2024-11-04T14:42:52-06:00 2024-05-31 363168081 SIKICH LLC 3051 HOLLIS DRIVE 3RD FLOOR SPRINGFIELD IL 62704 990 2023-06-01 770324654 NORTH AMERICAN ASSOCIATION OF CENTRAL CANCER REGISTRIES NORT 2176980800 2050 W ILES STE A SPRINGFIELD IL 62704 CHARLIE BLACKBURN CHIEF OPERATING OFFICER 2176980800 2024-11-01 1 1 BRIDGETTE MUGGE P00671418 2177933363 2024-11-01 2023 2024-10-15 13:58:12Z BETSY KOHLER 2050 W ILES STE A SPRINGFIELD IL 62704 4528861 0 X WWW.NAACCR.ORG X 1987 IL DEVELOPMENT/APPLICATION OF CANCER REGISTRATION 10 10 14 468 0 0 3584970 3339426 490127 653609 64159 119217 75 151 4139331 4112403 247499 268000 0 0 2141888 2261871 0 0 0 1978824 1753714 4368211 4283585 -228880 -171182 3234313 3259159 704807 800102 2529506 2459057 X NAACCR INC. IS A COLLABORATIVE UMBRELLA ORGANIZATION FOR CANCER REGISTRIES, GOVERNMENTAL AGENCIES, PROFESSIONAL ASSOCIATIONS AND PRIVATE GROUPS IN NORTH AMERICA INTERESTED IN ENHANCING THE QUALITY AND USE OF CANCER REGISTRY DATA. 0 0 1094916 210706 NCI CONTRACT - THE PURPOSE OF THE NCI CONTRACT IS TO ENHANCE NATIONAL CANCER SURVEILLANCE EFFORTS IN THREE SPECIFIC AREAS: 1. STRENGTHEN THE NATIONAL CAPACITY FOR COLLECTING, ANALYZING, AND USING COMPARABLE CANCER REGISTRY DATA FOR CANCER SURVEILLANCE AND RESEARCH. 2. DEVELOP AND IMPROVE METHODS FOR ASSESSING THE QUALITY AND COMPARABILITY OF CANCER REGISTRY DATA. THIS INCLUDES, BUT IS NOT LIMITED TO TIMELINESS, COMPLETENESS, AND ACCURACY. 3. IMPROVE THE EFFICIENCY AND QUALITY OF REGISTRY OPERATIONS THROUGH PROMOTING ESTABLISHED STANDARDS, DISSEMINATING TECHNICAL INFORMATION, AND FACILITATING COLLAOBRATION AMONG FEDERAL, STATE, PROVINCIAL AND LOCAL REGISTRY PROFESSIONALS. 813821 251000 156612 NATIONAL CHILDHOOD CANCER REGISTRY (NCCR) - THE PURPOSE OF THIS TASK ORDER IS TO CREATE A COORDINATING CENTER SUPPORTING THE NCCR - AN AGGREGATED NATIONAL LEVEL CHILDHOOD CANCER PATIENT DATABASE IN PARTNERSHIP WITH MANY LEADING PEDIATRIC ONCOLOGY ORGANIZATIONS ACROSS THE U.S. 381803 73474 CDC COOPERATIVE AGREEMENT - THE TITLE OF THE PROGRAM IS THE NATIONAL PARTNERSHIPS TO PROMOTE CANCER SURVEILLANCE STANDARDS AND SUPPORT DATA QUALITY AND OPERATIONS OF NATIONAL PROGRAM OF CANCER REGISTRIES, EDUCATION, STANDARDS, AND TRANSLATION. NAACCR WORKS COLLABORATIVELY WITH NPCR LEADERSHIP TO SUPPORT THE DEVELOPMENT, PROMOTION, MAINTENANCE, AND COMMUNICATION OF DATA STANDARDS FOR POPULATION-BASED CENTRAL CANCER REGISTRATION. IMPROVE CENTRAL CANCER REGISTRY OPERATIONS THROUGH THE DEVELOPMENT AND DISSEMINATION OF DOCUMENTED BEST PRACTICES. INCREASE REPORTING VIA ELECTRONIC MECHANISMS AND MEANINGFUL USE IMPLETMENTATION. 