2024-10-29T14:29:14-05:00 2024-06-30 BDO USA 225 NE MIZNER BLVD SUITE 685 BOCA RATON FL 33432 990 2023-07-01 131866796 Parkinson's Foundation Inc % MARK E KEAVEY PARK 8004734636 1359 Broadway Suite 1509 New York NY 10018 MARK E KEAVEY CFO 8004736363 2024-10-25 true true JACOB COOK P01240455 5619092100 2024-10-25 2023 2024-10-15 13:58:12Z JOHN L LEHR 1359 Broadway Ste 1509 New York NY 10018 70108403 false X WWW.PARKINSON.ORG X 1957 NY MAKE LIFE BETTER FOR PEOPLE WITH PARKINSON'S DISEASE BY IMPROVING CARE AND ADVANCING RESEARCH TOWARD A CURE. 27 27 188 3400 0 0 47794248 53846552 0 0 539236 2115636 0 0 48333484 55962188 12653388 11250290 0 0 17398149 19423185 0 0 6468694 18489777 21303797 48541314 51977272 -207830 3984916 47034483 62045139 15025829 23990119 32008654 38055020 X THE FOUNDATION'S MISSION IS TO MAKE LIFE BETTER FOR PEOPLE WITH PARKINSON'S DISEASE BY IMPROVING CARE AND ADVANCING RESEARCH TOWARD A CURE. IN EVERYTHING WE DO, WE BUILD ON THE ENERGY, EXPERIENCE AND PASSION OF OUR GLOBAL PARKINSON'S COMMUNITY.(CONTINUED ON SCHEDULE O) false false 15468884 5965593 0 PILLAR 2 - ADVANCING PARKINSON'S DISEASE (PD) RESEARCH: WE CLOSE FUNDING GAPS THAT WILL LEAD US TO A CURE. WE SUPPORT A RANGE OF INITIATIVES GEARED TOWARD ENDING PARKINSON'S. OUR GRANTS AND FELLOWSHIPS SUPPORT CUTTING-EDGE RESEARCH DONE BY SCIENTISTS WHO ARE DEVOTED TO DECIPHERING PARKINSON'S AND FINDING NEW WAYS TO ATTACK IT AND STOP IT FROM PROGRESSING. WE FUND INNOVATIVE DRUG DISCOVERY THROUGH THE PARKINSON'S VIRTUAL BIOTECH, WHICH IS BUILDING A PIPELINE OF NEW DRUGS EXCLUSIVELY FOR PARKINSON'S DISEASE. THE PARKINSON'S VIRTUAL BIOTECH KEEPS NEW DRUGS FUNDED AND MOVING THROUGH THE DEVELOPMENT PROCESS. OUR GROUNDBREAKING (CONTINUED ON SCHEDULE O) 10273565 3793594 0 PILLAR 1 - ENSURING BETTER CARE FOR EVERYONE: WE SET STANDARDS FOR EXPERT PARKINSON'S CARE THROUGH A GLOBAL CARE NETWORK. OUR DESIGNATED CENTERS ARE RENOWNED FOR OUTSTANDING PERFORMANCE IN PARKINSON'S RESEARCH, CARE AND OUTREACH. WE CONTINUE TO GROW THIS NETWORK AND FACILITATE INNOVATIVE SOLUTIONS LIKE TELEMEDICINE CARE TO REACH THE 90% OF PEOPLE WHO ARE NOT RECEIVING CARE FROM TRAINED SPECIALISTS. RESPONDING TO A NATIONWIDE SHORTAGE OF TRAINED SPECIALISTS, WE ARE CLOSING THE GAP IN PD PROFESSIONAL TRAINING BY EDUCATING PHYSICIANS, NURSES, PHYSICAL THERAPISTS, SPEECH LANGUAGE THERAPISTS AND SOCIAL WORKERS. THE NEXT GENERATION OF HEALTHCARE PROFESSIONALS MUST BE EQUIPPED WITH THE (CONTINUED ON SCHEDULE O) 17517784 1491103 0 PILLAR 3 - EDUCATING AND EMPOWERING THE PARKINSON'S COMMUNITY: WE PROVIDE A VARIETY OF IN-PERSON AND VIRTUAL RESOURCES, HELPING