2024-11-14T21:48:25-05:00 2023-12-31 460952065 BOUNTIFUL PEAK ADVISORS 1564 SOUTH 500 WEST SUITE 201 BOUNTIFUL UT 840107400 990 2023-01-01 876127162 UTAH HEMOPHILIA FOUNDATION UTAH 8014840325 772 E 3300 S STE 205 SALT LAKE CITY UT 841064602 JAN WESTERN EXECUTIVE DIRECTOR 8014840325 2024-11-05 true true JUSTIN R SHAW CPA CFE CGMA P00081558 8012943155 2024-11-14 2023 2024-10-15 13:58:12Z JAN WESTERN 772 E 3300 S STE 205 SALT LAKE CITY UT 841064602 534245 false X HTTPS://HEMOPHILIAUTAH.ORG/ X 1959 UT PROVIDING EDUCATION AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES WITH BLEEDING DISORDERS AND EMPOWERING THEM TO LIVE HEALTHIER AND MORE SELF- SUFFICIENT LIVES. 14 14 1 65 0 290628 413833 0 67 20977 59501 58632 350196 493442 17044 0 123166 110402 0 14778 157071 192024 280237 319470 69959 173972 940461 1114433 0 940461 1114433 X PROVIDING EDUCATION AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES WITH BLEEDING DISORDERS AND EMPOWERING THEM TO LIVE HEALTHIER AND MORE SELF- SUFFICIENT LIVES. false false 198059 COMMUNITY EDUCATION: CAMP VALOR - 36 CAMPERS FROM 22 FAMILIES ATTENDED. FOR THE CHILDREN IN UTAH'S BLEEDING DISORDERS COMMUNITY, CAMP VALOR REPRESENTS THE FOUNDATION FOR EFFECTIVE LIFE-LONG MANAGEMENT OF A BLEEDING DISORDER. IT IS AT THIS CAMP THAT CHILDREN FIRST LEARN TO SELF-INFUSE. CAMPERS, ALSO, LEARN THE BASICS OF SELF-CARE REQUIRED FOR THE TREATMENT AND MANAGEMENT OF THEIR DISEASE STATE. BECAUSE OF THE SEVERITY OF THE CONDITION FROM WHICH THEY SUFFER, CHILDREN WITH HEMOPHILIA SELDOM HAVE THE OPPORTUNITY TO ENJOY MANY OF THE SAME PHYSICAL ACTIVITIES THAT THEIR UNAFFECTED PEERS DO. CAMP VALOR, ALLOWS CHILDREN WITH BLEEDING DISORDERS TO SPEND TIME OUTDOORS, RECREATING UNDER THE CONSTANT CARE AND SUPERVISION OF A FULL COMPLEMENT OF MEDICAL PROFESSIONALS. FOR MOST OF THESE CHILDREN, IT IS THE ONLY TIME THAT THEY CAN JUST BE KIDS. EVERYBODY'S HERE - 55 PEOPLE ATTENDED. A PROGRAM THAT BRINGS TOGETHER THE UHF, INDUSTRY PARTNERS, THE HEMOPHILIA TREATMENT CENTER STAFF, AND THE BLEEDING DISORDERS COMMUNITY. IT IS AN EVENING OF NETWORKING, INFORMATION, AND PEER SUPPORT. INFORMATIONAL EXHIBITS ARE PROVIDED BY PHARMACEUTICAL MANUFACTURERS AND HOME CARE COMPANIES, WHICH DISSEMINATE THE LATEST INFORMATION ON THE MANAGEMENT AND CARE OF BLEEDING DISORDERS. COMMUNITY MEMBERS ARE ABLE TO ASSOCIATE AND LEARN FROM ONE ANOTHER'S SHARED EXPERIENCES. FAMILY FEST & RESOURCE FAIR - 143 PEOPLE ATTENDED. PHARMACEUTICAL MANUFACTURERS AND HOME CARE COMPANY REPRESENTATIVES EXHIBIT WITH INFORMATION ABOUT THE LATEST TOOLS & TECHNIQUES IN MANAGING BLEEDING DISORDERS. AVAILABLE