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IT ALSO SUPPORTS NEWLY DIAGNOSED AND EXISTING FAMILIES BY PROVIDING ACCESS TO WORLD EXPERTS VIA ADVISORY BOARDS, MODERATION OF AN EMAIL SUPPORT GROUP AND INFORMATION PACKETS. 636295 true false false false false false false false false false true false false false false true true false false false true true false false false false false true true false false false false false false false false false false false false false false false false false false true 10 0 false 0 false false false false false false false false X 12 12 true false false false false false false true true false false true true true true false false false false false IL MA X X ALLISON GOLDBERG 8576500835 PO BOX 702 LAKE FOREST IL 60045 X JOHNATHAN DICKS PRESIDENT, V 16.00 X X 0 0 0 KAREN GLEDHILL SECRETARY 2.00 X X 0 0 0 CHRISTY GREELEY EXEC DIR & V 8.00 X X 0 0 0 CAROL HUGHES DIRECTOR 7.00 X 0 0 0 CLAIR JOHNSTONE EXECUTIVE DI 4.00 X X 0 0 0 MARYBETH KRUMMENACKER VP EDUCATION 4.00 X X 0 0 0 CHELSEA MESCHKE VP FAMILY SU 2.00 X X 0 0 0 MEGAN MORRILL DIRECTOR 3.00 X 0 0 0 GAIL POTTS DIRECTOR 2.00 X 0 0 0 HEATHER FIELDS ROTHROCK DIRECTOR 1.00 X 0 0 0 TERRI SCHLEUDER DIRECTOR 1.00 X 0 0 0 KRISTINA SEVEL VP RESEARCH 2.00 X X 0 0 0 HERBERTH SIGLER DIRECTOR 1.00 X 0 0 0 JEN WYMAN DIRECTOR 2.00 X 0 0 0 TIM WYMAN TREASURER 1.00 X X 0 0 0 false false false 508084 508084 2967 2967 511051 2967 35491 35491 10489 10489 81567 81567 16653 16653 60309 34605 6300 19404 50090 48212 846 1032 25446 16228 9950 -732 36841 36841 346667 346667 26301 26195 106 683 683 690537 636295 34538 19704 183326 58290 322042 240000 28600 28600 505368 298290 41700 14395 11977 11690 53677 26085 X 386323 206837 65368 65368 451691 272205 505368 298290 -179486 X false true X true false X 405278 526401 542497 345873 508084 2328133 405278 526401 542497 345873 508084 2328133 1407481 920652 3292 1096 713 394 2967 8462 2336595 0.39400 0.40170 X 28600 28600 X 511051 511051 511051 690537 690537 690537 SCHEDULE D, PAGE 3, PART X THE ORGANIZATION IS A TAX-EXEMPT ORGANIZATION AS DESCRIBED IN SECTION 501 (C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND IS EXEMPT FROM FEDERAL INCOME TAXES ON RELATED INCOME PERSUANT TO SECTION 501(A) OF THE CODE. 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SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE - ALBANIA, ANDORRA, AUSTRIA, BELG 0 0 false THE REGENTS OF THE UNIVERSITY OF CA PO BOX 748872 LOS ANGELES CA 90074 943067788 501C3 35491 RESEARCH GRANT SCHOLARSHIPS 1 1000 AWARDS 10 9489 SCHEDULE I, PAGE 1, PART I, LINE 2 ALL GRANTS ARE REVIEWED BY A SCIENTIFIC REVIEW BOARD OF PHYSICIANS FAMILIAR WITH CYSTINOSIS. PER GRANT AGREEMENT, RESEARCHERS ARE TO PROVIDE PERIODIC PROGRESS REPORTS SHOWING RESEARCH PROGRESS AND EXPENSES INCURRED THUS FAR. FORM 990 - ORGANIZATION'S MISSION THE CYSTINOSIS RESEARCH NETWORK IS AN ALL VOLUNTEER, NON-PROFIT ORGANIZATION DEDICATED TO SUPPORTING AND ADVOCATING RESEARCH, PROVIDING FAMILY ASSISTANCE AND EDUCATING THE PUBLIC AND MEDICAL COMMUNITIES ABOUT CYSTINOSIS. 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