EVERYONE LIVE BETTER WITH PARKINSON'S. THE FOUNDATION IS THE FIRST ORGANIZATION TO FORM A PARKINSON'S ADVISORY COUNCIL AND THE FIRST TO TRAIN PEOPLE WITH PD TO PARTNER WITH SCIENTISTS ON RESEARCH. WE HELP PEOPLE LIVE WELL WITH PD BY PROVIDING FREE RESOURCES, INCLUDING AN INTERACTIVE VIRTUAL SERIES, PD HEALTH @ HOME, WHICH FEATURES EVENTS FOCUSED ON WELLNESS, EXERCISE AND MENTAL HEALTH, A NEWLY DIAGNOSED GUIDE DESIGNED TO HELP PEOPLE WITH PARKINSON'S AND THEIR LOVED ONES GET STARTED ON THEIR PD JOURNEY AND A TOLL-FREE HELPLINE STAFFED BY PARKINSON'S (CONTINUED ON SCHEDULE O) 43260233 true true false true false false false false false true true false false false true true true false false false true true true true true false false true true true false false false false false false false false true false false false false false false false false true 245 0 true 188 true false false false false false true true false false false false false false X 27 27 false false false false false false false true true false true true true true true true true true true true false AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA PR RI SC SD TN TX VT VA WA WV WI WY X X X MARK E KEAVEY 3055379903 1359 BROADWAY STE 1509 NEW YORK NY 10018 X JOHN L LEHR PRESIDENT & CEO 40.0 0.0 X 455559 0 27184 MERI MARGARET DEOUDES SVP CHIEF OPERATING OFFICER 40.0 0.0 X 268572 0 44286 KAYLN HENKEL SVP, CHIEF ADVANCEMENT OFFICER 40.0 0.0 X 250159 0 43365 JAMES BECK SVP, CHIEF SCIENTIFIC OFFICER 40.0 0.0 X 254887 0 16703 LEILANI PEARL SVP CHIEF COMM. OFFICER 40.0 0.0 X 235385 0 22453 MARK KEAVEY SVP, CHIEF FINANCIAL OFFICER 40.0 0.0 X 230344 0 16645 CHRISTIANA EVERS VP, CHIEF COMM. ENG. OFFICER 40.0 0.0 X 208694 0 31882 ELIZABETH POLLARD VP CHIEF TRAINING & EDU. OFC. 40.0 0.0 X 182902 0 39973 SHEERA ROSENFELD VP, STRATEGIC INITIATIVES 40.0 0.0 X 181881 0 37988 YASNAHIA CORTORREAL VP, CHIEF HR & ADMIN. 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IN ITS FISCAL YEAR 2024, THE FOUNDATION ENCOURAGED PARKINSON'S DISEASE ADVOCATES AND VOLUNTEERS TO CONTACT THEIR SENATORS AND REPRESENTATIVES TO SUPPORT PASSAGE OF THE NATIONAL PLAN TO END PARKINSON'S. ON JULY 2, 2024, PRESIDENT BIDEN SIGNED THIS LEGISLATION INTO LAW. THIS IS THE FIRST-EVER FEDERAL LEGISLATION DEDICATED TO ENDING PARKINSON'S DISEASE. WAYS THIS LEGISLATION CAN MAKE AN IMPACT INCLUDE THE FOLLOWING: 1. DRAMATICALLY INCREASE FEDERAL RESEARCH FUNDING 2. DEVELOPING MORE EFFECTIVE PATHWAYS FOR TREATMENTS AND CURES 3. IMPROVING EARLY DIAGNOSIS 4. SPARKING NEW AND IMPROVED MODELS FOR PATIENT CARE 5. ADDRESSING HEALTH DISPARITIES IN DIAGNOSIS, TREATMENT, AND