2024-05-21T15:35:18-04:00 2023-12-31 811705753 PESANTE CLOSE LLC POST OFFICE BOX 1877 LA PLATA MD 20646 990 2023-01-01 851216725 CHONDROSARCOMA CS FOUNDATION INC CHON 3013523042 12504 QUARTERHORSE DRIVE BOWIE MD 20720 JEFFREY KRAMER PRESIDENT 3013523042 2024-03-22 true JEFFREY KRAMER XXX-XX-XXXX true ANNE K WOOD EA P00749065 3019343399 2024-05-21 2023 2023-04-26 12:10:37Z JEFFREY KRAMER 12504 QUARTERHORSE DR BOWIE MD 20720 106978 false X N/A X 2020 MD THE PURPOSE OF CS FOUNDATION IS TO EDUCATE THE PUBLIC ABOUT CHONDROSARCOMA; SUPPORT AND ADVOCATE FOR PATIENTS AND FAMILIES THAT ARE SUFFERING FROM THIS DISEASE, AND ADVOCATE TO IMPROVE THE TREATMENT AND CARE FOR THESE PATIENTS. CS FOUNDATION ALSO STRIVES TO ADVOCATE AND PROMOTE POSITIVE CHANGES INCLUDING A VIABLE TREATMENT PROTOCOL, EARLY DETECTION, PROPER SURVEILLANCE, MORE EFFICIENT AND RELEVANT INFORMATION DEDICATED TO CHONDROSARCOMA, AS WELL AS CREATING NETWORKING OPPORTUNITIES FOR SARCOMA EXPERTS TO SPECIFICALLY ADDRESS CHONDROSARCOMA. MOST IMPORTANTLY, CS FOUNDATION STRIVES TO ADVOCATE FOR MORE COMPASSIONATE CARE, CUTTING THROUGH PHARMACEUTICAL RED-TAPE, AND PROMOTING THE PATIENTS RIGHT TO RECEIVE TREATMENT ESPECIALLY IF NEW SOLUTIONS ARE POTENTIALLY LIFE-SAVING. 5 5 0 8 0 45863 106978 0 679 0 0 46542 106978 0 7000 0 0 0 0 5151 21464 12151 21464 34391 85514 58001 143515 0 58001 143515 X THE PURPOSE OF CS FOUNDATION IS TO EDUCATE THE PUBLIC ABOUT CHONDROSARCOMA; SUPPORT AND ADVOCATE FOR PATIENTS AND FAMILIES THAT ARE SUFFERING FROM THIS DISEASE, AND ADVOCATE TO IMPROVE THE TREATMENT AND CARE FOR THESE PATIENTS. CS FOUNDATION ALSO STRIVES TO ADVOCATE AND PROMOTE POSITIVE CHANGES INCLUDING A VIABLE TREATMENT PROTOCOL, EARLY DETECTION, PROPER SURVEILLANCE, MORE EFFICIENT AND RELEVANT INFORMATION DEDICATED TO CHONDROSARCOMA, AS WELL AS CREATING NETWORKING OPPORTUNITIES FOR SARCOMA EXPERTS TO SPECIFICALLY ADDRESS CHONDROSARCOMA. MOST IMPORTANTLY, CS FOUNDATION STRIVES TO ADVOCATE FOR MORE COMPASSIONATE CARE, CUTTING THROUGH PHARMACEUTICAL RED-TAPE, AND PROMOTING THE PATIENTS RIGHT TO RECEIVE TREATMENT ESPECIALLY IF NEW SOLUTIONS ARE POTENTIALLY LIFE-SAVING. true false 13515 CHONDROSARCOMA PATIENT REGISTRY 5379 OTHER RELATED EVENTS SUCH AS CS AWARENESS DAY, VIRTUAL DIALOGE VIDEOS, POSITION PAPERS,AND HELPFUL BROCHURES 5379 18894 true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false 1 0 false 0 false false false false false false false false 5 5 false false false false false