAS PUBLIC SUPPORT OF 29% , OVER TWO AND A HALF TIMES THE MINIMUM AMOUNT REQUIRED TO BE A PUBLIC CHARITY. 2. SPARTAN IS A PROFESSIONAL SOCIETY THAT RECEIVES SUPPORT FROM MULTIPLE PHARMACEUTICAL COMPANIES. EACH OF THESE PHARMACEUTICAL COMPANIES ARE PUBLICLY OWNED AND THEREFORE REPRESENT MILLIONS OF INDIVIDUAL SHAREHOLDERS. ADDITIONALLY, SPARTAN'S ACTIVITIES BENEFIT APPROXIMATELY 7 MILLION INDIVIDUALS, WHICH IS VERY SUBSTANTIAL PERCENTAGE OF THE POPULATION OF THE UNITED STATES. MUCH OF SPARTAN'S FOCUS CENTERS ON RESEARCH AND EDUCATION TO IMPROVE THE CARE OF PATIENTS WITH CHRONIC BACK PAIN, AS WELL AS THE TREATMENT OF THOSE IN WHOM THE BACK PAIN IS FOUND TO HAVE AN INFLAMMATORY CAUSE (SPONDYLOARTHRITIS). APPROXIMATELY 8% OF ADULTS HAVE CHRONIC BACK PAIN, AND ABOUT 1% OF THE ADULT POPULATION HAS SPONDYLARTHRITIS. EVEN WITH THE MOST CONSERVATIVE ESTIMATES, MILLIONS OF PEOPLE IN THE UNITED STATES, AND EVEN MORE WORLDWIDE, ARE IMPACTED BY SPARTAN'S ACTIVITIES.3. SPARTAN HAS A GOVERNING BODY MADE UP OF 11 LEADERS IN THE FIELD, WHO EDUCATE THE PUBLIC AND ARE SCIENTISTS AND EXPERTS IN PROVIDING CARE TO PATIENTS WITH BACK PAIN. SPECIFICALLY, WE HAVE A HIGHLY DIVERSE GOVERNING BODY AS EVIDENCED BY (A) GEOGRAPHIC DIVERSITY, WITH BOARD MEMBERS FROM ALL OVER THE UNITED STATES (ALABAMA, COLORADO, MASSACHUSETTS, NEW YORK, OHIO, TEXAS, AND WISCONSIN) AS WELL AS CANADA; (B) LEADERS IN BOTH PEDIATRIC (DR. SMITH AND DR. STOLL) AS WELL AS ADULT (DRS. CAPLAN, DUBREUIL, ERMANN, HAROON, KUHN, MAGREY, MAKSYMOWYCH, REVEILLE, AND WANG) SPONDYLOARTHRITIS; (C) REPRESENTATIVES FROM BOTH PRIVATE PRACTICE (DR. WANG) AND ACADEMIC MEDICINE (ALL OTHER BOARD MEMBERS.) 4. MEDICAL RESEARCH WHICH IS SPONSORED BY SPARTAN IS MADE AVAILABLE TO THE GENERAL PUBLIC AND IS PUBLISHED IN SCHOLARLY JOURNALS. THE RECIPIENTS OF SPARTAN GRANTS ARE REQUIRED TO PUBLISH THEIR HIGH IMPACT WORK IN PEER-REVIEWED MEDICAL JOURNALS. ADDITIONALLY, AS A LEADER IN THE COMMUNITY, SPARTAN DEVELOPED AND PUBLISHED IN 2016 AND UPDATED IN 2019 RECOMMENDATIONS THAT GUIDE TREATMENT OF PATIENTS WITH SPONDYLOARTHRITIS ACROSS THE WORLD. SPARTAN HAS MADE THESE GUIDELINES AVAILABLE WITHOUT CHARGE TO ALL INTERESTED PARTIES, INCLUDING PATIENTS AS WELL AS PROVIDERS AND THIRD-PARTY PAYERS. 5. SPARTAN'S PROGRAMS ARE SPONSORED AND RUN BY MEMBERS OF THE PUBLIC WITH SPECIAL KNOWLEDGE AND EXPERTISE. SPECIFICALLY, THE PHARMACEUTICAL DONORS HAVE SELECTED SPARTAN BASED UPON MUTUAL KNOWLEDGE OF AND INTEREST IN SPONDYLOARTHRITIS. SPARTAN MEMBERS ARE SELECTED ON THE BASIS OF RECOGNIZED EXPERTISE IN TREATMENT, EDUCATION, OR RESEARCH WITHIN THE FIELD OF SPONDYLOARTHRITIS.6. SPARTAN MAINTAINS A COMPREHENSIVE PROGRAM TO ACCOMPLISH ITS CHARITABLE WORK: FOSTERING RESEARCH AND EDUCATION IN SPONDYLOARTHRITIS IN THE UNITED STATES. SPECIFICALLY, SINCE ITS INCEPTION IN 2013, SPARTAN HAS MAINTAINED A PROGRAM TO FUND PILOT AND SEED RESEARCH GRANTS TO SCIENTISTS STUDYING VARIOUS ASPECTS OF