2024-11-15T22:35:22Z 2023-12-31 990 2023-01-01 463576700 CONQUERING CONGENITAL HEART DISEASE CONQ 8507979354 8383 Greenway Blvd Suite 600 Middleton WI 53562 Carissa Ostrom Executive Director 8507979354 2024-11-15 2023 2024-10-15 13:58:12Z Carissa Ostrom 8383 Greenway Blvd Suite 600 Middleton WI 53562 291957 false X www.conqueringchd.org X 2013 WI CONQUERING CHD EXISTS TO CONQUER THE MOST COMMON BIRTH DEFECT. WE ENGAGE, LISTEN, LEARN AND ACT. WE CREATE VISIBILITY AND EMPOWER ALL IMPACTED BY CHD. WE ACCOMPLISH THIS THROUGH AWARENESS, KNOWLEDGE, COMMUNITY AND RESEARCH. 5 4 6 75 0 0 402501 250821 247302 41136 0 0 -4398 0 645405 291957 0 0 0 0 323864 142696 0 0 0 303596 191299 627460 333995 17945 -42038 116383 21394 56084 3610 60299 17784 AT CONQUERING CHD WE EXIST TO CONQUERIN THE MOST COMMON BIRTH DEFECT. WE ENGAGE, LISTEN, LEARN, AND ACT. WE CREATE VISIBILITY AND EMPOWER ALL IMPACTED BY CHD. WE ACCOMPLISH THIS THROUGH AWARENESS, KNOWLEDGE, COMMUNITY AND RESEARCH. false false 29154 24000 LEARNING YOUR CHILD HAS CONGENITAL HEART DISEASE CAN BE OVERWHELMING. MANY CHILDREN WITH CONGENITAL HEART DISEASE NEED LIFE SAVING SURGERY OR INTERVENTION IN THE FIRST FEW WEEKS OR MONTHS OF THEIR LIFE. THIS LEADS TO IMPORTANT MEDICAL DECISIONS ABOUT THE CARE OF YOUR CHILD, OFTEN IN A SHORT AMOUNT OF TIME AND UNDER STRESS. HOWEVER, THE ABILITY TO GET IMPORTANT INFORMATION ABOUT WHERE YOUR CHILD WILL GET THEIR TREATMENT IS LIMITED. THE ORGANIZATION IS WORKING TO ADDRESS THIS ISSUE ON MANY LEVELS. WE EMPOWER PATIENTS AND FAMILIES DIRECTLY THROUGH THE USE OF THE GUIDED QUESTIONS TOOL. GIVEN TO FAMILIES AT THE TIME OF DIAGNOSIS, THIS LIST OF QUESTIONS OFFERS SUPPORT AND CONFIDENCE WHEN TALKING TO DOCTORS, SURGEONS AND THE CARE TEAM ABOUT QUALITY, WHAT TO EXPECT WHEN IN THE HOSPITAL, AND BEYOND. ALTHOUGH WIDELY DISTRIBUTED. 46712 40376 THE ORGANIZATION CONTINUES TO GROW OUR DIRECT IMPACT THROUGH THE IMPLEMENTATION OF A STATE CHAPTER INFRASTRUCTURE. WHILE INDEPENDENT ENTITIES, OUR STATE CHAPTERS ARE PROVIDED WITH ADMINISTRATIVE AND LEADERSHIP SUPPORT, BRANDED RESOURCES, CORE CARE PACKAGE MATERIALS AND GROUP EXEMPTION THROUGH THE NATIONAL ORGANIZATION. THIS PROGRAM WAS DISCONTINUED DECEMBER 2023. 0 0 0 75866 true true false true false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 0 0 true 6 false false false false false false false false false false false false X 5 4 false false false false false false false true true false true true true true true true true true true false false WI X Carissa Ostrom 8507979354 8383 Greenway Blvd Suite 600 Middleton WI 53562 Mark Fried Former Executive Director 40.00 X 16797 0 0 Amy Basken Former Executive Director 40.00 X 38461 0 0 Carissa Ostrom Executive Director 40.00 X 30855 0 0 Melissa Stevens Director 1.00 0 0 0 Tom Eby Director 1.00 X 0 0 0 86113 0 0 0 false false false 0 30474 220347 250821 Research Fund 900099 760 760 State Chapter Dues 900099 40376 40376 41136 0 0 0 0 291957 41136 0 0 86053 64540 21513 44844 44844 1000 1000 10799 10799 742 742 5883 5883 17601 15459 2142 102410 102410 1208 1208 2620 289 2331 16550 16550 477 477 6499 6499 Postage and Delivery 15372 15372 Dues and Subscriptions 15344 7243 8101 Merchandise 52 52 Bank Charges and Services 1942 1942 4599 4599 333995 289040 44955 0 85940 14529 19239 1000 0 8078 3217 3126 2648 116383 21394 45439 2749 0 10645 861 56084 3610 X 60299 17784 0 0 60299 17784 116383 21394 -42038 X false false false X 0 0 0 0 916068 609252 566103 649803 291959 3033185 916068 609252 566103 649803 291959 3033185 3033185 1837 1571 542 2129 60 6139 3039324 220347 0.99800 0.99800 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true true false false false false false false false 0 false Part II B, Line 1 Lobbying Activities LOBBYING ACTIVITIES CONSIST OF PRO BONO LOBBYIST SERVICES WITH THE PURPOSE OF AMPLIFYING THE VOICE OF THE CONGENTIAL HEART DISEASE (CHD) COMMUNITY TO INFORM POLICYMAKERS OF THE SIGNIFICANT PUBLIC HEALTH BURDEN RELATED TO CHD, AND TO PROMOTE KEY POLICY CHANGES THAT IMPACT THE CHD COMMUNITY AS A WHOLE. 