false false true true false false false false false false false false false X ANNE WOOD 3013523042 242 CHESTNUT HLS HENRICO NC 27842 X KARINA GALOIAN 2ND VICE PRE 5.00 X X 0 0 0 RONALD KARP VICE PRESIDE 5.00 X X 0 0 0 JEFFREY KRAMER PRESIDENT 30.00 X X 0 0 0 ABIGALE SNYDER SECRETARY 5.00 X X 0 0 0 ANNE WOOD TREASURER 0.50 X X 0 0 0 false false false 106978 106978 106978 1245 1245 1194 1194 2267 2267 903 600 303 1791 1791 502 502 47 47 PATIENT REGISTRY 13515 13515 21464 18894 2570 0 58001 143515 58001 143515 0 0 X 58001 143515 58001 143515 58001 143515 85514 X false false X 20986 45863 106978 173827 20986 45863 106978 173827 173827 173827 1.00000 X FORM 990 - ORGANIZATION'S MISSION THE PURPOSE OF CS FOUNDATION IS TO EDUCATE THE PUBLIC ABOUT CHONDROSARCOMA; SUPPORT AND ADVOCATE FOR PATIENTS AND FAMILIES THAT ARE SUFFERING FROM THIS DISEASE, AND ADVOCATE TO IMPROVE THE TREATMENT AND CARE FOR THESE PATIENTS. CS FOUNDATION ALSO STRIVES TO ADVOCATE AND PROMOTE POSITIVE CHANGES INCLUDING A VIABLE TREATMENT PROTOCOL, EARLY DETECTION, PROPER SURVEILLANCE, MORE EFFICIENT AND RELEVANT INFORMATION DEDICATED TO CHONDROSARCOMA, AS WELL AS CREATING NETWORKING OPPORTUNITIES FOR SARCOMA EXPERTS TO SPECIFICALLY ADDRESS CHONDROSARCOMA. MOST IMPORTANTLY, CS FOUNDATION STRIVES TO ADVOCATE FOR MORE COMPASSIONATE CARE, CUTTING THROUGH PHARMACEUTICAL RED-TAPE, AND PROMOTING THE PATIENTS RIGHT TO RECEIVE TREATMENT ESPECIALLY IF NEW SOLUTIONS ARE POTENTIALLY LIFE-SAVING. FORM 990, PAGE 1, PART I, LINE 6 COMMITTEE VOLUNTEERS FORM 990, PAGE 2, PART III, LINE 2 CHONDROSARCOMA PATIENT REGISTRY THE CHONDROSARCOMA FOUNDATION IN PARTNERSHIP WITH THE NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD) HAS LAUNCHED THE CHONDROSARCOMA PATIENT REGISTRY. FINANCIAL SUPPORT FOR THE INITIAL DESIGN AND IMPLEMENTATION OF THE REGISTRY HAS BEEN PROVIDED BY INHIBRX, SERVIER, CSX TRANSPORTATION, AND DONATIONS FROM INDIVIDUALS AND FUNDRAISERS. THIS REGISTRY WILL COLLECT INFORMATION FROM PARTICIPANTS (OR THEIR LEGALLY AUTHORIZED REPRESENTATIVES) WHO ARE AFFECTED BY CHONDROSARCOMA. THE REGISTRY WILL ALSO COLLECT INFORMATION ON THOSE WHO HAVE PASSED, TO BE ENTERED BY AUTHORIZED REPRESENTATIVES. FORM 990, PAGE 2, PART III, LINE 4D OTHER RELATED EVENTS SUCH AS CS AWARENESS DAY, VIRTUAL DIALOGE VIDEOS, POSITION PAPERS,AND HELPFUL BROCHURES FORM 990, PAGE 6, PART VI, LINE 11B NO REVIEW WAS OR WILL BE CONDUCTED. FORM 990, PAGE 6, PART VI, LINE 19 NO DOCUMENTS AVAILABLE TO THE PUBLIC