2024-05-15T07:49:39-07:00 2023-12-31 811585294 CNRG Accounting Advisory LLC 1031 33rd St Denver CO 80205 990EZ 2023-01-01 465424047 Turner Syndrome Global Alliance TURN 9132208177 10708 W 129th St Overland Park KS 66213 Kelly Ranallo President 2024-05-15 true Kelly Ranallo 999009999 true Chyla Graham P02016884 8449322674 0 AAL1 IAL1 FAL1 2023 2023-04-26 12:10:37Z X X http://tsgalliance.org/ X X 4461 X 4411 50 0 0 0 0 4461 330 12 1959 2301 2160 42668 44828 42668 44828 42668 44828 42668 44828 The mission, duty and purpose of the Turner Syndrome Global Alliance, Inc. Turner Syndrome Alliance is to connect science, resources, and funding to the Turner Syndrome community. TSGA continues to focus on funding research on Turner syndrome through the InsighTS Registry research. This is a collaborative project with a shared IRB working with clinic directors from multiple children?s hospitals across the country. In 2023, TSGA actively supported the recruitment of additional registry sites as well as created patient friendly information to support patient recruitment. By the end of 2023, over 500 participants from 11 hospitals nationwide were enrolled, with another 2 hospitals onboarding to join the Registry. This year, the Registry has been highlighted in research abstracts and presented at professional conferences, and the Registry data is supporting multiple research initiatives. Results will be able to be quickly translated to care through the TSGA network of clinics, which TSGA continues to grow. 855 TSGA maintains a network of more than 40 Turner syndrome clinics and serves as a resource for information on developing clinic services.TSGA developed designation criteria that clinic programs use as a basis for growing their programs for both pediatric and adult clinics that provides a way for patients and families to determine what level of care is provided by specific institutions. We also help clinicians connect with other specialists in their field who are working with girls and women with Turner syndrome and develop multi-institutional collaborations TSGA maintains an active social media presence on Facebook that shares evidence-based information and resources to girls, women, and families living with Turner syndrome. This information has helped to dispel many of the preconceived notions of what life is like for those with Turner syndrome, providing hope to many families. We also maintain a website as a resource for information, especially for families with a new diagnosis. 855 Kelly Ranallo President 2.00 0 Denise Culin Secretary 0.25 0 Angie Dunbar Director 0.10 0 Stephen Pool Treasurer 0.10 0 Ashley Abbott Director 0.10 0 Danny Miller Director 0.10 0 false false false false false false false 0 0 0 false 0 0 false Marybel Good 11269 Lamar St Westminster CO 80020 7206286907 false false false false false false false false false false false NONE NONE true X 93710 14572 20268 10393 4411 143354 0 0 93710 14572 20268 10393 4411 143354 0 143354 18 50 68 0 0 143422 0.99950 0.99990 X Other Expenses.1002 Office Expenses $248 Other Expenses.1003 Information Technology $388 Other Expenses.1005 Travel $213 Other Expenses.1012 Insurance $468 Other Expenses.1 Meals & Entertainment $402 Other Expenses.2 Other Program Expenses $240