SPONDYLOARTHRITIS. ADDING TO THE IMPACT OF THESE GRANTS IS THAT THEY ARE TARGETED TO JUNIOR RESEARCHERS, ENSURING A CONTINUED PIPELINE OF PHYSICIAN SCIENTISTS WHO WILL CARE FOR AND STUDY SPONDYLOARTHRITIS WELL INTO THE FUTURE. ALL GRANT APPLICATIONS ARE REVIEWED BY AN IMPARTIAL, UNCONFLICTED GROUP OF EXPERTS, AND THE DOLLAR VALUE OF THE AWARDS IS COMMENSURATE WITH SIMILAR GRANTS OFFERED BY NON-PROFIT ORGANIZATIONS, INCLUDING ACADEMIC FACILITIES. THE FINAL VOTE TO APPROVE THE GRANTS IS MADE BY THE SPARTAN BOARD OF DIRECTORS DURING ITS REGULARLY SCHEDULED MEETINGS, OF WHICH MINUTES ARE MAINTAINED. ADDITIONALLY, SPARTAN HAS RECURRING EDUCATIONAL PROGRAMS AIMED AT RHEUMATOLOGY TRAINEES, PROVIDERS CARING FOR PATIENTS WITH SPONDYLOARTHRITIS, AND PROVIDERS OUTSIDE RHEUMATOLOGY WHO MAY ENCOUNTER THESE PATIENTS PRIOR TO DIAGNOSIS. THESE ACTIVITIES BENEFIT THE PROFESSIONAL PERFORMANCE OF HEALTH CARE PROVIDERS TAKING CARE OF PATIENTS WITH SPONDYLOARTHRITIS AND OTHER INFLAMMATORY RHEUMATIC DISEASES AND, INDIRECTLY, MILLIONS OF PATIENTS.7. SPARTAN'S REQUESTS FOR MEMBERSHIP ARE DESIGNED TO ENROLL A SUBSTANTIAL NUMBER OF MEMBERS OF THE COMMUNITY. SPECIFICALLY, SPARTAN ENCOURAGES TRAINEES TO JOIN SPARTAN. THERE ARE LEVELS OF MEMBERSHIP THAT INCLUDE PHYSICIANS WITH VARYING LEVELS OF EXPERIENCE AND EXPERTISE IN THE FIELD; INCLUDING RHEUMATOLOGISTS, GASTROENTEROLOGISTS, RADIOLOGISTS AND OPHTHALMOLOGISTS. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 0 0 0 0 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES SPONDYLOARTHRITIS RESEARCH GRANT 25000 CASH PAYMENT 0 0 0 0 0 0 0 PART III ACCOUNTING METHOD: 0 OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND OR 97239 931176109 10000 0 SPONDYLOARTHRITIS RESEARCH GRANT THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON 7000 FANNIN ST HOUSTON TX 77030 741761309 25000 0 SPONDYLOARTHRITIS RESEARCH GRANT 2 FORM 990, PART VI, SECTION B, LINE 11B THE BOARD OF DIRECTORS REVIEWED THE FORM 990 PRIOR TO FILING THE RETURN. FORM 990, PART VI, SECTION B, LINE 12 EACH DIRECTOR, PRINCIPAL OFFICER, AND COMMITTEE MEMBER ANNUALLY SIGNS A STATEMENT WHICH: 1) AFFIRMS THAT THE PERSON HAS RECEIVED A COPY OF THE CONFLICT OF INTEREST POLICY, HAS READ AND UNDERSTOOD THE POLICY, AND HAS AGREED TO COMPLY WITH THE POLICY; AND 2) DISCLOSES THAT PERSON'S INTERESTS THAT COULD REASONABLY GIVE RISE TO CONFLICTS OF INTEREST. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G OTHER PROFESSIONAL SERVICES: PROGRAM SERVICE EXPENSES 86,843. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 86,843. SPEAKING FEES: PROGRAM SERVICE EXPENSES 5,682. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 5,682. CONTRACT EXPENSES: PROGRAM SERVICE EXPENSES 667. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 667. FORM 990, PART XII, LINE 2C: THE ORGANIZATION'S AUDIT COMMITTEE HAS RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT AUDITOR, SUBJECT TO THE APPROVAL OF THE BOARD OR DIRECTORS.