1106668 17000 212968 NACDDTHE PURPOSE OF THIS PROJECT IS TO ASSIST NACDD IN IDENTIFYING AND IMPLEMENTING BEST PRACTICES FOR REGISTRY OPERATIONS. THE NAACCR WILL ADVISE ON THE TECHNICAL ASPECTS OF THE STATISTICAL COMPLETENESS ESTIMATE REVIEW AND THE IMPLEMENTATION OF BEST PRACTICES. NAACCR WILL UTILIZE IT/DATA SERVICE CONTRACTORS TO PROVIDE PROGRAMMING SUPPORT TO THE EXPERT PANEL ADDRESSING THE STATISTICAL ASPECTS OF THE COMPLETENESS ESTIMATE. NAACCR WILL ALSO INSTITUTE AN APPLICATION PROCESS FOR CANCER REGISTRIES WHO HAVE NOT MET THE NPCR 12MONTH COMPLETENESS STANDARDS.VIRTUAL POOLED REGISTRY THE PURPOSE OF THE VPR PROJECT IS TO DESIGN A PROCESS BY WHICH RESEARCH DATA FILES CAN BE LINKED WITH MULTIPLE STATE CANCER REGISTRIES WITH A SIGNIFICANTLY LOWER INVESTMENT IN COST AND TIME FOR THE PUPOSE OF PROVIDING CANCER DIAGNOSIS AND FOLLOW-UP INFORMATION ON PATIENTS THAT MAY EXIST IN A CENTRAL CANCER REGISTRY'S DATABASE. A "ONE STOP SHOP" WILL BE CREATED THROUGH WITH AN INTERESTED RESEARCHER COULD SUBMIT A SINGLE RESEARCH APPLICATION AND ONE RESERCH FILE WHICH WOULD UNDERGO ONE STANDARDIZED LINKAGE SIMULTANEOUSLY AT MULTIPLE REGISTRIES. SYSTEM WILL BE TESTED TO DE-DUPLICATE CASE REPORTS BETWEEN STATES AND SHARE FOLLOW UP AND TREATMENT INFORMATION. 1106668 17000 212968 3397208 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 25 0 14 1 0 0 0 0 0 0 0 0 0 0 0 0 X 10 10 0 0 0 0 1 1 1 1 1 0 0 1 1 1 1 1 1 1 1 0 IL X X ADELE HILEMAN 2176980800 2050 W ILES STE A SPRINGFIELD IL 62704 WENDY ALDINGER PRESIDENT 1.00 X 0 0 0 WINNY ROSHALA PAST-PRESIDENT 1.00 X 0 0 0 KEVID WARD TREASURER 1.00 X X 0 0 0 LORI SWAIN SMO REPRESENTATIVE 1.00 X 0 0 0 MONIQUE HERNANDEZ REP-AT-LARGE 1.00 X 0 0 0 JOSHUA MAZURYK REP-AT-LARGE 1.00 X 0 0 0 LIHUA LIU REP-AT-LARGE 1.00 X 0 0 0 BOZENA MORAWSKI REP-AT-LARGE 1.00 X 0 0 0 LORI KOCH REP-AT-LARGE 1.00 X 0 0 0 SARAH NASH REP-AT-LARGE 1.00 X 0 0 0 BETSY KOHLER EXECUTIVE DIRECTOR 37.50 X 241942 0 20119 CHARLIE BLACKBURN CHIEF OPERATING OFFICE 37.50 X 164954 0 23894 STEPHANIE HILL ASSOCIATE DIRECTOR 37.50 X 164036 0 21155 JIM HOFFERKAMP PROGRAM MANAGER 37.50 X 134063 0 22209 KAREN KNIGHT CHIEF OF REGISTRY DEVELOPMENT 37.50 X 146592 0 37365 ADELE HILEMAN CONTROLLER 37.50 X 132260 0 24183 CASTINE CLERKIN PROGRAM MANAGER 37.50 X 129052 0 28182 FERNANDA SILVA MICHELS PROGRAM MANAGER 37.50 X 103512 0 19006 1216411 0 196113 10 0 1 0 INFORMATION MANAGEMENT SYSTEMS 6110 EXECUTIVE BOULEVARD SUITE 310 ROCKVILLE MD 20852 CANCER SURVEILLANCE TECH ASSISTANCE 488089 TEXAS A&M 400 HARVEY MITCHELL PKY S STE 300 