CLINICAL TRIAL PARTICIPATION 3851834 1253033 531850 5636717 3601834 250000 268899 268899 3851834 3601834 357771 357771 3601834 3601834 615093 615093 3601834 3601834 54239 54239 3601834 0.00000 1.00000 0.00000 true false 658743 549605 109138 2747217 2171999 575218 495620 54518 441102 1125458 0 LEASE LIABILITIES 593248 ANNUITIES PAYABLE 326400 919648 X 154759979 2114450 96839949 98954399 55805580 156608 156608 55962188 149420425 96839949 706812 97546761 51873664 156608 -53000 103608 51977272 SCHEDULE D, PART V: THE PARKINSON'S FOUNDATION HAS RECEIVED GIFTS AND BEQUESTS FROM DONORS WHO DESIGNATED THAT THE FUNDS BE HELD AND INVESTED IN PERPETUITY AS ENDOWMENT FUNDS. DEPENDING ON THE DONOR'S INSTRUCTIONS, INCOME FROM ENDOWMENTS MAY BE APPLIED TO RESEARCH, OTHER PROGRAMS OR FOR GENERAL PURPOSES. SCHEDULE D, PART X, LINE 2: THE FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE CODE AND FROM STATE INCOME TAXES UNDER SIMILAR PROVISIONS OF THE NEW YORK STATUTES AS A CHARITABLE ORGANIZATION WHEREBY ONLY UNRELATED BUSINESS INCOME, AS DEFINED BY SECTION 509(A)(1) OF THE CODE, IS SUBJECT TO FEDERAL INCOME TAX. THE FOUNDATION CURRENTLY HAS NO UNRELATED BUSINESS INCOME. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN RECORDED AS OF JUNE 30, 2024 AND 2023. THE ORGANIZATION HAS NOT TAKEN AN UNCERTAIN TAX POSITION THAT WOULD REQUIRE PROVISION OF A LIABILITY UNDER FINANCIAL ACCOUNTING STANDARDS BOARD ("FASB") ACCOUNTING STANDARDS CODIFICATION ("ASC") 740, INCOME TAXES. UNDER ASC 740, AN ORGANIZATION MUST RECOGNIZE THE FINANCIAL STATEMENT EFFECTS OF A TAX POSITION TAKEN FOR TAX RETURN PURPOSES WHEN IT IS MORE LIKELY THAN NOT THAT THE POSITION WILL NOT BE SUSTAINED UPON EXAMINATION BY A TAXING AUTHORITY. THE FOUNDATION DOES NOT BELIEVE THERE ARE ANY MATERIAL UNCERTAIN TAX POSITIONS AND, ACCORDINGLY, IT WILL NOT RECOGNIZE THE FINANCIAL STATEMENT EFFECTS FOR UNRECOGNIZED TAX POSITIONS FOR THE YEARS ENDED JUNE 30, 2024 AND 2023. THE FOUNDATION HAS FILED FOR, AND RECEIVED, INCOME TAX EXEMPTIONS IN THE JURISDICTIONS WHERE IT IS REQUIRED TO DO SO. ADDITIONALLY, THE FOUNDATION HAS FILED IRS FORM 990, AS REQUIRED, AND ALL OTHER APPLICABLE RETURNS IN JURISDICTIONS WHERE IT IS REQUIRED. THE U.S. FEDERAL JURISDICTION IS THE MAJOR TAX JURISDICTIONS WHERE THE FOUNDATION FILES INCOME TAX RETURNS. THE FOUNDATION IS GENERALLY NO LONGER SUBJECT TO U.S. FEDERAL OR STATE EXAMINATIONS BY TAX AUTHORITIES FOR FISCAL YEARS BEFORE 2021. SCHEDULE D, PART XII, LINE 2D: SPECIAL EVENT COSTS OF $706,812. SCHEDULE D, PART XII, LINE 4B: REVERSED OFF GRANTS EXPENSES 705,056 LOSS ON UNCOLLECTIBLE PLEDGES (758,056) (53,000) true