INFORMATION INCLUDES: LATEST TREATMENTS AND MEDICATIONS, INSURANCE CO-PAYMENT ASSISTANCE PROGRAMS, HOME HEALTH SERVICES, UHF PROGRAM SERVICES AND RESOURCES, AND MORE. FEMALES & BLEEDING DISORDERS (FAB) CONFERENCE - 52 PEOPLE ATTENDED. JUST FOR WOMEN IN THE BLEEDING DISORDERS COMMUNITY, AGES 12 AND OLDER, INCLUDING THOSE WITH VON WILLEBRAND DISEASE, CARRIERS, MOMS OF AFFECTED CHILDREN, WIVES OF AFFECTED MEN, AND CAREGIVERS. PARTICIPANTS ENJOY WORKSHOPS AND INFORMATION SPECIFICALLY FOCUSED ON THE UNIQUE ISSUES ASSOCIATED WITH WOMEN AND BLEEDING DISORDERS. TEEN WEEKEND - 15 TEENS ATTENDED. A WEEKEND FOR TEENS WITH BLEEDING DISORDERS AND THEIR SIBLINGS, AGES 13-19 THAT INCLUDES INTERACTIVE EDUCATION WORKSHOPS, DISCUSSION GROUPS, AND RECREATIONAL ACTIVITIES MISCELLANEOUS SUPPORT GROUPS - 156 PEOPLE ATTENDED. PROVIDES AN OPPORTUNITY FOR PEOPLE WITH BLEEDING DISORDERS TO INTERACT AND LEARN FROM OTHERS IN THE GROUP. 81709 17044 FINANCIAL ASSISTANCE PROGRAMS: LIFELINE - A FUND THROUGH WHICH INDIVIDUALS WITH BLEEDING DISORDERS CAN RECEIVE FINANCIAL ASSISTANCE WITH HIGH INSURANCE PREMIUMS, COBRA PAYMENTS, AND OUT OF POCKET MEDICAL EXPENSES ASSOCIATED WITH THE DIAGNOSIS AND TREATMENT OF BLEEDING DISORDER. 8 PEOPLE WERE SERVED THROUGH THIS PROGRAM. HOLIDAY ASSISTANCE (SUB FOR SANTA) - 7 FAMILIES WERE SERVED. FAMILIES WITHIN THE BLEEDING DISORDERS COMMUNITY MAY NEED SOME EXTRA FINANCIAL ASSISTANCE TO SUPPORT THEIR FAMILY THROUGH THE HOLIDAY SEASON. 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FOR THE CHILDREN IN UTAH'S BLEEDING DISORDERS COMMUNITY, CAMP VALOR REPRESENTS THE FOUNDATION FOR EFFECTIVE LIFE-LONG MANAGEMENT OF A BLEEDING DISORDER. IT IS AT THIS CAMP THAT CHILDREN FIRST LEARN TO SELF-INFUSE. CAMPERS, ALSO, LEARN THE BASICS OF SELF-CARE REQUIRED FOR THE TREATMENT AND MANAGEMENT OF THEIR DISEASE STATE. BECAUSE OF THE SEVERITY OF THE CONDITION FROM WHICH THEY SUFFER, CHILDREN WITH HEMOPHILIA SELDOM HAVE THE OPPORTUNITY TO ENJOY MANY OF THE SAME PHYSICAL ACTIVITIES THAT THEIR UNAFFECTED PEERS DO. CAMP VALOR, ALLOWS CHILDREN WITH BLEEDING DISORDERS TO SPEND TIME OUTDOORS, RECREATING UNDER THE CONSTANT CARE AND SUPERVISION OF A FULL COMPLEMENT OF MEDICAL PROFESSIONALS. FOR MOST OF THESE CHILDREN, IT IS THE ONLY TIME THAT THEY CAN JUST BE KIDS. EVERYBODY'S HERE - 55 PEOPLE ATTENDED. A PROGRAM THAT BRINGS TOGETHER THE UHF, INDUSTRY PARTNERS, THE HEMOPHILIA TREATMENT CENTER STAFF, AND THE BLEEDING DISORDERS COMMUNITY. IT IS AN EVENING OF NETWORKING, INFORMATION, AND PEER SUPPORT. INFORMATIONAL EXHIBITS ARE PROVIDED BY PHARMACEUTICAL MANUFACTURERS AND HOME CARE