COLLEGE STATION TX 77845 GEOCODER APPLICATION CONSULTANT 204932 2 3319426 20000 3339426 WEBINAR 611710 332518 332518 CONFERENCE REGISTRATIO 611710 153130 153130 MEMBERSHIP DUES 611710 125921 125921 CONSULTING FEE REVENUE 611710 36000 36000 EXHIBITOR INCOME 611710 6040 6040 653609 65715 65715 469960 416458 53502 53502 53502 MISCELLANEOUS 611710 151 151 151 4112403 653760 0 119217 268000 268000 659956 406330 253626 1210286 1062390 147896 71574 63031 8543 184884 151372 33512 135171 107159 28012 33924 33924 11215 11215 354064 291882 62182 11682 7679 4003 141136 16608 124528 42932 42932 141595 121196 20399 234566 233551 1015 52754 52754 10091 10091 CONTRACTED SERVICES 543073 543073 AUDIO VISUAL 85059 85059 BANK CHARGES 48190 12762 35428 SUPPLIES 24066 17906 6160 19367 9210 10157 4283585 3397208 886377 0 71396 313410 455731 324069 580092 634684 143480 96435 595963 282292 322414 313671 1581000 1438395 80200 138495 3234313 3259159 299377 343315 215230 318292 190200 138495 704807 800102 X 2529506 2459057 2529506 2459057 3234313 3259159 -171182 100733 0 X 0 1 X 1 0 X 2623376 2981764 3198319 3584970 3339426 15727855 2623376 2981764 3198319 3584970 3339426 15727855 15727855 45579 31645 59558 61636 65715 264133 15991988 2734656 0.98350 0.98340 X 0.98600 0.01400 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 595963 282292 313671 313671 OPERATING LEASE 138495 138495 X 4201921 100733 100733 4101188 11215 11215 4112403 4272370 0 4272370 11215 11215 4283585 PART X, LINE 2: THE ASSOCIATION IS A NOT-FOR-PROFIT ORGANIZATION EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE UNITED STATES INTERNAL REVENUE CODE. THE ASSOCIATION IS NOT CONSIDERED TO BE A PRIVATE FOUNDATION. THE ASSOCIATION FOLLOWS GUIDANCE ISSUED BY THE FINANCIAL ACCOUNTING STANDARDS BOARD (FASB) ON ACCOUNTING FOR INCOME TAXES AND HAS EVALUATED ITS TAX POSITIONS, EXPIRING STATUTES OF LIMITATIONS, AUDITS, PROPOSED SETTLEMENTS, CHANGES IN TAX LAW AND NEW AUTHORITATIVE RULINGS, AND BELIEVES THAT NO PROVISION FOR INCOME TAXES IS NECESSARY TO COVER ANY UNCERTAIN TAX POSITIONS. THE ASSOCIATION'S RETURN FOR TAX YEARS 2020 AND LATER REMAIN SUBJECT TO EXAMINATION BY TAXING AUTHORITIES. 1 FLORIDA CANCER DATA SYSTEMUNIVERSITY OF MIAMI ORA PO BOX 405803 ATLANTA GA 303845803 590624458 GOV 21500 0 CONTRIBUTION ALASKA CANCER REGISTRYHAVRS PO BOX 110675 JUNEAU AK 998110675 926001185 GOV 9500 0 CONTRIBUTION ARKANSAS DEPT OF HEALTH 4815 W MARKHAM SLOT 19 LITTLE ROCK AR 722053867 716007358 GOV 42000 0 CONTRIBUTION TREASURER STATE OF MAINEMAINE CANCER REGISTRY 220 CAPITOL ST 11 STATE HOUSE AUGUSTA ME 