2024-04-21T18:16:03-07:00 2023-12-31 990 2023-01-01 921715452 As Healthy As Possible ASHE 9802028195 1959 N Peace Haven Rd PMB 235 Winston Salem NC 271064850 Daniel ODonnell Officer 9802028195 2023-01-01 Daniel ODonnell 999009999 1 0 11 0 AAL2 2023 2023-04-26 12:10:37Z X X Daniel O'Donnell 241 Gloucestershire Rd Winston Salem NC 27106 5769 0 X ashealthyaspossible.net X 2023 NC Our mission is to have a positive impact on the lives of those with a POLR2A mutation and to help them, their families, and their caregivers stay as healthy as possible. 5 5 0 8 0 0 5768 5769 0 0 0 0 1 0 5769 5769 0 0 0 0 0 0 0 0 0 1579 1579 1579 1579 4190 4190 0 4190 0 0 0 4190 X Our mission is to have a positive impact on the lives of those with a POLR2A mutation and to help them, their families, and their caregivers stay as healthy as possible. 1 0 553 0 0 We endeavor to share and make the most information available to doctors, caregivers, and those interested in educating themselves the POLR2A gene. By forming our organization with both and Executive Board and Medical Advisory Board in 2023, we are in the position to pursue a genetic registry, as well as ally ourselves with Universities, private enterprise, and other institutions/organizations such as NORD that ensure long term sustainability of a registry. The $277.35 PMB setup, $.63 Paypal fee, and $275 1023-EZ filing are attributed to this effort. 1026 0 0 We strive to ensure that Scientific Research that benefits those with a POLR2A gene mutation is visible within academia by forming alliances with these institutions. Revenue from 2023 will make possible awarding a grant in 2024 (now announced on our website) for contributing to research on POLR2A, the presentation of related POLR2A topics at a conference, or further medical diagnosis and/or assistance to an individual with a POLR2A mutation. The $840 web designer and $185.81 web hosting expenses are attributed to this program service. 0 0 0 We are ambitious about being able to reach out to those affected by mutations of POLR2A gene, help them find the information they need, and to advocate for resources on their behalf. In 2023 we initiated discussions with therapists who are able to provide remote services to patients and will be working to raise funds to a level which will make these services available to those who need them. 0 0 0 1579 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 X 5 5 1 0 1 0 1 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 NC X Daniel O'Donnell 9802028195 1959 N Peace Haven Rd PMB 235 Winston Salem NC 271064850 X Daniel O'Donnell Executive Board Member 5 0 X 0 0 0 Johanna O'Donnell Executive Board Member 1 0 X 0 0 0 Trine Hestbaek Executive Board Member 0.5 0 X 0 0 0 Michael Wells Executive Board Member 0.5 0 X 0 0 0 Patrick Yodzis Executive Board Member 0.5 0 X 0 0 0 Christine Erdie-Lalena Medical Advisory Board Member 0.5 0 X 0 0 0 Marissa Vawter-Lee Medical Advisory Board Member 0.5 0 X 0 0 0 James O'Donnell Medical Advisory Board Member 0.5 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 5769 0 5769 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 5769 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1117 1117 0 0 0 0 0 0 276 276 0 0 186 186 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1579 1579 0 0 0 5 0 4185 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 4190 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 0 0 0 0 0 4190 0 4190 0 4190 4190 0 0 0 0 0 X 0 0 0 X 5768 5768 0 0 0 0 0 0 0 0 0 0 0 0 5768 5768 0 0 0 0 0 0 0 0 0 0 5768 1 1 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 5769 5769 X Schedule A, Part III, Line 12 This is As Healthy As Possible's first tax year and our organization has no other income reported for Part III, Line 12. Form 990, Part III, Line 2 The majority of our actions in 2023 were centered on the formation of a strong base for our organization that will serve the long term accomplishment of our mission. To that end, we established a website and formed an Executive Board consisting of Daniel O'Donnell, Johanna O'Donnell, Trine Hestbaek, Michael Wells, and Patrick Yodzis. A three person Medical Advisory Board consisting of Christine Erdie-Lalena, Marissa Vawter-Lee, and James O'Donnell was also formed. Sufficient funds were raised to ensure the award of our first grant in 2024 and our website was revised to advertise this. We also were able to integrate donations by Paypal to our website to facilitate receiving donations. Form 990, Part VI, Section A, Line 2 A family relationship exist between Daniel O'Donnell and other members of the organization. Daniel O'Donnell is the husband of Johanna O'Donnell on the Executive Board. Daniel O'Donnell is also the brother of James O'Donnell serving on the Medical Advisory Board. No business relationships exist between any members of the organization. Form 990, Part VI, Section A, Line 4 This is As Healthy As Possible's first tax year. There was a single revision to the original Bylaws in September of 2023 to include two board meetings per year. Form 990, Part VI, Section A, Line 6 The Executive Board consist of: Daniel O'Donnell, Johanna O'Donnell, Trine Hestbaek, Michael Wells, and Patrick Yodzis. The Medical Advisory Board consist of: Christine Erdie-Lalena, Marissa Vawter-Lee, and James O'Donnell. This is the full membership of the organization which is organized as a non-stock, nonprofit. Form 990, Part VI, Section B, Line 11b Copies of the 2023 tax form with all details and supplemental information were emailed to all members on January 20th, 2024. Form 990, Part VI, Section B, Line 12c Annual statements regarding potential conflicts are required. As our organization has only been established for a year only the 2023 Conflict of Interest statement from each member is currently on file. Form 990, Part VI, Section C, Line 19 The organization did not make its governing documents, conflict of interest policy, and financial statements available to the public during the tax year as 2023 was the formational year of As Healthy As Possible. Our main points of business were creating our organization and these documents. We have included the following statement on our website based on our financial outlook from the end of 2023. In our formational year of 2023 the majority of our actions centered on forming a strong base for our organization, including the formation of our Executive & Medical Advisory Boards. While our initial cost per dollar raised was 27%, based on our projected budget we believe our three year average through 2026 will be 7% or less due to moving past several one-time startup costs and As Healthy As Possible being a completely volunteer based organization. We will continue to update our financial information publicly as our organization develops. Form 990, Part IX, Line 11g $840 was spent on Web Design Services for website revision including linking to Paypal. This is attributed to the program service of Scientific Research as the website makes possible the advertising of a grant. $277.35 was spent on setting up a Post Mail Box to ensure various means of communication are available to share and make the most information available to doctors, caregivers, and those interested in educating themselves about the POLR2A gene.