COMPANIES, WHICH DISSEMINATE THE LATEST INFORMATION ON THE MANAGEMENT AND CARE OF BLEEDING DISORDERS. COMMUNITY MEMBERS ARE ABLE TO ASSOCIATE AND LEARN FROM ONE ANOTHER'S SHARED EXPERIENCES. FAMILY FEST & RESOURCE FAIR - 143 PEOPLE ATTENDED. PHARMACEUTICAL MANUFACTURERS AND HOME CARE COMPANY REPRESENTATIVES EXHIBIT WITH INFORMATION ABOUT THE LATEST TOOLS & TECHNIQUES IN MANAGING BLEEDING DISORDERS. AVAILABLE INFORMATION INCLUDES: LATEST TREATMENTS AND MEDICATIONS, INSURANCE CO-PAYMENT ASSISTANCE PROGRAMS, HOME HEALTH SERVICES, UHF PROGRAM SERVICES AND RESOURCES, AND MORE. FEMALES & BLEEDING DISORDERS (FAB) CONFERENCE - 52 PEOPLE ATTENDED. JUST FOR WOMEN IN THE BLEEDING DISORDERS COMMUNITY, AGES 12 AND OLDER, INCLUDING THOSE WITH VON WILLEBRAND DISEASE, CARRIERS, MOMS OF AFFECTED CHILDREN, WIVES OF AFFECTED MEN, AND CAREGIVERS. PARTICIPANTS ENJOY WORKSHOPS AND INFORMATION SPECIFICALLY FOCUSED ON THE UNIQUE ISSUES ASSOCIATED WITH WOMEN AND BLEEDING DISORDERS. TEEN WEEKEND - 15 TEENS ATTENDED. A WEEKEND FOR TEENS WITH BLEEDING DISORDERS AND THEIR SIBLINGS, AGES 13-19 THAT INCLUDES INTERACTIVE EDUCATION WORKSHOPS, DISCUSSION GROUPS, AND RECREATIONAL ACTIVITIES MISCELLANEOUS SUPPORT GROUPS - 156 PEOPLE ATTENDED. PROVIDES AN OPPORTUNITY FOR PEOPLE WITH BLEEDING DISORDERS TO INTERACT AND LEARN FROM OTHERS IN THE GROUP. FORM 990, PAGE 2, PART III, LINE 4B FINANCIAL ASSISTANCE PROGRAMS: LIFELINE - A FUND THROUGH WHICH INDIVIDUALS WITH BLEEDING DISORDERS CAN RECEIVE FINANCIAL ASSISTANCE WITH HIGH INSURANCE PREMIUMS, COBRA PAYMENTS, AND OUT OF POCKET MEDICAL EXPENSES ASSOCIATED WITH THE DIAGNOSIS AND TREATMENT OF BLEEDING DISORDER. 8 PEOPLE WERE SERVED THROUGH THIS PROGRAM. HOLIDAY ASSISTANCE (SUB FOR SANTA) - 7 FAMILIES WERE SERVED. FAMILIES WITHIN THE BLEEDING DISORDERS COMMUNITY MAY NEED SOME EXTRA FINANCIAL ASSISTANCE TO SUPPORT THEIR FAMILY THROUGH THE HOLIDAY SEASON. THE UHF PARTNERED WITH A LOCAL BUSINESS TO PROVIDE FOOD, CLOTHING AND TOYS FOR FAMILIES DETERMINED TO BE MOST IN NEED. FORM 990, PAGE 6, PART VI, LINE 11B UPON SUBMITTAL TO THE FOUNDATION'S OFFICE MANAGER, THE OFFICE MANAGER REVIEWS AND THEN SUBMITS THE RETURN TO THE PRESIDENT, EXECUTIVE COMMITTEE, AND DIRECTOR OF THE FOUNDATION FOR THEIR REVIEW AND APPROVAL PRIOR TO FILING. FORM 990, PAGE 6, PART VI, LINE 12C THE CONFLICT OF INTEREST POLICY IS CONSISENTLY MONITORED AND ENFORCED THROUGH ANNUAL DISCLOSURES BY OFFICERS AND DIRECTORS. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS ARE AVAILABLE AT THE ORGANIZATION'S OFFICE BY REQUEST. FORM 990, PART XI, LINE 9 SPECIAL EVENTS EXPENSES 0 SPECIAL EVENTS EXPENSES 0