043330011 016000001 GOV 9500 0 CONTRIBUTION MT DPHHS 1400 BROADWAY RM C317 HELENA MT 596202952 810302402 GOV 9500 0 CONTRIBUTION NEBRASKA DEPT OF HEALTH & HUMAN SERVICES PO BOX 95026 LINCOLN NE 68509 470491233 GOV 8000 0 CONTRIBUTION ND STATEWIDE CANCER REGISTRY 1301 N COLUMBIA RD STOP 9037 GRAND FORKS ND 58202 456002491 GOV 8000 0 CONTRIBUTION OHIO DEPARTMENT OF HEALTH PO BOX 15278 COLUMBUS OH 43215 311334820 GOV 23000 0 CONTRIBUTION CURATORS OF THE UNIVERSITY OF MISSOURI PO BOX 807012 KANSAS CITY MO 641807012 436003859 GOV 7000 0 CONTRIBUTION RHODE ISLAND GENERAL TREASURER 3 CAPITOL HILL RM 409 PROVIDENCE RI 02908 056000522 GOV 8000 0 CONTRIBUTION NORTH CAROLINA CENTRAL CANCER REGISTRY 1908 MAIL SERVICE CENTER RALEIGH NC 276991908 562033116 GOV 7000 0 CONTRIBUTION VIRGINIA CANCER REGISTRY 109 GOVERNOR ST 10TH FLR RICHMOND VA 23219 546001775 GOV 8000 0 CONTRIBUTION OEPS DIVISION OF CANCER EPIDEMIOLOGY 350 CAPITOL ST RM 125 CHARLESTON WV 253013715 556000810 GOV 8000 0 CONTRIBUTION TRUSTEES OF DARTMOUTH NEW HAMPSHIRE STATE REGISTRY PO BOX 186 HANOVER NH 03755 020222111 GOV 7000 0 CONTRIBUTION OREGON STATE CANCER REGISTRY 3181 SW SAM JACKSON PARK RD PORTLAND OR 97239 930576060 GOV 26000 0 CONTRIBUTION PENNSYLVANIA CANCER REGISTRY 555 WALNUT ST - 6TH FLR HARRISBURG PA 171011914 236003104 GOV 21500 0 CONTRIBUTION SOUTH CAROLINA CENTRAL CANCER REGISTRY 2600 BULL ST COLUMBIA SC 29201 576000286 GOV 9500 0 CONTRIBUTION REGENTS OF UC DAVIS PO BOX 741816 LOS ANGELES CA 900741816 946036494 GOV 7000 0 CONTRIBUTION WISCONSIN CANCER REPORTING SYSTEM PO BOX 2659 MADISON WI 537012659 396006469 GOV 8750 0 CONTRIBUTION COLORADO CENTRAL CANCER REGISTRY 4300 CHERRY CREEK DRIVE SOUTH DENVER CO 802461530 830208667 GOV 10250 0 CONTRIBUTION 20 PART I, LINE 2: THE EXECUTIVE DIRECTOR (ED), AS PRINCIPAL INVESTIGATOR OF COOPERATIVE AGREEMENTS, CONTRACTS, OR GRANTS SHALL HAVE FULL AUTHORITY OF ALL APPROVED EXPENSES. THE ED SHALL INFORM THE BOARD OF ANY SIGNIFICANT CHANGES TO FUNDING LEVELS OF AT THE FOLLOWING BOARD MEETING. X X X 0 0 0 0 0 0 0 0 0 BETSY KOHLER EXECUTIVE DIRECTOR 236119 0 5823 0 0 0 14365 0 5754 0 262061 0 0 0 CHARLIE BLACKBURN CHIEF OPERATING OFFICE 164954 0 0 0 0 0 9977 0 13917 0 188848 0 0 0 STEPHANIE HILL ASSOCIATE DIRECTOR 164036 0 0 0 0 0 9977 0 11178 0 185191 0 0 0 KAREN KNIGHT CHIEF OF REGISTRY DEVELOPMENT 146592 0 0 0 0 0 9471 0 27894 0 183957 0 0 0 CASTINE CLERKIN PROGRAM MANAGER 129052 0 0 0 0 0 8098 0 20084 0 157234 0 0 0 ADELE HILEMAN CONTROLLER 132260 0 0 0 0 0 7899 0 16284 0 156443 0 0 0 JIM HOFFERKAMP PROGRAM MANAGER 134063 0 0 0 