North America 0 0 Grantmaking 548059 Europe (Including Iceland and Greenland) 0 0 Grantmaking 504107 East Asia and the Pacific 0 0 Grantmaking 180000 Middle East and North Africa 0 0 Grantmaking 125000 Central America and the Caribbean 0 0 Grantmaking 25000 South America 0 0 Grantmaking 22500 South Asia 0 0 Grantmaking 5000 0 0 0 0 1409666 1409666 North America 192976 CHECK North America 102517 CHECK Europe (Including Iceland and Greenland) 100000 CHECK Middle East and North Africa 75000 CHECK North America 63641 CHECK North America 60000 CHECK Europe (Including Iceland and Greenland) 60000 CHECK East Asia and the Pacific 60000 CHECK East Asia and the Pacific 60000 CHECK East Asia and the Pacific 60000 CHECK North America 60000 CHECK North America 60000 CHECK Europe (Including Iceland and Greenland) 60000 CHECK Europe (Including Iceland and Greenland) 60000 CHECK North America 60000 CHECK Europe (Including Iceland and Greenland) 60000 CHECK Europe (Including Iceland and Greenland) 51000 CHECK Europe (Including Iceland and Greenland) 50107 CHECK Middle East and North Africa 50000 CHECK Europe (Including Iceland and Greenland) 30000 CHECK South America 20000 CHECK North America 19000 CHECK Europe (Including Iceland and Greenland) 19000 CHECK 0 26 CLINICAL RESEARCH Central America and the Caribbean 25000 false false false false false false SCHEDULE F, PART I, LINE 2: ALL GRANT RECIPIENTS (DOMESTIC & FOREIGN) MAKE A FULL WRITTEN REPORT OF THE UTILIZATION OF FUNDS AWARDED BY PF'S SCIENTIFIC ADVISORY BOARD AND GRANT ADMINISTRATION AT PF. 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(DOMESTIC & FOREIGN) MAKE A FULL WRITTEN REPORT OF THE UTILIZATION OF FUNDS AWARDED BY PF. X X X false false false false false false false false false JOHN L LEHR PRESIDENT & CEO 397809 0 57750 0 0 0 16500 0 10684 0 482743 0 0 0 MERI MARGARET DEOUDES SVP CHIEF OPERATING OFFICER 245822 0 22750 0 0 0 13429 0 30857 0 312858 0 0 0 KAYLN HENKEL SVP, CHIEF ADVANCEMENT OFFICER 232311 0 17848 0 0 0 12508 0 30857 0 293524 0 0 0 JAMES BECK SVP, CHIEF SCIENTIFIC OFFICER 237045 0 17842 0 0 0 12744 0 3959 0 271590 0 0 0 LEILANI PEARL SVP CHIEF COMM. OFFICER 218809 0 16576 0 0 0 11769 0 10684 0 257838 0 0 0 MARK KEAVEY SVP, CHIEF FINANCIAL OFFICER 220500 0 9844 0 0 0 11517 0 5128 0 246989 0 0 0 CHRISTIANA EVERS VP, CHIEF COMM. ENG. OFFICER 193630 0 15064 0 0 0 10435 0 21447 0 240576 0 0 0 ELIZABETH POLLARD VP CHIEF TRAINING & EDU. OFC. 169402 0 13500 0 0 0 9145 0 30828 0 222875 0 0 0 SHEERA ROSENFELD VP, STRATEGIC INITIATIVES 181881 0 0 0 0 0 9094 0 28894 0 219869 0 0 0 YASNAHIA CORTORREAL VP, CHIEF HR & ADMIN. OFFICER 183172 0 14060 0 0 0 9862 0 10666 0 217760 0 0 0 NICOLE YARAB VP CLINICAL AFFRS/ INFO RSRCS 173214 0 0 0 0 0 8661 0 21610 0 203485 0 0 0 ALEJANDRO BLANCO AVP FINANCE 169509 0 0 0 0 0 8475 0 10005 0 187989 0 0 0 AJAY SHARMA COMPTROLLER 163700 0 0 0 0 0 8185 0 3904 0 175789 0 0 0 ADOLFO DIAZ AVP INFORMATION & RESOURCES 127926 0 0 0 0 0 6396 0 30700 0 165022 0 0 0 X 35 1113522 FMV false true false FORM 990, PART III, LINE 1 (CONTINUED): AS A NATIONAL ORGANIZATION WITH A LOCAL PRESENCE AND IMPACT, THE FOUNDATION BRINGS HELP AND HOPE TO AN ESTIMATED ONE MILLION INDIVIDUALS IN THE UNITED STATES AND TEN MILLION INDIVIDUALS WORLDWIDE WHO ARE LIVING WITH PARKINSON'S. THE THREE PILLARS OF OUR MISSION ARE RESEARCH, CARE AND EDUCATION: OUR VISION: RESEARCH NEW DISCOVERIES PREVENT, CONTROL AND WILL ULTIMATELY CURE THE DISEASE FOR ALL PEOPLE WITH PARKINSON'S. - PRIORITY 1: IDENTIFY AND FUND THE MOST PROMISING PATHWAYS TO NEW AND BETTER THERAPIES AND ULTIMATELY A CURE. - PRIORITY 2: GENERATE AND DISTRIBUTE MORE DATA AND PUT THESE FINDINGS RIGHT TO WORK TO IMPROVE PARKINSON'S HEALTH OUTCOMES AND QUALITY OF LIFE. - PRIORITY 3: BUILD INCREASED CAPACITY FOR RESEARCH DEVELOPMENT BY LEVERAGING EXISTING PARTNERSHIPS AND NURTURING A PIPELINE OF NEUROSCIENCE INVESTIGATORS. OUR VISION: IMPROVED CARE ALL PEOPLE WITH PARKINSON'S HAVE ACCESS TO EQUITABLE AND QUALITY CARE. - PRIORITY 1: IDENTIFY BEST PRACTICES OF QUALITY, PATIENT-CENTERED PARKINSON'S DISEASE CARE. - PRIORITY 2: DRIVE ADOPTION OF BEST-PRACTICE CARE ACROSS DISCIPLINES. - PRIORITY 3: REDUCE BARRIERS THAT LIMIT ACCESS TO QUALITY CARE. OUR VISION: EDUCATION AND EMPOWERMENT ALL PEOPLE AFFECTED BY PARKINSON'S HAVE THE INFORMATION AND RESOURCES THEY NEED. - PRIORITY 1: DEVELOP NEW TOOLS AND RESOURCES IN RESPONSE TO NEEDS OF PEOPLE AFFECTED BY PARKINSON'S. - PRIORITY 2: UNDERSTAND THE NEEDS OF DIVERSE AND UNDERSERVED COMMUNITIES. - PRIORITY 3: ENSURE EVERY PERSON AFFECTED BY PARKINSON'S IS AWARE OF THE RESOURCES AVAILABLE TO THEM. FORM 990, PART III, LINE 4A (CONTINUED): GLOBAL GENETICS STUDY, PD GENERATION: MAPPING THE FUTURE OF PARKINSON'S DISEASE, OFFERS GENETIC TESTING AND COUNSELING TO PEOPLE WITH PD AT NO COST. THE MORE PEOPLE WHO LEARN IF THEY HAVE A GENETIC FORM OF PD, THE FASTER CLINICAL TRIALS CAN RECRUIT PARTICIPANTS AND THE CLOSER WE COME TO A BREAKTHROUGH IN PD TREATMENTS. FOCUSING ON THESE PROMISING RESEARCH PATHWAYS IS HOW WE CAN CHANGE THE COURSE OF THIS DISEASE IN YEARS, NOT DECADES. FORM 990, PART III, LINE 4B (CONTINUED): KNOWLEDGE AND SKILLS NECESSARY TO PROVIDE COMPREHENSIVE CARE WITH A FOCUS ON THE SPECIFIC NEEDS