10799 10799 PART X, LINE 2 THE ORGANIZATION IS A NONPROFIT CORPORATION, INCORPORATED UNDER THE WISCONSIN NON-STOCK CORPORATION LAW (CHAPTER 181 OF THE WISCONSIN STATUTES). THE ORGANIZATION IS A NOT-FOR-PROFIT ORGANIZATION EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. IN ADDITION, THE ORGANIZATION HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A)(2) AND IS EXEMPT FROM WISCONSIN INCOME AND FRANCHISE TAXES. THE ORGANIZATION HAS ADOPTED THE ACCOUNTING GUIDANCE FOR RECOGNIZING AND MEASURING UNCERTAIN TAX POSITIONS. THE ORGANIZATION FOLLOWS THE STATUTORY REQUIREMENTS FOR THEIR INCOME TAX ACCOUNTING GENERALLY AVOIDS RISKS ASSOCIATED WITH POTENTIALLY PROBLEMATIC TAX POSITIONS THAT MAY BE CHALLENGED UPON EXAMINATION. MANAGEMENT BELIEVES ANY LIABILITY RESULTING FROM TAXING AUTHORITIES IMPOSED ADDITIONAL INCOME TAXES FROM ACTIVITIES DEEMED TO BE UNRELATED TO THE ORGANIZATION'S TAX-EXEMPT STATUS WOULD NOT HAVE A MATERIAL EFFECT ON THE FINANCIAL STATEMENTS. THE ORGANIZATION'S FEDERAL EXEMPT ORGANIZATION TAX RETURNS ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED. WITH FEW EXCEPTIONS, THE ORGANIZATION IS NO LONGER SUBJECT TO SUCH EXAMINATIONS FOR YEARS BEFORE 2019. Steps For CHD 7074 7074 0 Gala 18500 18500 0 13310 2349 0 25574 25574 0 0 0 0 13310 0 2349 15659 -15659 FORM 990, PART I, LINE 1, DESCRIPTION OF ORGANIZATION MISSION: ACT. WE CREATE VISIBILITY AND EMPOWER ALL IMPACTED BY CHD. WE ACCOMPLISH THIS THROUGH AWARENESS, KNOWLEDGE, COMMUNITY AND RESEARCH. FORM 990, PART III, LINE 4A, PROGRAM SERVICE ACCOMPLISHMENTS: THROUGH OUR CARE PACKAGES, OUR WEBSITE AND SOCIAL MEDIA, WE ARE COMPLETING A MULTICENTER QUALITY IMPROVEMENT PROJECT WITH THE COUNTRY'S TOP HEART HOSPITALS, TO DOCUMENT THAT WE ARE ACHIEVING OUR DESIRED GOALS WITH THIS TOOL. MORE BROADLY, WE ARE INFLUENCING NATIONAL POLICY AND CULTURE SURROUNDING PUBLIC REPORTING OF PEDIATRIC AND CONGENITAL HEART DISEASE OUTCOMES. WE ARE ACHIEVING THIS THROUGH A SERIES OF STAKEHOLDER SUMMITS, FACULTY PRESENTATIONS AT NATIONAL CONFERENCES, AND BUILDING RELATIONSHIPS WITH PARTNER ORGANIZATIONS. RESULTS INCLUDE MODIFICATIONS TO NATIONAL RANKING SYSTEMS (U.S. NEWS AND WORLD REPORT) AND THE INCREASE IN RESPECT FOR AND UTILIZATION OF THE PARENT VOICE WITHIN THE MEDICAL COMMUNITY. WE ARE PRESENTLY WORKING WITH AN EXTENSIVE LIST OF STAKEHOLDERS TOWARD THE DEVELOPMENT OF THE ORGANIZATION WEBSITE TO INCLUDE CENTRALIZED CONGENITAL HEART OUTCOME DATA REPORTING AND INFORMATION TO SUPPORT INTERPRETATION FOR PATIENTS, FAMILIES AND THE PROVIDERS WHO CARE FOR THEM FORM 990, PART VI, SECTION B, LINE 11B: REVIEWED BY THE BOARD OF DIRECTORS BEFORE FILING FORM 990, PART VI, SECTION B, LINE 12C: PERIODIC REVIEWS ARE CONDUCTED PER THE ORGANIZATION'S CONFLICT OF INTEREST POLICY FORM 990, PART VI, SECTION B, LINE 15A: THE GOVERNING BODY REVIEWED THE EXECUTIVE DIRECTOR'S PERFORMANCE AND COMPENSATION PACKAGE, REFERRING TO COMPARABILITY DATA FOR SIMILAR TYPE POSITIONS AND DUTIES FORM 990, PART VI, SECTION C, LINE 19: UPON REQUEST FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED. Part VI, Line 11b REVIEWED BY THE BOARD OF DIRECTORS BEFORE FILING. Part VI, Line 12c PERIODIC REVIEWS ARE CONDUCTED PER THE ORGANIZATION'S CONFLICT OF INTEREST POLICY. Part VI, Line 15a THE GOVERNING BODY REVIEWED THE EXECUTIVE DIRECTOR'S PERFORMANCE AND COMPENSATION PACKAGE, REFERRING TO COMPARABILITY DATA FOR SIMILAR TYPE POSITIONS AND DUTIES. Part VI, Line 19 UPON REQUEST Conquering CHD has gone through a transition period and is now under new leadership. During this leadership change the account management was also changed. This caused a lapse in submitting the 990 by the deadline.