0 0 8066 0 14143 0 156272 0 0 0 FORM 990, PART VI, SECTION A, LINE 6 THE ORGANIZATION HAS FULL MEMBERS AND SPONSORING MEMBERS. FORM 990, PART VI, SECTION A, LINE 7A MEMBERS WHO ELECT THE GOVERNING BODY ARE COMPRISED OF REPRESENTATIVES FROM FULL MEMBERS AND SPONSORING MEMBERS. FULL MEMBER ORGANIZATIONS ARE CENTRAL REGISTRIES, WHICH ARE, OR HAVE THE POTENTIAL TO BECOME POPULATION-BASED REGISTRIES. SPONSORING MEMBER ORGANIZATIONS ARE NATIONAL PROFESSIONAL OR NATIONAL GOVERNMENTAL ORGANIZATIONS PRIMARILY INVOLVED IN ANY OF THE FOLLOWING AREAS: CANCER EPIDEMIOLOGY, PATIENT CARE, CANCER CONTROL, CANCER REGISTRATION, PROFESSIONAL EDUCATION, RESEARCH, OR BIOSTATISTICS. FORM 990, PART VI, SECTION A, LINE 7B THE ONLY DECISIONS THAT REQUIRE APPROVAL BY MEMBERS ARE AMENDMENTS TO THE BYLAWS. FORM 990, PART VI, SECTION B, LINE 11B THE AUDIT FIRM PRESENTS THE COMPLETE AUDIT AND 990 ANNUALLY AT THE OCTOBER BOARD MEETING. THE 990 IS SENT TO THE BOARD ELECTRONICALLY FOR THEIR REVIEW PRIOR TO THE MEETING. ADDITIONALLY, THE 990 IS POSTED TO THE NAACCR WEB SITE FOR BOARD AND PUBLIC REVIEW. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED ANNUALLY BY THE BOARD. THE POLICY IS AVAILABLE FOR REVIEW AT ANYTIME ON THE NAACCR SECURE BOARD WEB SITE AS WELL AS THE PUBLIC WEB SITE UNDER "POLICIES" ON THE "GOVERNANCE" WEB PAGE. THE BOARD SELF-ENFORCES THE POLICY WITH ASSISTANCE FROM THE BOARD SECRETARY, THE NAACCR EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR KEY PERSONNEL IS DETERMINED BY SEVERAL FACTORS. THESE INCLUDE CONSIDERATION OF THE CURRENT SALARY RANGE OF THE POSITION. BUDGET FOR THE POSISTION; EXPERIENCE OF THE INDIVIDUAL; EDUCATIONAL QUALIFICATIONS; MARKET CONDITIONS FOR ATTRACTING AND RETAINING THE POSITION HELD BY THE PERSON; AND OVERALL PERFORMANCE OF THE INDIVIDUAL IF THEY ARE A CURRENT EMPLOYEE. SALARY RANGES FOR ALL POSITIONS ARE APPROVED BY THE NAACCR BOARD. THE NAACCR BOARD APPROVES THE COMPENSATION OF THE EXECUTIVE DIRECTOR. ALL OTHER POSITION'S COMPENSATIONS ARE DETERMINED BY THE EXECUTIVE DIRECTOR. COMPENSATION FOR ALL EMPLOYEES IS REVIEWED BY THE NAACCR BOARD. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS SUCH AS POLICIES, BYLAWS, STANDING RULES, AND THE 990 FORM ARE PUBLICALLY POSTED ON THE NAACCR WEB SITE. THEY ARE CLEARLY MARKED AND AVAILABLE ON OUR GOVERNANCE WEB PAGE. THE NAACCR MONTHLY FINANCIAL STATEMENT PRESENTATIONS TO THE BOARD ARE RECORDED IN THE MONTHLY MINUTES. THESE ARE AVAILABLE PUBLICALLY ON THE NAACCR BOARD WEB PAGE. THE ANNUAL BUSINESS MEETING AGENDA IS ALSO PUBLICALLY AVAILABLE ON THE NAACCR WEB SITE.