2024-04-19T10:38:20-05:00 2023-05-31 132060851 Owen J Flanagan & Co 445 Hamilton Avenue 11th floor White Plains NY 10601 990 2022-06-01 871188456 RIAAN RESEARCH INITIATIVE INC RIAA 5613736487 6123 224TH STREET OAKLAND GARDENS NY 11364 GURJOT KAUR FOUNDER/CHAIR 5613736487 2024-04-16 1 GURJOT KAUR 999009999 0 Kevin Sunkel P00706145 2126822783 2024-04-16 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z GURJOT KAUR 6123 224TH STREET OAKLAND GARDENS NY 11364 788145 0 X RIAANRESEARCH.ORG X 2021 NY TO CREATE A WORLD WHERE EVERY CHILD WITH A FATAL GENETIC DISEASE HAS A PATHWAY TOWARD TREATMENT. THE ORGANIZATION IS DEDICATED TO PROMOTING AND FURTHERING TRANSLATIONAL SCIENTIFIC RESEARCH TO ADVANCE TREATMENTS FOR SEVERE AND LIFE-TIMING GENETIC DISORDERS. 3 3 0 12 0 0 1515724 787156 0 0 73 989 0 0 1515797 788145 361666 0 0 0 0 0 0 0 0 13156 219322 374822 219322 1140975 568823 1140975 1719798 0 10000 1140975 1709798 X TO CREATE A WORLD WHERE EVERY CHILD WITH A FATAL GENETIC DISEASE HAS A PATHWAY TOWARD TREATMENT. THE ORGANIZATION IS DEDICATED TO PROMOTING AND FURTHERING TRANSLATIONAL SCIENTIFIC RESEARCH TO ADVANCE TREATMENTS FOR SEVERE AND LIFE-TIMING GENETIC DISORDERS. 0 0 202508 RESEARCH PROJECTS - RIAAN RESEARCH INITIATIVE IS DEDICATED TO ADVANCING, ACCELERATING, AND FUNDING TRANSLATIONAL SCIENTIFIC RESEARCH TO GENERATE TREATMENTS FOR SEVERE AND LETHAL NEURODEGENERATIVE GENETIC DISORDERS THAT IMPACT THE PEDIATRIC POPULATION SUCH AS COCKAYNE SYNDROME. THE ORGANIZATION'S PROGRAMMATIC AREAS INCLUDE SUPPORTING THE DEVELOPMENT OF COCKAYNE SYNDROME GENE REPLACEMENT THERAPY, AND DRUG REPURPOSING SCREENS BY PARTNERING WITH RESEARCHERS AND ACADEMIC INSTITUTIONS AND ISSUING GRANTS. GENE THERAPY WORK INVOLVES ACCELERATING THE DEVELOPMENT OF ADENOVIRUS VECTORS AND SUPPORTING PRE-CLINICAL TO CLINICAL RESEARCH STUDIES; THE ORGANIZATION'S DRUG REPURPOSING PROJECTS INVOLVE SCREENING SMALL MOLECULES TO IDENTIFY DRUGS THAT CAN HALT OR REVERSE NEURODEGENERATION IN THIS PATIENT POPULATION. THE ORGANIZATION ALSO PROVIDES EDUCATION AND RESOURCES TO THE MEDICAL AND RARE DISEASE COMMUNITY, THE MEDIA, AS WELL AS MEMBERS OF THE PUBLIC ON ADVANCEMENTS IN SCIENTIFIC RESEARCH AND GENERAL COCKAYNE SYNDROME AWARENESS AND MAINTAINS A PATIENT REGISTRY TO GATHER RELEVANT CLINICAL DATA FOR FUTURE TRIALS. 202508 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 3 3 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 NY X The Organization 5613736487 6123 224TH STREET OAKLAND GARDENS NY 11364 X GURJOT KAUR FOUNDER/CHAIR 25.00 X X 0 0 0 AJIT SINGH SECRETARY 1.00 X X 0 0 0 AASEES KAUR TREASURER 10.00 X X 0 0 0 0 0 0 0 0 0 0 0 787156 787156 989 989 788145 0 0 989 X 9768 9768 202032 202032 7195 476 6719 327 327 219322 202508 16814 0 1140975 1719798 1140975 1719798 10000 0 10000 X 1140975 1709798 1140975 1709798 1140975 1719798 568823 0 X 1 X 0 0 0 X 1515724 787156 2302880 1515724 787156 2302880 109092 2193788 73 989 1062 2303942 0.95220 0.90720 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 788145 0 788145 0 788145 219322 0 219322 0 219322 Part X, Line 2: MANAGEMENT HAS DETERMINED THAT THE ORGANIZATION HAD NO UNCERTAIN TAX POSITIONS THAT WOULD REQUIRE FINANCIAL STATEMENT RECOGNITION AND/OR DISCLOSURE. Form 990, Part VI, Section B, line 11b THE BOARD IS PROVIDED WITH A COPY OF THE FORM 990 PRIOR TO FILING. Form 990, Part VI, Section B, line 12c ANNUALLY THE BOARD MUST SIGN A CONFLICT OF INTEREST POLICY STATEMENT AND MAY CONDUCT PERIODIC REVIEWS. Form 990, Part VI, Section C, line 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. THE FINANCIAL STATEMENTS ARE ONLINE ON A THIRD PARTY'S WEBSITE. Form 990, Part IX, line 11g PROGRAM CONSULTING FEES: Program service expenses 202,032. Management and general expenses 0. Fundraising expenses 0. Total expenses 202,032.