2024-11-14T11:13:39-08:00 2023-12-31 451869055 Coworth Financial Services LLC 11155 Kenwood Road Suite 6D Cincinnati OH 45242 990EZ 2023-01-01 833436790 Pediatric Pulmonary Hypertension Network Inc PEDI 5133041212 The Heart Insititute 3333 Burnet 20 Cincinnati OH 45229 Russel Hirsch Treasurer 2024-11-14 true true Sarah E Williams P00301619 5136735469 2023 2024-10-15 13:58:12Z X X X https://pphnet.org/ X X 38145 X 6720 31425 0 0 0 0 38145 1213 48156 49369 -11224 98520 87296 98520 87296 98520 87296 98520 87296 To improve the health, quality of care and outcomes of children with pulmonary hypertension by enhancing collaborations amoung centers, in order to develop and apply novel strategies for early recognition and initiation of treament to reverse, prevent or slow the progression of the disease.To promote and conduct collaborative activities in research, education and training that leads to the develpment of effective therapies and their successful application.Consistant with the varied nature of the pediatric population served by Pulmonary Hypertension Providers, the network aims to ensure that membership and Network activites are inclusive and diverse. During the course of 2023, the Network continued to add patients into the registry. The registry serves as the basis for data collection that allows for the scientific process (i.e. collating data, outcomes, understanding the population) for publication purposes in scientific journals and presenting talks at national meetings. A summary of the publications from 2023 is included below. The network registry now includes more than 200 individual patients diagnosed with pulmonary hypertension.The Network itself comprises 13 major medical centers: Stanford University (Lucille Packard Childrens Hospital)University of San Francisco (Benioff Childrens Hospital)Childrens Hospital of ColoradoBoston Childrens HospitalJohns Hopkins Childrens CenterMorgan Stanley Childrens HospitalCincinnati Childrens Hospital Medical CenterChildrens Hospital of PhiladelphiaMonroe Carell Jr. Childrens HospitalTexas Childrens HospitalSeattle Childrens HospitalChildrens Hospital of WisconsinStollery Childrens HospitalPublications:Collaco JM, Abman SH, Austin ED, Avitabile CM, Bates A, Fineman JR, Freire GA, Handler SS, Ivy DD, Krishnan US, Mullen MP, Varghese NP, Yung D, Nies MK, Everett AD, Zimmerman KO, Simmons W, Chakraborty H, Yenokyan G, Newell-Sturdivant A, Christensen E, Eyzaguirre LM, Hanley DF, Rosenzweig EB, Romer LH. Kids Mod PAH trial: A multicenter trial comparing mono- versus duo-therapy for initial treatment of pediatric pulmonary hypertension. Pulm Circ. 2023 Oct 31;13(4):e12305.Avitabile CM, Yung D, Handler S, Hopper RK, Fineman J, Freire G, Varghese N, Mullen MP, Krishnan US, Austin E, Silveira L. Measurement of Physical Activity by Actigraphy in Infants and Young Children with Pulmonary Arterial Hypertension. The Journal of Pediatrics. 2023 Nov 1;262:113639.Rachel K. Hopper, Steven H. Abman, Eleni G. Elia, Catherine M. Avitabile, Delphine Yung, Mary P. Mullen, Eric D. Austin, Angela Bates, Stephanie S. Handler, Jeffrey A. Feinstein, D. Dunbar Ivy, John P. Kinsella, Kenneth D. Mandl, J. Usha Raj, Lynn A. Sleeper. Pediatric Pulmonary Hypertension Network Investigators. Pulmonary Hypertension in Children with Down Syndrome: Results from the Pediatric Pulmonary Hypertension Network Registry. J Pediatr 2023;252:131-40 48000 48000 Erika B Rosenzweig MD Director 3.00 0 Steve Abman MD Past Director 2.00 0 Mary Mullen MD Vice Director 2.00 0 Russel Hirsch MD Treasurer 3.00 0 Delphine Yung MD Secretary 2.00 0 false false false false false false false 0 0 0 false 0 0 false Russel Hirsch 3333 Burnet Avenue MLC 2003 Cincinnati OH 45229 5133041212 false false false false false false false false false false false NONE NONE true X Cincinnati Childrens Hospital Cincinnati OH Other Expenses.1002 Office Expenses $156 Other Expenses.1003 Information Technology $9778 Other Expenses.1007 Conferences, Conventions, and Meetings $10010 Other Expenses.1 Data Coordination Center $28212