OF INDIVIDUALS LIVING WITH PD. WE ALSO PROVIDE A LIFE-SAVING HOSPITAL SAFETY GUIDE THAT CONTAINS TOOLS AND INFORMATION IN ENGLISH AND SPANISH TO PROTECT, PREPARE AND EMPOWER PEOPLE WITH PARKINSON'S DURING HOSPITAL STAYS. FORM 990, PART III, LINE 4C (CONTINUED): SPECIALISTS WHO ANSWER QUESTIONS IN ENGLISH AND SPANISH ON NEARLY 25,000 CALLS ANNUALLY. WE ALSO FUND COMMUNITY GRANTS ANNUALLY TO SUPPORT PROGRAMS THAT FURTHER THE HEALTH, WELLNESS AND EDUCATION OF PEOPLE WITH PARKINSON'S DISEASE IN LOCAL COMMUNITIES ACROSS THE U.S. WE BRING LOCAL COMMUNITIES TOGETHER THROUGH MOVING DAY, A WALK FOR PARKINSON'S. THIS NATIONAL GRASSROOTS EVENT HAS RAISED $45 MILLION SINCE INCEPTION TO SUPPORT PARKINSON'S RESEARCH AND LOCAL WELLNESS PROGRAMS ACROSS THE COUNTRY. FORM 990, PART VI, SECTION B, LINE 11B: THE FORM 990 IS PREPARED BY THE FOUNDATION'S ACCOUNTANTS AND IS REVIEWED BY THE BOARD OF TRUSTEES AUDIT COMMITTE AND MANAGEMENT PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C: A CONFLICT OF INTEREST DISCLOSURE STATEMENT MUST BE COMPLETED AND SIGNED BY EACH BOARD MEMBER, OFFICER AND KEY EMPLOYEE OF THE FOUNDATION ANNUALLY. ANY KNOWN OR REASONABLY FORESEEABLE ACTUAL OR POTENTIAL CONFLICT OF INTEREST MUST BE DISCLOSED IN WRITING AS SOON AS POSSIBLE TO THE CFO, CEO, OR A MEMBER OF THE EXECUTIVE COMMITTEE OF THE BOARD. THE DISCLOSURE STATEMENT MUST BE COMPLETED, EXECUTED AND FILED WITH THE FOUNDATION BY ALL INDIVIDUALS SEEKING TO SERVE THE FOUNDATION AS A BOARD MEMBER, OFFICER OR KEY EMPLOYEE PRIOR TO SUCH INDIVIDUALS COMMENCING HIS OR HER SERVICE TO THE FOUNDATION. FORM 990, PART VI, SECTION B, LINE 15A/B: THE PRESIDENT AND CEO'S COMPENSATION WAS ESTABLISHED USING COMPARABLE MARKET DATA, BASED ON ADVICE PROVIDED BY A PROFESSIONAL RECRUITING FIRM RETAINED BY PF. THE FOUNDATION FORMED A COMMITTEE, COMPRISED OF BOARD MEMBERS, TO RECRUIT THE PRESIDENT AND CEO AND THAT COMMITTEE APPROVED THE LEVEL OF HIS COMPENSATION. ALL OF THE KEY EMPLOYEES OF THE FOUNDATION HAVE HAD THEIR SALARIES SET BASED ON MARKET REMUNERATION LEVELS VERIFIED BY INDEPENDENT EXPERTS. FORM 990, PART VI, SECTION C, LINE 19: THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. THE LATEST AUDITED FINANCIAL STATEMENTS AND TAX RETURN ARE ALSO AVAILABLE FOR DOWNLOAD FROM THE ORGANIZATION'S WEBSITE. FORM 990, PART XII, LINE 2C: THE ORGANIZATION'S AUDIT COMMITTEE IS RESPONSIBLE FOR THE SELECTION OF THE INDEPENDENT ACCOUNTING FIRM THAT AUDITS THE FOUNDATION'S FINANCIAL STATEMENTS AND THE OVERSIGHT OF THE ANNUAL AUDIT. FORM 990, PART XI, LINE 9: REVERSED OFF GRANT EXPENSE 705,056 LOSS ON UNCOLLECTIBLE PLEDGES (758,056) (53,000)